CNI Grant 02-227CNI Grant 02-227Use of Clubhouse Model to Improve Use of Clubhouse Model to Improve

Quality of Life of Persons with TBI in Quality of Life of Persons with TBI in Charlottesville and Surrounding AreaCharlottesville and Surrounding AreaNovember 1, 2001 – October 31, 2004November 1, 2001 – October 31, 2004

Leigh Wion, CTRS, CBISThe High Street Clubhouse

Charlottesville, VACNI Community Colloquium

November 5, 2004

Presentation OutlinePresentation Outline

Initial goals and achievement of those initial goals

Identification of outcomesLessons learned

Good ones

Not so good onesQuestions

Initial Project GoalsInitial Project Goals

1. Expand clubhouse program to include persons with brain injury living in the Charlottesville and surrounding communities who are not currently receiving any services from The John Jane Brain Injury Center

2. Transition Clubhouse program from pilot program to permanent program by the 3rd month of the year 1

3. Provide opportunity for members to develop basic job skills including time management, compliance with clubhouse standards, personal hygiene and neat appearance, appropriate social skills, and productivity

4. Independent social functioning

Initial Project Goals (cont.)Initial Project Goals (cont.)

5. Evaluate the efficacy of the Clubhouse Program in improving quality of life, client satisfaction, and community integration

6. Staff training on International Clubhouse Standards at Fountain House

7. In-house staff training through quarterly consultations with Mill House Program Director or designee.

Goal #1 – Expand programGoal #1 – Expand program

Brochures to area community agencies

On-site informational presentations

Develop website for the clubhouse – currently a link on the Virginia NeuroCare site.

Goal #2Goal #2 - Transition from Pilot - Transition from Pilot Program to Permanent ProgramProgram to Permanent ProgramSecond unit coordinator hired in

February 2002Open 5 days/week in April 2002Third unit coordinator hired in

September 2003Steady but slow increase in Average

Daily Membership

Average Daily Members by YearAverage Daily Members by Year

High Street Clubhouse Average Daily Membership

0

1

2

3

4

5

6

7

1 2 3

Grant Year

Nu

mb

er o

f M

emb

ers

Goal #3 – Opportunity to develop Goal #3 – Opportunity to develop basic job skills, etc.basic job skills, etc.Outcome is the development of

Transitional Employment (TE) Currently continue with an

established relationship with one small business in Charlottesville

Goal #4 – Independent Social Goal #4 – Independent Social FunctioningFunctioning Member identification of community

resources, volunteer jobs, and recreational activities.

Implemented weekly clubhouse newsletter that members identified volunteer opportunities and upcoming community events.

Added a leisure satisfaction measurement tool to gather data. See goal #5

Goal #5 – Evaluate efficacyGoal #5 – Evaluate efficacy

Use of Quality of Life Inventory, Satisfaction with Life Scale, and Community Integration Questionnaire.

Surveys administered to members in January and July.

Anticipated a 10% improvement in the first six months and 20% after one year

Added the Leisure Satisfaction Measure in January 2004

Data Comparison – Data Comparison – Life Situation SurveyLife Situation Survey

SURVEY Initial AUG '02 JAN '03 AUG '03 JAN '04 AUG '041 103 104 100

2 71 x x

3 96 x x

4 80 108 x 105 118 80

5 80 86 x 95 64

6 99 102 97 96 93

7 96 80 92 91 80

8 48 88 111 70 106

9 89 86 x 87

10 90 116 94 85

11 93 x x

12 106 115 x 79

13 x 92 89 79

14 92 89 x

15 x 89 x

16 x 110 110

17 98 85

18 83 98 88

19 81 88 93

20 75 87

21

22 91

23

24 92

25 75

COUNT 1 16 16 19 11 13

AVERAGE 90.08 96.42 94.27 90.82 88.64

MEDIAN 93 90.5 93 95 87.5

STDEV 16.18 12.39 12.27 14.12 5.73

HIGH 108 116 111 118 106

LOW 48 80 75 70 64

Data Comparison – Satisfaction Data Comparison – Satisfaction with Life Scalewith Life Scale

SURVEYAUG '02

JAN '03

AUG '03

JAN '04

AUG '04

1 140 120      

2 25 N/A 125    

3 85 N/A 45    

4 105 N/A 45 110 90

5 55 70 95 90 60

6 150 130 120 155 115

7 110 175 175   50

8 175 100 95 175 25

9 50 70      

10 75 135 65    

11 50 N/A      

12 100 50      

13 N/A 50 90 35 45

14 50 80      

15 N/A 55      

16 N/A 115 105    

17         120

18     125 125 130

19     95 40 100

20       60  

21          

22         85

23          

24         145

25         105

           

AVERAGE 90 95.83 96.00 65.00 64.17

MEDIAN 85.00 90.00 95.00 90.00 105.00

ST.DEV 45.23 39.76 35.10 55.89 32.84

HIGH 175 175 175 175 145

LOW 25.00 50.00 45.00 35.00 25.00

Data Comparison – Community Data Comparison – Community Integration QuestionnaireIntegration Questionnaire

TOTAL AV. 16.52 17.06 13.84 13.68 12.54MEDIAN 15.75 15.75 12.25 13.38 11.00

SDEV 6.68 5.98 5.07 3.74 2.73HIGH 27 26.75 22.75 20.5 17LOW 6 8 9.00 7.25 9

SURVEY NO. 8/02 1/03 8/03 1/04 8/041 23 23.5 22.752 263 12.254 10 14.25 11 175 15.75 15.75 13.5 12.56 6 10 9 13.25 117 14.75 8 9.25 7.25 118 9.25 11.25 11 15.25 119 16.75 22.5

10 23 15.5 12.2511 18.7512 27 26.7513 17.5 18.25 18.25 914 12.25 2415 14.2516 15.75 15.517 20.5 15.518 15 15 1619 14.5 9 1522 10.5 13.75 11.524 1125 10

Data Comparison – Data Comparison – Leisure Satisfaction MeasureLeisure Satisfaction Measure

Total Leisure Score - 5.0 max.

Jan '04 July '04

Survey Number

4 2.88 3.30

5 2.54 3.21

6 4.63 4.42

8 3.38 3.21

7 2.29 2.00

13 3.63 3.71

18 3.50 3.54

Goal #6 – ICCD Colleague Goal #6 – ICCD Colleague Training at Fountain HouseTraining at Fountain House Visits to Blue Ridge Clubhouse and The Mill

House prior to opening. One day training at The Mill House.

Long discussions with ICCD Training Coordinator about the acceptance of brain injury clubhouses

Referred to Gateway House in South Carolina for Colleague Training

Attendance at International Clubhouse Seminar in Minneapolis in October 2003

International Alliance of Brain Injury Clubhouses

Goal #7 – In House Staff TrainingGoal #7 – In House Staff Training

• Initial consultation with Program Manager at The Mill House

• Year 1 – Dr. Harvey Jacobs• Year 2 – Cindi Johnson, Side by Side

Clubhouse, Harvey Jacobs• Year 3 – Janet Hill, CNI Program Review• International Alliance of Brain Injury

Clubhouses – list serve and data comparison

Project OutcomesProject Outcomes

Young, developing clubhouse program with established work units

Ongoing relationships and recently new relationships with potential referral sources

Advocacy activities with local legislators Participant in activities of the International

Alliance of Brain Injury Clubhouses Good data collection - limited numbers to

demonstrate statistical significance

Lessons LearnedLessons Learned

At the recommendation of the CNI Advisory Board, The John Jane Brain Injury Center Clubhouse became The High Street Clubhouse on October 1, 2002.

Delay in hiring third staff position until year 3 impacted attainment of goal of volunteer work experiences/TE placements

Meeting the significant case management needs of some members

Lessons Learned - continuedLessons Learned - continued

Shift of focus at the end of year 3 with a move to a new location and resignation of 3rd staff member

Fundraising Lack of sufficient transportation for

outlying members and lack of access to dedicated transportation for clubhouse business

Member recruitment

Questions???Questions???