Community Task Force on Oral Health for Individuals withDevelopmental Disabilities

Eastman Institute for Oral Health in partnership with the Golisano Foundation

Lenora A. Colaruotolo, LMSWMarch 12, 2012

Consumer Perceptions & Satisfaction

Purpose of workgroup:

To describe the perceptions and satisfaction with oral health status and available resources for individuals with developmental disabilities

Work Group Members

Karen Black, Public Relations Director, EIOH

Lenora A. Colaruotolo, Social Worker, EIOH

Doug Fisler, Parent Representative,

Heritage Christian Services

Angela Huss, Social Worker, Strong Center for Developmental Disabilities/Kirch Center

Work Group MembersDr. Sangeeta Gajendra, Clinical Chief

Community Dentistry, EIOH

Beth Kettell, Librarian, EIOH

Robert Marketell, Regional Director, Genesee & Western Regions Special Olympics New York

Laura Robinson, Faculty, Division of Neurodevelopmental & Behavioral Pediatrics

Liz Sheen, Nurse Supervisor, CP Rochester

Strategy – Phase IInformation Gathering

• Define what information we want to gather

(who, what, & why)

• Identify collateral contacts

• Determine methods for gathering information

Assessment Questions• WHO individuals caregivers (family, parent/guardian) formal caregivers/agency staff residential habilitation provider

• WHAT experience (expectations/perception, actual) access satisfaction dental health status

Assessment• WHY

Identify Gaps:unmet needsproviders/provider knowledgebarriers to care

Improve Oral Health Status

Collateral Contacts• ARC Monroe County• ARC Orleans County• Continuing Development Services• Fingerlakes Parent-2-Parent• Heritage Christian Services• Ibero American Action League• Lifetime Assistance• Mary Cariola Children’s Center• Urban League

Information Gathering Methods

• Surveys (on-line, e-mail, paper copy)

• Focus Groups

Work Group Progress • 4 meetings

1.January 26th

2.February 16th

3.February 20th (webinar)

4.March 1st

• Develop survey instrument

• Plan survey distribution

Work Group Contact Information• To take survey on-line, go to:

https://www.surveymonkey.com/s/eiohdd2

• To request survey in PDF format:

E-mail Lenora at: Lenora_Colaruotolo@urmc.rochester.edu

Call Lenora at (585)275-6820• To request paper copies & discuss return options:

Call Lenora at (585)275-6820

We welcome your thoughts & ideas

Thank you!