Development of a new self-report

instrument on participation and

environment

With Ros Madden & Professor Anita Bundy

Danielle Cheeseman

Outline

› 1) Review of literature

› 2) Development of YIPE

› 3) Study overview, results and future recommendations

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1) Review of literature

› Self-report increasingly advocated1,2

› ICF provides a framework for the development of self-report instruments

› ICF acknowledges the environment as a key contributor to participation3

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ABSENCE OF INSTRUMENTS THAT ARE:

Generic (vs. condition specific)

Self-report Measure participation-environment relationship

DEVELOPMENT OF YIPE

Review of literature

2) Development of YIPE

› YIPE: Your Ideas About Participation and Environment

› Generic, self-report instrument

› Enables a person to record their own assessment of overall functioning

› Developed from the Australian national data standards4

› Includes items from all “activities and participation” and “environmental factors” ICF chapters

› Questions start with “satisfaction with participation” and move to related environmental factors

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Overview of study

› Qualitative study

› 10 people from disability organisations

› Aim: examine the evidence for the content validity of the YIPE, including meaningfulness, acceptability and usefulness

› 2 rounds of interviewing

› YIPE revised and converted to computer format

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3) Study results

› Empower service users

› Develop person-centred goals

› Useful being split into two related areas on participation and environment

› Holistic approach

› Assist with communication between health professionals

› Content and format well accepted by participants

› Useful assessment tool for preparation, during therapy, evaluation

› Importance of self-report

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Benefits of the YIPE:

Quotes

› “Well I thought that because it was self directed that it was very respectful of me and I liked that”

› “I liked the fact that it was very open language and very non-judgmental. . . It's quite empowering in a way”

› “A more full, rounded appreciation of a person's daily life”

› “To really concentrate on what you really want to do. Otherwise you go in then they'll hit you with a questionnaire like this and off the cuff you're going to have to answer them. That could be you for the next 5 years, because that's what you said you wanted. But if you've got something that you can have a look at and prompt yourself to what you really want to do, yeah that'd be good.”

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Future research

› Psychometric properties of the YIPE

› Increasing sample size and diversity (people with cognitive impairments)

› Obtaining the professional’s view

› Trialling the YIPE at different stages in the therapy process

› Trialling accessible formats of the YIPE (e.g., vision impairments)

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Summary

› Lack of existing instruments that are self-report, generic and measure participation and its relationship to the environment

› This has led to the development of a new self-report instrument, YIPE

› Findings support the meaningfulness, acceptability and usefulness of the YIPE and its potential for promoting person-centred care and the empowerment of service users.

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References

› 1. MacDonald C. Self-assessment models, practice and tools within disability support services [Internet]. New Zealand: Ministry of Health; 2010. Available from: http://www.moh.govt.nz/moh.nsf/Files/disability/$file/dss-self-assessment-models-practice-tools.pdf Accessed 2011 Aug 10

› 2. Griffiths P, Harris R, Ullman R. Self assessment of health and social care needs by older people: A multi-method systematic review of practices, accuracy, effectiveness and experience [Internet]. London: National Co-ordinating Centre for NHS Service Delivery and Organisation R&D (NCCSDO); 2005. Available from: http://www.sdo.nihr.ac.uk/files/project/30-final-report.pdf Accessed 2011 Aug 11

› 3. World Health Organization. International classification of functioning, disability, and health: ICF. Geneva: World Health Organization; 2001.

› 4. National Community Services Data Committee. National community services data dictionary[Internet]. Version five. Cat. no. HWI 102. Canberra: Australian Institute of Health and Welfare. 2008. Available from: http://www.aihw.gov.au/publications/hwi/ncsddv5/ncsddv5.pdf Accessed 2011 Aug 26

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