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CF Family
Advisory Council
Annual Update
Emory CF Education Day
Saturday, February 18, 2012
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Purpose and Overview
The purpose of the CF Family Advisory Council is to work together with the staff to advance the practice of family-centered care. Family-centered care is the belief that healthcare providers and families are partners working together to improve the quality of care for patients. This is accomplished by designing better programs, policies, and procedures that provide the best possible care and meet the needs of the CF patient and their families.
Founded in 2007
Currently 9 parents – 5 from Emory and 4 from Scottish Rite
Social Work liaisons from each care center
Meet monthly
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Past Projects
CF Care Plan
Taking CF to School
Hospital Guide
Family Mentor Program
Lab Notifications – Coming Soon!!!
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What’s Next…
CF Family Connection Events – Spring and Fall
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What’s Next…
CF Family Connection Events – Spring and Fall
Sticky Notes – Quarterly Newsletter
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Quarterly Newsletter
Main Article
Patient Spotlight
CF Superhero
Kids Korner
Recipe
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What’s Next…
CF Family Connection Events – Spring and Fall
Sticky Notes – Quarterly Newsletter
CHOA CF Patients and Families Website Update
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Current Site
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Current Site
* Easier Navigation
* Additional Links
* Reorganize
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What’s Next…
CF Family Connection Events – Spring and Fall
Sticky Notes – Quarterly Newsletter
CHOA CF Website Updates
Adventures in Social Media!
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Not Live…yet?
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Come Meet Us!