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Ethical Issues in Social Media & Privacy in Health
Nawanan Theera-Ampornpunt, MD, PhDDepartment of Community MedicineFaculty of Medicine Ramathibodi HospitalMahidol University
SlideShare.net/[email protected] 28, 2016
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Thailand Internet User Profile (2016)
• Electronic Transactions Development Agency (Public Organization)
https://www.etda.or.th/publishing-detail/thailand-internet-user-profile-2016-th.html
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Source: ETDA (2016)
Thailand Internet User Profile (2016)
https://www.etda.or.th/publishing-detail/thailand-internet-user-profile-2016-th.html
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Source: ETDA (2016)
Thailand Internet User Profile (2016)
https://www.etda.or.th/publishing-detail/thailand-internet-user-profile-2016-th.html
66
Source: ETDA (2016)
Thailand Internet User Profile (2016)
https://www.etda.or.th/publishing-detail/thailand-internet-user-profile-2016-th.html
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Source: ETDA (2016)
Thailand Internet User Profile (2016)
https://www.etda.or.th/publishing-detail/thailand-internet-user-profile-2016-th.html
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Source: ETDA (2016)
Thailand Internet User Profile (2016)
https://www.etda.or.th/publishing-detail/thailand-internet-user-profile-2016-th.html
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http://pantip.com/topic/33678081
https://www.facebook.com/photo.php?fbid=971229119583658&set=a.37957656541558
6.90794.100000897364762&type=1&theater
Social Media Case Study #3
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http://manager.co.th/Entertainment/View
News.aspx?NewsID=9580000076405
Social Media Case Study #6
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Social Media Case Study #7
Real Message on
• "อาจารย์ครับ เมื่อวาน ผมออก OPD เจอ คุณ... คนไข้... ที่อาจารย์ผ่าไปแล้ว มา ฉายรังสีต่อที่... ตอนนี้ Happy ดี ไม่ค่อยปวด เดินได้สบาย คนไข้ฝากขอบคุณอาจารย์อีกครั้ง -- อีกอย่างคนไข้ช่วงนี้ไม่ค่อยสะดวกเลยไม่ได้ไป กทม. บอกว่าถ้าพร้อมจะไป Follow-up กับอาจารย์ครับ"
2020
Social Media Case Study #10
Source: Facebook Page โหดสัส V2 อ้างอิงภาพจากหน้า 7 นสพ.ไทยรัฐ วันท่ี 6 พ.ค. 2557 และ http://www.reuters.com/article/2013/10/16/us-philippines-quake-idUSBRE99E01R20131016
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From a forwarded message in “LINE” in
early July, 2015
Social Media Case Study #11: Online Consultation
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Social Media Case Study #12: Hoaxes - PR Nightmare & Response
http://new.khaosod.co.th.khaosod.online/dek3/win.html (อันตราย! ไม่ควรเข้าเว็บนี้)
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http://www.doctorcpr.com/blog/5-things-
doctors-should-never-post-on-social-
media/
Social Media Best Practice Resources
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Risks of Social Media
• Blurring lines between personal & professional lives
• Work-life balance
• Inappropriate & unprofessional conduct
• False/misleading information
• Limitations & liability of online consultations
• Privacy risks
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How Line Chats Can Violate Patient’s Privacy?
• Multiple viewers in a Line group• Ability to capture screens or forward• Posts in the wrong groups• Cached data• Unencrypted transmission (latest news: encrypted)• Admin access to data in Line’s server• Password Discovery
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Social Media Case Study #13
http://sport.sanook.com/84101/น้องก้อย-โค้ชเช-จบยาก-อ.พิทักษ์-ขุดไลน์ปริศนาให้นักข่าวเผยแพร่/
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Since social media come with risks• Should people stop using it?• Should CIO ban its use by
employees?
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Maslow's Hierarchy of Needs
Image Source: http://en.wikipedia.org/wiki/Maslow's_hierarchy_of_needs
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Why People Use Social Media?
• To seek & to share information/knowledge• To seek & to share valued opinion• To seek & to give friendship/relationship• To seek & to give mental support, respect, love,
acceptance
• In simplest terms: To “socialize”
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Why People Use Social Media in Healthcare?
• To seek & to share health information/knowledge– Information asymmetry in healthcare– Information could be general or personalized
• To seek & to share health-related valued opinion• To seek & to give friendship/relationship• To seek & to give mental support, respect, love,
acceptance during medical journeys• To consult/socialize/give support among colleagues
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• Richard Davies deBronkart Jr.
• Cancer survivor & blogger
• Found proper cancer treatment through online social network after diagnosis
• Activist for participatory medicine & patient engagement through information technology
Meet E-Patient Dave
http://www.epatientdave.com/
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• Not “Electronic” Patient
• Engaged
• Equipped
• Empowered
• Educated
• Enlightened
• Etc.
Dave’s E-Patient Definition
From Dr. Danny Sands’ tutorial presentation at AMIA2013
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• Technical solutions– Restrict use of social media
– Secure platform
– “Secure messaging” applications
• Management solutions– Organizational social media policy & enforcement
– User awareness training
– Organizational culture & best practices
Solutions for Proper Social Media Use in Healthcare
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Social Media Guidelines for Health Practitioners Drafting Project
For National Health Commission
Nawanan Theera-Ampornpunt
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• Continuous Professionalism
• Pausing Before Posting
• Professional Online Behaviors
• Privacy Settings and Separating Personal and Professional Information
• Professional Boundaries with Patients and Others
• Respecting Privacy
Social Media Guidelines for Health Practitioners