| Date post: | 14-Jul-2015 |
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Health & Medicine |
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A n d r e a s H a g e r , Patienteer, Health care development [email protected] n n a E s s é n , Ph D Business Administration, Stockholm [email protected] a r in a A n d r é n , Care Designer and Patient, Karolinska University [email protected]
www.p2icare.se
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P2I Care – A research networkP2I – The individual Patient, Provider and Information used The locus of health care improvement
Patient Provider
IS / IT
T h e c l in ic a l m ic r o s y s t e m- t h e a t o m o f h e a lt h c a r e t o b e r e d e s ig n e d
4500 hrs the last 78 months
Sending sputum and doing monthly check-ups
Testing stuff from the web
And being luckily at a good place
Calling the office
[sound clip]
There are easy to use tools
There are even simple web resources emerging, showing the way
[Movie clip]
There are measures that mean something for all the stakeholders
And we develop some things one on one
Something is missing, there is so much opportunity and so much energy lost in space
This is me, I am a patienteer
Dreaming about what could be healthcare in society
- And have PER- And do PEP
- And start a PEO movement?
- If I could be at PEF not FEV1 - raising the bar
Meeting this guy
And Anna
Staffan has this – movie clipBCG filmen
Using Quality Registries to empower patients
The Swedish Rheumatology Quality Registry
The first patient was included in 1995.
National coverage (69 clinics).
649 registered users.
37.164 patients included in 2010
34.252 patients in treatment
225.307 visits documented in total.
31 171 visits per year.
Includes 55 diagnoses including:
Arthritis, spondylitis,
Inflammatory diseases and vasculites,
Juvenile rhematoid diseases
www.swerre.se 2010-08-30
Statistics
Counties in Sweden
Number of visits last year
Registered patients
Coverage
RA-registry homepage,www.swerre.se
To log on to the register database and PER
General information about the register
Updated news regarding the register
Search for a patient
Menue for your clinic
Professional’s view
Menue for statistical tools
Menue for administration of user account
Search patient
Latest disease activity
Deceased patient
Patient personal number, name, diagnose and clinic
Date of last visit
PER-
Patientent’s sElf Registration
25
Patient’s self-assessment
Pain estimation via VAS entered by patient
Patient’s self-assessment of
swollen and tender joints
28
A n s w e r q u e s t io n s a b o u t p a in , j o in t s w o l le n n e s s , d a i ly f u n c t io n , q u a l i t y o f l i f e
P a t ie n t g e t s p r in t e d o v e r v ie w o f a s s e s s m e n t s o v e r t im e , in c lu d in g m e d ic a t io n s a n d la b -t e s t s .
T h e s p e c ia l i s t e x a m in e s t h e p a t ie n t , in f o r m e d b y t h e p a t ie n t ’ s s e l f -a s s e s s m e n t
P a t ie n t a n d s p e c ia l i s t g o e s t h r o u g h r e s u l t s a n d t r e a t m e n t t o g e t h e r
Studies show....
Hvitfeldt, Helena et al. Feed forward systems-for patient participation and provider decision support. Quality Management in Health Care. 2009.
Eldh, Ann-Catrine. Patient participation-what it is and what it is not. Örebro Universitet. 2006
Augustsson, Jenny et al. Patient- reported swollen and tender 28-joint counts accurately represent RA disease activity and can be used to
calculate DAS28 on a group level. ACR 2008
Houssien D.A et al. A patient-derived disease activity score can substitute for a physician-derived disease activity score in clinical research. 1999.
P r o v id e r s ’ o p in io n s a b o u t
P E R –• Great overview of status and treatment
• The overview makes desicions easier to make
• Work gets more structured
• Data is directly connected to health care
• Saves time• Great tool for follow up
• The visit gets more efficient
P a t ie n s d e f in i t io n o f
in v o lv e m e n t :
* Knowledge about my body, treatments, the
disease and medicines
* To be a part of the planning process
* To be heard and understood
* To be trusted
” M e d ic in e s c o n t r o l m y w h o le l i f e – o f c o u r s e I l ik e t o b e p a r t o f t h e t r e a t m e n t d e c is io n s ”
T h e r e is a s m a l l di f f e r e n c e
b e t w e e n p h y s ic ia n s a n d
p a t ie n t s j o in t s t a t u s .
P a t ie n t s ’ o p in io n s a b o u t
P E R –• Easy to follow disease progress
• Makes you involved in your own care
• The overview is plain and clear
• Overall impression is great
• Great tool regardless of earlier computer
use• Easy to see treatment effect
• The system concretizes how I actual feel
Why is PER a useful tool for patients?
One learns to manage the disease
Increases sense of responsibility
Creates a personalized care process
Enables me to identify patterns
Provides me with a structured diary
Provides ’proof’ of my view and evidence improving research
Gives me power as my subjective assessment is ’evidence’
PER – integrated in everyday practice
• Not an isolated ’add-on’• Directly influences professionals’ decisions in
everyday situations• Generates evidence of the results of care• Provides numerous research opportunities
So we can now imagine and see some solutions.Not only calling in. But having networks connect.
Yet, there is still a long way to go. We need to continue working on the challenges.
