Dementia research

in care homes

Claire Goodman (on behalf of ENRICH)

Centre for Research in Primary and Community Care

c.goodman@herts.ac.uk

Care homes

•167,000 NHS hospital beds•18,255 care homes provide 459,448 beds •Overlap’ in care needs between types of home•355,000 care workers and senior care workers•Unknown how many nurses working in care homes

Size of care homes at 31 March 2010 (CQC, 2010)*

* Based on J.Meyer slide City University

Population with ongoing and complex needs

Care home population75% of care home population have dementia > 30% have advanced dementia

Median life expectancy of an older person admitted to a care home that offers personal care is between 2-3 years and 1-2 years in a nursing home

19% of people die in their own home, 35% if care homes are considered to be their home

Research’s relationship with care homes

• Care homes the “solution” (and the problem) to NHS long term care needs= intervention studies designed to address NHS issues

• Minimal evidence of care home staff, residents and relatives’ priorities informing research priorities

• Tradition of within institution research that blurs with practice development

• Unlike USA no minimum data set or adoption of single assessment/data capture tool e.g.Inter RAI

• Initiatives to support knowledge transfer under developed

Dementia research and care homes

• Negotiating access• Costs and resource use• Working in a different culture• Consent and ethics review• Access to data• Liaison with and across multiple

stakeholders

Enabling New Research In Care Homes (ENRICH) Project

DeNDRoN

Drivers• Ministerial Advisory Group for Dementia

Research• Improve links to the National Dementia Strategy• Using Project Management approach to focus

delivery• Delivery of DeNDRoN and NIHR core objectives

– Improved links to core NHS services– Improved patient and carer access to research

• All to be achieved in 2011/12

Projects

ENRICH

• Build on existing systems and best practice to deliver three objectives:

1. Agreement on funding sources for the different component of research in care homes

2. A tool kit to support researchers developing and delivering research in care homes

3. A network of “research enabled” care homes

ToolkitThe toolkit (web based) will include; • Tariff clarifying the funding arrangements for each

component of the research process• Practical guidance on ethics, consent, recruitment,

and undertaking a study• Practical tips• Case studies• Templates for readers to take away• Signposts to important websites e.g. NIHR SSCR

Get Involved

Are you interested in knowing more?

• Put a study or organisation forward for a case study

• Help to test the funding tariff• Sign up to the consultation group to provide

feedback on the ENRICH toolkit

Email: programme-office@dendron.org.uk

If you are interested in getting involved please contact us at programme-office@dendron.org.uk