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Content Modelling for VIEW Datasets Using Archetypes
Koray Atalag1, Jim Warren1,2, Rod Jackson2 1.NIHI – University of Auckland2.Department of Computer Science – University of Auckland3.School of Population Health – University of Auckland
What’s VIEW• Smart (!) name Vascular Informatics using Epidemiology & the
Web (VIEW)• Building on PREDICT CVD-DM (primary care)
– Extending to secondary (acute Predict)– Improving risk prediction models– Creating a variation map/atlas of NZ
• Data linkages to:– National Mortality Register, – National Minimum Dataset (public and private hospital discharges)– National Pharmaceutical Collection (drugs dispensed from community
pharmacies with government subsidy)– National PHO Enrolment Collection– Auckland regional CVD-relevant laboratory data from DML– TestSafe (in progress)
Objectives of this study
• Extend existing data management capabilities;– Define a canonical information model (openEHR)– Normalise and link external datasets– Ability to extend without compromising backward
data compatibility – future-proofing• Create a state-of-the-art research data
repository– Transform existing datasets into full-EHR records– Data integration using model as map– Powerful semantic querying & stata on the fly
Archetypes
• Smallest indivisible units of clinical information– Preserving clinical context – maximal datasets for given concept
• Brings together building blocks from Reference Model
• Puts constraints on them:– Structural constraints (List, table, tree, clusters)– What labels can be used– What data types can be used– What values are allowed for these data types– How many times a data item can exist?– Whether a particular data item is mandatory– Whether a selection is involved from a number of items/values
Logical building blocks of EHR
Compositions
EHR
Folders
Sections
Clusters
Elements
Data values
Entries
Example Model:Blood Pressure Measurement
BP Measurement Archetype
PREDICT Dataset Definitions
Current Model
NZ Extens
ion
Results
• Archetype based content model can faithfully represent PREDICT dataset
• Modelling: – two new archetypes‘Lifestyle Management’ and ‘Diabetic
Glycaemic Control’ checklists – NZ extensions for demographics (DHB catchment,
meshblock/domicile, geocode NZDep)• Difficulty: overlap between openEHR and NEHTA
repositories – different archetypes for tobacco use, laboratory results and diagnosis which we reused– Considering both repositories are evolving separately it is
challenging to make definitive modelling decisions.
Potential Benefits
• High level of interoperability and increased data linkage ability
• Important for research data sharing• Can sync more frequently (even real-time!)• Can leverage biomedical ontologies (through
Archetype terminology bindings and service)• Can perform complex and fast queries on
clinical data (real-time decision support)
Bigger Picture
• Interoperability for clinical information systems – great– But what about population health & research?
• Research data also sits in silos – mostly C Drives or even worse in memory sticks!
• Difficult to reuse beyond specific research purpose – clinical context usually lost
• No rigour in handling and sharing of data
Shared Health Information Platform (SHIP)
VIEW extensions ECM
Source System Recipient System
Source data Recipient data
Exchange Content Model
Conforms to
Map Source to
ECM
Map ECM to
Recipient
Message Payload (CDA)
Exchange Data
Object
Web Service
Working Principle