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Early Intervention in Psychosis Network 15 August 2019 - NHS … Health/EIP/EIP... ·...

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www.england.nhs.uk Stephen McGowan, EIP Clinical Lead for Y&H CN and NHSE (North) (Chair) Dr Steve Wright, Consultant Psychiatrist, TEWV (Co-Chair) Sarah Boul, Quality Improvement Manager [email protected] Twitter: @YHSCN_MHDN #yhmentalhealth August 2019 Yorkshire and the Humber Mental Health Network Early Intervention in Psychosis Network 15 August 2019
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Page 1: Early Intervention in Psychosis Network 15 August 2019 - NHS … Health/EIP/EIP... · 2019-08-22 · • Stephen McGowan, EIP Clinical Lead for Y&H CN and NHSE (North) (Chair) •

www.england.nhs.uk

• Stephen McGowan, EIP Clinical Lead for Y&H CN and NHSE (North) (Chair)

• Dr Steve Wright, Consultant Psychiatrist, TEWV (Co-Chair)

• Sarah Boul, Quality Improvement Manager [email protected]

• Twitter: @YHSCN_MHDN #yhmentalhealth

• August 2019

Yorkshire and the Humber

Mental Health Network

Early Intervention in Psychosis Network

15 August 2019

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www.england.nhs.uk

Yorkshire and the Humber

Early Intervention in Psychosis Network

Welcome and HousekeepingSarah Boul, Quality Improvement Manager,

Yorkshire and the Humber Clinical Networks

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@YHSCN_MHDN

#yhmentalhealth

Housekeeping:

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www.england.nhs.uk

Yorkshire and the Humber

Early Intervention in Psychosis Network

Regional EIP Work Programme Update and

Developing Teams to Level 3 Moggie McGowan, Co-Chair, Clinical Advisor, Y&H IRIS, Y&H Clinical

Network & NHS England North

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www.england.nhs.uk

Yorkshire and the Humber

Early Intervention in Psychosis Network

Using Outcomes in EIP ServicesAlison Brabban, Expert Advisor to AMH Programme, NHS England

and Recovery Lead, Tees, Esk & Wear Valleys NHS Foundation Trust

and Sally Milne, Senior Project Manager, NHS England

Page 6: Early Intervention in Psychosis Network 15 August 2019 - NHS … Health/EIP/EIP... · 2019-08-22 · • Stephen McGowan, EIP Clinical Lead for Y&H CN and NHSE (North) (Chair) •

www.england.nhs.uk

Regional EIP Work Programme

and Developing Teams to Level 3

Moggie McGowan

Regional Clinical Lead for EIP

NHS England and NHS Improvement

15th August 2019

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www.england.nhs.uk

Page 8: Early Intervention in Psychosis Network 15 August 2019 - NHS … Health/EIP/EIP... · 2019-08-22 · • Stephen McGowan, EIP Clinical Lead for Y&H CN and NHSE (North) (Chair) •

www.england.nhs.uk

5YFVMH:

By 2021 at least 60% of people with a first episode psychosis starting treatment with a NICE-recommended package of care with a specialist early intervention in psychosis (EIP) servicewithin two weeks of referral

3-D & 3 way stretch

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www.england.nhs.uk

Access (53%)/NICE interventions/Outcomes

Regional summaries

Overall ScoreNumber of services

Percent at level 1

Percent at level 2

Percent at level 3

Percent at level 4

Percent level 3 and above

England 151 15.9% 63.6% 13.2% 7.3% 20.5%

London 27 0.0% 81.5% 7.4% 11.1% 18.5%Midlands and East 42 28.6% 59.5% 11.9% 0.0% 11.9%

North 49 22.4% 46.9% 16.3% 14.3% 30.6%

South East 19 5.3% 68.4% 21.1% 5.3% 26.3%

South West 14 0.0% 92.9% 7.1% 0.0% 7.1%

18/19 NCAP Results

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www.england.nhs.uk

• Current Position

• Trajectory

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www.england.nhs.uk

Contextual Standards

Timely, Effective

Treatment

Performance & Outcomes

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www.england.nhs.uk

Development & Assurance

• ACCESS: Are access and waiting time standards being

met, is data being reported reliably and do Unify and

MHSDS data compare well?

• QUALITY: Are NICE approved therapies available to all

that need them with good levels of take up and is the

service provided to the full age-range and people with At

Risk Mental States?

• WORKFORCE & INVESTMENT: Is development of a

specialist service supported by CCG investment and Trust

spending? Do staffing levels and skill mix reflect the

workforce calculator, contextual standards and current

incidence?

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ACCESS QUALITY WORKFORCE DEADLINE

Team name QI Meeting 14 days, data quality NICE, ARMS, >35s Workforce/Investment 2017/18 2018/19 2019/20 2020/21 2021/22 2022/23 2023/24

Bradford & Airedale 12/03/2019 1 2 3 3

Aspire Leeds 12/02/2019 2 2 3 3

York and Selby 09/01/2019 1 1 1 1 3

Psypher 27/11/2018 2 3 2 2 3

Doncaster 04/07/2019 2 2 3 3

Rotherham 04/07/2019 2 2 3 3

North Lincs 04/07/2019 2 2 3 3

Sheffield 24/01/2019 2 2 2 2 3

NAViGO 18/11/2018 2 2 3 3

Northumberland 23/01/2019 2 2 2 3

North Tyneside 23/01/2019 2 2 2 3

South Tyneside 23/01/2019 2 4 3 3

Gateshead 23/01/2019 2 2 2 3

Newcastle 23/01/2019 2 3 2 3

Sunderland 23/01/2019 2 2 2 3

Scarborough, W&R 14/06/2019 1 1 1 1 3

Harrogate, H&R 14/06/2019 1 1 1 1 3

South Durham 23/01/2019 1 2 2 3

North Durham & 23/01/2019 2 2 3 3

Middlesborough 23/01/2019 2 2 2 3

Hartlepool 23/01/2019 2 2 2 3

Stockton on Tees 23/01/2019 2 2 3 3

Redcar & Cleveland 23/01/2019 2 2 3 3

Cumbria (AMAZE) 23/01/2019 2 3 3 3

Halifax 10/05/2019 2 4 3 3

North Kirklees 10/05/2019 2 4 3 3

Huddersfield 10/05/2019 2 3 3 3

Wakefield 10/05/2019 2 4 3 3

Barnsley 10/05/2019 2 4 3 3

Actual Actual Predicted Predicted Predicted Predicted

83% 31%

N C A P

KEY:

Greatest Need for Improvement

Needs Improvement

Performing Well

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www.england.nhs.uk

• Current Position

• Trajectory

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www.england.nhs.uk

Access: 74%

NICE: Level 2

Outcomes: Level 1

NCAP rating:Level 2

Stand-alone team

3-Year service:33m

Caseloads: 15

ContextualStatus

Provision for Children

Demand/Capacity:130/120

Investment:£7,900 pp

ARMS Pathway

Age range:14-65

Data Quality

Page 17: Early Intervention in Psychosis Network 15 August 2019 - NHS … Health/EIP/EIP... · 2019-08-22 · • Stephen McGowan, EIP Clinical Lead for Y&H CN and NHSE (North) (Chair) •

www.england.nhs.uk

What have we learned:• ARMS pathways, over 35s, physical health and collecting

outcomes data are the main clinical challenges

• Workforce shortages are impacting on quality performance.

• FI, physical health and outcome measurement seem particularly sensitive to team capacity

• AWT performance is less sensitive but performance has deteriorated in some areas.

• Under-investment means we are not on trajectory in some areas.

• Partial investment is also a problem.

• 2019 contracting round will be critical for EIP – 60% of NHSE funding to be allocated

• The workforce is remarkably resilient!

Page 18: Early Intervention in Psychosis Network 15 August 2019 - NHS … Health/EIP/EIP... · 2019-08-22 · • Stephen McGowan, EIP Clinical Lead for Y&H CN and NHSE (North) (Chair) •

www.england.nhs.uk

Network Offer

• Needs analysis/QI reviews

• Support for commissioning

• Support for clinicians and teams with clinical challenges

• System support for service development and business planning (NB- IST)

• Increased focus on delivery and assurance

• Targeted support to areas of greatest need

Page 19: Early Intervention in Psychosis Network 15 August 2019 - NHS … Health/EIP/EIP... · 2019-08-22 · • Stephen McGowan, EIP Clinical Lead for Y&H CN and NHSE (North) (Chair) •

ACCESS QUALITY WORKFORCE DEADLINE

Team name QI Meeting 14 days, data quality NICE, ARMS, >35s Workforce/Investment 2017/18 2018/19 2019/20 2020/21 2021/22 2022/23 2023/24

Bradford & Airedale 12/03/2019 1 2 3 3

Aspire Leeds 12/02/2019 2 2 3 3

York and Selby 09/01/2019 1 1 1 1 3

Psypher 27/11/2018 2 3 2 2 3

Doncaster 04/07/2019 2 2 3 3

Rotherham 04/07/2019 2 2 3 3

North Lincs 04/07/2019 2 2 3 3

Sheffield 24/01/2019 2 2 2 2 3

NAViGO 18/11/2018 2 2 3 3

Northumberland 23/01/2019 2 2 2 3

North Tyneside 23/01/2019 2 2 2 3

South Tyneside 23/01/2019 2 4 3 3

Gateshead 23/01/2019 2 2 2 3

Newcastle 23/01/2019 2 3 2 3

Sunderland 23/01/2019 2 2 2 3

Scarborough, W&R 14/06/2019 1 1 1 1 3

Harrogate, H&R 14/06/2019 1 1 1 1 3

South Durham 23/01/2019 1 2 2 3

North Durham & 23/01/2019 2 2 3 3

Middlesborough 23/01/2019 2 2 2 3

Hartlepool 23/01/2019 2 2 2 3

Stockton on Tees 23/01/2019 2 2 3 3

Redcar & Cleveland 23/01/2019 2 2 3 3

Cumbria (AMAZE) 23/01/2019 2 3 3 3

Halifax 10/05/2019 2 4 3 3

North Kirklees 10/05/2019 2 4 3 3

Huddersfield 10/05/2019 2 3 3 3

Wakefield 10/05/2019 2 4 3 3

Barnsley 10/05/2019 2 4 3 3

Actual Actual Predicted Predicted Predicted Predicted

83% 31%

N C A P

KEY:

Greatest Need for Improvement

Needs Improvement

Performing Well

Page 20: Early Intervention in Psychosis Network 15 August 2019 - NHS … Health/EIP/EIP... · 2019-08-22 · • Stephen McGowan, EIP Clinical Lead for Y&H CN and NHSE (North) (Chair) •

www.england.nhs.uk

Response categories:

1. On target: Level 3 and on trajectory level 2 teams - Light-touch follow up and ad-hoc support from network

2. Not on target: Level 1s and under-performing level 2s (i.e. not on trajectory): Formal letter from Region to Trust and CCG CEOs (copied to STP/ICS leads and NHSE/I delivery directors) requiring a recovery plan and quarterly updates. Active follow up and support from network. NB- additional focus on ARMS pathways and >35s.

3. Unknowns: Some level 1 teams not engaged with regional network and/or support offer to date. As well as a formal letter a joint IST/Deep Dive review is proposed.

Page 21: Early Intervention in Psychosis Network 15 August 2019 - NHS … Health/EIP/EIP... · 2019-08-22 · • Stephen McGowan, EIP Clinical Lead for Y&H CN and NHSE (North) (Chair) •

Team name NCAP 18/19 Level 3? ResponseBradford & Airedale 2 20/21 1

Aspire Leeds 2 20/21 1York and Selby 1 22/23 2Psypher 3 21/22 2

Doncaster 2 20/21 1Rotherham 2 20/21 1

North Lincs 2 20/21 1Sheffield 2 21/22 2

NAVIGO 2 19/20 1Northumberland 2 20/21 1North Tyneside 2 20/21 1

South Tyneside 4 20/21 1Gateshead 2 20/21 1

Newcastle 3 20/21 1

Sunderland 2 20/21 1

Scarborough, W&R 1 23/24 3

Harrogate, H&R 1 23/24 3

South Durham 2 20/21 1

North Durham & 2 20/21 1

Middlesborough 2 20/21 1

Hartlepool 2 20/21 1Stockton on Tees 2 20/21 1

Redcar & Cleveland 2 20/21 1Cumbria (AMAZE) 3 20/21 1

Halifax 4 20/21 1North Kirklees 4 20/21 1Huddersfield 3 20/21 1

Wakefield 4 20/21 1Barnsley 4 20/21 1

Page 22: Early Intervention in Psychosis Network 15 August 2019 - NHS … Health/EIP/EIP... · 2019-08-22 · • Stephen McGowan, EIP Clinical Lead for Y&H CN and NHSE (North) (Chair) •

Team name NCAP 18/19 Level 3? 14-65 ARMS ResponseBradford & Airedale 2 20/21

Aspire Leeds 2 20/21York and Selby 1 22/23Psypher 3 21/22

Doncaster 2 20/21Rotherham 2 20/21

North Lincs 2 20/21Sheffield 2 21/22

NAVIGO 2 19/20Northumberland 2 20/21North Tyneside 2 20/21

South Tyneside 4 20/21Gateshead 2 20/21

Newcastle 3 20/21

Sunderland 2 20/21

Scarborough, W&R 1 23/24

Harrogate, H&R 1 23/24

South Durham 2 20/21

North Durham & 2 20/21

Middlesborough 2 20/21

Hartlepool 2 20/21Stockton on Tees 2 20/21

Redcar & Cleveland 2 20/21Cumbria (AMAZE) 3 20/21

Halifax 4 20/21North Kirklees 4 20/21Huddersfield 3 20/21

Wakefield 4 20/21Barnsley 4 20/21

Page 23: Early Intervention in Psychosis Network 15 August 2019 - NHS … Health/EIP/EIP... · 2019-08-22 · • Stephen McGowan, EIP Clinical Lead for Y&H CN and NHSE (North) (Chair) •

**NEWS**NEWS**NEWS**NEWS**

• Long-term plan

• IRIS website

• Map

• y-QUIT

• Sailing to Recovery

• Miriam’s research

• Training needs – Plus CAARMS, PSI etc.

Page 24: Early Intervention in Psychosis Network 15 August 2019 - NHS … Health/EIP/EIP... · 2019-08-22 · • Stephen McGowan, EIP Clinical Lead for Y&H CN and NHSE (North) (Chair) •

**NEWS**NEWS**NEWS**NEWS**

• Long-term plan

• IRIS website

• Map

• y-QUIT

• Sailing to Recovery

• Miriam’s research

• Training needs – Plus CAARMS, PSI etc.

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Page 27: Early Intervention in Psychosis Network 15 August 2019 - NHS … Health/EIP/EIP... · 2019-08-22 · • Stephen McGowan, EIP Clinical Lead for Y&H CN and NHSE (North) (Chair) •

**NEWS**NEWS**NEWS**NEWS**

• Long-term plan

• IRIS website

• Map

• y-QUIT

• Sailing to Recovery

• Miriam’s research

• Training needs – Plus CAARMS, PSI etc.

Page 28: Early Intervention in Psychosis Network 15 August 2019 - NHS … Health/EIP/EIP... · 2019-08-22 · • Stephen McGowan, EIP Clinical Lead for Y&H CN and NHSE (North) (Chair) •
Page 29: Early Intervention in Psychosis Network 15 August 2019 - NHS … Health/EIP/EIP... · 2019-08-22 · • Stephen McGowan, EIP Clinical Lead for Y&H CN and NHSE (North) (Chair) •

**NEWS**NEWS**NEWS**NEWS**

• Long-term plan

• IRIS website

• Map

• y-QUIT

• Sailing to Recovery

• Miriam’s research

• Training needs – Plus CAARMS, PSI etc.

Page 30: Early Intervention in Psychosis Network 15 August 2019 - NHS … Health/EIP/EIP... · 2019-08-22 · • Stephen McGowan, EIP Clinical Lead for Y&H CN and NHSE (North) (Chair) •

EIP UK Voyage of Recovery, 2020

• Circumnavigating the UK• 12 one week legs, June-August • 12 teams of 10 Young people +

up to 5 Leaders

Contact: [email protected]

Also see:https://cirdantrust.org/

Please get in touch if you are interested and would like to find out more

Page 31: Early Intervention in Psychosis Network 15 August 2019 - NHS … Health/EIP/EIP... · 2019-08-22 · • Stephen McGowan, EIP Clinical Lead for Y&H CN and NHSE (North) (Chair) •

**NEWS**NEWS**NEWS**NEWS**

• Long-term plan

• IRIS website

• Map

• Sailing to Recovery

• Miriam’s research

• Training needs – Plus CAARMS, PSI etc.

Page 32: Early Intervention in Psychosis Network 15 August 2019 - NHS … Health/EIP/EIP... · 2019-08-22 · • Stephen McGowan, EIP Clinical Lead for Y&H CN and NHSE (North) (Chair) •

www.england.nhs.uk

A survey which will collect information about how EIP services are being delivered across England. This information will be used to describe EIP fidelity nationally (i.e. how closely EIP services across England adhere to the intended EIP model), examine whether EIP services have reduced suicide and hospitalizations and assess whether ‘fidelity’ to the EIP model of care influences this relationship.

Page 33: Early Intervention in Psychosis Network 15 August 2019 - NHS … Health/EIP/EIP... · 2019-08-22 · • Stephen McGowan, EIP Clinical Lead for Y&H CN and NHSE (North) (Chair) •

**NEWS**NEWS**NEWS**NEWS**

• Long-term plan

• IRIS website

• Map

• Sailing to Recovery

• Miriam’s research

• Training needs – Plus CAARMS, PSI etc.

Page 34: Early Intervention in Psychosis Network 15 August 2019 - NHS … Health/EIP/EIP... · 2019-08-22 · • Stephen McGowan, EIP Clinical Lead for Y&H CN and NHSE (North) (Chair) •

www.england.nhs.uk

http://www.iris-initiative.org.uk

http://www.yhscn.nhs.uk/mental-health-

clinic/mental-health-network/EIP/EIPMaps.php

[email protected]

Page 35: Early Intervention in Psychosis Network 15 August 2019 - NHS … Health/EIP/EIP... · 2019-08-22 · • Stephen McGowan, EIP Clinical Lead for Y&H CN and NHSE (North) (Chair) •

NHS England and NHS Improvement

Early Intervention in Psychosis –Measuring and reporting patient/clinician reported outcomes

Support pack

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36 |36 |

• Introduction to outcome measure

• QPR, DIALOG and HoNOS

• Using the data

• Tips, hints and resources

Contents

Presentation title

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37 |37 |

INTRODUCTION TO OUTCOME MEASURES

Presentation title

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38 |38 |

• The Five Year Forward View for Mental Health outlined the need to measure clinical outcomes routinely in mental health and to capture this activity through the Mental Health Services Data Set (MHSDS).

• The primary aim of this drive for outcome collection is to ensure services are meeting the needs of service users and aid service improvement.

• There is the expectation that all service providers should be transparent and be commissioned based on the impact they are having.

• Guidance published by NHS England outlined clarity on expected service user outcomes is key to measuring and monitoring the effectiveness of EIP services.

National context

Presentation title

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39 |39 |

Outcomes context

Presentation title

1

Greatest need

for

improvement

2

Needs

improvement

3

Performing

well

4

Top

performing

Percentage of service users for whom two or

more outcome measures (from

HoNOS/HoNOSCA, DIALOG and QPR) were

recorded at least twice (assessment and one

other time point)

<25% ≥25% ≥50% ≥75%

As a result of a number of services finding it difficult to achieve the levels required for outcome measurement NHS England convened a working group to address the barriers to collecting outcome measures in EIP services.- Developed a support pack to outline why outcome measures are important and tips

on how to use them

- E-Learning module on the use of outcome measures in EIP services

- Sharing the MHSDS data on outcomes through the EIP Triangulation tool and starting to consider how to demonstrate clinically meaningful change

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40 |40 |

NCAP 2018/19

Presentation title

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41 |41 |

• When we measure outcomes we are looking at measuring change.

• In the context of clinical outcomes we are looking at what difference the intervention/service is making.

• What change is measured depends on what service users want to gain from services.

• In EIP we are interested in what impact the service has on an individual’s

• personal recovery

• Quality of Life

• Individual needs.

Understanding outcomes

Presentation title

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42 |42 |

• To work out what change the intervention is making we need to compare a rating that was

made before and after the intervention (these are called paired outcome measures).

• The baseline measure (before the intervention) should give clinicians an idea of how the

person is at that point in time and indicate certain issues or areas which might need attention.

• Any outcome assessment should be done collaboratively and include a discussion about

what the person has reported. The assessment can be used to identify areas to work on and

can help with care planning.

• The two main types of outcome assessment are:

• Those where service users rate themselves known as Patient Reported Outcome

Measures or PROMS

• Those where clinicians make the judgement, these are known as Clinician Reported

Outcome Measures or CROMS.

• In EIP there is a requirement to use both Patient Reported and Clinician Reported Outcome

Measures:

• Clinician reported (e.g. HoNOS)

• Patient reported (e.g. QPR and DIALOG)

• This pack focuses on these three outcome measurement tools, but there are other outcomes

that can be collected when important to the clinician and service user.

More on Outcome Assessment

Presentation title

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43 |43 |

Why is it important to measure outcomes?

Presentation title

For service users

• To help identify service user needs and areas to focus on.

• To aid care planning.

• To recognise if progress is being made or not and in what area.

• To provide a more systematic approach to identifying needs/monitoring change.

• When used appropriately they promote shared decision making.

For services• To understand the needs of the service users they’re serving.• To understand the difference they are making• To ensure they are meeting the needs of service users • To identify where there are gaps in the service. • To demonstrate the effectiveness of the service.• To compare their effectiveness with similar services. • To help to guide service improvement and delivery.

Click here for more guidance on choosing and using outcome measurement tools

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44 |44 |

QPR, DIALOG AND HoNOS

Presentation title

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45 |45 |

Which measurement tools should be used in EIP?

Presentation title

DIALOG QPR

HoNOS/HoNOS-CA

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46 |46 |

• QPR and DIALOG have been chosen because they measure what service users

want to get from EIP, namely personal recovery and improved quality of life

• Both QPR and DIALOG have been well-researched and have been shown to

have good reliability and validity plus they are brief and practical to use in routine

clinical settings.

• HoNOS has been developed as a CROM, and is currently used in services to

support clustering.

• Although the EIP Access Standard recommends QPR, DIALOG and HoNOS,

services should not feel limited to use only these measures. It may also be

helpful to use supplementary measures at times.

• A common sense approach should be used when administering PROMs and

assessors need to use their clinical judgement. It may not be appropriate to ask

service users to complete assessments if they are particularly distressed or

finding it difficult to concentrate.

• All these tools are freely downloadable so there is no licencing cost to the

service. They can be found at https://digital.nhs.uk/services/national-clinical-

content-repository-copyright-licensing-service

Why these tools?

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• Outcome measures should be used routinely throughout an individual’s care. They help to guide treatment and track progress.

• As a minimum, these should be used:

• during assessment, the baseline measure should be taken as early as possible to identify the needs of the individual, aid care planning and enable the impact of the intervention to be measured

• at six and 12 months

• Annually

• upon discharge.

• However, services should be working towards routine use of these three measures (at every clinical session if possible). This will serve to support ongoing monitoring of service users to determine whether shared treatment goals are being achieved, to reinforce the therapeutic alliance and to ensure a full pre and post-treatment outcome for 100% of all cases.

• If only a small number of cases have outcomes data, the mean scores may be skewed by atypical results meaning it is not very representative (e.g. if only 5 service users in a team have completed these results and these 5 have not done particularly well, it would bias the outcome scores as these would suggest service users in that team are not improving.)

When should I be using each measure?

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How to use HoNOS

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• HoNOS is a clinician reported outcome measure and, as such, should be completed by

the clinician, based on their observation of the service user.

• Other tools, such as DIALOG and QPR can support the clinician in the completion of

HoNOS.

Taken from Hampshire Partnership NHS Foundation Trust

• 12 items, each with 5-point severity scales (0-4)

0 = no problem

1 = minor problem requiring no action

2 = mild problems but definitely present

3 = problem of moderate severity

4 = severe to very severe problem

• More information and training on how to use HoNOS can be found on the RC Psych

website

• More information on how to rate HoNOS can be found in the HoNOS glossary

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• DIALOG was originally developed as a tool to help structure communication between clinicians and service users and to improve outcomes (not measure them).

• Research showed it could improve quality of life, satisfaction with services and service users reported having fewer unmet needs.

• It has since been tested and shown to be a sufficiently robust patient reported outcome measure (as well as a tool to help identify needs).

DIALOG

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• DIALOG considers satisfaction with a 8 key domains linked to Quality of Life.

• It is made up of 11 items including 3 that focus on the person’s experience of care (patient reported experience measures -PREMs).

• Each question is rated on a 1 to 7 scale (1 being totally dissatisfied and 7 being totally satisfied).

• As well as completing each scale, the person should then be asked if they want help in this particular area.

• Once fully completed a discussion should take place to prioritise the 3 priority areas to work on.

DIALOG

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• The original trial found that many practitioners struggled to use DIALOG to best advantage and the research team went on to develop DIALOG+

• DIALOG+ focuses on the administration of DIALOG in a structured manner to ensure it is more therapeutic.

• DIALOG+ uses a freely available app and is delivered in line with Solution Focused Therapy.

• Links to the DIALOG+ app can be found at: https://dialog.elft.nhs.uk/Resources

DIALOG & DIALOG+

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• QPR is a measure of personal recovery.

• It was developed by people with lived experience of psychosis.

• It is comprised of 15 items that map onto the 5 CHIME factors associated with recovery (Connectedness, Hope, Identity, Meaning and Empowerment).

• It can be used to identify possible areas to work on as well as to track progress (measure outcomes).

The Process of Recovery Questionnaire (QPR)

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• When completing the QPR the person should base their ratings on how they have been over the last 7 days.

• Each item on the QPR is scored on a 0 – 4 scale.

• The QPR is a single scale and therefore the total score should be reported.

• An increase in the overall QPR score is indicative of an improvement.

QPR

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• All outcome tools should be completed collaboratively.

• Clinicians should always explain the purpose of the tool when they first introduce it.

• Service users should be given a choice of whether to complete the questionnaire/tool or not. It they don’t want to, this decision should be respected.

• Practitioners should use their clinical judgement about the appropriateness of asking someone to complete a questionnaire. Don’t ask someone to do this if they are very distressed.

• Always look at what the person has reported at the time of completing the tool and discuss the results and the implications. Never file/put away a completed form without looking at it and discussing it.

Administering outcome measures

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FLOWING AND USING DATA

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Using data from outcome tools – Submitting to the MHSDS

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MHSDS Table to be

completed

Information used

MHS102 Service or team

type referred to

Date the referral was rejected

MHS201 Care contact - Date of the contact

- Whether the person attended

- The medium that was used in the consultation

MHS204 Indirect activity Date of the indirect activity

MHS606 Coded scored

assessment (referral)

- Coded assessment tool type – this will be entered in SNOMED CT

- Score on the assessment

- Date the assessment tool was completed

MHS607 Coded scored

assessment (contact)

- Coded assessment tool type – this will be entered in SNOMED CT

- Score on the assessment

The table below shows the information that is drawn from the MHSDS to analyse outcome use and

scores, and the tables that the information should be entered in.

SNOMED-CT Codes can be found on the MH Assessment tab of the technical output specification

from NHS Digital

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TIPS, HINTS AND RESOURCES

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• Explain what the measure is, why you are using it, and who will see the results.

• Have follow up discussions with the service user about the information that they have given in the questionnaire.

• Depending on the context and the stage of engagement you might want to reflect on:

• how scores have changed over time

• how scores relate to average population scores, or other research about norms or thresholds for that measure

• how the service user interprets the score

• whether the score has any implications for the support they are receiving e.g. should anything change or stay the same?

Tips for using outcomes in a clinically meaningful way

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How to use outcomes in a clinically meaningful way – variables in the data

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User Clinician Service

Motivated to respond accurately (e.g.

not worried about consequences,

understand why it’s useful to them, trust

in clinician)

Able to access the relevant

questionnaires (e.g. paper forms need

to be printed, electronic forms may

need wi-fi, if using DIALOG+

clinician/user has access to app)

The ability to collect data on the same

measures at least at assessment,

6months, 12 months and annually

Immediate influence such as mood

fluctuations and context, method of

delivery, understanding of questions

and ability to match feelings to

response, environment, literacy,

intuitiveness of interface,

developmental stage

Understands how to use questionnaires

and usefully use them in a session as

well as how to effectively feedback

information (incentivised by clinical

utility rather than arbitrary targets)

IT/admin systems that support data to

be extracted securely and with minimal

burden

If the user is feeling a lot better, they

may not keep attending services and so

time 2 on or post discharge may be

difficult to organise. Likewise if the user

is unhappy with their experience with

the service or is not able to complete on

discharge

Has the time/resource/know-how to

score, interpret and feedback data in

session, use in supervision and input

onto data entry systems

All users of the service fill out

questionnaires (avoid biasing data

towards those who have

improved/deteriorated)

Has support from commissioners,

management and colleagues to

incorporate new ways of working into

their practice (e.g. more admin time

than before)

Support from commissioners etc. to be

able to share data without it being

misinterpreted, taken out of context or

unfairly penalised

Adapted from Using clinical outcomes for service improvement

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Tips and hints

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Some DOs and DON’Ts of using clinical outcome tools

Do Make sure you have the forms you need ready before the session

Do Explain why you are asking someone to fill in the form

Do Look at the answers

Do Discuss the answers with the service user

Do Share the information in supervision

Do Always use the forms in conjunction with other clinical information

Don’t Give out a questionnaire if you think the person doesn’t understand why they are being asked to complete it

Don’t Use any form if you don’t understand why you are doing it

Don’t Insist on someone filling out forms if they are too distressed

Don’t See the numbers generated from outcome tools as absolute fact

Don’t See your clinical judgement as absolute fact

Adapted from Using clinical outcomes for service improvement

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Tips and hints

Presentation title

Have you explained? Yes No

What feedback you would like to gather, why, and how it can improve the therapy or treatment you

are offering

That if a service user doesn’t understand a question, or is unsure about it, they can ask for help,

and that they don’t have to answer a question if they don’t want to

How will you monitor feedback or outcomes data over time and how service users can be involved

in this

That if the service user has other issues or concerns that are not covered by the questionnaire, it’s

fine to raise these

If and how carers might be asked for feedback too – remember their involvement may make it

difficult for some service users to fully express themselves

Have you considered? Yes No

Using different ways of gathering and then sharing feedback (not all feedback should be gathered by questionnaires since they may not allow for qualitative, more in-depth answers)

How to make the feedback at the end of the session personal to the service user so it is relevant to them

How to share data feedback with service users in a way that is accessible and understandable to them

How you balance gathering feedback in the time available (it’s important service users feel listened to and that gathering feedback doesn’t dominate the session; on the other hand, they shouldn’t feel pressured into filling in the forms quickly at the end of the session)

How you might need to vary how and when you request or share feedback, given that every person is different and should be treated as an individual.

Adapted from Using clinical outcomes for service improvement

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• Delivering the Five Year Forward View for Mental Health: Developing quality and outcomes measures

• Effective patient-clinician interaction to improve treatment outcomes for patients with psychosis: a mixed methods design

• HoNOS training and application in clinical practice

• Using clinical outcomes for service improvement

• HoNOS glossary

More resources

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www.england.nhs.uk

Yorkshire and the Humber

Early Intervention in Psychosis Network

Time for a break?

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www.england.nhs.uk

Yorkshire and the Humber

Early Intervention in Psychosis Network

Introduction to the Group Discussion

Dr Steve Wright, Co-Chair, Consultant Psychiatrist, TEWV & Clinical Advisor,

Y&H Clinical Network

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Early Intervention in Psychosis

Network - August 15th 2019

Group Discussion:

The unintended consequences of the Access & Waiting Time Standards

Steve Wright

NHS England (North) Yorkshire & the Humber EIP Network

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What did AWT standards ever do

for us? (service users & carers)

• Improved access

• Prevention

• Equity/Equality

• Improved physical health (NCAP)

• Higher standards of evidence-based care

• Greater consistency of evidence-based

care

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Benefits & side/effects?

• Fidelity / (NCAP contextual factors)

• Confusion! (for EIP & other teams)

• Dilution of youth focus?

• Process over personalisation?

• Peer support and social recovery work?

• Groups?

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What else happened?

• In what areas (outwith AWT) has it been

hardest to sustain the quality of care?

• Which (if any) elements of recovery

work have fallen in terms of team

priorities to make way for AWT?

• What new pathways and interventions

have you had to develop to adapt to the

post AWT world?

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www.england.nhs.uk

Yorkshire and the Humber

Early Intervention in Psychosis Network

Summary & CloseDr Steve Wright, Co-Chair, Consultant Psychiatrist, TEWV & Clinical Advisor,

Y&H Clinical Network

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Yorkshire and the Humber

Early Intervention in Psychosis Network

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