DATUM for Health – Healthy research needs healthy data

I’ve collected my data, so what do I do with it now?

Research data managementSession 1

Introduction to Research Data Management

DATUM for Health – Healthy research needs healthy data 2

Programme introduction

Aims & content of the sessions1. introduction to RDM2. data curation lifecycle3. problems and practical strategies and solutions

Materials on the eLP / emailed

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Overview

Introduction to the overall programme What is research data? Why is research data management important? How should I manage my data?

developing a data management plan What next?

directed learning tasks

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Learning outcomes

By the end of this session you should: understand why you need to manage research

data be aware of the issues surrounding research data

management in the health discipline be able to complete an initial plan for managing

your own research data

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What is research data?

In your PhD1. what data are you using?2. what data are you creating?

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What is research data?

In your PhD1. what data are you using?2. what data are you creating?

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Where is your research data?

In your PhD3. where is the data?

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Where is your research data?

In your PhD3. where is the data?

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Reasons to manage research data

Why is research data management important?

1. 2. 3. ......

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Reasons to manage research data

Why is research data management important?

1. a requirement

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Reasons to manage research data

Why is research data management important?

1. a requirement 2. to work effectively &

efficiently

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Reasons to manage research data

Why is research data management important?

1. a requirement 2. to work effectively &

efficiently 3. to protect it

Courtesy of Mike Flanagan www.flantoons.btinternet.co.uk/business/security.html

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Reasons to manage research data

Why is research data management important?

1. a requirement 2. to work effectively &

efficiently 3. to protect it4. for use and/or re-use

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Reasons to manage research data

Why is research data management important?

Portion of the original map created by Dr. John Snow  www.csiss.org/classics/content/8

1. a requirement 2. to work effectively &

efficiently 3. to protect it4. for use and/or re-use

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Reasons to manage research data

Why is research data management important?

{Google mash up of data}

Dr John Snow’s location of cholera infections in London,(1840s) by address (Courtesy: Ed Parsons, Google Europe)

1. a requirement 2. to work effectively &

efficiently 3. to protect it4. for use and/or re-use

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Reasons to manage research data

Why is research data management important?

1. a requirement 2. to work effectively &

efficiently 3. to protect it4. for use and/or re-use5. to share it

Stephen Gray ‘Why should researchers share their data?’

Fanar Haddad‘Tips for using YouTube in research’

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Reasons to manage research data

Why is research data management important?

1. a requirement 2. to work effectively &

efficiently 3. to protect it4. for use and/or re-use5. to share it6. for preservation

“digital information lasts forever - or five years, whichever comes first”

Jeff Rothenberg, 1995

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Reasons to manage research data

Why is research data management important?

1. a requirement 2. to work effectively &

efficiently 3. to protect it4. for use and/or re-use5. to share it6. for preservation7. because it is good

research practice

Because good research needs good data

Dr Andrew Wakefield et al. (1998),Ileal-lymphoid-nodular hyperplasia, non-specific colitis, and pervasive developmental disorder in children, The Lancet, Vol 351 No 9103, pp. 637-41

Sir Cyril Burt (1883-1971)Heritability of intelligence as measured in IQ tests with twins

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Reasons to manage research data

Why is research data management important?

“Data management is essential to excellence in research”Professor Charlotte Clarke, Associate Dean for Research, School of Health, Community and Education Studies

“Apart from the benefits for research, good data management is vital for many reasons: accountability, security, appropriate data-sharing, re-use protocols and preservation for example” Prof Julie McLeod, School of Computing, Engineering & Information Sciences

www.northumbria.ac.uk/browse/ne/uninews/datamanagement?view=Standard&news=archive

1. a requirement 2. to work effectively &

efficiently 3. to protect it4. for use and/or re-use5. to share it6. for preservation7. because it is good

research practice

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How do I manage my research data?

The data lifecycleplan

create/ capture

analyse & use

use / re-use

preserve

share

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UK Data Archivewww.data-archive.ac.uk/create-manage/life-cycle

How do I manage my research data?

The data lifecycle

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How do I manage my research data?

The data lifecycleplan

create/capture

analyse & use

use / re-use

preserve

share

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The Data Management Plan

Details about how your research data will be: created & captured managed shared protected and preserved

helps you to properly manage your data for your use, meet funder needs & enable sharing

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A Data Management Plan: DCC templateww.dcc.ac.uk/dmponline Minimal version – e.g. for use at the IPA / grant application stageCore version – e.g. developed at the early project stage

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A Data Management Plan: DATUM for Health templatewww.northumbria.ac.uk/datum Simplified version of the DCC template – for use at any stage of your PhD

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Developing a DM Plan

The JUDGE project brief project outline develop a DMP for this

project based on the information provided

imagine you are the researcher doing this at the start of the project imagine it is starting now

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Developing a DM Plan

The JUDGE project discussion about the

DMP for this project content process

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Research data management issues

what issues arise in managing research data? particularly in relation to

qualitative data in the health studies discipline

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Research data management issues

what issues arise in managing research data? particularly in relation

to qualitative data in the health studies discipline

policy / requirements research funders / law

ethics consent, what to keep

philosophical issues sharing

data re-use; security what & how

creation, organisation, storage, retention, protection, preservation

tools

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Directed learning

Start to develop a DMP for your research use the DATUM for Health template we will review it in Session 2

Watch a RDM video ‘How can researchers ensure that they’ll be able to share,

archive or re-use sensitive data?’ Louise Corti, UKDA, Essex University www.lib.cam.ac.uk/dataman/training.html#Interviews

DATUM for Health – Healthy research needs healthy data

Project funded by JISCCopyright holder: Northumbria University, School of Computing, Engineering & Information Sciences, 2011Materials made freely available under a Creative Commons Attribution-NonCommercial-ShareAlike 2.0 UK: England & Wales license

DATUM for Healthwww.northumbria.ac.uk/datum