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DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477...

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DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition from High School to Adult Life. INSTITUTION PACER Center, Inc., Minneapolis, AN. SPONS AGENCY Office of Special Education and Rehabilitative Services (ED), Washington, DC. PUB DATE 92 CONTRACT H158S90008 NOTE 89p.; A part of the Family Networking Transition Project. AVAILABLE FROM PACER Center, Inc., 4826 Chicago Avenue South, Minneapolis, MN 55417-1098 ($5). PUB TYPE Guides Non-Classroom Use (055) EDRS PRICE MF01/PC04 Plus Postage. DESCRIPTORS *Disabilities; *Education Work Relationship; Family Involvement; *Family Programs; Goal Orientation; Health Services; High Schools; Long Range Planning; Quality of Life; *Rehabilitation; *Transitional Programs; Vocational Rehabilitation IDENTIFIERS *Individualized Service Plans ABSTRACT This guide gives youth with disabilities and their families an overview of some of the major elements of the transition planning process. It introduces families to the adult service system that will provide supports and services after high school. Each chapter is intended to encourage families to be proactive in the planning process. The workbook format is designed to assist in formulating strategies, recording issues, and documenting progress. Individual sections address: an overview of the transition process; development of personal visions of the future; program planning--the role of parents and students on the transition team; case management; preparing for and participating in the Individual Service Plan meeting; vocational education planning; the Division of Rehabilitation Services; types of employment; residential options; preparing for transition to adult health care services; health care skills; estate planning; and the life planning process. (DB) *********************************************************************** Reproductions supplied by EDRS are the best that can be made from the original document. ***********************************************************************
Transcript
Page 1: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

DOCUMENT RESUME

ED 376 649 EC 303 477

AUTHOR Matuszak, Trish; And OthersTITLE Begin the Between: Planning for the Transition from

High School to Adult Life.INSTITUTION PACER Center, Inc., Minneapolis, AN.SPONS AGENCY Office of Special Education and Rehabilitative

Services (ED), Washington, DC.PUB DATE 92

CONTRACT H158S90008NOTE 89p.; A part of the Family Networking Transition

Project.AVAILABLE FROM PACER Center, Inc., 4826 Chicago Avenue South,

Minneapolis, MN 55417-1098 ($5).PUB TYPE Guides Non-Classroom Use (055)

EDRS PRICE MF01/PC04 Plus Postage.DESCRIPTORS *Disabilities; *Education Work Relationship; Family

Involvement; *Family Programs; Goal Orientation;Health Services; High Schools; Long Range Planning;Quality of Life; *Rehabilitation; *TransitionalPrograms; Vocational Rehabilitation

IDENTIFIERS *Individualized Service Plans

ABSTRACTThis guide gives youth with disabilities and their

families an overview of some of the major elements of the transitionplanning process. It introduces families to the adult service systemthat will provide supports and services after high school. Eachchapter is intended to encourage families to be proactive in theplanning process. The workbook format is designed to assist informulating strategies, recording issues, and documenting progress.Individual sections address: an overview of the transition process;development of personal visions of the future; program planning--therole of parents and students on the transition team; case management;preparing for and participating in the Individual Service Planmeeting; vocational education planning; the Division ofRehabilitation Services; types of employment; residential options;preparing for transition to adult health care services; health careskills; estate planning; and the life planning process. (DB)

***********************************************************************

Reproductions supplied by EDRS are the best that can be madefrom the original document.

***********************************************************************

Page 2: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

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Page 3: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

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Page 4: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

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Page 5: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

Tab

le o

f Con

tent

s

Intr

oduc

tion

Tra

nsiti

on O

verv

iew

Loo

king

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g

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Page

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Page

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Beg

in th

e B

etw

een

9

Page 6: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

Intr

oduc

tion

Wel

com

e to

the

"Bet

wee

n"th

e tr

ansi

tion

from

hig

hsc

hool

to a

dult

inde

pend

ent l

ivin

g an

d th

e op

port

unity

tolo

ok a

t lif

e-lo

ng g

oals

, dre

ams,

and

vis

ions

.

Thi

s gu

ide

give

s yo

uth

with

dis

abili

ties

and

thei

r fa

mili

esan

ove

rvie

w o

f so

me

of th

e m

ajor

ele

men

ts o

f th

etr

ansi

tion

plan

ning

pro

cess

. It i

ntro

duce

s fa

mili

es to

the

adul

t sys

tem

that

will

pro

vide

sup

port

s an

d se

rvic

es a

fter

high

sch

ool.

Eac

h ch

apte

r en

able

s fa

mili

es to

be

proa

ctiv

e in

the

plan

ning

pro

cess

. The

y ar

e en

cour

aged

to u

se th

is w

orkb

ook

to f

orm

ulat

e st

rate

gies

, rec

ord

issu

es, a

nd d

ocum

ent t

heir

pro

gres

s.

The

issu

es a

ddre

ssed

in th

is g

uide

hav

e be

en id

entif

ied

by s

tude

nts,

par

ents

and

edu

cato

rs a

s gl

obal

tran

sitio

nco

ncer

ns. B

ecau

se th

e sp

ecif

ic n

eeds

of

indi

vidu

als

vary

,ea

ch y

outh

and

thei

r fa

mily

will

nee

d to

iden

tify

any

addi

tiona

l are

as th

at a

re o

f co

ncer

n to

them

. The

y ca

nth

en a

pply

the

info

rmat

ion

and

stra

tegi

es in

trod

uced

inth

is m

anua

l to

effe

ctiv

ely

addr

ess

thos

e is

sues

.

Beg

in th

e B

etw

een

2

1i

10

Page 7: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

Tra

nsiti

on O

verv

iew

The

hig

h sc

hool

yea

rs a

re ty

pica

lly a

tim

e of

cha

nges

and

chal

leng

es. D

urin

g th

ese

year

s, y

outh

are

leav

ing

behi

nd th

ede

pend

ence

of

child

hood

and

are

anx

ious

to s

tep

thro

ugh

the

door

into

adu

lthoo

d. T

his

"in

betw

een"

sta

ge o

f hi

gh s

choo

l sho

uld

befo

cuse

d on

pre

pari

ng th

e st

uden

t for

a s

ucce

ssfu

l adj

ustm

ent i

nto

the

adul

t wor

ld.

As

stud

ents

with

dis

abili

ties

and

thei

r fa

mili

es B

egin

the

Bet

wee

npe

riod

of

thei

r yo

uth'

s ed

ucat

iona

l yea

rs, t

he p

lann

ing

that

occ

urs

duri

ng th

is ti

me,

kno

wn

as tr

ansi

tion

plan

ning

, is

cruc

ial t

o th

esu

cces

s of

the

stud

ent t

o fu

lfill

his

or

her

pote

ntia

l. T

he y

outh

,pa

rent

s, o

ther

fam

ily m

embe

rs, e

duca

tors

, hum

an s

ervi

ce p

rovi

ders

and

com

mun

ity m

embe

rs a

re p

art o

f a

tran

sitio

n te

am c

omm

itted

to w

orki

ng c

olla

bora

tivel

y to

war

d de

velo

ping

and

impl

emen

ting

ahi

gh s

choo

l pro

gram

, ind

ivid

ualiz

ed to

mee

t the

stu

dent

's n

eeds

and

desi

res.

For

yout

h w

ith d

isab

ilitie

s an

d th

eir

fam

ilies

, the

tran

sitio

n fr

omhi

gh s

choo

l to

inde

pend

ent l

ivin

g ca

n be

a c

ompl

icat

ed p

roce

ss.

Whe

n st

uden

ts a

re in

sch

ool,

all o

f th

eir

serv

ice

need

s ar

e pr

ovid

edth

roug

h th

eir

scho

ol d

istr

ict.

Upo

n le

avin

g th

e sp

ecia

l edu

catio

nsy

stem

, the

ser

vice

s th

ey r

equi

re to

mee

t the

ir c

hang

ing

need

s m

aybe

com

e fr

agm

ente

d. T

he s

choo

l will

no

long

er b

e pr

ovid

ing

thes

ese

rvic

es a

nd y

oung

adu

lts m

ust c

onta

ct s

ever

al a

genc

ies

to r

ecei

ve

the

supp

orts

they

nee

d. F

orex

ampl

e, e

mpl

oym

ent

supp

ort s

ervi

ces

may

be

prov

ided

by

one

agen

cy,

resi

dent

ial s

ervi

ces

byan

othe

r, a

nd in

com

e su

ppor

tan

d m

edic

al c

over

age

byan

othe

r. A

pplic

atio

npr

oced

ures

, fun

ding

sou

rces

,an

d el

igib

ility

req

uire

men

tsdi

ffer

for

eac

h ag

ency

.

Bec

ause

of

the

com

plex

ities

of th

e ad

ult s

ervi

ce s

yste

m,

pare

nts,

edu

cato

rs, a

nd o

ther

prof

essi

onal

s ha

vere

cogn

ized

the

impo

rtan

ce o

fco

mpr

ehen

sive

and

coop

erat

ive

plan

ning

dur

ing

high

sch

ool.

Thi

s tr

ansi

tion

plan

ning

will

hel

p en

sure

that

the

nece

ssar

y se

rvic

es a

re in

pla

cean

d th

e st

uden

t has

dev

elop

ed th

e sk

ills

he o

r sh

e w

ill n

eed

to b

esu

cces

sful

upo

n gr

adua

tion

from

hig

h sc

hool

.

Bec

ause

of

the

com

plex

ities

of

the

adul

t ser

vice

sys

tem

,pa

rent

s, e

duca

tors

,an

d ot

her

prof

essi

onal

s ha

vere

cogn

ized

the

impo

rtan

ce o

fco

mpr

ehen

sive

and

coop

erat

ive

plan

ning

duri

ng h

igh

scho

ol.

Beg

in th

e B

etw

een

13

3

Page 8: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

The

bas

ic a

reas

of

the

stud

ent's

life

that

the

tran

sitio

n pl

an s

houl

dad

dres

s ar

e:Fu

ture

em

ploy

men

t. W

here

will

the

indi

vidu

al w

ork?

How

will

he

or s

he m

anag

e fi

nanc

ially

?H

ome

livin

g. W

here

will

the

indi

vidu

al li

ve?

Wha

tin

depe

nden

t liv

ing

skill

s w

ill h

e or

she

nee

d? H

ow w

illhe

alth

nee

ds b

e m

et?

Rec

reat

ion

and

leis

ure.

Wha

t will

the

indi

vidu

al d

o fo

r fu

nan

d le

isur

e? H

ow w

ill h

e or

she

dev

elop

and

mai

ntai

nre

latio

nshi

ps w

ith f

rien

ds a

nd f

amily

?

Com

mun

ity p

artic

ipat

ion.

How

will

the

indi

vidu

al tr

avel

with

in th

e co

mm

unity

? H

ow w

ill h

e or

she

acc

ess

com

mun

ity s

ervi

ces?

Post

-sec

onda

ry jo

b tr

aini

ng. I

f th

e in

divi

dual

is in

tere

sted

inpu

rsui

ng c

ontin

ued

educ

atio

n, w

here

will

the

trai

ning

occ

ur,

and

wha

t sup

port

s ar

e ne

cess

ary?

The

topi

cs in

the

rem

aini

ng c

hapt

ers

repr

esen

t iss

ues

whi

ch h

ave

been

cite

d by

you

th, p

aren

ts a

nd e

duca

tors

as

havi

ng th

e m

ost

sign

ific

ant i

mpa

ct o

n th

e fu

ture

suc

cess

of

youn

g ad

ults

. Thi

sgu

ide

can

help

stu

dent

s an

d fa

mili

es B

egin

the

Bet

wee

n, e

quip

ped

with

the

know

ledg

e to

mak

e th

eir

goal

s an

d as

pira

tions

a r

ealit

y.

Beg

in th

e B

etw

een

4

Page 9: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

Loo

king

Ahe

adT

he f

irst

ste

p in

the

tran

sitio

n pr

oces

s is

to lo

ok a

head

to th

efu

ture

. Thi

s is

the

time

whe

n st

uden

ts a

nd th

eir

pare

nts

shou

ld th

ink

abou

t the

stu

dent

's li

fe a

fter

hig

h sc

hool

, and

drea

m a

bout

wha

t the

y w

ant t

heir

adu

lt lif

e to

be

like.

Thi

s ca

n be

a li

ttle

over

whe

lmin

g fo

r yo

uth

and

thei

r fa

mili

essi

mpl

y be

caus

e th

ey m

ay b

e un

awar

e of

the

optio

ns a

ndsu

ppor

t ser

vice

s th

at a

re o

r w

ill b

e av

aila

ble

to th

em.

Ano

ther

obs

tacl

e to

look

ing

ahea

d m

ay b

e th

at b

oth

pare

nts

16

and

stud

ents

fin

d it

diff

icul

t to

spec

ulat

e w

hat t

he s

tude

nt m

aybe

cap

able

of

acco

mpl

ishi

ng f

our

to s

ix y

ears

dow

n th

e ro

ad.

The

se a

ppar

ent o

bsta

cles

sho

uld

not i

nter

fere

with

beg

inni

ngto

cre

ate

visi

ons

and

goal

s. I

n fa

ct, n

ot k

now

ing

thes

e is

sues

can

lead

to v

isio

ns th

at a

re p

ositi

vely

foc

used

on

the

yout

h's

desi

res,

str

engt

hs, a

nd a

bilit

ies

rath

er th

an h

ampe

red

byne

gativ

e ex

pect

atio

ns o

r pe

rhap

s by

the

limite

d av

aila

bilit

y of

serv

ices

.

Look

ing

Ahe

ad

17

5

Page 10: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

You

th a

nd th

eir

fam

ilies

sho

uld

allo

w th

emse

lves

to ta

ke a

"sky

's th

e lim

it" a

ppro

ach

duri

ng d

iscu

ssio

ns a

bout

the

futu

re. P

aren

ts m

ay b

e in

clin

ed to

dis

mis

s th

eir

teen

ager

'sgo

als

if th

ey s

ound

unr

ealis

tic o

r se

emin

gly

unat

tain

able

.In

stea

d, th

ey c

an h

elp

the

yout

h to

res

hape

the

goal

s in

to o

nes

that

are

rea

listic

. For

exa

mpl

e:

Son/

daug

hter

: "I

wou

ld li

ke to

be

a do

ctor

."

Pare

nt:

"You

hav

e al

way

s lik

ed to

hel

p ot

hers

. But

rem

embe

r, d

octo

rs g

o to

sch

ool f

or m

any

year

s an

dst

udy

long

hou

rs. Y

ou h

ave

ofte

n sa

id y

ou d

on't

enjo

y st

udyi

ng. I

f th

at is

true

, wou

ld y

ou c

onsi

der

wor

king

in a

doc

tor's

off

ice

or h

ospi

tal?

Wou

ldyo

u en

joy

look

ing

into

som

ethi

ng li

ke th

at?"

The

n br

ing

thes

e go

als

to th

e tr

ansi

tion

team

, esp

ecia

lly e

arly

;nth

e tr

ansi

tion

proc

ess.

Tea

m m

embe

rs c

an p

rovi

de g

uida

nce,

info

rmat

ion,

and

trai

ning

that

will

hel

p th

e st

uden

t rea

ch th

ese

goal

s.

It is

impo

rtan

t for

you

th to

dev

elop

per

sona

l vis

ions

of

whe

re th

eyw

ould

like

to b

e an

d w

hat t

hey

wou

ld li

ke to

be

doin

g in

the

futu

re. A

lthou

gh p

aren

ts m

ay f

eel t

hat t

hey

are

awar

e of

thei

rte

enag

ers'

asp

irat

ions

, it i

s im

port

ant t

o en

cour

age

him

or

her

toex

pres

s dr

eam

s an

d go

als,

ther

eby

fost

erin

g ch

oice

-mak

ing

abili

ties

and

ensu

ring

a tr

ansi

tion

plan

foc

used

on

the

desi

res

of th

est

uden

t. W

hen

drea

ms

and

visi

ons

are

expr

esse

d an

d re

cord

ed,

then

str

ateg

izin

g ca

n be

gin

on w

hat n

eeds

to h

appe

n so

that

thes

e go

als

can

be m

et.

Loo

king

ahe

ad a

nd ta

lkin

gab

out t

he f

utur

e he

lps

the

yout

h, p

aren

ts, a

nd e

ntir

etr

ansi

tion

team

to:

focu

s on

the

indi

vidu

al's

hope

s an

d dr

eam

s.en

cour

age

oppo

rtun

ities

for

the

indi

vidu

al to

deve

lop

pref

eren

ces

that

enha

nce

choi

ce-m

akin

g

It is

impo

rtan

tfo

r yo

uth

tode

velo

p pe

rson

alvi

sion

s of

whe

reth

ey w

ould

like

to b

e an

d w

hat t

hey

wou

ld li

ke to

be d

oing

.

abili

ties.

allo

w th

e in

divi

dual

's a

spir

atio

ns to

be

the

driv

ing

forc

ebe

hind

all

tran

sitio

n pl

anni

ng.

focu

s on

the

indi

vidu

al's

inte

rest

s, s

tren

gths

and

abi

litie

s,an

d bu

ild o

n hi

s or

her

pot

entia

l.fo

cus

on a

cces

sing

opp

ortu

nitie

s in

the

com

mun

ity, o

rcr

eatin

g ne

w o

nes,

to h

elp

the

indi

vidu

al r

each

his

or

her

goal

s.fo

cus

on b

uild

ing

rela

tions

hips

thro

ugh

incr

ease

dco

mm

unity

invo

lvem

ent.

ensu

re th

at g

oals

rem

ain

resp

onsi

ve to

the

indi

vidu

al's

chan

ging

inte

rest

s an

d ab

ilitie

s.

Look

ing

Ahe

ad

1819

Page 11: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

Pare

nts

can

use

the

follo

win

g qu

estio

ns to

gui

de d

iscu

ssio

ns w

ithth

eir

son

or d

augh

ter

abou

t the

fut

ure,

as

wel

l as

wha

t act

iviti

esco

uld

take

pla

ce n

ow in

pre

para

tion

for

the

futu

re. I

f th

e st

uden

tha

s lim

ited

verb

al s

kills

, par

ents

can

ans

wer

thes

e qu

estio

ns b

ased

on th

eir

know

ledg

e of

thei

r so

n or

dau

ghte

r.

Em

ploy

men

tW

hat k

ind

of jo

bs h

ave

you

done

that

you

rea

lly e

njoy

ed?

The

sejo

bs c

ould

incl

ude

hom

e re

spon

sibi

litie

s, s

choo

l dut

ies,

neig

hbor

hood

jobs

, etc

.fh

ink

abou

t all

the

type

s of

"jo

bs"

you

do th

at y

ou li

ke d

oing

and

do

wel

l. Fo

r ex

ampl

e, ,'

Iove

ling

snow

,fo

ldin

g cl

othe

s, w

ashi

ng d

ishe

s, w

orki

ng w

ith c

hild

', 1,

woo

dwor

king

, org

aniz

ing

file

s, e

tc.

Lis

t cho

ices

:

Are

ther

e jo

bs o

r ta

sks

that

you

hav

e no

t eve

r do

ne b

ut w

ould

like

to le

arn

how

to d

o? F

or e

xam

ple,

was

hing

the

car,

pai

ntin

g yo

urro

om, v

acuu

min

g, m

akin

g ha

mbu

rger

s at

a r

esta

uran

t, et

c.

Aft

er th

inki

ng a

bout

wha

t typ

es o

f jo

bs y

ou w

ould

like

to d

o or

lear

n to

do,

thin

k ab

out w

hat k

ind

of s

urro

undi

ngs

you

wou

ld li

keto

be

in. F

or e

xam

ple,

do

you

like

to b

e in

door

s or

out

door

s,

arou

nd lo

ts o

f pe

ople

and

noi

se o

r in

a q

uiet

sec

lude

d ar

ea, e

tc.

(Thi

s qu

estio

n is

impo

rtan

t for

peo

ple

who

are

par

ticul

arly

unco

mfo

rtab

le o

r un

prod

uctiv

e in

cer

tain

type

s of

env

iron

men

ts.

It w

ould

be

an im

port

ant f

acto

r to

con

side

r w

hen

begi

nnin

g to

expl

ore

empl

oym

ent t

rain

ing

oppo

rtun

ities

.)

Lis

t cho

ices

:

You

hav

e lis

ted

wha

t you

like

to d

o an

d w

hat k

ind

of s

urro

undi

ngs

you

like

to b

e in

. Now

thin

k ab

out p

lace

s of

em

ploy

men

t whe

reyo

u co

uld

do w

hat y

ou li

ke to

do

in th

e ty

pe o

f su

rrou

ndin

gs y

oulik

e. F

or e

xam

ple,

you

mig

ht h

ave

said

you

like

to c

are

for

child

ren

and

be a

roun

d m

any

peop

le. P

lace

s of

em

ploy

men

t tha

tm

ight

fit

thes

e ch

oice

s ar

e a

latc

h-ke

y sc

hool

pro

gram

, a p

ark

and

recr

eatio

n pr

ogra

m, a

nur

sery

sch

ool,

a da

y-ca

re p

rogr

am, e

tc.

Lis

t cho

ices

:

Look

ing

Ahe

ad7

Page 12: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

Res

iden

tial

Wha

t kin

d of

pla

ce w

ould

you

like

to li

ve in

? Fo

r ex

ampl

e, a

hous

e in

the

coun

try,

an

apar

tmen

t in

the

city

on

a bu

s lin

e, e

tc.

Whe

re w

ould

you

like

to li

ve a

fter

you

gra

duat

e fr

om h

igh

scho

ol?

For

exam

ple,

with

fam

ily m

embe

rs, i

n yo

ur h

ome

tow

n, in

the

tow

n w

here

a f

rien

d liv

es, i

n a

larg

e ci

ty, i

n a

smal

l tow

n, e

tc.

Lis

t cho

ices

:

Who

wou

ld y

ou li

ke to

live

with

? Fo

r ex

ampl

e, y

our

best

fri

end

from

hig

h sc

hool

, nob

ody,

with

you

rsel

f or

hav

e a

room

toyo

urse

lf, w

ith y

our

sist

eryo

u co

uld

care

for

her

chi

ldre

n, e

tc.

Lis

t cho

ices

:

Lis

t cho

ices

:

Inde

pend

ent L

ivin

gW

hat k

inds

of

thin

gs d

o yo

u do

to h

elp

out a

roun

d th

e ho

use?

For

exam

ple,

mak

e yo

ur b

ed, p

ick

up y

our

room

, hel

p w

ith m

eal

prep

arat

ion,

etc

.

Lis

t ans

wer

s:

Look

ing

Ahe

ad

222

3

8

Page 13: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

Wha

t do

you

thin

k yo

u ne

ed to

lear

n to

be

able

to li

ve m

ore

inde

pend

ently

in th

e fu

ture

? Fo

r ex

ampl

e, c

ook

a m

eal,

dola

undr

y, m

ake

doct

or's

app

oint

men

t, et

c.

Are

ther

e ne

w th

ings

you

wou

ld li

ke to

lear

n ho

w to

do?

For

exam

ple,

pla

y a

mus

ical

inst

rum

ent,

play

bas

ketb

all,

try

new

reci

pes,

etc

.

Lis

t ans

wer

s:L

ist a

nsw

ers:

Rec

reat

ion

/ Lei

sure

Wha

t do

you

like

to d

o fo

r fu

n? F

or e

xam

ple,

list

en to

mus

ic, p

lay

boar

d ga

mes

, go

to th

e m

all,

etc.

Lis

t ans

wer

s:

`?4

Are

ther

e an

y ne

w p

lace

s th

at y

ou h

ave

not b

een

to th

at y

ou w

ould

like

to v

isit?

For

exa

mpl

e, th

e ne

w s

hopp

ing

cent

er, a

mus

eum

,th

e zo

o, a

par

ticul

ar r

esta

uran

t, th

e be

ach,

etc

.

Lis

t ans

wer

s:

or

Look

ing

Ahe

ad9

Page 14: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

Aft

er p

aren

ts a

nd y

outh

hav

e di

scus

sed

som

e lo

ng-r

ange

vis

ions

,to

geth

er th

ey c

an b

egin

a p

lan

for

the

futu

re b

y w

ritin

g on

e go

alun

der

each

cat

egor

y, f

ollo

wed

by

a fi

rst s

tep

tow

ard

reac

hing

that

goal

. Thi

s in

form

atio

n ca

n be

sha

red

with

oth

er f

amily

mem

bers

,sc

hool

per

sonn

el, s

ervi

ce p

rovi

ders

, and

com

mun

ity m

embe

rs.

The

mor

e pe

ople

who

are

aw

are

of th

ese

goal

s, th

e be

tter

the

coop

erat

ive

effo

rt c

an b

e in

ach

ievi

ng th

em. K

eep

in m

ind

that

thes

e go

als

will

cha

nge

as f

urth

er d

iscu

ssio

ns a

re h

eld,

goa

ls a

rem

et o

r m

odif

ied,

and

the

tran

sitio

n pr

oces

s un

fold

s.

EM

PLO

YM

EN

T

GO

AL

:

Firs

t ste

p:

RE

SID

EN

TIA

L

GO

AL

:

Firs

t ste

p:

IND

EPE

ND

EN

T L

IVIN

G

GO

AL

:

Firs

t ste

p:

RE

CR

EA

TIO

N/L

EIS

UR

E

GO

AL

:

Firs

t ste

p:

Look

ing

Ahe

ad

?7

10

Page 15: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

Pro

gram

Pla

nnin

gA

trul

y su

cces

sful

and

mea

ning

ful t

rans

ition

pro

cess

isth

e re

sult

of c

ompr

ehen

sive

team

pla

nnin

g th

at is

driv

en b

y th

e dr

eam

s, d

esir

es, a

nd a

bilit

ies

of th

eyo

uth

and

enha

nces

not

onl

y th

e yo

uth'

s pa

rtic

ipat

ion

in s

choo

l but

his

or

her

hom

e an

d co

mm

unity

livi

ng,

as w

ell.

A p

rogr

am p

lan

prov

ides

the

basi

c st

ruct

ure

for

prep

arin

g an

indi

vidu

al to

live

, wor

k, a

nd p

lay

inth

e co

mm

unity

, as

fully

and

inde

pend

ently

as

poss

ible

. As

in a

ll as

pe,,i

s of

life

, the

mor

e tr

ansi

tion

plan

ning

that

take

s pl

ace

ahea

d of

tim

e, th

e be

tter

prep

ared

you

th a

nd th

eir

pare

nts

will

be

whe

nde

cisi

ons

need

to b

e m

ade

and

actio

n m

ust b

e ta

ken.

Sinc

e 19

87, a

tran

sitio

n pl

an h

as b

een

a re

quir

edco

mpo

nent

of

the

Indi

vidu

aliz

ed E

duca

tion

Plan

(IE

P) f

orM

inne

sota

stu

dent

s no

late

r th

an a

ge 1

4, o

r 9t

h gr

ade.

Fed

eral

legi

slat

ion

now

req

uire

s tr

ansi

tion

plan

ning

in a

ll st

ates

for

stud

ents

16

and

olde

r, a

nd c

an b

e pr

ovid

ed a

s ea

rly

as a

ge 1

4 if

the

plan

ning

ben

efits

the

stud

ent.

Tra

nsiti

on s

ervi

ces

mus

t be

base

d on

the

stud

ent's

nee

ds, t

akin

gin

to a

ccou

nt h

is o

r he

r pr

efer

ence

s an

d in

tere

sts.

The

ser

vice

ssh

ould

incl

ude

inst

ruct

ion,

com

mun

ity e

xper

ienc

es, t

hede

velo

pmen

t of

empl

oym

ent a

nd o

ther

pos

t-sc

hool

adu

lt liv

ing

obje

ctiv

es, a

nd, i

f ne

eded

, tra

inin

g in

dai

ly li

ving

ski

lls a

nd a

cces

sto

fun

ctio

nal v

ocat

iona

l eva

luat

ions

. All

of th

ese

serv

ices

mus

t be

9U

give

n in

a m

anne

r th

at r

ecog

nize

s th

e st

uden

t's c

ultu

ral

back

grou

nd a

nd is

sen

sitiv

e to

his

or

her

nativ

e la

ngua

ge, i

f ot

her

than

Eng

lish.

Scho

ols

are

requ

ired

to in

vite

stu

dent

s to

par

ticip

ate

in th

eir

IEP

mee

tings

whe

neve

r tr

ansi

tion

serv

ices

are

con

side

red.

Tra

nsiti

onse

rvic

es a

re a

req

uire

d co

mpo

nent

of

IEPs

for

stu

dent

s du

ring

thei

rtr

ansi

tion

year

s, a

nd, t

here

fore

, tho

se s

ervi

ces

are

rout

inel

ydi

scus

sed

at I

EP

mee

tings

for

stu

dent

s ag

e 14

and

old

er. I

f th

est

uden

t doe

s no

t atte

nd th

e IE

P m

eetin

g, s

choo

l per

sonn

el m

ust

take

ste

ps to

ens

ure

the

stud

ent's

pre

fere

nces

and

inte

rest

s ar

eco

nsid

ered

.

2 5

Pro

gram

Pla

nnin

gI

I

Page 16: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

The

bes

t tra

nsiti

on p

lans

are

thos

e th

at h

elp

the

stud

ent

achi

eve

his

or h

er d

ream

s an

das

pira

tions

. To

ensu

re th

is,

incl

ude

the

stud

ent i

n al

l asp

ects

of p

lann

ing

and

goal

set

ting,

and

enco

urag

e hi

s or

her

par

ticip

atio

nat

IE

P m

eetin

gs. T

his

part

icip

atio

n w

ill h

elp

keep

all

team

mem

bers

foc

used

on

the

stud

ent's

indi

vidu

al n

eeds

and

desi

res.

It w

ill a

lso

help

the

stud

ent d

evel

op h

is o

r he

r ow

nde

cisi

on-m

akin

g ab

ilitie

s an

dse

lf-a

dvoc

acy

skill

s.

By

bein

g pr

oact

ive

and

incr

easi

ngyo

ur k

now

ledg

ean

d aw

aren

ess

oftr

ansi

tion

issu

es,

pare

nts

and

stud

ents

can

beco

me

pow

erfu

lm

embe

rs o

f th

etr

ansi

tion

team

.A

dvan

ce p

repa

ratio

n ca

n as

sist

stud

ents

and

thei

r pa

rent

sth

roug

hout

the

tran

sitio

n pr

oces

s an

d he

lp c

ontr

ibut

e to

aco

mpr

ehen

sive

tran

sitio

n pl

an b

y pr

ovid

ing

a di

rect

io. f

or g

oals

and

obje

ctiv

es. B

y be

ing

proa

ctiv

e an

d in

crea

sing

thei

r kn

owle

dge

and

awar

enes

s of

tran

sitio

n is

sues

, par

ents

and

stu

dent

s ca

nbe

com

e po

wer

ful m

embe

rs o

f th

e tr

ansi

tion

team

.

In o

rder

for

the

IEP

to a

ppro

pria

tely

mee

t the

stu

dent

's tr

ansi

tion

need

s, b

oth

pare

nts

and

scho

ol p

erso

nnel

mus

t ass

ess

the

stud

ent's

abili

ties,

ski

lls a

nd in

tere

sts.

The

sch

ool a

ccom

plis

hes

this

thro

ugh

diag

nost

ic a

sses

smen

ts, e

valu

atio

ns a

nd in

form

al o

bser

vatio

ns.

Pare

nts

can

do it

thro

ugh

thei

r da

y-to

-day

kno

wle

dge

of th

eir

son

or d

augh

ter

and

conv

ersa

tions

with

him

or

her

abou

t fut

ure

goal

s.(T

he p

revi

ous

chap

ter

on L

ooki

ng A

head

can

be

very

hel

pful

.)

Pare

nts

and

stud

ents

sho

uld

cons

ider

the

follo

win

g po

ints

whe

nbe

ginn

ing

the

tran

sitio

n pr

oces

s an

d pr

epar

ing

for

or p

artic

ipat

ing

in a

n IE

P m

eetin

g or

tran

sitio

n st

affi

ng:

Ask

you

r te

enag

er w

hat h

e or

she

wou

ld li

ke to

do

with

his

or

her

life.

Wha

t are

his

or

her

drea

ms,

goa

ls, e

tc?

Inco

rpor

ate

the

resp

onse

s in

to a

ll as

pect

s of

tran

sitio

n pl

anni

ng. I

f yo

urso

n or

dau

ghte

r is

non

-ver

bal o

r ha

s di

ffic

ulty

com

mun

icat

ing

thes

e th

ough

ts, u

se y

our

know

ledg

e of

him

or

her

to m

ake

sure

tran

sitio

n pl

ans

refl

ect l

ikes

, dis

likes

, etc

.

Kno

w y

our

son'

s or

dau

ghte

r's n

eeds

, abi

litie

s an

d sk

ills.

Be

fam

iliar

with

how

muc

h as

sist

ance

he

or s

he n

eeds

or

does

not

need

to a

ccom

plis

h ta

sks.

Kno

w w

hat o

utco

mes

you

and

you

r te

enag

er w

ant.

Bri

ngsu

gges

tions

to m

eetin

gs o

n w

hat a

ctio

ns y

ou f

eel a

re n

eede

d to

mee

t or

mov

e to

war

d go

als

in th

e tr

ansi

tion

plan

.

Pro

gram

Pla

nnin

g

3031

12

Page 17: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

Enc

oura

ge y

our

son

or d

augh

ter

to a

ttend

the

IEP

mee

ting.

He

or s

he w

ill b

e in

vite

d. T

oget

her,

pre

pare

for

the

mee

ting.

Enc

oura

ge s

elf-

advo

cacy

ski

lls f

or y

our

son

or d

augh

ter.

Hav

eth

e st

aff

dire

ct q

uest

ions

to y

our

teen

ager

.

Kno

w w

hat p

rogr

ams,

ser

vice

s, a

ccom

mod

atio

ns o

rm

odif

icat

ions

you

and

you

r te

enag

er w

ant.

Be

clea

r on

the

tran

sitio

n ne

eds

or is

sues

of

your

son

or

daug

hter

.

Det

erm

ine

who

will

be

resp

onsi

ble

for

wha

t on

the

tran

sitio

npl

an. A

sk f

or s

peci

fic

timel

ines

.

Dec

ide

whe

ther

edu

catio

nal a

nd tr

ansi

tion

prog

ram

s sh

ould

emph

asiz

e pr

actic

al o

r ac

adem

ic g

oals

or

a co

mbi

natio

n of

both

.

Bec

ome

awar

e of

com

mun

ity-b

ased

trai

ning

opp

ortu

nitie

s yo

ursc

hool

pro

vide

s. P

aren

ts a

nd th

eir

son

or d

augh

ter

shou

ldde

cide

how

muc

h th

e st

uden

t sho

uld

part

icip

ate

in th

ose

activ

ities

cur

rent

ly, a

s w

ell a

s in

the

futu

re.

Req

uest

a c

opy

of y

our

son

or d

augh

ter's

dai

ly s

ched

ule

each

quar

ter

or s

emes

ter.

Req

uest

info

rmat

ion

on a

ll cl

asse

s av

aila

ble

to s

tude

nts

so y

our

son

or d

augh

ter

can

part

icip

ate

in th

e cl

ass

sele

ctio

n an

dsc

hedu

ling

proc

ess.

Det

erm

ine

how

you

r so

n's

or d

augh

ter's

edu

catio

nal a

ndtr

ansi

tion

prog

ram

cou

ld b

e m

ore

inte

grat

ed in

to r

egul

arpr

ogra

ms.

Lea

rn w

ho w

ill a

ttend

the

IEP

mee

ting.

Bec

ome

fam

iliar

with

the

role

s an

d fu

nctio

ns o

f te

am m

embe

rs.

Arr

ange

for

a f

amily

mem

ber,

fri

end

or a

dvoc

ate

to a

ccom

pany

you

and

your

son

or

daug

hter

to p

lann

ing

mee

tings

for

sup

port

or n

ote

taki

ng, i

f ne

eded

.

In g

ener

al, b

ecom

ing

fam

iliar

with

adu

lt se

rvic

e sy

stem

s or

agen

cies

now

will

hel

p yo

ur s

on o

r da

ught

er in

mak

ing

deci

sion

sth

at w

ill im

pact

on

the

futu

re.

A f

inal

tip:

Sta

rt th

inki

ng a

bout

wha

t nee

ds w

ill e

xist

reg

ardi

ngyo

ur te

enag

er's

lega

l sta

tus

once

he

or s

he is

18.

If

your

son

or

daug

hter

is n

ot a

ble

to m

ake

info

rmed

dec

isio

ns a

bout

maj

or is

sues

(med

ical

trea

tmen

t, liv

ing

acco

mm

odat

ions

, fin

anci

alar

rang

emen

ts, e

tc.)

, you

r fa

mily

may

wan

t to

lear

n m

ore

abou

tgu

ardi

ansh

ip o

r co

nser

vato

rshi

p. B

y le

arni

ng a

s m

uch

as p

ossi

ble

abou

t the

se o

ptio

ns, y

our

fam

ily c

an e

nsur

e th

at y

our

son'

s or

daug

hter

's r

ight

s ar

e pr

otec

ted,

whi

le a

llow

ing

him

or

her

to r

etai

nas

muc

h in

depe

nden

ce a

s po

ssib

le.

33

Pro

gram

Pla

nnin

g13

Page 18: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

Plan

ning

not

es

Pro

gram

Pla

nnin

g

Page 19: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

Cas

e M

anag

emen

tT

he d

eliv

ery

of c

ase

man

agem

ent s

ervi

ces

vari

es f

rom

sta

teto

sta

te. I

n M

inne

sota

, the

Dep

artm

ent o

f H

uman

Ser

vice

spr

ovid

es c

omm

unity

sup

port

ser

vice

s fo

r pe

rson

s w

ithm

enta

l ret

arda

tion

(IQ

70

or b

elow

) or

rel

ated

con

ditio

ns.

Rel

ated

con

ditio

ns m

ay in

clud

e ce

rebr

al p

alsy

, epi

leps

y,au

tism

, Pra

der-

Will

i Syn

drom

e, o

r ot

her

cond

ition

s (o

ther

than

men

tal i

llnes

s) w

hich

sub

stan

tially

lim

it m

ajor

life

activ

ities

. It's

impo

rtan

t to

lear

n th

e ca

se m

anag

emen

tpr

oces

s in

you

r st

ate.

As

a yo

ung

pers

on m

oves

into

the

wor

ld o

f ad

ult s

ervi

ces,

aca

se m

anag

er p

rovi

des

the

fund

ing,

whe

n av

aila

ble,

and

acce

ss to

ser

vice

s w

hich

aid

in th

e tr

ansi

tion

proc

ess.

Thr

ough

the

deve

lopm

ent o

f an

Ind

ivid

ual S

ervi

ce P

lan

(ISP

), th

e ca

se m

anag

er, w

ith in

put f

rom

the

indi

vidu

al a

ndth

eir

fam

ily m

embe

rs, i

dent

ifie

s th

e se

rvic

es th

at a

re n

eede

dan

d is

res

pons

ible

for

coo

rdin

atin

g an

d m

onito

ring

the

serv

ices

pro

vide

d.

The

cas

e m

anag

er s

houl

d pa

rtic

ipat

e in

the

tran

sitio

n pr

oces

sby

atte

ndin

g In

divi

dual

Edu

catio

n Pl

an (

IEP)

mee

tings

and

mon

itori

ng th

e de

liver

y of

ser

vice

s an

d pr

ogre

ss m

ade

ontr

ansi

tion

goal

s. H

e or

she

can

ass

ist t

he s

tude

nt a

nd f

amily

mem

bers

in m

akin

g de

cisi

ons

abou

t pla

nnin

g fo

r an

dob

tain

ing

the

serv

ices

nee

ded

both

now

and

in th

e fu

ture

.

`36

Cas

e M

anag

emen

t

L

E:

37

15

Page 20: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

Sup

port

ser

vice

s th

at m

ay b

e av

aila

ble

from

the

coun

ty

Wai

vere

d se

rvic

esR

espi

te c

are

In-h

ome

supp

orts

Min

or a

dapt

atio

ns to

the

hom

eSu

ppor

ted

Liv

ing

Situ

atio

nSu

ppor

ted

Em

ploy

men

tD

ay T

rain

ing

& R

ehab

ilita

tion

Res

iden

tial s

ervi

ces

Sem

i Ind

epen

dent

Liv

ing

Serv

ices

(SI

LS)

Inte

rmed

iate

Car

e Fa

cilit

ies

for

Pers

ons

with

Men

tal R

etar

datio

nFo

ster

Car

e

Cas

e m

anag

emen

t pro

cess

1)A

fam

ily a

pplie

s fo

r a

coun

ty c

ase

man

ager

(app

licat

ions

ava

ilabl

e at

loca

l cou

nty

soci

al s

ervi

ceof

fice

).

2)A

cas

e m

anag

er is

ass

igne

d w

ithin

10

days

aft

er th

eap

plic

atio

n is

rec

eive

d by

cou

nty.

3)T

he c

ase

man

ager

arr

ange

s fo

r a

diag

nosi

s to

dete

rmin

e th

e pe

rson

's e

ligib

ility

for

ser

vice

s w

ithin

35 w

orki

ng d

ays.

4)A

n as

sess

men

t is

com

plet

ed to

det

erm

ine

the

pers

on's

abili

ties

and

need

s.

5)T

he c

ase

man

ager

wor

ks w

ith th

e fa

mily

to id

entif

yse

rvic

es n

eede

d, a

nd d

eter

min

es h

ow a

nd w

hen

serv

ices

will

be

obta

ined

or

deve

lope

d if

not

ava

ilabl

e.

Hea

lth C

are

Serv

ices

Pers

onal

Car

e A

ttend

ants

Chi

ldre

n's

Hom

e C

are

Opt

ion

Occ

upat

iona

l The

rapy

, Phy

sica

l The

rapy

,Sp

eech

The

rapy

Fam

ily S

ubsi

dy

Tra

nspo

rtat

ion

6)T

he c

ase

man

ager

wor

ks w

ith th

e fa

mily

to d

evel

op a

nIn

divi

dual

Ser

vice

Pla

n (I

SP),

whi

ch d

esig

nate

sne

eded

ser

vice

s an

d de

fine

s go

als

and

obje

ctiv

es.

7)T

he c

ase

man

ager

mon

itors

thes

e se

rvic

es b

y vi

sitin

gth

e pe

rson

at h

is o

r he

r se

rvic

e si

te a

t lea

st tw

ice

year

ly f

or m

ost s

ervi

ces.

8)T

he c

ase

man

ager

and

the

fam

ily r

evie

w th

e IS

Pan

nual

ly f

or a

ppro

pria

tene

ss a

nd u

pdat

es a

s ne

eded

.

If c

ase

man

agem

ent s

ervi

ces

are

deni

ed, r

educ

ed, t

erm

inat

ed,

chan

ged

with

out t

he f

amily

's c

onse

nt, o

r if

the

indi

vidu

al o

r hi

s or

her

fam

ily is

not

sat

isfi

ed in

any

way

, the

y ha

ve th

e ri

ght t

ore

ques

t a c

onci

liatio

n co

nfer

ence

or

an a

ppea

l hea

ring

.

Cas

e M

anag

emen

t

28

`3 9

16

Page 21: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

Pla

nnin

g fo

r IS

P r

evie

w m

eetin

gPr

epar

ing

for

an I

SP R

evie

w c

an b

e a

com

plic

ated

pro

cess

. By

disc

ussi

ng w

ith y

our

son

or d

augh

ter

chan

ges

that

hav

e oc

curr

ed f

or h

imor

her

sin

ce th

e la

st r

evie

w m

eetin

g, y

ou c

an c

ompi

le im

port

ant i

nfor

mat

ion

prio

r to

the

mee

ting

and

be p

repa

red

to a

ddre

ss th

ose

issu

esw

ith y

our

Cou

nty

Cas

e M

anag

er a

nd s

ervi

ce p

rovi

ders

.

Issu

es to

con

side

r pr

ior

to th

e IS

P m

eetin

g:1.

Dis

cuss

with

you

r so

n or

dau

ghte

r w

hat s

ucce

sses

or

prog

ress

Lis

t obs

tacl

es th

at p

aren

ts a

nd o

ther

s ha

ve o

bser

ved.

have

occ

urre

d si

nce

the

last

ISP

rev

iew

.

Lis

t pos

itive

cha

nges

that

you

r so

n or

dau

ghte

r fe

els

have

occ

urre

d.

Lis

t suc

cess

es o

r pr

ogre

ss th

at f

amily

mem

bers

hav

eob

serv

ed.

2.D

iscu

ss w

ith y

our

son

or d

augh

ter

prob

lem

s or

con

cern

s th

atha

ve a

rise

n fo

r hi

m o

r he

r.

Lis

t pro

blem

s or

con

cern

s th

at y

our

son

or d

augh

ter

feel

s ha

ve o

ccur

red.

4 0

3.L

ist a

dditi

onal

sup

port

s or

ser

vice

s th

at w

ould

hel

p re

solv

e an

yof

thes

e pr

oble

ms

or c

once

rns.

Aft

er c

onsi

deri

ng th

e ab

ove

ques

tions

, if

som

e is

sues

cou

ld'v

ere

solv

ed w

ith a

dditi

onal

sup

port

fro

m th

e co

unty

, it m

ight

. be

help

ful t

o co

ntac

t you

r ca

se m

anag

er in

adv

ance

of

the

mee

ting.

You

r ca

se m

anag

er m

ay th

en b

e ab

le to

get

app

rova

l for

fun

ding

(if

avai

labl

e) f

or th

ese

serv

ices

, and

impl

emen

tatio

n of

them

can

be d

iscu

ssed

at t

he m

eetin

g.

4 1

Cas

e M

anag

emen

t17

Page 22: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

ISP

Par

ticip

ants

Cou

nty

case

man

ager

Nam

e

Add

ress

Phon

e

Mee

ting

date

Peop

le in

vite

d to

mee

ting

Nam

eT

itle

Dat

e

Cas

e M

anag

emen

t

4243

Page 23: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

Mee

ting

note

sT

akin

g no

tes

duri

ng th

e IS

P re

view

will

hel

p yo

u en

sure

that

all

serv

ices

dis

cuss

ed a

re in

clud

ed in

the

ISP.

By

refe

rrin

g to

you

rno

tes,

you

can

fol

low

up

with

you

r so

n or

dau

ghte

r's c

ase

man

ager

and

ser

vice

pro

vide

rs to

be

sure

they

are

ful

filli

ng a

ll de

sign

ated

resp

onsi

bilit

ies.

14

Cas

e M

anag

emen

t19

Page 24: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

Em

ploy

men

tO

ne o

f th

e m

ost i

mpo

rtan

t asp

ects

of

tran

sitio

n pl

anni

ng is

the

prep

arat

ion

of th

e yo

uth

for

the

wor

ld o

f w

ork.

The

re a

re a

var

iety

of p

eopl

e w

ho a

re tr

aine

d to

sup

port

you

th a

nd th

eir

fam

ily in

plan

ning

and

pre

pari

ng f

or e

mpl

oym

ent i

n th

e co

mm

unity

. The

sepe

ople

may

incl

ude

voca

tiona

l, sp

ecia

l and

reg

ular

edu

cato

rs,

coun

selo

rs f

rom

the

Dep

artm

ent o

f R

ehab

ilita

tion

Serv

ices

(D

RS)

,an

d co

unty

cas

e m

anag

ers.

In

man

y sc

hool

s, V

ocat

iona

lE

duca

tion

prog

ram

s de

sign

ed to

prep

are

yout

h fo

r em

ploy

men

t in

the

com

mun

ity a

re a

lso

avai

labl

e.

Thr

ough

out a

stu

dent

s e

duca

tion,

ther

e ar

e jo

b-re

late

d sk

ills

and

beha

vior

s, k

now

n as

PR

EV

OC

AT

ION

AL

ski

lls, w

hich

can

be

r.st

ered

to h

elp

him

or

her

be s

ucce

ssfu

l in

futu

re e

mpl

oym

ent.

The

se s

kills

sho

uld

be p

art o

f ea

rly

educ

atio

nal p

lann

ing,

and

be

deve

lope

d in

bot

h th

e ho

me

and

scho

ol e

nvir

onm

ent.

Exa

mpl

esar

e:

phys

ical

sta

min

a

prom

ptne

ss

prob

lem

sol

ving

hygi

ene

*ab

ility

to a

ccep

t cri

ticis

mab

ility

to f

ollo

w d

irec

tions

inde

pend

ence

in c

ompl

etin

g as

sign

ed ta

sks

abili

ty to

est

ablis

h so

cial

rel

atio

nshi

ps w

ith c

o-w

orke

rs

Em

ploy

men

t

164

Page 25: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

=M

O

Voc

atio

nal E

duca

tion

Pla

nnin

gU

pon

grad

uatio

n fr

om h

igh

scho

ol, m

any

indi

vidu

als

may

cho

ose

to p

ursu

e co

ntin

ued

empl

oym

ent t

rain

ing

in a

pos

t-se

cond

ary

inst

itutio

n; o

ther

s w

ill c

hoos

e to

beg

in w

orki

ng r

ight

aw

ay. I

nei

ther

cas

e, a

car

eful

ly d

esig

ned

voca

tiona

l pro

gram

in h

igh

scho

olw

ill h

elp

prep

are

the

yout

h fo

r a

job

that

will

be

both

cha

lleng

ing

and

rew

ardi

ng.

A c

ompr

ehen

sive

voc

atio

nal p

lan

is o

ne th

at w

ill a

ssis

t the

stu

dent

to d

evel

op th

e sk

ills

need

ed to

fin

d an

d ke

ep a

job

afte

rgr

adua

tion.

Hig

h sc

hool

s of

fer

voca

tiona

l edu

catio

n pr

ogra

ms

that

are

desi

gned

to p

repa

re s

tude

nts

for

empl

oym

ent.

In s

choo

ls th

atof

fer

a vo

catio

nal w

ork

expe

rien

ce p

rogr

am f

or s

tude

nts

with

spec

ial n

eeds

, the

pri

mar

y m

embe

r of

the

voca

tiona

l tea

m s

houl

dbe

the

wor

k ex

peri

ence

coo

rdin

ator

, a te

ache

r w

ho is

voc

atio

nally

licen

sed.

Thi

s in

divi

dual

, alo

ng w

ith o

ther

teac

hers

, will

wor

k

with

stu

dent

s to

dev

elop

voc

atio

nal g

oals

that

ref

lect

thei

r sk

ills,

abili

ties

and

voca

tiona

l nee

ds. I

f a

scho

ol d

oes

not h

ave

avo

catio

nal e

duca

tion

prog

ram

, the

stu

dent

's s

peci

al e

duca

tion

teac

her

is r

espo

nsib

le f

or d

evel

opin

g th

e st

uden

t's v

ocat

ion

goal

s.

You

th w

ith d

isab

ilitie

s ar

e en

title

d to

cer

tain

em

ploy

men

t-re

late

dse

rvic

es. T

he b

asic

ser

vice

s th

at th

ey s

houl

d re

ceiv

e du

ring

hig

hsc

hool

are

:

1) A

voc

atio

nal a

sses

smen

t of

thei

r in

tere

sts

and

abili

ties.

2) S

peci

al s

ervi

ces,

incl

udin

g cu

rric

ulum

mod

ific

atio

ns th

atfa

cilit

ate

succ

ess

in v

ocat

iona

l pro

gram

s.

3) G

uida

nce,

car

eer

coun

selin

g an

d ca

reer

dev

elop

men

t act

iviti

es.

4) C

ouns

elin

g se

rvic

es to

eas

e th

e tr

ansi

tion

from

sch

ool t

o w

ork.

Em

ploy

men

t21

Page 26: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

Div

isio

n of

Reh

abili

tatio

n Se

rvic

es (

DR

S)A

noth

er im

port

ant m

embe

r of

the

tran

sitio

n te

am is

a c

ouns

elor

from

the

Dep

artm

ent o

f R

ehab

ilita

tion

Serv

ices

(D

RS)

. Thi

spe

rson

will

wor

k w

ith th

e te

am to

hel

p pl

an f

or th

e st

uden

t's f

utur

eem

ploy

men

t nee

ds. D

RS

is a

n ag

ency

that

pri

mar

ily s

erve

s ad

ults

;ho

wev

er, i

t is

impo

rtan

t to

invo

lve

the

coun

selo

r du

ring

the

tran

sitio

n pr

oces

s so

whe

n th

e st

uden

t gra

duat

es a

nd e

nter

s th

ew

ork

forc

e, th

e su

ppor

ts a

re in

pla

ce th

at w

ill a

llow

him

or

her

tobe

suc

cess

fully

em

ploy

ed. T

o re

ceiv

e se

rvic

es f

rom

DR

S, a

nin

divi

dual

mus

t mee

t cer

tain

elig

ibili

ty r

equi

rem

ents

.

To

qual

ify

for

DR

S se

rvic

es:

1) T

he in

divi

dual

mus

t hav

e a

phys

ical

or

men

tal d

isab

ility

whi

ch p

rese

nts

diff

icul

ties

or b

arri

ers

to e

mpl

oym

ent.

2) T

here

mus

t be

a go

od c

hanc

e th

at D

RS

serv

ices

will

hel

p hi

mor

her

get

and

kee

p a

job.

The

rol

e of

DR

S is

to h

elp

pers

ons

with

dis

abili

ties

find

empl

oym

ent.

The

ser

vice

s th

at D

RS

buys

mus

t be

empl

oym

ent

rela

ted.

. The

type

s of

ser

vice

s D

RS

prov

ides

incl

ude:

med

ical

, psy

chol

ogic

al a

nd v

ocat

iona

l eva

luat

ions

;

tran

sitio

nal a

nd s

uppo

rted

em

ploy

men

t;

assi

stan

ce in

ada

ptin

g w

ork

setti

ngs;

assi

stiv

e ai

ds to

incr

ease

a p

erso

n's

abili

ty to

wor

k, s

uch

asco

mm

unic

atio

n bo

ards

or

mot

oriz

ed c

hair

s.

Em

ploy

men

t

5 0

522

Page 27: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

If th

e te

ache

r ha

s no

t mad

e th

e re

ferr

al b

y th

is ti

me,

par

ents

can

requ

est t

hat c

onta

ct b

e m

ade,

or

cont

act D

RS

dire

ctly

and

req

uest

thei

r in

volv

emen

t. If

the

stud

ent h

as m

ore

chal

leng

ing

empl

oym

ent n

eeds

, a D

RS

coun

selo

r ca

n be

com

e in

volv

ed in

the

plan

ning

pro

cess

as

earl

y as

age

14.

By

beco

min

g in

volv

ed d

urin

gth

e tr

ansi

tion

plan

ning

pro

cess

, you

r D

RS

coun

selo

r ca

n be

com

efa

mili

ar w

ith th

e st

uden

t, hi

s or

her

em

ploy

men

t goa

ls a

nd h

is o

rhe

r fu

ture

ser

vice

nee

ds. T

he c

ouns

elor

may

be

able

to a

rran

gese

rvic

es w

hich

can

sup

plem

ent t

he v

ocat

iona

l pro

gram

the

scho

olis

pro

vidi

ng to

hel

p m

ake

a sm

ooth

tran

sitio

n in

to p

erm

anen

tem

ploy

men

t.

DR

S se

rvic

es a

re ti

me-

limite

d. F

or e

xam

ple,

the

agen

cy w

illpr

ovid

e jo

b-pl

acem

ent s

ervi

ces,

and

to e

nsur

e th

e pe

rson

with

adi

sabi

lity

is s

atis

fact

orily

em

ploy

ed, w

ill p

rovi

de f

ollo

w-u

pse

rvic

es f

or a

t lea

st 6

0 da

ys a

nd u

p to

18

mon

ths

afte

r th

e in

itial

r n

job

plac

emen

t. If

an

indi

vidu

al r

equi

res

ongo

ing

supp

ort b

eyon

dth

is p

erio

d, th

e co

unty

hum

an s

ervi

ces

agen

cy is

typi

cally

fina

ncia

lly r

espo

nsib

le f

or th

e se

rvic

es. T

he c

ount

y w

ill p

urch

ase

thes

e su

ppor

ts f

rom

pro

vide

rs o

f em

ploy

men

t ser

vice

s. B

ecau

seth

e co

unty

mus

t agr

ee in

adv

ance

to p

rovi

de th

is lo

ng-t

erm

supp

ort,

the

case

man

ager

sho

uld

be in

volv

ed in

any

long

-ran

geem

ploy

men

t pla

nnin

g al

ong

with

the

DR

S co

unse

lor.

If, i

n th

e fu

ture

, the

per

son

with

a d

isab

ility

onc

e ag

ain

need

sas

sist

ance

to r

etai

n hi

s or

her

cur

rent

em

ploy

men

t, fi

nd a

new

job,

or r

eest

ablis

h a

voca

tiona

l pro

gram

, his

/her

file

can

be

reop

ened

by

cont

actin

g th

e pr

evio

us D

RS

coun

selo

r. I

n so

me

case

s th

e pe

rson

may

nee

d to

rea

pply

for

DR

S se

rvic

es.

Em

ploy

men

t

Page 28: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

Typ

es o

f em

ploy

men

tIn

divi

dual

s w

ho d

esir

e to

ent

er th

e w

ork

forc

e up

on g

radu

atio

nsh

ould

sta

rt p

lann

ing

for

empl

oym

ent a

s ea

rly

as p

ossi

ble.

The

pers

on w

ith a

dis

abili

ty a

nd h

is o

r he

r fa

mily

mem

bers

nee

d tim

eto

det

erm

ine

wha

t kin

ds o

f w

ork

are

best

sui

ted

to th

e in

tere

sts

and

need

s of

the

indi

vidu

al.

The

re a

re tw

o as

pect

s to

em

ploy

men

t tha

t are

ext

rem

ely

impo

rtan

tto

con

side

r: f

indi

ng a

job

and

keep

ing

a jo

b. I

ndiv

idua

ls m

ayre

quir

e lit

tle o

r no

hel

p w

ith o

ne o

r bo

th, o

r th

ey m

ay r

equi

re a

grea

t dea

l of

help

.

Hel

p fi

ndin

g a

job

com

es f

rom

the

Voc

atio

nal R

ehab

ilita

tion

Age

ncy,

and

, at t

imes

, fro

m th

e co

unty

soc

ial s

ervi

ce a

genc

y.T

hese

age

ncie

s of

ten

purc

hase

this

hel

p fr

om c

ompa

nies

that

spec

ializ

e in

fin

ding

em

ploy

men

t for

adu

lts w

ith d

isab

ilitie

s.

How

muc

h he

lp d

oes

your

son

or

daug

hter

nee

d fin

ding

a jo

b?

No

help

Som

e he

lpV

ery

muc

h he

lp

Em

ploy

men

t in

whi

ch p

erso

ns n

eed

long

-ter

m o

r on

goin

g he

lp to

keep

a jo

b is

cal

led

supp

orte

d em

ploy

men

t. Su

ppor

ted

empl

oym

ent i

s a

job

with

pay

at a

bus

ines

s in

the

com

mun

ity.

Hel

p fo

r th

e in

divi

dual

is p

rovi

ded

by th

e sa

me

com

pani

es th

atsp

ecia

lize

in f

indi

ng e

mpl

oym

ent f

or a

dults

with

dis

abili

ties.

The

ypr

ovid

e a

job

coac

h to

giv

e he

lp d

irec

tly to

the

indi

vidu

al w

ithdi

sabi

litie

s. I

n so

me

case

s th

e jo

b co

ach

prov

ides

ass

ista

nce

to th

em

anag

ers

and

co-w

orke

rs s

o th

ey c

an a

ssis

t the

em

ploy

ee w

ho h

asa

disa

bilit

y. T

his

is c

alle

d su

ppor

ted

empl

oym

ent w

ith n

atur

alsu

ppor

ts.

How

muc

h he

lp d

oes

your

son

or

daug

hter

nee

d ke

epin

g a

lob?

No

help

Sho

rt-t

erm

hel

pLo

ng-t

erm

hel

p

The

amou

nt a

nd k

ind

of h

elp

that

is p

rovi

ded

to f

ind

and

keep

ajo

b sh

ould

be

base

d on

the

need

s of

the

pers

on w

ith th

e di

sabi

lity.

No

pers

on s

houl

d be

den

ied

the

oppo

rtun

ity f

or e

mpl

oym

ent b

y a

voca

tiona

l reh

abili

tatio

n or

soc

ial s

ervi

ce a

genc

y be

caus

e of

the

seve

rity

of

his

or h

er d

isab

ility

.

Em

ploy

men

t55

24

Page 29: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

NO

As

the

team

beg

ins

to lo

ok a

t age

ncie

s th

at p

rovi

de e

mpl

oym

ent

serv

ices

, the

fol

low

ing

ques

tions

can

hel

p yo

u le

arn

mor

e ab

out

the

prov

ider

. The

que

stio

ns w

ill a

lso

help

you

ass

ess

the

scho

ol o

rag

ency

's a

bilit

y to

pro

vide

ser

vice

s th

at w

ill m

eet t

he y

outh

'sde

sire

s, n

eeds

and

abi

litie

s.

1) W

hat t

ypes

of

jobs

are

ava

ilabl

e?

2) H

ow d

o yo

u se

lect

a jo

b fo

r an

indi

vidu

al?

3) W

here

are

the

actu

al jo

b lo

catio

ns?

Do

you

prov

ide

indi

vidu

al o

r gr

oup

plac

emen

ts?

4) H

ow d

o yo

u pr

omot

e in

tegr

atio

n?

5) W

hat a

re th

e av

erag

e w

ages

of

empl

oyee

s? W

hat i

s th

eav

erag

e nu

mbe

r of

hou

rs w

orke

d pe

r w

eek?

6) W

hat t

ype

of s

uppo

rt d

o yo

u pr

ovid

e?

7)Is

tran

spor

tatio

n pr

ovid

ed?

Wha

t typ

e an

d by

who

m?

8) W

hat a

re th

e av

erag

e be

nefi

t pac

kage

s av

aila

ble

toem

ploy

ees?

9) W

hat p

rovi

sion

s do

you

hav

e fo

r em

ploy

ee a

nd p

aren

t or

fam

ily in

put?

r, G

Pla

nnin

g no

tes

Em

ploy

men

t25

Page 30: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

Res

iden

tial O

ptio

nsPa

rt o

f th

e tr

ansi

tion

proc

ess

for

a yo

ung

pers

on w

ith a

dis

abili

ty is

to s

tart

dis

cuss

ing

whe

re th

ey w

ant t

o liv

e af

ter

grad

uatio

n fr

omhi

gh s

choo

l. W

ill th

ey c

ontin

ue to

live

at h

ome?

Will

they

mov

ein

to th

eir

own

apar

tmen

t? W

ill th

ey m

ove

into

the

com

mun

ity in

asu

ppor

ted

livin

g si

tuat

ion?

If

the

goal

is to

mov

e in

to th

eco

mm

unity

, pla

nnin

g fo

r th

is m

ove

is n

eces

sary

so

that

bot

h th

eyo

uth

and

his

or h

er p

aren

ts c

an le

arn

abou

t all

the

optio

nsav

aila

ble,

and

the

yout

h ca

n le

arn

the

skill

s ne

cess

ary

to li

ve a

sin

depe

nden

tly a

s po

ssib

le.

As

the

yout

h an

d hi

s or

her

fam

ily b

egin

to th

ink

abou

t the

fut

ure,

the

follo

win

g ar

e so

me

of th

e ar

eas

that

they

will

wan

t to

cons

ider

as th

ey b

egin

to id

entif

y th

e ty

pe o

f liv

ing

situ

atio

n th

at w

ould

be

mos

t app

ropr

iate

.

Supe

rvis

ion

In w

hat a

reas

of

daily

livi

ng w

ill th

ein

divi

dual

nee

d co

ntin

ued

supp

orts

?

Com

pani

onsh

ipW

ill r

oom

mat

es b

epe

ers

with

or

with

out

disa

bilit

ies?

How

will

inte

grat

ion

in th

e co

mm

unity

be

achi

eved

?L

ocat

ion

Wha

t is

the

prox

imity

to f

amily

mem

bers

,fr

iend

s, w

ork,

chu

rch,

syn

agog

ues,

oth

er a

ctiv

ities

?

Tra

nspo

rtat

ion

Will

the

indi

vidu

al le

arn

to d

rive

a c

ar?

Are

bus

rou

tes,

wor

k, r

ecre

atio

n ne

arby

?Su

ppor

t ser

vice

sH

ow w

ill p

hysi

cal t

hera

py, m

edic

al,

dent

al, o

ther

hea

lth n

eeds

be

met

?Ph

ysic

al E

nvir

onm

ent

Is th

e lo

catio

n ba

rrie

r-fr

ee?

How

will

ass

istiv

e te

chno

logy

nee

ds, t

elep

hone

dev

ice

for

the

deaf

(T

DD

), e

tc. b

e m

et?

Res

iden

tial O

ptio

ns

559

Page 31: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

The

re a

re a

var

iety

of

resi

dent

ial o

ptio

ns a

vaila

ble

for

adul

ts w

ithdi

sabi

litie

s. A

fter

con

side

ring

all

of th

e is

sues

that

aff

ect t

heyo

ung

pers

on's

leve

l of

inde

pend

ence

, the

fam

ily c

an b

egin

toex

plor

e th

e ch

oice

s th

at a

re a

vaila

ble.

Stu

dent

s w

ith d

isab

ilitie

san

d th

eir

fam

ilies

will

wan

t to

lear

n as

muc

h as

pos

sibl

e ab

out t

here

side

ntia

l opt

ions

ava

ilabl

e in

thei

r ow

n st

ate

to c

hoos

e th

e on

eth

at w

ill b

est m

atch

the

stud

ent's

pot

entia

l.

Ren

t sub

sidi

zed

apar

tmen

tIn

divi

dual

s w

ho h

ave

the

skill

s ne

cess

ary

to li

ve in

depe

nden

tlym

ay b

e in

tere

sted

in r

entin

g an

apa

rtm

ent o

f th

eir

own.

For

peo

ple

on a

lim

ited

inco

me,

ren

t sub

sidi

es, s

uch

as S

ectio

n 8

cert

ific

ates

,ar

e av

aila

ble

thro

ugh

your

loca

l hou

sing

dep

artm

ent.

The

sesu

bsid

ies

allo

w p

eopl

e on

a li

mite

d in

com

e to

live

in a

n in

tegr

ated

envi

ronm

ent i

n a

regu

lar

apar

tmen

t bui

ldin

g.

60

Sem

i Ind

epen

dent

Liv

ing

Serv

ices

(SI

LS)

Man

y in

divi

dual

s w

ho m

ight

oth

erw

ise

live

in a

mor

e re

stri

ctiv

ese

tting

, are

abl

e to

live

in th

e co

mm

unity

with

sup

port

s. S

ILS

is a

serv

ice

whi

ch is

ava

ilabl

e th

roug

h th

e co

unty

, and

is p

rovi

ded

tope

rson

s w

ith m

enta

l ret

arda

tion

or a

rel

ated

con

ditio

n in

thei

r pl

ace

of r

esid

ence

. SIL

S pr

ovid

es tr

aini

ng a

nd c

ouns

elin

g in

spe

cifi

car

eas

of in

depe

nden

t liv

ing

such

as

fina

ncia

l man

agem

ent,

groc

ery

shop

ping

, mea

l pre

para

tion

or m

edic

al is

sues

, whi

le a

llow

ing

the

pers

on to

mai

ntai

n th

eir

inde

pend

ence

.

Pers

onal

Car

e A

ssis

tant

(PC

A)

Serv

ices

Peop

le w

ho n

eed

assi

stan

ce f

or p

hysi

cal h

ealth

or

care

issu

es c

anbe

nefi

t fro

m P

CA

ser

vice

s. P

erso

nal c

are

serv

ices

may

aid

ape

rson

in a

reas

suc

h as

med

icat

ion

adm

inis

trat

ion,

bla

dder

car

e,ra

nge

of m

otio

n an

d po

sitio

ning

exe

rcis

es. T

he s

ervi

ces

are

avai

labl

e th

roug

h M

edic

al A

ssis

tanc

e, a

nd a

re m

anag

ed b

y th

epe

rson

with

a d

isab

ility

.

11

Res

iden

tial O

ptio

ns27

Page 32: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

Adu

lt Fo

ster

Car

eFo

r pe

ople

with

dis

abili

ties

who

wan

t to

live

in a

fam

ily s

ettin

g bu

tar

e un

able

to li

ve in

depe

nden

tly, a

dult

fost

er c

are

prov

ides

them

an

oppo

rtun

ity f

or f

ull i

nteg

ratio

n in

the

com

mun

ity w

hile

livi

ng in

asa

fe e

nvir

onm

ent.

The

per

son

with

a d

isab

ility

can

live

with

afa

mily

or

indi

vidu

al f

oste

r ca

re p

rovi

der,

lice

nsed

by

the

coun

ty,

who

will

pro

vide

sup

ervi

sion

and

per

sona

l car

e w

hile

allo

win

g th

epe

rson

to m

aint

ain

a gr

eat d

eal o

f in

depe

nden

ce.

Priv

ate

Ow

ners

hip

Man

y pe

ople

pre

fer

the

secu

rity

of

priv

ate

owne

rshi

p ov

er r

entin

gan

apa

rtm

ent o

r liv

ing

in s

omeo

ne e

lse'

s ho

me.

If

a pe

rson

with

adi

sabi

lity

or th

eir

fam

ily is

abl

e to

pur

chas

e a

hom

e, a

rran

gem

ents

can

be m

ade

with

the

coun

ty to

sec

ure

serv

ices

to b

e pr

ovid

ed in

the

hom

e. O

ne b

enef

it of

the

arra

ngem

ent i

s th

e co

nsis

tenc

y of

the

hom

e en

viro

nmen

t for

the

pers

on w

ith a

dis

abili

ty. S

taff

turn

over

will

res

ult i

n a

min

imum

of

disr

uptio

n fo

r pe

ople

in th

eir

own

hom

e.

Supp

orte

d L

ivin

g Se

rvic

es (

SLS)

Peop

le w

ith m

enta

l ret

arda

tion

or a

rel

ated

con

ditio

n w

ho n

eed

addi

tiona

l ass

ista

nce

to li

ve in

the

com

mun

ity m

ay li

ve in

an

SLS.

An

SLS

is a

hom

e w

here

no

mor

e th

at s

ix a

dults

with

sim

ilar

disa

bilit

ies

live.

The

str

uctu

re o

f th

e ho

me

incl

udes

pai

d st

aff

who

supe

rvis

e th

e re

side

nts

of th

e ho

me

and

prov

ide

assi

stan

ce a

ndtr

aini

ng w

ith d

aily

livi

ng s

kills

. Ser

vice

s ar

e fu

nded

thro

ugh

wai

vere

d se

rvic

es a

nd a

rran

ged

by th

e co

unty

cas

e m

anag

er.

Inte

rmed

iate

Car

e Fa

cilit

y fo

rPe

rson

s w

ith M

enta

l Ret

arda

tion

ICF/

MR

An

ICF/

MR

is a

gro

up h

ome

for

peop

le w

ho r

equi

re 2

4-ho

ursu

perv

isio

n. P

eopl

e w

ho li

ve in

an

ICF/

MR

are

sup

ervi

sed

by p

aid

staf

f w

ho p

rovi

de d

aily

car

e an

d he

lp th

e re

side

nts

deve

lop

daily

livin

g sk

ills.

The

se s

ervi

ces

are

also

pai

d fo

r th

roug

h th

e m

edic

alas

sist

ance

wai

ver

and

arra

nged

for

the

coun

ty s

ocia

l wor

ker.

Res

iden

tial O

ptio

ns

3

28

Page 33: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

If th

e pe

rson

with

a d

isab

ility

and

his

or

her

fam

ily d

ecid

es th

at a

supe

rvis

ed r

t3id

entia

l set

ting

is m

ost a

ppro

pria

te to

mee

t the

indi

vidu

al's

nee

ds, t

hey

will

wan

t to

inve

stig

ate

the

prog

ram

s th

atof

fer

thes

e se

rvic

es. F

ollo

win

g ar

e so

me

issu

es th

at s

houl

d be

cons

ider

ed w

hen

choo

sing

a p

rovi

der

of r

esid

entia

l ser

vice

s.

Wha

t are

the

elig

ibili

ty r

equi

rem

ents

? H

ow is

the

hom

elic

ense

d an

d w

ho e

nsur

es th

at it

is f

ulfi

lling

all

of it

sre

quir

emen

ts?

How

is th

e ho

me

inte

grat

ed in

to th

e co

mm

unity

? Is

itlo

cate

d ne

ar b

us li

nes,

sho

ppin

g, a

nd r

ecre

atio

nal i

nter

ests

?

How

man

y st

aff

are

avai

labl

e in

the

hom

e, w

hat h

ours

do

they

wor

k, w

hat a

re th

eir

qual

ific

atio

ns, a

nd h

ow a

re th

eytr

aine

d? A

re s

taff

ava

ilabl

e if

som

eone

nee

ds to

sta

y ho

me

from

wor

k or

an

activ

ity d

ue to

illn

ess?

Do

pers

ons

livin

g in

the

hom

e ha

ve in

divi

dual

pro

gram

plan

s th

at in

crea

se c

hoic

e m

akin

g, in

depe

nden

t liv

ing

skill

s,se

lf e

stee

m; a

nd r

ecre

atio

n/le

isur

e pa

rtic

ipat

ion?

Doe

s th

e ho

me

have

a s

truc

ture

d da

ily s

ched

ule?

Doe

s it

allo

w f

or p

erso

nal c

hoic

e of

act

iviti

es a

nd p

riva

te ti

me?

Do

peop

le w

ho li

ve in

the

hom

e ha

ve o

ppor

tuni

ties

topa

rtic

ipat

e in

act

iviti

es o

f th

eir

choi

ce?

Is tr

ansp

orta

tion

prov

ided

to s

ched

uled

and

uns

ched

uled

act

iviti

es?

How

are

cha

lleng

ing

beha

vior

s ha

ndle

d, a

nd h

ow is

the

fam

ily in

clud

ed in

the

beha

vior

pla

n or

inte

rven

tion?

Res

iden

tial O

ptio

ns29

Page 34: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

How

man

y pe

ople

live

in th

e ho

me?

Are

they

pro

vide

dpr

ivac

y an

d ch

oice

s w

ith r

egar

d to

thei

r pe

rson

al s

pace

and

prop

erty

? D

o th

ey h

ave

a ch

oice

of

havi

ng th

eir

own

room

or s

hari

ng a

roo

m w

ith a

noth

er in

divi

dual

?

Wha

t is

the

cond

ition

of

the

hom

e, a

nd o

f pe

ople

livi

ngth

ere?

Doe

s th

e ho

me

have

age

app

ropr

iate

fur

nish

ings

and

supp

lies?

Are

indi

vidu

als

dres

sed

in a

n ag

e ap

prop

riat

em

anne

r, in

cle

an c

loth

es w

ith g

ood

pers

onal

hyg

iene

? D

oth

ey s

eem

hap

py?

How

is m

edic

atio

n st

ored

, mon

itore

d an

d gi

ven?

Are

med

ical

ser

vice

s pr

ovid

ed o

n a

regu

lar

and

as-n

eede

d ba

sis?

Who

pro

vide

s m

edic

al s

ervi

ces?

Who

man

ages

the

resi

dent

's m

oney

? D

o th

e re

side

nts

have

choi

ces

with

reg

ard

to h

ow th

eir

pers

onal

fin

ance

s ar

e sp

ent?

How

do

the

staf

f in

tera

ct w

ith th

e pe

ople

who

live

in th

eho

me?

Do

staf

f pa

rtic

ipat

e in

act

iviti

es o

f th

e ho

me

as p

eers

,jo

inin

g m

eals

, rec

reat

iona

l act

iviti

es, e

tc.?

Wha

t are

you

r so

n's

or d

augh

ter's

fee

lings

abo

ut th

e ho

me?

Impr

essi

ons?

Lik

es?

Dis

likes

?

Wha

t's y

our

feel

ing

abou

t the

hom

e? I

mpr

essi

ons?

Lik

es/

disl

ikes

?

Res

iden

tial O

ptio

ns30

Page 35: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

Pre

parin

g fo

r T

rans

ition

to A

dult

Hea

lth C

are

Ser

vice

sW

hile

pre

pari

ng f

or in

depe

nden

ce, i

t is

impo

rtan

t for

adol

esce

nts

with

dis

abili

ties

to c

onsi

der

assu

min

g so

me

resp

onsi

bilit

y fo

r th

eir

own

heal

th c

are.

As

youn

g ad

ults

with

disa

bilit

ies

seek

ser

vice

s in

the

adul

t hea

lth c

are

syst

em, t

hey

find

they

mus

t acq

uire

new

info

rmat

ion

and

deve

lop

diff

eren

tsk

ills.

The

hea

lth s

yste

m e

xpec

ts y

oung

adu

lts to

mak

ede

cisi

ons

abou

t the

ir o

wn

heal

th c

are

and

inde

pend

ently

coor

dina

te s

ervi

ces.

Par

ents

and

ado

lesc

ents

str

uggl

e w

ithm

eetin

g th

ese

dem

ands

and

fin

ding

app

ropr

iate

res

ourc

es a

sth

ey s

eek

heal

th c

are

in th

e co

mm

unity

.

Tra

nsiti

on H

ealth

:Fo

cuse

s on

lear

ning

wha

t ski

lls a

re n

eede

d to

ass

ume

resp

onsi

bilit

y fo

r he

alth

car

e.

Focu

ses

on is

sues

of

sexu

ality

and

rep

rodu

ctiv

e he

alth

.

Bui

lds

com

mun

icat

ion

skill

s w

ith h

ealth

pro

fess

iona

ls.

Prom

otes

sel

f ad

voca

cy in

hea

lth c

are.

Iden

tifie

s he

alth

car

e fi

nanc

ing

reso

urce

s.

Prov

ides

an

oppo

rtun

ity to

pla

n tr

ansi

tion

heal

th g

oals

.

Tra

nsiti

on H

ealth

pla

nnin

g co

nsis

ts o

f:Id

entif

ying

thos

e he

alth

-rel

ated

ski

lls th

e ad

oles

cent

can

perf

orm

inde

pend

ently

.

Iden

tifyi

ng c

omm

unity

sup

port

and

res

ourc

es to

hel

p th

ead

oles

cent

ass

ume

som

e re

spon

sibi

lity

for

his

or h

er h

ealth

care

.

5

Hea

lth C

are

3I

Page 36: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

Is y

our

son

or d

augh

ter

read

y to

man

age

his

or h

er o

wn

heal

th c

are?

Use

the

follo

win

g qu

estio

ns to

gui

de y

our

disc

ussi

on o

n he

alth

care

with

you

r so

n or

dau

ghte

r. T

hese

que

stio

ns w

ill h

elp

you

gain

som

e in

sigh

t int

o ho

w y

our

son

or d

augh

ter

feel

s ab

out b

eing

resp

onsi

ble

for

his

or h

er o

wn

heal

th c

are.

I w

orry

abo

ut m

y he

alth

.

My

pare

nts

alw

ays

take

car

e of

all

my

heal

th n

eeds

.

I w

ould

like

to k

now

mor

e ab

out m

y, il

lnes

s or

dis

abili

ty.

I w

ould

like

to b

e re

spon

sibl

e fo

r ta

king

my

own

med

icat

ions

and

follo

win

g m

y ow

n m

edic

al p

lan.

It is

eas

y fo

r m

e to

talk

with

my

doct

or.

I fe

el I

hav

e lit

tle o

r no

con

trol

ove

r m

y ill

ness

or

disa

bilit

y.

If I

fol

low

my

doct

or's

ord

ers,

my

doct

or w

ill b

e pl

ease

d w

ith m

e.

I w

ould

like

to s

peak

with

my

doct

or a

lone

dur

ing

visi

ts.

I w

ould

like

to g

o to

the

doct

or b

y m

ysel

f.

Som

etim

es I

get

em

barr

asse

d if

I h

ave

to ta

ke m

y m

edic

atio

ns in

fron

t of

my

frie

nds.

If I

fol

low

my

med

ical

pla

n an

d ta

ke m

y m

edic

atio

ns, m

y he

alth

isus

ually

goo

d.

My

heal

th n

eeds

will

aff

ect m

y fu

ture

.

Hea

lth C

are

7 0

7 1

32

Page 37: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

Hea

lth C

are

Ski

llsH

ere

is a

list

of

heal

th c

are

skill

s to

con

side

r in

pla

nnin

g fo

r he

alth

car

e in

the

com

mun

ity. W

hich

ski

lls d

oes

your

son

or

daug

hter

perf

orm

inde

pend

ently

? W

hich

ski

lls w

ill h

e or

she

nee

d sp

ecif

ic s

uppo

rts

to p

erfo

rm?

Wha

t sup

port

and

res

ourc

es a

re a

vaila

ble

in y

our

com

mu-

nity

? C

onsi

der

wri

ting

som

e he

alth

goa

ls in

you

r so

n's

or d

augh

ter's

Ind

ivid

ual E

duca

tion

Plan

(IE

P) a

nd I

ndiv

idua

l Ser

vice

Pla

n (I

SP),

anu

ueta

ning

nea

un n

um-m

atro

n in

me

lette

r or

inte

nt, u

iscu

sseu

on

page

s 30

, 3 /

MIL

L 3

7.

Ski

lls /

Abi

litie

sC

urre

nt S

kill

Leve

lD

esire

d S

kill

Leve

l

Res

ourc

es/P

erso

ns w

ho c

anhe

lp y

our

son/

daug

hter

gai

nth

is s

kill

Des

crib

es c

hron

ic il

lnes

s or

dis

abili

ty

Und

erst

ands

impl

icat

ions

of

chro

nic

illne

ss/

disa

bilit

y on

dai

ly li

fe

Acc

esse

s m

edic

al r

ecor

ds, d

iagn

osis

info

rmat

ion,

etc

.

Prep

ares

and

ask

s qu

estio

ns f

or d

octo

rs,

nurs

es, t

hera

pist

s

Kno

ws

med

icat

ions

and

wha

t the

y're

for

, or

carr

ies

info

rmat

ion

in w

alle

t

Is r

espo

nsib

le f

or f

ollo

win

g ow

n m

edic

al p

lan

Is r

espo

nsib

le f

or d

oing

ow

n tr

eatm

ents

Get

s a

pres

crip

tion

fille

d/re

fille

d

Cal

ls to

sch

edul

e ow

n m

edic

al/d

enta

lap

poin

tmen

ts

Kee

ps a

cal

enda

r of

med

ical

app

oint

men

ts

Kno

ws

tran

spor

tatio

n sy

stem

to m

edic

al o

ffic

e

Hea

lth C

are

33

Page 38: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

Skill

s / A

bilit

ies

Cur

rent

Ski

ll L

evel

Des

ired

Ski

ll L

evel

Res

ourc

es/P

erso

ns w

ho c

anhe

lp y

our

son/

daug

hter

gai

nth

is s

kill

Kno

ws

heig

ht, w

eigh

t, bi

rthd

ate,

or

carr

ies

info

rmat

ion

in w

alle

t

Kno

ws

how

to u

se a

nd r

ead

a th

erm

omet

er

Kno

ws

heal

th e

mer

genc

y te

leph

one

num

bers

,or

car

ries

info

rmat

ion

in w

alle

t

Kno

ws

med

ical

insu

ranc

e nu

mbe

rs, o

r ca

rrie

sin

form

atio

n in

wal

let

Kno

ws

abou

t med

ical

insu

ranc

e co

vera

ge

Obt

ains

sex

edu

catio

n m

ater

ials

/bir

th c

ontr

ol/

fam

ily p

lann

ing

info

rmat

ion

as n

eede

d

Kno

ws

abou

t gen

eral

hea

lth m

aint

enan

ce

Kno

ws

abou

t how

dru

gs/a

lcoh

ol a

ffec

tdi

sabi

lity/

illne

ss

Mak

es c

onta

ct w

ith a

ppro

pria

te c

omm

unity

advo

cacy

org

aniz

atio

ns

Tak

es c

are

of o

wn

men

stru

al n

eeds

and

kee

psa

reco

rd o

f m

onth

ly p

erio

ds

Has

con

side

red

the

need

for

a h

ealth

adv

ocat

e

Has

iden

tifie

d a

phys

icia

n fo

r ad

ult c

are

Kno

ws

how

to h

ire

and

man

age

a pz

rson

al c

are

atte

ndan

t

Hea

lth C

are

'75

34

Page 39: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

Est

ate

Pla

nnin

gT

hrou

gh p

rope

r es

tate

pla

nnin

g, p

aren

ts c

an im

prov

e th

e qu

ality

of

life

for

thei

r so

n or

dau

ghte

r by

leav

ing

fund

s to

cov

er th

eir

supp

lem

enta

ry n

eeds

, whi

le n

ot th

reat

enin

g th

eir

gove

rnm

ent

bene

fits

.

Peop

le w

ith d

isab

ilitie

s of

ten

rely

on

Med

ical

Ass

ista

nce

(MA

) an

dSu

pple

men

tal S

ecur

ity I

ncom

e (S

SI)

to p

rovi

de f

or th

eir

basi

cin

com

e ne

eds.

Elig

ibili

ty f

or e

ither

pro

gram

, how

ever

, is

base

d on

a pe

rson

's f

inan

cial

res

ourc

es. B

enef

its f

rom

the

gove

rnm

ent

prog

ram

s ar

e lo

st w

hen

a pe

rson

exc

eeds

the

elig

ibili

ty li

mits

.

How

par

ents

pla

n th

eir

esta

te, t

here

fore

, can

hav

e a

grea

t eff

ect o

nth

e qu

ality

of

life

for

thei

r so

n or

dau

ghte

r w

ith a

dis

abili

ty. P

rope

rpl

anni

ng c

an m

ake

sure

that

any

fin

anci

al p

rovi

sion

s m

ade

bypa

rent

s ar

e us

ed to

sup

plem

ent t

heir

chi

ld's

car

e, n

ot r

epla

cecu

rren

t fun

ding

for

pro

gram

s or

ser

vice

s. A

com

preh

ensi

ve li

fepl

an is

ess

entia

l to

ensu

re th

at a

son

or

daug

hter

with

a d

isab

ility

will

live

in a

com

fort

able

env

iron

men

t, re

ceiv

e co

mpe

tent

car

e,an

d ha

ve f

unds

to m

aint

ain

a co

mfo

rtab

le li

fest

yle

duri

ng th

eir

pare

nts'

life

time

and

afte

r.

Thi

s pl

an w

ill p

rovi

de th

e ec

onom

ic s

ecur

ity to

allo

w th

e pe

rson

with

the

disa

bilit

y to

mai

ntai

n hi

s or

her

qua

lity

of li

fe w

hile

not

jeop

ardi

zing

gov

ernm

enta

l ben

efits

by

rece

ivin

g a

dire

ctin

heri

tanc

e.

To

ensu

re th

at th

e pl

an is

com

preh

ensi

ve a

nd th

at le

gal d

ocum

ents

are

prep

ared

app

ropr

iate

ly, t

he f

amily

sho

uld

cons

ult a

team

of

76E

stat

eP

lann

ing

prof

essi

onal

s w

ho a

re f

amili

ar w

ith th

e le

gal i

ssue

s in

volv

ed. T

his

team

wou

ld ty

pica

lly c

onsi

st o

f an

est

ate

plan

ner

for

over

all

coor

dina

tion,

an

atto

rney

for

pre

para

tion

of le

gal d

ocum

ents

, and

ace

rtif

ied

publ

ic a

ccou

ntan

t to

revi

ew ta

x an

d fi

nanc

ial

cons

ider

atio

ns. W

heth

er p

aren

ts c

onsu

lt an

est

ate

plan

ning

age

ncy

or a

ssem

ble

the

team

indi

vidu

ally

, the

re a

re s

ever

al s

teps

in th

epr

oces

s w

hich

will

ens

ure

that

a c

ompr

ehen

sive

Lif

e Pl

an is

desi

gned

.

"./7 35

Page 40: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

Bas

ic P

lann

ing

Ste

ps *

1)Pr

epar

e a

life

plan

. Dev

elop

a v

isio

n of

wha

t you

and

your

son

or

daug

hter

wou

ld w

ant f

or th

eir

futu

re.

Exa

min

e al

l are

as o

f th

eir

life,

list

all

the

optio

ns th

atar

e ac

cept

able

, and

pri

oriti

ze th

em in

ord

er o

fpr

efer

ence

(se

e lif

e pl

anni

ng \a

ble

on n

ext p

age)

.

2)W

rite

a le

tter

of in

tent

. Thi

s do

cum

ent s

houl

d pr

ovid

ecl

ear

guid

ance

to y

our

succ

esso

r(s)

reg

ardi

ng y

our

hope

s an

d de

sire

s fo

r th

e fu

ture

of

your

son

or

daug

hter

, and

incl

ude

info

rmat

ion

your

suc

cess

or w

illne

ed a

bout

the

daily

car

e of

you

r so

n or

dau

ghte

r.

3)C

hoos

e a

guar

dian

, con

serv

ator

or

advo

cate

. Thi

s is

the

pers

on(s

) w

ho w

ill e

nsur

e th

at y

our

wis

hes

are

carr

ied

out.

4)D

eter

min

e th

e re

alis

iie c

ost o

f yo

ur p

lan.

Wor

king

with

a f

inan

cial

pla

nner

, det

erm

ine

how

muc

h it

will

cost

to c

arry

out

all

aspe

cts

of y

our

plan

ove

r th

elif

etim

e of

you

r so

n or

dau

ghte

r.

5)Se

lect

a c

ombi

natio

n of

res

ourc

es th

at w

ill g

uara

ntee

adeq

uate

fun

ds f

or th

e pe

rson

's li

fetim

e. N

ow th

at y

oukn

ow h

ow m

uch

it w

ill c

ost t

o ca

rry

out y

our

wis

hes,

whe

re w

ill th

e m

oney

com

e fr

om?

6)W

orki

ng w

ith y

our

atto

rney

, pre

pare

car

eful

ly w

orde

dL

ast W

ill a

nd T

esta

men

ts. Y

ou m

ust e

xclu

de y

our

son

or d

augh

ter

with

a d

isab

ility

by

nam

e, s

o he

or

she

does

not

rec

eive

a d

irec

t inh

erita

nce

and

jeop

ardi

zego

vern

men

tal b

enef

its.

7)E

stab

lish

a L

ivin

g, S

peci

al N

eeds

Tru

st to

man

age

the

reso

urce

s, p

rote

ct y

our

son

or d

augh

ter's

gove

rnm

enta

l ben

efits

, and

pro

vide

sup

plem

enta

lfi

nanc

ial a

ssis

tanc

e.

8)C

hoos

e a

num

ber

of s

ucce

ssor

trus

tees

to m

anag

e th

etr

ust f

unds

in th

e fu

ture

. The

per

son(

s) y

ou c

hoos

esh

ould

be

indi

vidu

als

you

trus

t to

carr

y ou

t you

rw

ishe

s, a

nd w

ho c

are

abou

t you

r so

n or

dau

ghte

r w

itha

disa

bilit

y.

9)Pl

ace

all e

stat

e pl

anni

ng d

ocum

ents

toge

ther

in a

spec

ial b

inde

r an

d st

ore

in a

sec

ure

plac

e.

10)

Hol

d a

mee

ting

with

you

r su

cces

sors

to r

evie

w th

epl

an. G

ive

ever

yone

a c

opy

of y

our

lette

r of

inte

nt,

expl

ain

how

you

r pl

an is

goi

ng to

wor

k, a

nd le

tev

eryo

ne k

now

whe

re y

ou w

ill b

e ke

epin

g th

e bi

nder

.

11)

Rev

iew

you

r pl

an a

t lea

st o

nce

a ye

ar. U

pdat

e yo

urle

tter

of in

tent

and

mod

ify

the

lega

l doc

umen

ts a

sne

eded

.

12)

Rel

ax. Y

ou h

ave

done

all

that

you

can

to m

ake

sure

that

you

r so

n or

dau

ghte

r w

ill b

e w

ell t

aken

car

e of

.

* A

dapt

ed w

ith p

erm

issi

on f

rom

"Pl

anni

ng f

or th

e Fu

ture

,"E

stat

e Pl

anni

ng f

or P

erso

ns w

ith D

isab

ilitie

s, B

loom

ingt

on, M

N.

Est

ate

Plan

ning

7879

Page 41: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

Life

Pla

nnin

gT

o be

gin

the

life-

plan

ning

pro

cess

, thi

nk a

bout

the

area

s of

you

rso

n's

or d

augh

ter's

life

that

will

nee

d pl

anni

ng. W

rite

dow

n th

em

ost d

esir

able

fut

ure

situ

atio

n fo

r hi

m o

r he

r in

eac

h of

thes

ear

eas.

Als

o lis

t the

thin

gs th

at s

houl

d be

pro

vide

d to

enh

ance

the

qual

ity o

f th

at a

rea

of th

eir

life.

Bec

ause

of

the

cost

, man

y of

the

amen

ities

that

you

will

wan

t you

r so

n or

dau

ghte

r to

con

tinue

rece

ivin

g w

ill n

eed

to b

e in

clud

ed in

you

r fi

nanc

ial p

lan.

For

exam

ple,

the

resi

dent

ial a

rran

gem

ent y

ou e

nvis

ion

for

your

daug

hter

may

be

livin

g in

a h

ome

with

two

or th

ree

oth,

r pe

ople

with

sim

ilar

disa

bilit

ies.

To

enha

nce

her

qual

ity o

f lif

e in

the

hom

eyo

u m

ay w

ant t

o en

sure

that

she

can

con

tinue

to v

isit

her

beau

tysh

op e

ach

mon

th a

nd is

abl

e to

sup

plem

ent h

er w

ardr

obe

with

new

clot

hes

occa

sion

ally

. You

may

als

o w

ant t

o en

sure

that

she

is a

ble

to g

ive

gift

s to

fri

ends

and

fam

ily o

n sp

ecia

l occ

asio

ns. T

o en

sure

that

thes

e am

eniti

es c

an b

e pr

ovid

ed e

ven

afte

r yo

u ar

e go

ne, y

ouw

ill n

eed

to a

llow

for

them

as

you

do y

our

fina

ncia

l pla

nnin

g, a

ndin

clud

e th

em in

you

r le

tter

of in

tent

to p

rovi

de g

uida

nce

to y

our

succ

esso

r.

Res

iden

ceE

duca

tion

Em

ploy

men

tG

uard

ian/

advo

cate

Soci

al

1.1.

1.1.

1.

2.2.

2.2.

2.

3.3.

3.3.

3.

4.4.

4.4.

4.

Med

ical

Car

eB

ehav

ior

man

agem

ent

Rel

igio

usT

rust

ee(s

)Fi

nal a

rran

gem

ents

1.1.

1.1.

1.

2.2.

2.2.

2.

3.3.

3.3.

3.

4.4.

4.4.

4.

8 0

Est

ate

Pla

nnin

g37

Page 42: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

Par

ticip

ants

in L

ife P

lann

ing

Bec

ause

eac

h m

embe

r of

the

Est

ate

Plan

ning

team

per

form

s a

spec

ific

fun

ctio

n, lo

ggin

g co

ntac

ts m

ade

with

eac

h in

divi

dual

will

ass

ist y

ouin

coo

rdin

atin

g th

e pl

anni

ng e

ffor

t and

allo

wyo

u to

fol

low

up

on p

rogr

ess

betw

een

plan

ning

mee

tings

.

Rol

eN

ame/

Org

aniz

atio

nPh

one

#D

ate

of C

onta

ctA

ctio

n to

be

Tak

en/F

ollo

w-u

p

Est

ate

Plan

ner

Atto

rney

Acc

ount

ant

Futu

re G

uard

ian/

Con

serv

ator

Oth

er P

artie

s/Fa

mily

Mem

bers

Est

ate

Pla

nnin

g

P3

38

Page 43: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

Aft

er y

ou h

ave

dete

rmin

ed th

e m

ost d

esir

able

fut

ure

for

your

son

/da

ught

er, w

ithnp

ut f

rom

all

of th

e fa

mily

, the

nex

t ste

p is

toco

mpi

le th

is in

form

atio

n in

to a

lette

r of

inte

nt. T

he le

tter

of in

tent

shou

ld c

onta

in v

ital i

nfor

mat

ion

abou

t bot

h th

e hi

stor

y of

you

r so

nor

dau

ghte

r, a

nd th

e lif

esty

le th

at s

houl

d be

pro

vide

d in

the

futu

re.

Usi

ng th

e pr

evio

us s

ectio

n on

life

pla

nnin

g, p

aren

ts c

an g

uide

thei

rsu

cces

sor

in f

utur

e de

cisi

on-m

akin

g by

giv

ing

spec

ific

exa

mpl

es o

fw

ays

the

mon

ey in

the

trus

t sho

uld

be u

tiliz

ed.

Som

e is

sues

that

you

may

wan

t to

addr

ess

in y

our

lette

r of

inte

ntin

clud

e: How

the

day-

to-d

ay n

eeds

of

your

son

or

daug

hter

will

be

prov

ided

.

How

any

beh

avio

ral,

med

ical

or

daily

car

e ne

eds

are

mos

tef

fect

ivel

y ad

dres

sed.

Wha

t per

sona

l ite

ms,

clo

thin

g, g

ifts

, vac

atio

ns, e

tc.,

will

be

prov

ided

by

the

spec

ial-

need

s tr

ust t

o su

pple

men

t his

or

her

gove

rnm

enta

l ben

efits

.

The

lette

r of

inte

nt s

houl

d be

upd

ated

per

iodi

cally

to k

eep

pace

with

the

chan

ging

nee

ds a

nd f

utur

e de

sire

s of

you

r so

n or

daug

hter

. It i

s th

e gu

idin

g to

ol th

at y

ou w

ill u

se a

s yo

u w

ork

with

your

est

ate

plan

ning

team

to c

ompl

ete

the

rem

aini

ng s

teps

of

deve

lopi

ng a

Lif

e Pl

an.

Pla

nnin

g no

tes

85

Est

ate

Pla

nnin

g39

Page 44: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

Fin

al T

houg

hts

Whi

le th

e tr

ansi

tion

from

hig

h sc

hool

to a

dult

life

is a

com

plex

time

for

all s

tude

nts,

it c

an b

e es

peci

ally

cha

lleng

ing

for

youn

gpe

ople

with

dis

abili

ties.

The

goa

l of

this

per

iod

of p

lann

ing

is to

help

the

stud

ent e

nter

his

or

her

adul

t lif

e pr

epar

ed to

suc

cess

fully

mee

t the

cha

lleng

es th

at li

e ah

ead.

Thi

s m

anua

l has

foc

used

on

the

impo

rtan

t iss

ues

faci

ng s

tude

nts

and

thei

r pa

rent

s du

ring

the

tran

sitio

n ye

ars.

Pla

nnin

g to

geth

er,

netw

orki

ng w

ith o

ther

s in

thc

com

mun

ity a

nd u

sing

an

asse

rtiv

eap

proa

ch to

pro

blem

sol

ving

will

ena

ble

fam

ily m

embe

rs to

achi

eve

thei

r go

als.

The

tran

sitio

n fr

om h

igh

scho

ol to

com

mun

ity li

ving

, bet

wee

nch

ildho

od a

nd a

dult

life,

can

not b

e de

scri

bed

in te

rms

of a

fin

itepe

riod

one

with

a b

egin

ning

and

an

end.

Rat

her,

the

youn

gpe

rson

's g

oals

and

vis

ions

for

the

futu

re w

ill c

ontin

ue to

evo

lve

duri

ng th

is p

erio

d an

d th

roug

hout

thei

r lif

etim

e. L

ife

is a

ser

ies

oftr

ansi

tions

, beg

inni

ngs

and

betw

eens

, and

the

qual

ity o

f lif

ede

pend

s on

how

all

mem

bers

of

the

fam

ily le

arn

to p

repa

re, a

dapt

and

cope

with

thes

e ch

ange

s.

Beg

in th

e B

etw

een

6Rf

Page 45: DOCUMENT RESUME ED 376 649 AUTHOR Matuszak, Trish; And … · DOCUMENT RESUME ED 376 649 EC 303 477 AUTHOR Matuszak, Trish; And Others TITLE Begin the Between: Planning for the Transition

Abo

ut P

AC

ER

PACER

Cen

ter

is a

sta

tew

ide

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rofi

t org

aniz

atio

n th

at s

erve

sfa

mili

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f ch

ildre

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d ad

ults

with

dis

abili

ties.

PACER

wor

ksth

roug

h th

e co

aliti

on e

ffor

ts o

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mili

es r

epre

sent

ing

19 d

isab

ility

orga

niza

tions

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Cen

ter's

mis

sion

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exp

and

and

impr

ove

oppo

rtun

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enh

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qual

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f lif

e fo

r ch

ildre

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ults

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abili

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fed

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arily

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pare

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abili

ties

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vidu

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orks

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mot

iona

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Beh

avio

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isor

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ents

abo

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mot

iona

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beh

avio

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ppor

ted

Em

ploy

men

t and

Tra

nsiti

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esou

rces

, a c

ompi

latio

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ann

otat

ed jo

urna

lar

ticle

s, m

auns

crip

ts, b

ooks

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dau

diov

isua

l mat

eria

ls.

To

orde

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publ

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list o

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inqu

ire

abou

t any

of

thes

epu

blic

atio

ns, c

all o

r w

rite

:PA

CE

R C

ente

r, I

nc.

4826

Chi

cago

Ave

nue

Sout

hM

inne

apol

is, M

N 5

5417

-109

8(6

12)

827-

2966

.

Beg

in th

e B

etw

een

R8

89


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