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Connection Counts- Core Elements in Autism Intervention UCSD January 25 2012 (Redacted for Posting)

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    Connection Counts:

    Core Elements in

    Autism Intervention

    January 25, 2012

    University of California at San Diego

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    Director of Research, Graduate School,Interdisciplinary Council on

    Developmental and Learning Disorders

    Assistant Clinical Professor, Voluntary

    Dept of Psychiatry, University of California

    at San Diego School of Medicine

    2

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    Feder 411

    Math, Engineering, and DevelopmentalDisorders beginning 1978.

    US Navy Child Psychiatry

    Mike 1990 (1992)

    Greenspan and Wieder 1993

    Career expansion: clinic, teaching,research, advocacy, tech developmentand arts & media.

    3

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    ICDL

    CAPTN/Pfizer

    SymPlay

    Cherry Crisp

    4

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    Commercials

    Because we build ideas together

    And you can join us in the effort!

    5

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    6

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    Working Together for

    Parent Choice!7

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    The Southern California

    DIR/FloortimeRegional Training Program

    Pasadena, California

    February 24-26, 2012Pasadena Child Development Associates, Inc.

    (PCDA)

    8

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    Tuning Into Each Other

    Customizing Project ImPACT

    to address our key community values and reach younger children for

    the SoCal BRIDGE Collaborative

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    11

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    Thank You!

    Families say a silent thank you

    Greenspan & Wieder Kasari, Gulsrud, Adamson, et. al.

    Jeff Montag

    The BRIDGE Collaborative So many others

    12

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    Outline

    Engagement and other core concepts

    Research shows

    Well do research today! Videos The meaning of Repair

    Questions

    Tips and take home points

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    Conclusions:

    Nurture engagement

    Repair of engagement leads to

    competence and confidence in apersons ability to connect with others

    and to solve problems

    If you look for engagement, you canmake it happen more

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    Taking Notes?

    One word: ENGAGEMENT

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    Moment to moment interactions

    Regulation

    Unengaged

    Object focused

    Engagement

    Intent

    Circles of interaction Repair (Tronick)

    Initiated Joint Attention

    Floortime 18

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    Regulation

    Calm enough to interact

    Not to active, upset, etc.

    Not too calm

    Help the person be regulated

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    Unengaged

    Maybe wandering, or distracted

    Maybe focused on an object (object

    focused)

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    Unengaged,

    Maybe object focused

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    Engagement:

    Emotionally Connected in the Moment

    Warm, trusting, shared

    Balanced feeling of in-sync connection

    The reason we care to learn and grow

    Deep bond or falling in love

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    Engaged:

    (often smiling; doesnt always need

    eye contact)

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    How do you know

    if engagement is there? Often there is a gleam in the eye - like during a

    chase game

    Usually fun and feels good

    You feel it, and feel successful

    Unengaged: frustrating, feel incompetent

    Well see if we can spot it on videos

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    Circles of Interaction

    Child does something (anything) indicating

    intent (any idea tiny or big)

    You do something that adds to what the child

    is doing

    The child completes the circle by doing

    something that builds on what you did

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    First part of a Circle:

    Child is doing something

    Second part of a Circle:

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    Second part of a Circle:

    Adult does something to build on

    childs intent

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    Third part of a Circle:

    Child responds to adult

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    Joint Attention

    Creating a shared moment of attention on an

    object

    Responsive joint attention: when we point out

    something to the child and the child looks at

    us and the object

    Initiated joint attention: when the child gets

    our attention and points something out

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    Initiated joint attention (repair)

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    floortime

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    Research Shows

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    Controlled Examination of

    Critical (Pivotal) Aspects of Intervention

    Gulsrud, Kasari, et. Al. The Co_Regulation of

    Emotions Between Mothers and Their

    Children with Autism. J. Autism Dev Disord

    (2009)

    Kasari, Gulsrud, Wong, Kwon, & Locke.

    Randomized Controlled Caregiver Mediated

    Joint Engagement Intervention for Toddlerswith Autism. J. Autism Dev Disord (2010)

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    Gulsrud & Kasari et. al. 2009:

    Issue: if mom supports Joint Attention, is child

    better regulated? Method: Lab study of 34 dyads; wait list control; 24

    sessions/8 weeks; blind raters code child negativity,self-regulation, and maternal co-regulation.

    Results: 1) lots of negative moments & childrenand moms used these strategies, albeit less of thesymbolic ones; 2) stressed moms used fewer vocalstrategies and more active ones when interactingwith their kids; 3) moms became better at co-

    regulation strategies and children showed moreability to self-regulate negative moments.

    Implications: Joint attention helps co-regulation

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    Kasaris Lab

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    Childs efforts

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    Moms Efforts

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    When moms do better.

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    Their kids to better

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    Kasari & Gulsrud et. al. 2010

    Issue: What is the outcome one year later?

    Method: 15 min video samples at 0, 8, and 52weeks; coded unengaged/ object engaged/ or jointengaged; caregiver adherence and fidelity;

    Results: 1) less object and more joint engagement;

    2) higher caregiver quality of involvement/ fidelitypredicted more joint engagement; 3) adherencewas good but not a factor in outcome; 4) nochange in time unengaged

    Implications: Supporting joint attention makes adifference in future social communication for earlyintervention in ASD; We can study isolated parts ofa broader model

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    uh oh..

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    Out of the Lab.

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    Procedure

    We will watch the video

    We will watch it again

    We will use the voting cups to indicate how

    much we agree a particular moment appears

    to indicate a shift in the state of the child

    We will watch more videos

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    Starting with the master.

    Video: Enticing Alex to Engage:

    http://www.youtube.com/user/dirfloortime#p

    /a/u/2/uqiSR4FUBG0

    4 minutes

    Track unengaged, object focused, engaged,

    circles, and repair of interactions

    http://www.youtube.com/user/dirfloortimehttp://www.youtube.com/user/dirfloortimehttp://www.youtube.com/user/dirfloortimehttp://www.youtube.com/user/dirfloortime
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    Lets see if we can spot these things

    Unengaged Object-

    Focused

    Engaged Circles Repair Comments

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    Lets see if we can spot these things

    Unengaged Objectfocused

    Engaged Circles Repair Comments

    0:00

    0:35

    1:10

    2:03

    2:35

    2:563:11 doll

    3:40 Mom w/h

    3:56

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    Three Brief Videos

    Cuing dad and baby

    Mom and toddler (hide n seek)

    Mom and child (tongue game)

    Well watch each twice (or more)

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    The Meaning of Repair

    N l I i

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    Normal Interactions

    (Tronick 2007)

    Mismatch in moment to moment interaction

    What the child does

    What the caregiver does

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    Normal Mismatch

    1/3 of interactions go well

    1/3 have breaks and repair 1/3 have breaks and are lost

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    Mismatch leads to:

    Able to differentiate self from others

    Increased self-regulatory capacity

    Increased resilience to stress

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    Self vs. Other

    Mismatch means there is a difference

    Forces child and caregiver to respond

    Quality of response makes all the difference

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    Increased Self-Regulatory Capacity

    Repair of small mismatches gives experience

    of repair

    Mismatch becomes more tolerable child

    doesnt get so upset anymore

    The most basic form of competence and self-

    esteem

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    Resilience to Stress

    Long experience with repair

    Creates an ever broader and more nuanced

    ability to repair

    And with that a gradual ability to tolerate

    greater and greater stressors

    Wh t B bi C D

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    What Babies Can Do

    to Respond or Repair

    Social attend (paying attention to the caregiver)

    Signal (with +, -, or neutral affect)

    Object attend (paying attention to an object) Self comfort

    Escape (e.g. turning away)

    Avert/ scan

    Withdrawal (including reduction in posturalcontrol or reduction in perceptual function, e.g.,dull, glassy eyed [dissociation?]

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    What Caregivers Can Do

    to Respond or Repair

    (Caregiver Profile)1. comfort the child

    2. find appropriate levels of stimulation to interest

    the child

    3. pleasurably engage the child

    4. read the child's emotional signals

    5. and respond to the childs signals6. encourage the child (in regulating,

    communicating, learning, etc.)

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    Potential Caregiver Challenges

    Potential caregiver challenges

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    Potential caregiver challenges:

    1. over-stimulating

    2. withdrawn/ unavailable3. lacking pleasure, zest

    4. chaotic in reading/ responding to child

    5. fragmented/ insensitive

    6. rigid/ controlling

    7. concrete in reading/ responding

    8. illogical in reading/ responding

    9. Avoiding: security/safey; dependency;pleasure/excitement; assertiveness/exploring;aggression; love; empathy; limit setting

    10. unstable in the face of intense emotion

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    These Experiences Create Mood States

    Infants of depressed moms are depressed Infants of intrusive moms withdraw

    Infants of neglectful moms complain

    Infants of neglectful moms must try to self-regulate without the help of scaffolding andend up withdrawing

    Infants of abusive moms end up engaging inphysical defensiveness, anger, and increasedvigilance and fear

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    So theres stress, and theres STRESS

    The helpful stress of normal mismatch

    The too common but unhelpful stress of life

    Need to assess the stresses.

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    ManagingChallenges

    Never work alone Schedule regularmeetings With someone who will really listen

    And help you find your own solutions Platinum Rule: A good listener treats you

    with respect so that you have the support to

    be able to tolerate the natural stress ofhelping your child (Treat others as we wantothers to treat others)

    Thi t h

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    This engagement approachreduces parent stress and

    improves child function and parent-child relationships!

    Questions?

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    Tips and Take Home Points

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    How do you engage a child

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    How do you engage a child

    in an interaction?

    Adjust your energy to help him be calm

    enough or active enough to do stuff with him

    Might mean understanding sensory, motor,

    thinking styles and other things.

    Observe. Join. Wait!

    Build on your childs actions: Improv yes, and

    Respond with warmth & try to be natural

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    Go for engagement

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    Go for engagement

    and compliance will come

    Compliance & Engagement:

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    Compliance & Engagement:

    necessary and complimentaryCompliance Engagement

    Do/think what I want you to

    do/think

    Think for yourself and with me

    Drills will create skills Shared emotional signaling creates a

    relationship that inspires learning and

    problem solving

    Schemes to cover new situations Relationships, available and

    internalized, give self-assurance to

    respond to new situations

    Limited sense of competence, self-

    esteem: I can do it. I learned how.

    More full sense of competence, self-

    esteem: I can figure it out.

    Improving your ability to support your

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    Improving your ability to support your

    childs interaction

    Practice reading childs cues

    Think about different way to respond to your

    childs cues

    Getting new ideas: bounce it off of other

    people - get their ideas and figure out what

    works for you.

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    Things to Avoid

    Dont just entertain, quiz, or direct the childwith your games, demands, or ideas

    Dont merely follow the child around use

    the child lead to start off

    Every idea is a good one to play withdont

    say no to the idea - connect and play with

    it. You can set limits as needed.

    hi

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    coaching

    ?

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    What about other kids?

    Start with adults

    Build some skills

    Semi-structured activities with peers

    Limiting numbers of kids

    Mediate the process slow it down

    Statements more than questions Democratic decision making

    Thi i h d

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    Things you might say or do:

    We need to figure out what to do I need help with

    Wait - I didnt hear you

    We can vote on whether he was out.. Semi-structured: at times you direct things,

    but work toward less of it.

    In free play, you join the person in a waythat attracts other kids, then facilitate themix

    C l i

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    Conclusions:

    Nurture engagement

    Repair of engagement leads to

    competence and confidence in apersons ability to connect with othersand to solve problems

    If you look for engagement, you canmake it happen more

    79

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    Symplay:h lik l i il d i i

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    Launch likely in April during Autism

    Awareness Month

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    The Southern CaliforniaDIR/Floortime

    Regional Training Program

    Pasadena, California

    February 24-26, 2012

    Pasadena Child Development Associates, Inc.(PCDA)


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