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Complex Neurodevelopmental Disorders Service (CNDS) for Children and Young People The Complex Neurodevelopmental Disorders Service (CNDS) is a specialist tertiary second opinion Autism Spectrum Disorder (ASD) service for children and young people. Nationally commissioned by NHS England CNDS works in collaboration with locality teams. In addition to ASD diagnostic assessments the team also provides consultation and management advice to locality teams for complex cases with established ASD diagnoses. V5 July 17
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Page 1: Complex Neurodevelopmental Disorders Service (CNDS) for ...…The Complex Neurodevelopmental Disorders Service (CNDS) is located at Walkergate Park on Benfield Road in Newcastle. How

Complex Neurodevelopmental Disorders Service (CNDS) for Children and Young People

The Complex Neurodevelopmental Disorders Service (CNDS) is a specialist tertiary second

opinion Autism Spectrum Disorder (ASD) service for children and young people.

Nationally commissioned by NHS England CNDS works in collaboration with locality

teams. In addition to ASD diagnostic assessments the team also provides consultation

and management advice to locality teams for complex cases with established ASD

diagnoses.

V5 July 17

Page 2: Complex Neurodevelopmental Disorders Service (CNDS) for ...…The Complex Neurodevelopmental Disorders Service (CNDS) is located at Walkergate Park on Benfield Road in Newcastle. How

www.ntw.nhs.uk Northumberland, Tyne and Wear NHS Foundation Trust

•Uncertainty about an ASD diagnosis following first line assessment

•Uncertainty about the management of ASD and/or any comorbid developmental or

psychiatric disorders

• Concerns about lack of progress or failure to respond to specific therapeutic

interventions (pharmacological and non-pharmacological)

CNDS provides multidisciplinary assessment and specialist intervention for children

and young people upto the age of 18 years where there is:

Page 3: Complex Neurodevelopmental Disorders Service (CNDS) for ...…The Complex Neurodevelopmental Disorders Service (CNDS) is located at Walkergate Park on Benfield Road in Newcastle. How

• Treatment and Interventions

» Advice on the use of pharmacological Interventions

» Advice on the use of modification of psychological Interventions

» Advice about educational placements

» Intensive parenting work

• Consultation advice to support locality teams

• Training

» Autism Diagnostic Observation Schedule (ADOS 2) training courses

» Other bespoke training considered on request

The CNDS team is based at Walkergate Park, Newcastle upon Tyne and provides day patient, outpatient and outreach services.

•Detailed and expert assessment of children and young people to inform a skills and

needs based intervention plan

•Diagnostic Assessment may include:

» Autism Diagnostic Interview - revised (ADI-R)

» Autism Diagnostic Observation Schedule (ADOS 2)

» Neuropsychological (cognitive) assessment

» Speech and language assessment

» Occupational therapy assessment

» Psychiatric assessment

» Early Years Intensive Group

» Specialist advice and information for families from ASD Parent Support Advisor

The Complex Neurodevelopmental Disorders Service (CNDS) provides:

Page 4: Complex Neurodevelopmental Disorders Service (CNDS) for ...…The Complex Neurodevelopmental Disorders Service (CNDS) is located at Walkergate Park on Benfield Road in Newcastle. How

Vicki Grahame, Clinical Lead, Consultant Clinical Psychologist and

Honorary Clinical Senior Lecturer at Newcastle University

• Chief Investigator on a New Parent Group to manage repetitive

behaviours in young children with ASD.

• Co-author of a treatment manual helping children with ASD and

learning difficulties to understand and manage their emotions.

•Has specialist training in Neuropsychological Assessments in children

and young people.

Biographies

Jeremy Parr, Consultant in Paediatric Neurodisability and

Senior Lecturer at Newcastle University

• Experienced in assessing and advising on the management of

children with a range of complex neurodevelopmental disorders and

neurodisability.

•Works with the regional neurodisability service.

• Research interests include intervention/treatment studies, ASD

research databases and autism genetics.

Eleanor Smith, Consultant Child and Adolescent Psychiatrist

• Experienced in assessing ASD, with a particular interest in the

assessment, monitoring and management of comorbid psychiatric

disorders in children and young people with ASD.

Linda Dixon, Specialist Teacher, Newcastle Bridges School

• Experience of working with children with ASD within specialist and

mainstream settings.

•Has international experience training community based staff in ASD

early intervention work.

• First author of a treatment manual to help parents of young children

with ASD.

Page 5: Complex Neurodevelopmental Disorders Service (CNDS) for ...…The Complex Neurodevelopmental Disorders Service (CNDS) is located at Walkergate Park on Benfield Road in Newcastle. How

Deborah Garland, ASD Parent Support Advisor

•North East Regional Resource Manager for National Autistic Society.

• Expert in supporting parents and facilitating local networks.

•Member of the database for children living in the North East (Daslne)

and regional ASD research studies steering groups.

The CNDS multidisciplinary team includes:

• Consultant Clinical Psychologist

• Consultant Child and Adolescent Psychiatrist

• Consultant Neurodisability Paediatrician

• Trainees in Child and Adolescent Psychiatry and

Paediatrics

• Clinical Psychologists and Assistant Psychologists

•Occupational Therapist

• Speech and Language Therapist

•Nurse Specialists in ASD

• Specialist ASD Teacher

•ASD Parent Support Advisor

•Administrative staff

Page 6: Complex Neurodevelopmental Disorders Service (CNDS) for ...…The Complex Neurodevelopmental Disorders Service (CNDS) is located at Walkergate Park on Benfield Road in Newcastle. How

Who can refer

• Referrals accepted from locality Child and Adolescent Mental Health Services and

Child Health/Paediatric Services.

• CNDS cannot accept referrals from primary care.

How to refer

• Referrals are accepted by post, fax or secure email using electronic CNDS referral form.

• Telephone enquiries welcomed before referral.

Referral criteria

• Clinical uncertainty regarding an ASD diagnosis following an initial multidisciplinary

ASD diagnostic assessment OR specific clinical question about management in context

of an established ASD diagnosis

• Referral must include:

» Completed CNDS referral form

» Clinical question to be addressed

» Summary of current diagnoses/formulation

» Copies of report from initial ASD assessment and any other diagnostic report

• The child or young person must be under 18 years old at the time of referral

• The child or young person must be open to a Child and Adolescent Mental Health

Service or Child Health/Paediatric Service who will retain clinical responsibility for

duration of assessment/consultation.

To discuss a referral, to be sent a copy of the referral form or for further information please contact:

Complex Neurodevelopmental Disorders Service (CNDS) Walkergate Park Benfield Road Newcastle upon Tyne NE6 4QD

Tel: 0191 287 5260 Email: [email protected] Fax: 0191 287 5261 Secure Email: [email protected] Web: www.ntw.nhs.uk

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Service location

The Complex Neurodevelopmental Disorders Service (CNDS) is located at Walkergate Park

on Benfield Road in Newcastle.

How to get there

• By car – CNDS is easily accessible from both the A19 and A1. Follow the A193 and take

the signs signposted to Walkergate Park Hospitals.

• Car parking – There is car parking available on site. Please note car parking is

chargeable.

• Satellite navigation – use postcode NE6 4QD when using a satellite navigation system.

• By bus – The service is easily accessed by bus see www.nexus.org.uk for further

information and timetables.

• By train – Newcastle Central Station is located in the centre of Newcastle and easily

accessed from other areas. The CNDS service is a short taxi or bus journey from the

station.

• By metro – The nearest metro station is located at Walkergate. Walkergate Park is

about a 5 minute walk.

Page 8: Complex Neurodevelopmental Disorders Service (CNDS) for ...…The Complex Neurodevelopmental Disorders Service (CNDS) is located at Walkergate Park on Benfield Road in Newcastle. How

www.ntw.nhs.uk Northumberland, Tyne and Wear NHS Foundation Trust

Newcastleupon Tyne

Dublin

Cardiff Bristol

PlymouthDover

Harwich

Sheffield

Birmingham

Holyhead

Liverpool Hull

Edinburgh

M8

M5

M5

M4

M2

A1M1

A14

A1

M62

M6

M6

A66

A69

A74

Glasgow

Carlisle

York

London

Leeds

Manchester

Belfast

To discuss a referral or for more information please contact:

Complex Neurodevelopmental Disorders Service (CNDS) Walkergate Park, Benfield Road Newcastle upon Tyne NE6 4QD

Tel: 0191 287 5260 Fax: 0191 287 5261 Email: [email protected] Web: www.ntw.nhs.uk

Benfield RoadWalkergatePark

A193

A167

A16

7

A187

A193

A1058Coast R

oad

Jesmond Road

Chillingham Road

Great N

orth Road

Shields Road

Fossway

Shields Road

New Bridge StByker Bridge

Walkergate

NewcastleCity Centre

Heaton

Walker

Jesmond

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