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KAMILLA VENNER, PH.D. ASSISTANT PROFESSOR UNIVERSITY OF NEW MEXICO CENTER ON ALCOHOLISM, SUBSTANCE ABUSE, AND ADDICTIONS Considerations for Culturally Tailoring Treatments with American Indian/Alaska Native People to Improve Engagement and Effectiveness
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Page 1: Considerations for Culturally Tailoring Treatments with American …fourdirections.evergreencpg.org/wp-content/uploads/sites/... · 2019-10-17 · 6 Reasons to Culturally Adapt Burlew

K A M I L L A V E N N E R , P H . D .

A S S I S T A N T P R O F E S S O R

U N I V E R S I T Y O F N E W M E X I C O

C E N T E R O N A L C O H O L I S M , S U B S T A N C E A B U S E , A N D A D D I C T I O N S

Considerations for Culturally Tailoring Treatments with American

Indian/Alaska Native People to Improve Engagement and Effectiveness

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Intro

Copper River Fish Wheel

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Overview

Substance use and race/ethnicity

Debates around Cultural Adaptations

Reasons to Culturally Adapt

Assessment and Case formulation

Adaptations to Motivational Interviewing (MI)

Adaptations to Community Reinforcement Approach (CRA)

Currently: adapting Community Reinforcement and Family Training (CRAFT)

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NSDUH Alcohol use 2013

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Balance of Strengths & Weaknesses

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Percent Alcohol Dependent in Past Year

Spicer et al., 2003

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0

2

4

6

8

10

12

14

16

2+ races AI/AN AfricanAm

White Hispanic Haw/PacIs

Asian Am

%

%

Past Month Illicit Drug Use by Ethnicity 2012NSDUH

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Percent Abstaining in Past YearSpicer et al., 2003

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Within group differences are noteworthy… (Spicer et al., 2003)

10

0

10

20

30

40

50

60

70

US Population Northern PlainsNative

Southwest Native

% L

ife

tim

e A

bs

tain

er

s

Male

Female

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Alcohol and Substance Use Disorders11

19.2

14.4

14

13.6

10.6

6.5

7.2

7.2

7

5.9

5.1

3.3

3.3

3

2.5

7.7

3.9

3.9

3.3

2.2

0 5 10 15 20 25

AI/An

Black

White

Hispanic

Asian

Past 12 Months

Severe Moderate Mild Any AUD

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Prevalence DSM-5 AUD

0 5 10 15 20 25 30 35 40 45 50

AI/AN

Black

White

Hispanic

Asian/PI

Lifetime

Severe Moderate Mild Any AUD

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Debate about Cultural Adaptations

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Exactly as Developed

Scientific process

If efficacious, provide to other groups and test efficacy or effectiveness

Etic approach of universality of human behavior

If adapt, may lose key ingredients or reduce efficacy or effectiveness

If adapt, not sure if any observed differences are due to new population or to altering method

Cost

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Argument against EBTsGone, 2008

Subtle form of colonization – wipes out culture

Detracts from cultural preservation and revitalization efforts to maintain traditional healing practices

Emphasis on secular rather than sacred (i.e. Calabrese, 2008)

Dyadic rather than communal (i.e. Calabrese, 2008)

Stigmatized services vs admired participation

Lack of acknowledgment and value of indigenous ways of healing

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4 Directions for Culturally Appropriate Treatment (Eap & Hall, 2007; Venner & Bogenschutz, 2008)

Deliver evidence based

treatment (EBT)

Acculturated

Deliver culturally based

intervention (CBI)

Traditional

Integrate EBT and CBI Bicultural or Multicultural

Develop new intervention Bicultural, Multicultural,

Traditional

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EBT Fidelity Continuum

Exactly Retain

as Developed Underlying

Mechanisms

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Reasons to Adapt

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6 Reasons to Culturally AdaptBurlew et al., 2013

1. EBT less effective REMAS was less effective with African American men than

with the non-Hispanic White men (Calsyn et al., 2012)

2. EBT harmful EBT provided to new population (“deviant youth”) iatrogenic

in a group format and deviance increased (Dishion et al., 1999)

3. EBT unacceptable EBT secular; NA healing sacred

EBT in dyads, immediate family; NA healing could be individual, family , or community

EBT often stigmatized; NA healing revered (Calbrese, 2008)

Tribal SUD TX agencies express concerns (Novins, 2011)

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6 Reasons to Culturally Adapt (cont.)Burlew et al., 2013

4. an adaptation would increase attractiveness, engagement, retention, and outcomes

After cultural adaptations to REMAS, African American men’s outcomes were significantly higher than had been in the unadapted version (Calsyn et al., 2013)

5. Acknowledges that cultural traditions influence behavior

6. More respectful to the ethnic cultural group knowledge and worldview

Aids in promoting cultural revitalization & preservation

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Tripartite Model informs adaptations

Every Person is:

Like All Other People (Universal)

Biological, Common Experiences

Like Some Other People (Group/Cultural)

Culture, ethnicity, race, gender, social class

Belonging to a group can be major part of identity

Like No Other Person (Individual)

Individuals are unique

Do not stereotype, more differences within group

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Dimensions for Cultural Adaptations(Bernal et al., 1997)

1. Language

2. Persons: client and therapist (e.g. ethnic matching)

3. Metaphors: symbols and concepts (e.g., sayings)

4. Content: cultural knowledge, values, traditions

5. Concepts: treatment (e.g. dependence; assertiveness)

6. Goals: related to positive and adaptive cultural values

7. Methods: (e.g. modeling, cultural reframing, formality)

8. Context: (e.g. phase of migration, acculturative stress)

22

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Case Formulation & Assessment

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Assessing Causal Model

Development

Cause of problem

Distress/unwellMethod to address

problem

Restoration/Healing

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Biopsychosocialspiritual

Spiritual

Social

Psycho

Bio

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Collision of Two Cultures

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Kleinman’s Interview Questions

1. What do you call this problem?

2. What do you believe is the cause of this problem?

3. What course do you expect it to take? How serious is it?

4. What do you think this problem does inside your body?

5. How does it affect your body and your mind?

6. What do you most fear about this condition?

7. What do you most fear about the treatment?

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Kleinman’s Suggestions

“First, get rid of the term ‘compliance.’ It’s a lousy term.

Second, instead of looking at a model of coercion, look at a model of mediation. Go find a member of the Hmong community, or go find a medical anthropologist, who can help you negotiate. Remember that a stance of mediation, like a divorce proceeding, requires compromise on both sides. Decide what’s critical and be willing to compromise on everything else.

Third, you need to understand that as powerful an influence as the culture of the Hmong patient and her family is on this case, the culture of biomedicine is equally powerful. If you can’t see that your own culture has its own set of interests, emotions, and biases, how can you expect to deal successfully with someone else’s culture?”

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Kleinman case formulation (2006)

Step 1: Ethnic Identity

Step 2: What is at Stake

Step 3: The Illness Narrative

Step 4: Psychosocial Stresses

Step 5: Influence of Culture on Clinical Relationships

Step 6: The Problems of a Cultural Competency Approach

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DSM-5

Cultural Case Formulation

16 questions

Semi-structured interview

Cultural definition of the problem

Cultural perceptions of cause, context, and support

Cultural factors affecting self coping & past help seeking

Cultural factors affecting current help seeking

Cultural Concepts of Distress (examples)

Ataque de nervios

Dhat

Kufungisisa

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Case Conceptualization Aboriginal

Kilcullun & Day 2018

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Language

If more than one language is spoken, how might our services be impacted or adapted?

Which language was spoken first? Spoken in the home? Preferred in therapy?

Language spoken determined proximity when conversing

Which language helps client access emotions?

What associations does the first language spoken bring up?

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Strengths

1. Well-being,

2. Coping with daily hassles,

3. Social support,

4. Former coping within crises,

5. Recent experiences boosting self-esteem,

6. Personal strengths and skills,

7. Interpersonal relationships, and

8. Commitment to personal growth

Bern Resource Inventory (BRI; Trösken & Grawe, 2003)

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Cultural Identity

Assessing cultural identity and salience

Avoid stereotyping by assessing cultural identity

Acculturation Strategies

Integration

Separation

Assimilation

Marginalization

Measures

https://www.ncbi.nlm.nih.gov/books/NBK248425/

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Spirituality & Community

Spirituality

May be nuanced and complicated

Native American Spirituality Scale

Community

Community connectedness

Awareness of Connectedness Scale

Resource

Stress

Meaning

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Collectivism

People place relatively more emphasis on collective goals: specifically of their ingroup

Decision making

Conformity

Arranged marriage

Classes of schoolchildren being promoted together regardless of performance of individual children

Motivated more by failure (Japan)

Children sleeping with their parents

Companies compensate employees on how long employed (not individual merit)

Extended families living under one roof

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Connectedness

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Secularization?

Secularization theory: Perception among many that as the world progresses, there will be less reliance on religious explanations of the world around us.

This trend is culturally constrained, with religiosity rising in some regions of the world.

© 2016 by W. W. Norton & Company

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Religious belief

© 2016 by W. W. Norton & Company

Pew Research Center, 2009

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Belief in God by age group

Pew Research Center, 2014

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US Pew Research Center 2018

© 2016 by W. W. Norton & Company

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Historical Trauma

Warfare

Forced removal from ancestral lands

Boarding SchoolsImpact on family functioning, parenting, attachment, trauma

Prohibiting traditional spirituality

Prohibiting use of native language

Genocide

Current thoughts about historical traumaLoss of land

Loss of language

Etc.

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Discrimination

DiscriminationInterpersonally mediated

Intrapersonally mediated/Internalized

Structurally mediated

MicroaggressionsMicroassaults

Microinsults

Microinvalidations

Measures

https://scholar.harvard.edu/files/davidrwilliams/files/measuring_discrimination_resource_june_2016.pdf

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Indigenist-Stress Coping Model

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How do you adapt treatment for your specific populations?

Racio-cultural

Gender orientation

Sexual orientation

Socioeconomic status

Religion/Spirituality

Nationality

Immigration, refugee, asylum seeking statuses

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Areas for Adapting

Muñoz and Mendelson (2005) recommended writing manuals to adapt ESIs for diverse populations with involvement from the community.

In addition, they encouraged the consideration of the impact of factors such as:

cultural values,

religion and spirituality,

acculturation and

racism

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Adapting MI with Native Americans

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Motivational Interviewing

Treatment for individuals in various stages of change

Particularly helpful for clients in the contemplation stage of change

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Why MI

Interest from AI/AN

AI/AN people resonate with MI

“I believe the concept of MI is already within our culture.”

MI spreading around the world

Cross-cultural aspects

Resonates with many AI/AN

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Why MI with AI/AN?

Better outcomes with Motivational Enhancement Therapy than with Twelve Step Facilitation Approach (Villanueva, Tonigan & Miller, 2002)

Meta-analysis found that the effect size of MI doubles for ethnic minority clients (0.79) vs NHW (0.26)

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MI Trainers and Translations

Afrikaans Arabic Bulgarian Cantonese Catalan Creole (Haiti) Croatian Czech Danish Dutch English Estonian Finnish Fon French

Serbian Sesotho Sign (U.S.) Slovenian Sotho Spanish Swedish Tamil Tswana Turkish Urdu Ukranian Xhosa Zulu

Gaelic German Greek Hebrew Hindi Italian Japanese Korean Mandarin Norwegian Persian/Farsi Polish Portuguese Punjabi Romanian Russian

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Native American Motivational Interviewing:

Weaving Native American and Western Practices

A Manual for Counselors in

Native American Communities

Kamilla L. Venner, PhD (Alaska Native)

Sarah W. Feldstein, MS

Nadine Tafoya, MSW, LISW (Mescalero Apache)

http://casaa.unm.edu/nami.html/

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May need to adapt MI if…

The setting may not seem welcoming

Maybe no signs of AI/AN culture

Maybe no AI/AN providers

The person may not feel comfortable talking about AI/AN culture

Person not sure if anyone will understand them

Adaptations may help make MI make more sense, more culturally relevant

Help person connect motivations to culture, spirituality, family, etc.

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How might we adapt MI?

Aspects of the setting

Décor, AI/AN staff, questionnaires, resources

Asking Open-ended questions about culture

Reflections including culture

Understandings of the problem

Motivations to change the problem

Ideas for how to change the problem

Cultural supports for the change

Explore interest in traditional healing

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As one Pueblo elder recommends,

“Pray in your way, whichever way you know how.”

Guide me to be a patient companion

To listen with a heart as open as the sky

Grant me vision to see through her eyes

And eager ears to hear her story

Create a safe and open mesa on which we may walk together

Make me a clear pool in which she may reflect

Guide me to find in her your beauty and wisdom

Knowing your desire for her to be in harmony –

healthy, loving, strong

Let me honor and respect her choosing of her own path

And bless her to walk it freely

May I know once again that although she and I are different

Yet there is a peaceful place where we are one

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Engaging

Focusing

Evoking

Planning Bridge to Change

Strategic Centering

Four Fundamental Processes* of MI

*Replaces prior Phase 1 & Phase 2

Relational Foundation

Transition to MI

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Engaging Process: Introductions

Greet the spirit in each person

Introduce self in terms of heritage, clans

Figure out clan relationship and call client by the relative term (e.g., father, mother, son etc)

Honor each person

“We have to honor the wisdom in the client and then to be able to not see a person that’s an alcoholic, but see that person in the community that’s a grandmother or grandfather, honoring them for who they are, and everyone has wisdom, to bring that honor to them and (to allow) their wisdom to come out.”

~ Navajo female participant

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Engaging Process: OARS

Open-ended questions

Affirmation

Reflection

Summary

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Open questions to understand culture

What do you think caused this problem?

What is the best way to improve/heal?

How might stressors such as poverty or discrimination affect your health?

How important is your Native American heritage/culture/identity to you?

How important is spirituality to you?

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Focusing Process

Agenda setting

Providing information

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Drugs

Alcohol

Housing

Diet/Food/ Exercise

Discrimination

Physical health

Cultural Identity

Spirituality

Taking Care of Self

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Elicit-Provide-Elicit (EPE)

Providing information in an engaging manner

Elicit: What do you already know about (topic)

Provide: Research shows_____________

Elicit: What do you make of that?

E: What do you know about Native Americans and drinking?

P: Native Americans have both higher rates of alcohol use disorders and higher rates of abstinence.

E: What are your thoughts about that?

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Evoking Process: Elicit culture

How person thinks the problem began

Cultural beliefs about how to heal

Explore strengths and values of culture

Personal characteristics (warrior, leader, role model)

Family, clan, religious society, community support

Role in community: role model, member of religious group or society, dancing, preparing food, etc.

Open questions

How might spirituality affect your health? How might spirituality help you with this problem? How is this problem affecting your family? How might your family support you?

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Rulers

0. . .1. . .2. . .3. . .4. . .5. . .6. . .7. . .8. . .9. . .10

ExtremelyNot at all

64

On a scale of 0 to 10, how important is it for you to make this change?

…how confident are you that you could make this change?…how ready are you to make this change?

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Adapted Version

It is not important to make a change

You are unsure about making a change

It is important to make changes

It is extremely important to make changes

You haven’t prepared the ground for planting

A seed is in the soil but hasn’t been watered

Your plant just broke through the soil

Your plant is ready to be harvested

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WHEN IS IT NOT A GOOD IDEA TO INCLUDE

RELIGIOSITY/SPIRITUALITY ?

WHAT ARE IMPORTANT CONSIDERATIONS IN

INCLUDING SPIRITUALITY/RELIGIOSITY IINEVIDENCE BASED TREATMENT?

How might you include spirituality or religiosity with clients?

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Adapting CRA

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First CRA Therapist Manual

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Community Reinforcement Approach

Based on Operant behavioral principles

Substances are reinforcing

CRA helps clients build a sober life that is more rewarding than substance use

Rewards sober behaviors

Skills building approach Coping with Urges; Sobriety Sampling

Job seeking; Relationship building

Originators: Nate Azrin, Robert Meyers & Jane Ellen Smith

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MICRA

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CRA Forms

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Happiness Scale

Arts and Crafts 1 2 3 4 5 6 7 8 9 10

Spiritual and Cultural 1 2 3 4 5 6 7 8 9 10

Extended Family 1 2 3 4 5 6 7 8 9 10 Relationships

Health and Wellness 1 2 3 4 5 6 7 8 9 10

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Communication Skills

Many of these adaptations based on Native American counselors from the same reservation

Discussion around drug refusal and assertiveness skills

Acceptable to be assertive in ways similar to mainstream U.S.?

Acceptable to escalate firmness of communications to refuse substances from others?

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“Community” in CRA

In small communities and Native American communities, each person has a role(s) to play

Very important to well being of the community and individual for each person to fulfill their role and live in harmony and balance

Reconnected with community: extended family, church, religious societies, community dances, feast days, NA religious observances

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Native American Spirituality Scale

I believe life is sacred

I value my life and everyone’s around me

All things are related to one another

I wake up early and pray to creator/ancestors

In the evening I express thanks

I find strength in my faith and spirituality

I watch the tribal dances and feel a greater sense of wellbeing

I participate in cultural/faith related activities

I am spiritually touched by participating in my faith

I believe everything is alive with a spirit

I feel thankful for my understanding of my faith & beliefs

I want to learn more about my tribe’s protocol and way of life

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Conclusions

Two evidence-based treatments were well-received within this SW pueblo community

Adapted MI and CRA appear effective in:

Increasing Percent Days Abstinent from alcohol (d=.68)

Improvements on 5/7 ASI subscales (except Job & Family)

Decreasing psychological distress (d =.75)

Small decreases in hopelessness (d=.37)

Small increases in self-efficacy (d=.20)

Increases in spirituality

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Currently: Adapting CRAFT

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CRAFT

Works with loved ones (concerned significant others; CSOs)who are worried about a person (identified patient; IP) with substance use problems who refuses to seek treatment

Based on operant behavioral principles

Goal of CSO rewarding sober behavior in IP

Help CSO withdraw rewards when IP using substances

Improve communication skills to focus on positive interactions

Invite IP to enter treatment

Help CSO improve own life; increase pleasant activities

Efficacy and effectiveness About 70% IP enter tx; CSO improved mental health functioning

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Potential Adaptations

Infusing spirituality throughout intervention

May include traditional NA healing as a positive outcome (vs only SUD treatment programs)

Culturally congruent communication styles

Brainstorming who may be the most effective and appropriate person(s) to invite IP to enter treatment/healing (e.g., gender, age, religious leader)

Culturally congruent pleasant activities

Culturally congruent explanations of SUDs in terms of etiology and treatment/healing

Forms; measures

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First Nations Ontario

Elder woman

We women don’t always take good care of ourselves

When I walk, I want to look at the beauty of the plants. When I was small, we would sit together and watch the full moon.

We need to have good words for each other.

Our job is to take care of each other. Harsh words hurt; positive words help/heal

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Next: Culturally Center Medications for OUD

AI/AN as original pharmacists

Model of addiction

How do people recover

View of medications for infection, chronic illness like diabetes or cardiovascular disease

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Summary

There is no one treatment that is superior to all other treatments and not one treatment fits all

There are many reasons to culturally adapt EBTs and growing evidence in the literature

Tension between fidelity to EBTs and cultural adaptations Cultural adaptations are individualized to the client to

avoid stereotyping and ignoring important group level identities

Cultural adaptations should be considered for assessment, case conceptualization, treatment choice, treatment delivery, and measurement of outcomes among others

Cultural adaptations may improve the treatment for mainstream populations as wel

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Kleinman quote (2006)

This is much different than cultural competency. Finding out what matters most to another person is not a technical skill. It is an elective affinity to the patient.

And its main thrust is to focus on the patient

as an individual, not a stereotype;

as a human being facing danger and uncertainty, not merely a case;

as an opportunity for the doctor to engage in an essential moral task, not an issue in cost accounting.

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Tsin ‘aen


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