SERVING PATIENT COMMUNITIES THROUGH SOCIAL MEDIA

ECCO/ESMO STOCKHOLM 2011

Denis Costello

Web Communications Officer, EURORDIS

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EURORDIS at your servicewww.eurordis.org

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Serving the Patient Community

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Blogs – e-advocacy: developing the patients’ voicehttp://www.rarediseaseblogs.net

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Engagement via Twitterhttp://www.twitter.com/eurordis

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Rare Disease Day – An awareness platformhttp://www.rarediseaseday.org

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Live streaming – grow an audiencehttp://www.livestream.com/eurordis

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Example – Networking patientswww.marshallsmith.org

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Example –collaborative authoringwww.marshallsmith.org

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www.rareconnect.org

Patient reported outcomes:

- Treatments- Side effects- Quality of Life

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Q & A

Thank you!You can also email me:

denis.costello@eurordis.org