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Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012
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Page 1: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Community-Based Prematurity Prevention

The Kentucky Experience

HRSA Regional Infant Mortality Summit January 12-13, 2012

Page 2: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Preterm Births, Low Birthweight ,Infant MortalityUnited States, 1981 - 2009

Percent

Source: National Center for Health Statistics, final natality and mortality data

Prepared by March of Dimes Perinatal Data Center, 2007

Rate per 1,000 live births

Page 3: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Three Leading Causes of Infant Mortality

United States, 1990 and 2007*

57

112.7

134.9

130.3

96.5

198.1

0 50 100 150 200 250

SIDS

Preterm / LBW

Birth Defects

1990

2007

Rate per 100,000 live births

Source: National Center for Health Statistics

Adapted from a slide Prepared by March of Dimes Perinatal Data Center, 2007

Page 4: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

PREMATURITY FOCUS FOR INFANT MORTALITY EFFORTS

Prematurity is a prototypical public health problem- can happen to anyone- known risk factors- not just about medical interventions- high prevalence- short and long term consequences- high cost to multiple systems- prevention pays- evidence based policy and practice not well

established

Prematurity more common and more engaging- everyone knows someone who has had a premature baby

Improving systems of care and support for prematurity will also lead to Infant Mortality reduction

Page 5: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

www.healthypeople.gov

Page 6: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Healthy Babies are Worth the Wait

Psychosocial Risk Factors: Perinatal Screening and Intervention

ACOG Committe Opinion # 343

“Biomedical risks, such as complications of pregnancy, concomitant maternal disease, infection, nutritional deficiencies, and exposure to teratogens, are estimated to account for approximately one half of the incidence of low-birth-weight infants and of prematurity and their postnatal sequellae. An important portion of the remaining cases of these adverse pregnancy outcomes may be attributable to psychosocial stress even after controlling for the effects of recognized sociodemographic, obstetric, and behavioral risk factors.”

Page 7: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

• Social Ecological Model

7

Page 8: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

The Life Course Perspective of Health Development

Lu MC, Halfon N. Racial and ethnic disparities in birth outcomes: a life-course perspective.Maternal Child Health J. 2003;7:13-30. 8

Critical Periods

Cumulative Effects

Interaction with

Environment

Health Equity

TIMING

TIMELINE

ENVIRONMENT

EQUITY

Page 9: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Birth Weight and Coronary Heart Disease

Barker Hypothesis

1.5

1.251.15

10.9

0.7

0

0.25

0.5

0.75

1

1.25

1.5

1.75

<5.0 5.0-5.5 5.6-7.0 7.1-8.5 8.6-10.0 >10.0

Ag

e A

dju

sted

Rel

ativ

e R

isk

Rich-Edwards 1997

Birthweight (lbs)

Page 10: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Birth Weight and Insulin Resistance Syndrome

Barker Hypothesis

18

8.4 8.5

4.9

2.21

0

5

10

15

20

<5.5 5.6-6.5 6.6-7.5 7.6-8.5 8.6-9.5 >9.5

Od

ds

rat i

o a

dj u

s ted

fo

r B

MI

Barker 1993Birthweight (lbs)

Page 11: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

• The Brain is the last major organ system to develop

• Lower functions mature first, cortex last

Brain at 35 wks weighs only 2/3 what it will weigh at term

Development of the Human Brain

through Gestation

Cowan WM. Sci Am 241:113, 1979

Page 12: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Late Preterm Outcomes: Childhood

• Increased risk of ADHD and other clinically significant behavior problems– Linnet KM et al Arch Dis Child 2006; 91:655-60– Gray RF et al Pediatrics 2004; 114:736-43– McCormick et al Pediatrics 1996; 97:18-25

• Increased cognitive dysfunction and learning problems– VanBaar AL. Pediatrics 2009; 124:251-7– Chyi LJ et. al. J Pediatr 2008: 153:25-31– Saigal S, et al. Lancet 2008;371:261-69– Pietz et al early Hum Dev 2004;79:131-43

Page 13: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Late Preterm Outcomes: Childhood

• Increased risk Cerebral Palsy and Mental Retardation

– Petrini et al. J Peds, 2008– Moster et al. NEJM 2008; 359:262-73– Himmelman et al. Acta Paediatr; 2005;94:287-94– Moster et al. JAMA 2010; 304(9):976-982 (relative risk of CP 3.7 at 37 weeks)– Talge NM et al Pediatrics 2010; 124:1124-1131 (2-3X incr risk IQ<85)

Page 14: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Late Preterm Infants:Outcomes as Young Adults

Compared to infants born at term, Late Preterm have:

• Increased risk Schizophrenia and mental disorders (RR1.6)

• 40% increased risk for medical disability that severely limits working capacity as an adult

• Long-term neurologic handicap due to prematurity measured in young adults (age 23-29)

Moster et al. NEJM 2008; 359:262-73

Lindstrom K et al. Pediatr 120:70, 2007

Page 15: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Life Course Health Development

Poor NutritionStressAbuseTobacco, Alcohol, DrugsPovertyLack of Access to Health CareExposure to Toxins

Poor Birth Outcome

0 5 Puberty PregnancyAge

Page 16: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

How Risk Reduction and Health Promotion Strategies influence Health Development

FIGURE 4: This figure illustrates how risk reduction strategies can mitigate the influence of risk factors on the developmental trajectory, and how health promotion strategies can simultaneously support and optimize the developmental trajectory. In the absence of effective risk reduction and health promotion, the developmental trajectory will be sub-optimal (dotted curve). From: Halfon, N., M. Inkelas, and M. Hochstein. 2000. The Health Development Organization: An Organizational Approach to Achieving Child Health Development. The Milbank Quarterly 78(3):447-497.

Trajectory Without RR and HP Strategies

0 20

Hea

lth

Dev

elo

pm

ent

40 60 80Age (Years)

HP

RR Risk Reduction Strategies

Health Promotion Strategies

Optimal Trajectory

Protective Factors

HP HPHP

RR

RR

RR

Risk Factors

16

HANDS – strengths-based; builds resilience; hardwires social-emotional pathways; improves family functioning; intervenes early in life course; long term payoff in outcomes

Page 17: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

• Data driven decisions• Research to practice• Standards of care• Evidence-based

practice• Continuous quality

improvement• Late preterm brain

Development• Outcomes• Fetal Origins of disease

• Life course perspective– Critical periods– Cumulative effects– Interactions with

Environment– Protective factors, build

resilience

• Social determinants of health

• Ecological approach• Community-based

interventions (real world)• Prevention pays

Page 18: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

• Implement Health Promotion and Education efforts to Improve Birth Outcomes and Reduce Infant Mortality

• Ensure Quality of Care for all Women and Infants• Enhance Service Integration and Supports for Women and

Infants• Improve Maternal Risk Screening for all Pregnant women• Improve Access to Health Care for Women before, during,

and after pregnancy• Use Data to Understand and Inform Efforts to Promote

Healthy Birth Outcomes and reduce adverse birth outcomes• Eliminate Health Disparities and Promote Health Equity to

improve birth outcomes and reduce Infant MortalityAMCHP Infant Mortality Compendium Draft 1-2012

Page 19: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

The Prematurity Problem The Kentucky Data

For the Kentucky Prematurity Steering CommitteeNovember 14th, 2005Louisville, KY

Prepared by the Kentucky Department for Public Health, Division of Adult and Child Health Improvement

Page 20: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

543,000

520,000

508,356

499,008

480,812

476,250467,201

450,000

500,000

550,000

2000 2001 2002 2003 2004 2005 2006

*2006 preliminary birth data provided by the National Center for Health Statistics; Source: National Center for Health Statistics

March of Dimes Prematurity Campaign

Prematurity Rates in U.S.

U.S. Babies Born Preterm, 2000-2006

Page 21: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

21

Premature Birth Report Card

3

Page 22: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Percent of Live Births that were Preterm*; Kentucky and U.S.

*Preterm birth is defined as any live birth occurring <37 completed weeks gestation

Data Source: March of Dimes Peristats & National Center for Health Statistics

11.6 11.7 11.812.5 12.7 12.7

13.613.3

1414.4

15

12.712.512.312.111.911.611.811.611.41111

0

2

4

6

8

10

12

14

16

1995 1996 1997 1998 1999 2000 2001 2002 2003 2004 2005

Per

cen

t

KY U.S.

Page 23: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Percent of Live Births that were Preterm* Among Southern Contiguous States

11 1

1.6

11

.9

12

.1

12

.3

12

.5

12

.7

11

.3

12

.7 13

.3

13

.6

14 1

4.4 15

10

.7

12

.7 13

.2

13

.4

13

.3 14 1

4.4

11

.6

11

.7

11

.7

11

.8

12

.1

12

.1

12

.313

.4

13

.5 14

13

.8

14

.1

14

.5

14

.7

0

2

4

6

8

10

12

14

16

1993 2000 2001 2002 2003 2004 2005

Per

cen

t

U.S.

KY

WV

VA

TN

*Preterm birth is defined as any live birth occurring <37 completed weeks gestation

Data Source: March of Dimes Peristats & National Center for Health Statistics

Page 24: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

KY singleton Preterm Births Delivered Vaginally

0

500

1000

1500

2000

2500

3000

3500

1993 2000 2001 2002 2003 2004 2005

Nu

mb

er

<=26 wks.

27-28 wks.

29-30 wks.

31-32 wks.

33-34 wks.

35-36 wks.

*Preterm birth is defined as any live birth occurring <37 completed weeks gestationData Source: Kentucky Vital Statistics Files, Live Birth Certificate Files, 1993, & 2000-2005

Page 25: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

KY Singleton Preterm Births by Cesarean Delivery

0

500

1000

1500

2000

2500

1993 2000 2001 2002 2003 2004 2005

Nu

mb

er

<=26 wks.

27-28 wks.

29-30 wks.

31-32 wks.

33-34 wks.

35-36 wks.

*Preterm birth is defined as any live birth occurring <37 completed weeks gestationData Source: Kentucky Vital Statistics Files, Live Birth Certificate Files, 1993, & 2000-2005

Page 26: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Singleton Preterm Birth RatesUS and Kentucky, 1994-2004

Singleton Preterm Births (<37wk)

Late Preterm Births (34-36 wks)

Page 27: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

What is HANDS?

Health Access Nurturing Development Services

Voluntary, intensive weekly home visitation

First time moms or first time dads

Regardless of income

Prenatal to two years of age

Designed to improve both health & social outcomes 27

Page 28: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

31% less Prematurity33% less LBW55% less VLBW70% less Infant Mortality50% less ER Usage29-40% less Child Abuse and

Neglect26% improved/increased EducationLess developmental delays

Outside Evaluator

OUTCOMES

28

Page 29: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

0

2

4

6

8

10

12

Number of Prenatal Hands Visits

Per

cent

of B

abie

s B

orn

Pre

mat

urel

y

Series1 10.7 10.7 8.9 8.4 4.2

No pre-natal HANDS visits* 1-5 6-10 11-15 16+

Prematurity and Number of Prenatal HANDS Home Visits (based on 2000-2003 data for all teen mothers with no prior pregnancies, n=19,369)

The likelihood of having a child born prematurely decreases for mothers

w ho receive at least 6 prenatal HANDS home visits. Higher numbers of prenatal HANDS visits appear to contribute to a furthur reduction in the rate of premature births.

Note: May include families w ho received subsequent post-natal

HANDS visits.

Data sources: Kentucky Vital Statistcs Data and

HANDS participant database

PREMATURITY in HANDS Participants

Page 30: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Mothers who participated in at least 6 prenatal home visits were less likely to deliver a baby prematurely (before 37 weeks of gestation), as compared to HANDS eligible women who received no prenatal HANDS visits.

Prematurity – 31% less

30

Page 31: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

0

0.2

0.4

0.6

0.8

1

1.2

1.4

1.6

1.8

Per

cen

t o

f V

LB

W N

ewb

orn

s

Series1 1.61 1.33 0.85 0.66 0.32

No pre-natal HANDS visits* 1-5 6-10 11-15 16+

Very Low Birth Weight (<1500 grams) by Prenatal HANDS Home Visits (based on 2000-2003 data for all teen mothers with no prior pregnancies, n=19,369)

The rate of very low birth w eight (VLBW) of new borns to teen mothers w as

positively correlated w ith the number of pre-natal HANDS home visits received by the mother. This data provides further evidence that HANDS visits contribute to improved birthw eight outcomes.

Note: May include families w ho received

subsequent post-natal HANDS visits.

Data sources: Kentucky Vital Statistcs Data and

HANDS participant database

VLBW

Page 32: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.
Page 33: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

The BeginningsJoy Marini, M.S.P.A-C

Page 34: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

An Initiative to Prevent Preterm Birth

• A ‘real world’, ecological design using evidence-based interventions in different health care settings (academic, private, clinic-based)

• An innovative, multi-dimensional intervention program designed to prevent “preventable” preterm birth in subgroups of the population where interventions have a likelihood of success in a reasonable period of time

Page 35: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Why Kentucky? State Selection for the first HBWW Primary Criteria (screening states):• Minimum of 40,000 births a year• 2003 state preterm birth rate of 13% or higher• PTB rate that has increased by at least 20% total (10%

singleton) in the past decadeSecondary Criteria:• DPH committed to reducing PTB rates (with focus on the LPTB)• Medical/nursing communities support and commitment• Related professional and state organizations support• High rates of modifiable risk factors• Control site availability• Number of hospitals – centralization of care considerations • NICU financial considerations

  

Page 36: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Kentucky Site Selection High rate of singleton preterm births, especially late

preterm births (34-36 weeks), that has risen steeply over the past decade

High prevalence of preventable/reversible risk factors including smoking, inadequate prenatal care, inappropriate weight gain during pregnancy, and unnecessary obstetrical/medical interventions prior to term/39 weeks.

Delivery volume contributing sufficiently to an overall sample size of 6000 live births in a 3 year period for a total project sample size of 12,000 live births (6000 each in the intervention and comparison sites)

Health community with interest to embrace HBWW, including a strong and functional clinical/public health community with high potential for collaboration

Page 37: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.
Page 38: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Local Partnerships:Varied Practice Models

• King’s Daughters, Ashland • Private practice physicians who deliver at the local hospital• Local health department• Rural community

• Trover, Madisonville • Hospital-based clinic practice; docs, midwives• Centering for low risk patients• Local health department • Rural community

• University of Kentucky, Lexington• University-based clinic practice; residents• Centering for Hispanic Patients• Local health department • Urban community

Page 39: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Five Core Components of HBWW:The 5 P’s

Partnership and

Collaboration

Provider Initiatives

Patient Support

Public Engagement

Progress Measures

Page 40: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

National Partners:Johnson & JohnsonNational March of Dimes

Chapter March of DimesState Department of HealthHospitalsLocal Health DepartmentsLocal MediaKentucky Folic Acid

PartnershipKentucky Perinatal

AssociationKentucky Public Health

Association

Partnerships: The first “P”

Partners

Strategic PlanningImplementation (broadly)Provide ResourcesConvene Local PartnersCommunicationsEvaluation

State/NationalPartners’ Roles

Page 41: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Partnership Structure

•Organizational and financial oversight

Steering Committee

•Primary responsibility for program design and execution

Program Board

•Advise on all aspects of program planning and implementation

•Comprised of state (KY) experts in obstetrics, pediatrics, family medicine, nursing, oral health, public health, epidemiology

Site Council

•Technical assistance in specialized areas of the Program Board•Co

mmunications (CWG), Intervention (IWG), Evaluation (EWG)

Work Groups

•Local organizer to provide on-the-ground support and synchronize program activities in the field

Program Coordinator

Page 42: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Site-specific GrantsHealth Dept. Intervention Sites

Year 1 Year 2 Year 3 (6 mos)

Eval (6 mos)

TOTALS

Community Setting A

25K 25K 12.5K 12.5K 75K

Community Setting B

29K 29K 14.5K 14.5K 86K

University Urban Setting

75K 75K 37.5K 37.5K 225K

Other budget items for the Kentucky HBWW included:• Program coordinator for 6 sites• Consultants (e.g. evaluation, web)• Materials• Meetings

Page 43: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

ImplementationKatrina Thompson, M.S.W.

Page 44: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Five Core Components:The 5 P’s

Partnership and

Collaboration

Provider Initiatives

Patient Support

Public Engagement

Progress Measures

Page 45: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Healthy Babies are Worth the WaitP2 – Provider Initiatives * Grand Rounds (state of art in PTB prevention)

* Brain Growth in Late Preterm Babies * ACOG Guidelines (induction, elective C/S,

progesterone, antenatal steroids, LPTB, etc.) * Aggressive Treatment of Infections, STI

* Resource centers with Cutting edge journal articles and latest research

* Patient Safety (Steve Clark, Kathleen Simpson)* Quality Improvement, provider feedback

* Oral Health Screening & referral* Psychosocial screening & referral* Smoking Cessation (5A’s)* Breastfeeding

Page 46: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Healthy Babies are Worth the WaitP2. Provider Initiatives

Physicians (OB, FP, Peds), Midwives, APRN’sResidentsNursesDentistsPharmacistsHealth educatorsHome visitorsAdministratorsCommunications staffRisk Management staffQuality Assurance staff

Page 47: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Healthy Babies are Worth the Wait

P3. PATIENT SUPPORT* “Every Week Counts” – emphasizing a healthy pregnancy should last to about 40 weeks (term)* Brain Development in the late preterm period* Early referral to public health programs – WIC, home visiting (HANDS), smoking cessation, QUIT line, etc.* Health Literacy- pregnancy diaries on line and hard copy* Promoting pre/interconception care* HBWW Information Items; totes, brochures, posters,

toothbrushes, magnets, picture frames, pregnancy due date wheels, fans, t-shirts, bookmarks, etc. * Text-4- Baby* same messages used in a variety of ways at each of the sites

Page 48: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Patient

Brochures

Page 49: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

HBWW Consumer Surveys• Provided up-to-date, locally relevant KAB information from pregnant women, the target of the

HBWW Initiative• Based on findings, able to tailor educational materials and communication efforts of Initiative

to community needs• Results will be important for evaluation of the Initiative • (baseline vs. 3 year follow-up)

Materials

for

Professiona

ls

Page 50: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Healthy Babies are Worth the Wait

Materials

Page 51: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Healthy Babies are Worth the WaitP4. PUBLIC ENGAGEMENT• Governor’s Announcement at kickoff• Kentucky Toolkit for Community-Based

Prematurity Prevention activities• “Ask me” buttons, T-shirts for staff• “Born too Soon” Documentary by KY PBS• Media stories• Web site• Facebook, Twitter• Professional meetings

Page 52: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

52www.prematurityprevention.org

Page 53: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Healthy Babies are Worth the Wait

“Real World” ecological model

Bundled interventionsDesigned to be adaptable to each community’s assets and resourcesCovered all aspects of best practices in prematurity prevention

Goal to Build better systems of care, support, and awareness within each community

Page 54: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Healthy Babies are Worth the Wait

Reducing elective induction and cesarean delivery before 39 weeks gestation.

• ISW – ACOG practice review (risk management initiatied)• Admitting patients not in labor• Inducing patients with unripe cervix• Standardized criteria for dating

• ISC – Attending review of all elective deliveries• Resident education• Nursing empowerment

• ISE – Quality review and provider report cards• Competition and education• Progressive reduction in rate of elective

& late preterm deliveries every year of project

Page 55: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Provider Interventions

Summary of Inductions and Scheduled C/S of Infants prior to 39 wks GA

PHYSICIANS TotalMedical

Indication

Medical Indication

Rate

Infants Admitted to NICU Who Were

Induced or Sectioned Without Medical

Indication

Doc A 5 5 100% 0

Doc B 3 1 33% 0

Doc C 2 2 100% 0

Doc D 3 2 66% 0

Grade Card for Physicians

Page 56: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Late Preterm BirthMonthly Comparisons

(percent of deliveries)

Jan

Feb Mar Apr May

Jun Jul Aug Sep Oct Nov Dec YR Avg

2006 11 10 10 11 18 13 11 20 13 8 16 10 13

2007 14 21 13 launch

12 10 11 12 11 7 9 8 13 12

2008 12 12 12 11 14 13 10 8 10 10 10 11 11

2009 6 7 7 13 19 7 6 9 8 11 6 11 9

Before implementation of an official dept policy

Provider Interventions

Page 57: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Healthy Babies are Worth the Wait

Oral Health• ISW - Dental hygenist regular presenter in Centering

• Dental Chair in Women’s Center at hospital– When moved to Health Dept a block away, patients did not

go

• ISC - Improved coordination with dental school clinics • increased emphasis with residents and nurses on oral

screening and care for patients• ISE - No dentists in area would treat pregnant

women• Hosted regional meeting with area dentists and OB’s,

nationally known dentist as speaker• Several local dentists then agreed to see pregnant

women referred by their obstetrician

Page 58: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Healthy Babies are Worth the Wait

Substance abuse prevention and management.• ISW - Improved local access to substance-abuse

treatment for pregnant women

– began universal screening for substance abuse as part of prenatal care; non-stigmatizing, non-punative

• ISC - Improved coordination with in-house detox unit for managing substance abuse in pregnancy

– Implemented universal psychosocial screening• ISE - Grand rounds on use of subutex by addiction

specialist for substance abuse in pregnancy– Hospital social worker went to OB offices to see

and do brief intervention with substance-abusing patients

Page 59: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Healthy Babies are Worth the Wait

Co-location of services/ Access• ISW –

• Dental chair in Women’s Center• WIC coordinator presented at Centering

• ISC • Hospital OB nurse educator attended health dept

clinics• Health Dept educator attending hospital OB clinics

• ISE • Hospital social worker goes to OB offices• Health dept staff integrated with pre-admission

teaching

Page 60: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Healthy Babies are Worth the Wait

Psychosocial Screening• ISW –

• Covered depression and mental health in Centering• Initiated substance abuse screening

• ISC • Implemented psychosocial screening in OB EMR• Made questions required fields that could not be

skipped• ISE

• Hospital social worker able to do more screening, brief intervention and referral in OB offices and in hospital

Page 61: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Healthy Babies are Worth the Wait

P 4. PUBLIC ENGAGEMENT ISW – Hospital used for Branding – billboards,

newsletters, T-shirts - Health dept utilized HBWW toolkit with all pregnant women in all programs- Presentations provided HBWW messages to civic groups, faith-based groups, schools, health fairs, home visitation programs, prisons

ISC – Newspaper articles- featured at large March of Dimes events- Community health magazines (hosp & health dept)

ISE – Internal marketing – daily team huddles, paycheck stuffers, staff newsletters- community health fairs, businesses- Local Television stories, Radio PSA’s

Page 62: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Communication Samples

Billboard

Billboard

Newspaper

Page 63: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Community Toolkit

MESSAGES:• Full Term is about 40 weeks

• Unless there are medical complications, women should try to take pregnancy to a full 40 weeks, because….

• Much of the brain development happens in those last 4-6 weeks of pregnancy

• Preventing prematurity improves the lives of families and communities

• Available at www.kfap.org (The KY Folic Acid Partnership)

Page 64: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Measuring Progress and Lessons Learned

Page 65: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Five Core Components:The 5 P’s

Partnership and

Collaboration

Provider Initiatives

Patient Support

Public Engagement

Progress Measures

Page 66: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Healthy Babies are Worth the Wait5. PERFORMANCE/PROGRESS Measures• Evaluation (pre & post surveys, focus groups,

both formative and summative)• Environmental and Policy Changes• Methods to Measure Progress at Site Level• Utilizing Potential Data Sources• Establishing Baseline Measures• Methods to measure community-wide outcomes• Perinatal Outcomes• Quality Improvement Activities • Using Data to Create Change

Page 67: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Percent Change in Preterm and Late Preterm Birth Rates US, KY and Selected Contiguous States, 2006-2008

67

Preterm (<37 wks) Late preterm (34-36 wks)

2006 2007 2008

% Chng 06-07

% Chng 07-08 2006 2007 2008

% Chng 06-07

% Chng 07-08

United States 12.8 12.7 12.3 -0.8 -3.1 9.1 9.0 8.8 -1.1 -2.2

Kentucky 15.1 15.2 14 0.7 -7.9 10.9 11.0 10.2 0.9 -7.3

Tennessee 14.8 14.2 13.5 -4.1 -4.9 10.3 10.0 9.7 -2.9 -3.0

Virginia 12 12.1 11.3 0.8 -6.6 8.6 8.6 8.1 0.0 -5.8

West Virginia 14 13.9 13.7 -0.7 -1.4 10.3 9.9 10 -3.9 1.0

Indiana 13.2 12.9 12.4 -2.3 -3.9 9.5 9.3 8.9 -2.1 -4.3

Ohio 13.3 13.2 12.6 -0.8 -4.5 9.4 9.2 8.7 -2.1 -5.4

Source: NCHS 2010

Page 68: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Percent Change in Program Eligible Preterm Birth Rates at HBWW Sites2006-2010

68

Preterm (<37 wks)

2006 2007* 2008* 2009* 2010**% Chng

07-08% Chng

08-09% Chng

09-10

Intervention East 15.6 15.4 14.4 13.6 13.6 -6.5 -5.6 0

Intervention West 14.8 16.9 15.5 14.0 13.9 -8.3 -9.7 -0.7

Intervention Central 13.3 14.4 13.9 15.1 11.7 -3.5 8.6 -22.5Combined Intervention 14.4 15.3 14.4 14.3 12.9 -5.9 -0.7 -9.8Comparison East 14.4 10.1 9.5 14.4 11.4** -5.9 51.6 -20.8**Comparison Central 21.3 19.4 17.4 18.2 17.0** -10.3 4.6 -6.6**Comparison West 12.5 11.6 10.2 13.3 10.6** -12.1 30.4 -20.3**Combined Comparison 16.6 14.4 13.1 15.9 13.8 -9.0 +21.4 -13.2**

*Program Intervention March 2007 thru Dec 2009** Comparison sites began HBWW interventions in January 2010Data Source: Healthy Babies are Worth the Wait program data; singleton, inborn deliveries only

Sustained effect

Page 69: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Percent Change in Program Eligible Late Preterm Birth Rates HBWW Sites 2006-2010

69

LATE PRETERM (34-36 wks)

2006 2007* 2008* 2009* 2010**% Chng

07-08% Chng

08-09% Chng

09-10

Intervention East 13.3 12.1 11.4 10.8 10.2 -5.8 -5.3 -5.6

Intervention West 11.0 12.2 12.5 11.3 11.7 2.5 -9.6 3.5

Intervention Central 9.1 9.8 8.6 10.9 8.0 -12.2 26.7 -26.6Combined Intervention 10.9 11.1 10.5 10.9 9.6 -5.4 +3.8 -11.9

Comparison East 11.7 8.3 8.3 12.3 9.2** 0 48.2 -25.2**

Comparison Central 14.9 13.1 12.5 12.3 11.2** -4.6 -1.6 -8.9**

Comparison West 10.8 9.0 9.0 11.1 9.2** 0 23.3 -17.1**

Combined Comparison 12.7 10.5 10.3 12.0 10.2** -1.9 +16.5 -15.0**

*Program Intervention March 2007 thru Dec 2009** Comparison sites began HBWW interventions in January 2010Data Source: Healthy Babies are Worth the Wait program data; singleton, inborn deliveries only

Sustained effect

Rest of KY had slight increase LPTB

Page 70: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Healthy Babies are Worth the WaitWHAT WENT WELL?:• Building Relationships and partnerships at all

levels• Accepting that the integrated concept required

different measurement and evaluation than linear cause-> effect

• Systems-building by seeking to identify gaps and fill them according to each community’s needs

• Engagement – people can identify and invest in prematurity prevention

• Motivation to keep it going despite competing priorities through networking and peer to peer learning

• Speeding the time from Research to Practice• KY was able to move the needle on reducing

preterm birth• Gains have been sustained in participating

sites

Page 71: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Healthy Babies are Worth the WaitWHAT MIGHT WE DO DIFFERENTLY?:• Have a dedicated project coordinator at each site• Must have a Physician Champion for improving

quality of clinical care.• Involve the community right from the start – more

community engagement• From the beginning, have an evaluation plan and

data collection plan with timelines so that everyone will know the expectations and be able to see successes.

• Celebrate more and increase project visibility with rewards and recognition

Page 72: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Community Based Prematurity Prevention

ARRA PUTTING COMMUNITIES TO WORK GRANTS – promoting policy and environmental change thru MAPPS:

• MEDIA – social marketing for importance of going to term, late preterm brain development, oral health s, etc.

• ACCESS – coverage, co-location, availability• POINT OF DECISION – Education on avoiding <39

week elective deliveries, Late preterm brain development

• PRICE – costs of prematurity – financial, emotional, and other for families, the health care system, and communities

• SYSTEMS & SUPPORT – identifying and filling gaps in the community systems of perinatal care and support services

Page 73: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Consumer & Public Awareness• Goldenberg et al, 2009. Women’s Perceptions Regarding the Safety of

Birth at Various Gestational Ages. Obstet Gynecol 2009. 114:1254-8

• Survey of 650 women enrolled in an insurance plan who had recently had a baby

“At what gestational age do you believe a baby is considered full term:

– Responses of </=37 weeks 45.7%

– 38 weeks 29.1%

– 39-40 weeks (correct response) 25.2%

• 92% thought that giving birth before 39 wks was safe

Page 74: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Community Based Prematurity Prevention

COMMUNITY TRANSFORMATION GRANTS:• Integrating High Quality Clinical services with

Community resources to create a comprehensive system of [perinatal] care

• Community or state level Policy and Environmental Changes for Chronic Disease prevention

Current CTG Future CTG??

Physical Activity Prematurity reduction

Nutrition Pre/Interconception care

Tobacco Safe Sleep

Page 75: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

Questions for discussionWhat has your state done to implement community

based projects for reducing prematurity and infant mortality?

What interventions can/have been taken to scale in your state?

(e.g. state-wide maternal screening, any-door entry to services)

How are these being paid for?

What ideas might be applied in all states as a regional effort?

Page 76: Community-Based Prematurity Prevention The Kentucky Experience HRSA Regional Infant Mortality Summit January 12-13, 2012.

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