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EPILEPSY PHENOME/GENOME PROJECT · 2012. 4. 23. · EPILEPSY PHENOME/GENOME PROJECT ¿Por qué...

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Hospital General de Agudos José Maria Ramos Mejía (Argentina) Children’s Hospital Boston Children’s Hospital Denver Children’s Hospital of Philadelphia Children’s Hospital of Pittsburgh of UPMC Cincinnati Children’s Hospital Medical Center Cleveland Clinic Institute for Neurology and Neurosurgery at St. Barnabas, New Jersey Johns Hopkins School of Medicine Mayo Clinic Arizona Mayo Clinic Florida Mayo Clinic Rochester New York University School of Medicine Rush University Medical Center Seattle Children’s The Albert Einstein College of Medicine Thomas Jefferson University University of Alabama at Birmingham University of California, San Francisco University of Melbourne (Australia) University of Michigan Medical Center University of Texas Health Science Center at Houston University of Virginia Health System Vanderbilt University Medical Center Washington University in St. Louis Participating Clinical Centers: EPGP is sponsored by: EPGP es patrocinado por: ¿Por qué existe epilepsia en mi familia? Why does my family have epilepsy? Epilepsy Phenome/Genome Project www.epgp.org toll-free 1-888-279-EPGP EPGP is a research study designed to answer these questions. Los centros que participan: www.epgp.org [email protected] Toll-free 1-888-279-EPGP Llame gratis al 1-888-279-EPGP Why do some families have several people with epilepsy? How can we predict the best anti-seizure drug to use? What causes epilepsy?
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Page 1: EPILEPSY PHENOME/GENOME PROJECT · 2012. 4. 23. · EPILEPSY PHENOME/GENOME PROJECT ¿Por qué existe epilepsia en mi familia? Why does my family have epilepsy? Epilepsy Phenome/Genome

EPILEPSY PHENOME/GENOME PROJECT

• HospitalGeneraldeAgudosJoséMariaRamosMejía(Argentina)

• Children’sHospitalBoston• Children’sHospitalDenver• Children’sHospitalofPhiladelphia• Children’sHospitalofPittsburghofUPMC• CincinnatiChildren’sHospitalMedicalCenter• ClevelandClinic• InstituteforNeurologyandNeurosurgeryatSt.

Barnabas,NewJersey• JohnsHopkinsSchoolofMedicine• MayoClinicArizona• MayoClinicFlorida• MayoClinicRochester• NewYorkUniversitySchoolofMedicine• RushUniversityMedicalCenter• SeattleChildren’s• TheAlbertEinsteinCollegeofMedicine• ThomasJeffersonUniversity• UniversityofAlabamaatBirmingham• UniversityofCalifornia,SanFrancisco• UniversityofMelbourne(Australia)• UniversityofMichiganMedicalCenter• UniversityofTexasHealthScienceCenteratHouston• UniversityofVirginiaHealthSystem• VanderbiltUniversityMedicalCenter• WashingtonUniversityinSt.Louis

Participating Clinical Centers:

EPGPissponsoredby:EPGP es patrocinado por:

EPILEPSY PHENOME/GENOME PROJECT

¿Por qué existe epilepsia en mi familia?

Why does my family have epilepsy?

EpilepsyPhenome/GenomeProject

www.epgp.orgtoll-free1-888-279-EPGP

EPGPisaresearchstudydesignedtoanswerthese

questions.

Los centros que participan:

[email protected]

Toll-free1-888-279-EPGPLlamegratisal1-888-279-EPGP

Whydosomefamilieshaveseveralpeople

withepilepsy?

Howcanwepredictthebestanti-seizure

drugtouse?

Whatcausesepilepsy?

Page 2: EPILEPSY PHENOME/GENOME PROJECT · 2012. 4. 23. · EPILEPSY PHENOME/GENOME PROJECT ¿Por qué existe epilepsia en mi familia? Why does my family have epilepsy? Epilepsy Phenome/Genome

TheEpilepsyPhenome/GenomeProject(EPGP)isaresearchprojectfundedbytheNationalInstitutesofNeurologicalDisordersandStroke.

What is EPGP?

• Do you have epilepsy, and also have a brother, sister, parent, or child with epilepsy?

OR• Do you have epilepsy due to:

• Infantilespasms?• Lennox-GastautSyndrome?• Polymicrogyria?• Periventricularheterotopia?

Ifyouansweredyestooneofthesequestions,youmaybeeligibletoparticipateinthisgroundbreakingresearchtobetterunderstandepilepsy.

• Abloodsampleandinterviews• Participationwilltake2-4hours• Youwillnotneedtocometoaresearch

clinic• Participantsreceivecompensationfor

participation

What Does Participation Involve?

EPGPesunproyectodeinvestigaciónfundadoporelInstitutoNacionaldeTrastornosNeurológicosyAccidentesCerebrovascularesparaentender:• Porquéciertasfamiliastienenvarias

personasconepilepsia• Comopodemospredecircualeslamejor

medicinaparalaepilepsia• Quecausalaepilepsia

¿Qué es EPGP?

• ¿Tienes epilepsia y un hermano, hermana, padre, o hijo/a que tambien tiene epilepsia?

O• ¿Tienes epilepsia que es el

resultado de:• Espasmosinfantiles?• SindromeLennox-Gastaut?• Polimicrogiria?• Heterotopiaperiventricular?

Sicontestassiaunadeestasdospreguntas,puedesserelegibleparaparticiparenestaimportanteinvestigaciónparaayudarnosaentendermejoralaepilepsia.

• Unamuestradesangreyentrevistas• Laparticipacióntomaraaproximadamente

2-4horas• Ustedpuedeparticiparsintenerqueirala

clínica• Participantesrecibiráncompensaciónporsu

participación

¿Que se requiere para participar?

TOGETHERWeCanUnlocktheMysteriesofEpilepsy

JUNTOSDescubriremoslosMisteriosde

laEpilepsia

[email protected] habla español

Please contact us to learn more:


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