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Methodological Approach

The project methodology of this

assessment work is inspired by the method

of civic information

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Methodological ApproachCivic information may be defined as the

capacity for organized citizens to produce anduse information to promote their own policies

and participate in public policymaking1

This method of civic information has inspiredthe phases of definition, implementation andevaluation of this assessment work.

1 Moro G. Manuale di cittadinanza attiva Carocci editore, Roma 1998, p.135

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Methodological Approach

In particular, the Civic Audit method has been used.

Civic Audit is an application civic information: thedirect production of information by citizensorganizations through the collection of data

data accessible to citizens, through:

- direct observation

- request of information from the health authorities.

Data are formalized as indicators.

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Methodological Approach

Each right of the Charter has been associatedwith a group of indicators, purposely chosen:quantitative variables or qualitative parameterswhich permit to assess the corresponding right.

156 indicators have been selected and

formulated. These indicators constitute theMatrix of the Patients Rights.

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Methodological ApproachFor collection information about indicator s

three sources were utilized:

An Official from theMinistry of Health

Direct Observation of Hospitals andMeetingswith Responsible Authorities

Partner organizations as qualified sources ofinformation on the state of patient rights ineach country

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Methodological ApproachFinally, statistical data have been gathered:

collected at a european level

directly or indirectly concerning aspects linked with theimplementation of the rights

These statistical data do not contribute to the evaluationof the state of rights

included in order to integrate the reading of the othergroups of information gathered, and to provide anotherperspective for reading the outline of the implementationof the rights

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Matrix of the Patients Rights

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Methodological Approach

In order to permit a more "immediate" readingof the results of the investigation, a score wascalculated for every indicator.

The value of the score (from 0 to 100) expressesthe degree to which the information gathered

respects the legitimate expectations held bycitizens.

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Methodological Approach

All of the indicators were grouped together

based on classes of merit, according to the

score attained:

0-40 WEAK

41-70 SUFFICIENT

71-90 GOOD

91-100 EXCELLENT

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Methodological Approach

The synthetic evaluation of each right wasthen formulated by calculating a general

index as an average of the scores of the

groups of indicators: the PRES - Patients Rights Euro Scores

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Methodological Approach

When the index is:

0 50 the right is NOT RESPECTED

51 60 the right is HARDLY RESPECTED

61 70 the right is PARTLY RESPECTED

71 90 the right is ALMOST RESPECTED

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The numbers of the project:

In this monitoring, have been involved:

20 countries;

56hospitals;

23 Ministries of Health;

70 civic organizations;

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Thank you for your attention