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Dementia Friendly London
Dementia Friendly London
Dementia Friendly London
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Dementia in London ––Estimated number of people
living with dementia in London:
72,000
––Estimated number of people
under-65 living with dementia
in London: 4,200
––Average dementia diagnosis
rate in London (March 2015):
62.3%
––The total societal cost of
dementia in London is
estimated at £2.4 billion
per year (2012/13 prices),
with an average cost of
£32,850 per person per year.
– £430 million
is spent on healthcare costs
– £925 million
is spent on social care costs
(publicly and privately funded).
– £1060 million
is contributed by the work of unpaid
carers of people with dementia
– £10 million
in spent on other costs, including
police costs of missing person
enquiries, advocacy services
and research
––Unpaid care accounts for 73%
of the total cost of people with
dementia living in the community,
and 44% of the total cost of
the overall dementia population
in London
Dementia Friendly London
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People affected
by dementia
have told us
• We have the right to be recognised as who we are, to
make choices about our lives including taking risks, and
to contribute to society. Our diagnosis should not define
us, nor should we be ashamed of it.
• We have the right to continue with day to day and family
life, without discrimination or unfair cost, to be accepted
and included in our communities and not live in isolation
or loneliness.
• We have the right to an early and accurate diagnosis,
and to receive evidence based, appropriate,
compassionate and properly funded care and treatment,
from trained people who understand us and how
dementia affects us. This must meet our needs,
wherever we live.
• We have the right to be respected, and recognised as
partners in care, provided with education, support,
services, and training which enables us to plan and make
decisions about the future.
• We have the right to know about and decide if we want to
be involved in research that looks at cause, cure and
care for dementia and be supported to take part.
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Prime Ministers Challenge on Dementia
2012 - 2020
The National Response
• Prime Minister’s Challenge on Dementia
launched in launched in 2012 (renewed
commitment in 2015)
• Risk Reduction, Health and Care, continuing
investment in research and creation of Dementia
Friendly Communities
• Prime Ministers Champion Group and sub-
groups tackling different issues
• National and local government leadership on
dementia
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The National Response
• Over 200 communities working towards
becoming dementia friendly
• 2.3 million Dementia Friends (4 million by 2020)
• British Standards Institute: Code of practice for
the recognition of dementia-friendly communities
in England
• Sector- specific guidance
Guidance and resources
• Dementia-Friendly Financial Services Charter
• Dementia-Friendly Employers’ Guide
• Dementia-Friendly Arts Venue Guide
• Dementia-Friendly Technology Charter
• Accessing and Sharing Information
• Dementia-Friendly Churches Guide
• Dementia-Friendly Retail Guide
• Dementia-Friendly Housing Charter
• Dementia-Friendly Business Guide
• Heritage
• Cinemas
• Education
Other resources we have supported:
• Gypsies and Travellers Guide
• WYP Dementia Friendly Performances
• CAA Guidance for airports to support
passengers with hidden disabilities
• Faith Action – Case studies collection
The London
Ambition
People affected by dementia
in Greater London - no matter
who they are or where they
live - should be able to enjoy
the best possible life. By
2022, London will a
dementia-friendly capital city.
Dementia Friendly London
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2,000 dementia friendly organisations
500,000 Dementia Friends
Every London borough working towards becoming a
dementia friendly community
Meaningful involvement of people affected by dementia
We want a society where Londoners think and feel differently about
dementia. Dementia Friendly London is about transforming the
way communities think and act towards people affected by
dementia.
Alzheimer’s Society is working with the GLA, London Health Board
and other partners to achieve the following by 2022:
Dementia Friendly London
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Areas for action Londoners with dementia and their carers have told us
the biggest challenges they face living in the capital. To
achieve this vision, action will be taken on the following
priority areas:
• Transport
• Housing and planning
• Health, care and emergency services
• Business and retail
• Social inclusion
Dementia Friendly London
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A Dementia Friendly London is an inclusive and compassionate city where all Londoners affected by dementia are empowered and supported to live well. People affected by dementia will: Travel to where they want to go safely Live somewhere they feel supported, understood and included in community life Receive the help they need to access quality health, care and support services when and where they require it Be able to participate in all that London has to offer in arts, culture and leisure Feel confident to visit local high streets and town centres
What is a dementia friendly city?
Alzheimer’s Society
Transport
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• Underground, buses, taxis
• 27,000 Transport for London staff
• High level champion appointed – Staynton Brown, Direction of Diversity and Social Inclusion
• Dementia Friends via video route
• Dementia Friendly air travel – Heathrow and Gatwick airports
Housing
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People Places Processes
Staff who manage
properties;
• Landlords
• People providing
services such as
modifications and
adaptations
• Repairs
• Home
maintenance
• Handyperson
services
• Architects and
planners
The creation and
maintenance of
suitable housing which
incorporates space
and design can
support people living
with dementia.
• Includes the
interior and
exterior of
buildings
Housing systems and
infrastructure used in
all residential
provision, planning,
design and
development and
housing-related
services such as
repairs, maintenance,
adaptations and
management.
Processes designed
to reduce barriers.
Health, care and
emergency
services
• Dementia friendly health
and care settings
(hospitals, GP surgeries,
care homes, care and
support at home)
• Integrating health and social
care services
• Sharing important
information across services
(creating integrated
systems)
• Keeping Londoners safe at
home and in the community
• Herbert Protocol
(missing people)
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Business and
retail
• Commitment from national organisations local action (banks, supermarkets etc.)
• Shopping centres
• Dementia friendly high streets
• Business Improvement Districts and London Chamber of Commerce
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Moss and Coleman Solicitors
My Life Films
TWM Solicitors LLP
Debneys Opticians Merton means business
Highgrove Pool and Fitness Centre
Social inclusion
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Dementia Friendly London
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116,880 Dementia Friends in London
673 businesses rolling out Dementia Friends and taking other steps to become dementia friendly
Dementia friendly activity in two thirds of London boroughs
Cross-sector representation on the Pan-London Dementia Action Alliance
Where are we now?
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London’s boroughs
Dementia Friendly London
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What can the Mayor do?
Support dementia-Friendly London and speak out in
dementia issues
Lead by example at City Hall
Encourage action across TfL and Met Police
Convene: bring people together to commit to take action
Leadership through the London Health Board
The commitment:
GLA to work towards becoming a dementia friendly
organisation
Matching commitment from TfL and others
Dementia summit (21 May 2018)
Partnership with Alzheimer’s Socety
The Mayor’s Commitment
Current progress
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• Over 100 dementia friends already following 3
training sessions over the last 3 years
• Alzheimer's Society Stakeholder Relations
Manager seconded 1-day a week to lead the work
• Internal GLA dementia friendly London Group
established and meeting 8 Nov
• Staff engagement plan developed – recruit and
train champions, programme of activities –Xmas
party, lunch and learn, social media.
The GLA
Dementia Friendly London
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How will we get there? • Supporting London organisations to take
action themselves
• Vision and supporting narrative
• Baseline and narrative summary
including good practice
• Targets, milestones and indicators
• Sector-led action plans supported by
Alzheimer’s Society
• Overseen and supported by the
London Dementia Action Alliance
Dementia Friendly London
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• 21 May 2018 • Up to 100 people, including people affected by
dementia and sector leaders, for roundtable event with film, speeches, good practice, and Q&A discussion to panel
• Involvement and testimonies from people living with dementia and positives impacts that have already been made
• Media announcement that London has committed to become the first dementia-friendly capital
• Vision, milestones, and call to action • Examples of progress and commitments from leaders
across sectors
Annual Dementia Summit
Dementia Friendly London
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• Transport • Business • NHSE London • London ADASS • The Met + emergency services • Culture and leisure industries • Science/ research • Innovation/ data/ tech • Voluntary and community sector Diverse and inclusive Dementia Friendly London: • Youth • Faith • Seldom-heard groups
Sector representation and leadership
London Dementia Action Alliance
Dementia Friendly GLA
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Forward
planning
Suggested
activities up to
2020
Year Milestones
2017 GLA announcement to become a dementia friendly organisation:
- Mayor and GLA staff to become Dementia Friends
- Matching commitment from TfL
- Establish internal working group to identify opportunities to extend reach of dementia-
friendly London through Mayoral priorities and strategies
- Work with HR and internal comms to make a dementia-friendly workplace (advice,
support, signposting)
2018
- Pan-London Dementia Action Alliance meetings
- Dementia Summit – key organisations make commitment
- Promote Dementia Friends Challenge – ambition to create 500,000 Dementia
Friends in London. Mobilise individuals, organisations and communities to join our
movement
- Explore corporate sponsorship and large scale marketing opportunities for a phased
public awareness campaign. For example, “United Against Dementia” wrap for
London buses
- Identify other parts of the GLA family and sector leaders to extend reach e.g.
schools, tourism, emergency services
2019 - At least 2/3 of London boroughs working towards becoming dementia friendly
- Announcement Dementia Friends Milestone (XXX,000 Dementia Friends in London)
to further promote initiative
- Annual Dementia Friendly London celebration event
2020 - All boroughs signed up to Dementia Friendly Communities recognition process
- Dementia Friends rolled out across all key organisations
- Annual dementia friendly London celebration event
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Gus Wilson, Greater London Authority [email protected] Fern Howard, Alzheimer’s Society [email protected]
Thank you
