European Laboratory for Food Induced Diseases European Laboratory for Food Induced Diseases (ELFID)(ELFID)

University of Naples Federico IIUniversity of Naples Federico IIProf. Luigi Prof. Luigi GrecoGreco

WHAT IS MEDICEL?WHAT IS MEDICEL?

MEDICEL is a Mediterranean Network dedicated MEDICEL is a Mediterranean Network dedicated to the Food Induced Disease in Children. to the Food Induced Disease in Children.

This is an emerging public health issue This is an emerging public health issue concerning at least 5 millions individuals in the concerning at least 5 millions individuals in the Mediterranean AreaMediterranean Area

These diseases produce malnutrition, growth These diseases produce malnutrition, growth failure and severe morbidityfailure and severe morbidity

In the first year we will focus on gluten induced disease In the first year we will focus on gluten induced disease

which is by far the most frequent of these which is by far the most frequent of these diseases : more than one individual over 100 is diseases : more than one individual over 100 is affected, but the large majority affected, but the large majority (90-95%) (90-95%) are are not recognized neither cared fornot recognized neither cared for

CELIAC DISEASECELIAC DISEASE

1.1. Capacity building and development of guidelines for the Capacity building and development of guidelines for the care of food induced disease in infants and childrencare of food induced disease in infants and children

OBJECTIVESOBJECTIVES

2.2. Establishment of a Mediterranean network to Establishment of a Mediterranean network to share know how and technology for the share know how and technology for the diagnosis and management of food induced diagnosis and management of food induced disease in children, with special attention to the disease in children, with special attention to the pandemic of wheat gluten intolerancepandemic of wheat gluten intolerance

3.3. Development of local sustainable strategies to Development of local sustainable strategies to support the dietary care of children affected support the dietary care of children affected by food induced diseasesby food induced diseases

4.4. Identification of genetic and environmental risk Identification of genetic and environmental risk factors for food induced intolerance in factors for food induced intolerance in childrenchildren

5.5. Develop preventive measures to reduce the Develop preventive measures to reduce the burden of food induced diseases in childrenburden of food induced diseases in children

OBJECTIVESOBJECTIVES

Gluten free diet in Egypt ! Help, I'm celiac (allergic to wheat flour, barley, malt, oats etc.)

and going to be in Egypt for 2 months! Think I'll survive? any suggestions? I don't want to eat americanized food while in Egypt but it seems a lot of Egyptian foods have flour in them, or at least are usually eaten with a good stack of bread.

The Jewish Holiday of Passover: A Gluten-Free Bonanza Why Is This Holiday Special For Celiacs?From Nancy Lapid, former About.com Guide I recently was in Israel in Jan 07 and found that most food labeling

includes listing sources of gluten (its pronounced and spelled phonetically the same in Hebrew). Eating out most people knew about gluten (compared to here where they don't). Many chefs walked me through buffets or their menus; and everyone was willing to make new batches of food to avoid cross-contamination. FYI buffets are very, very popular in

Israel so be sure to ask about cross-contamination.

Celiac Disease and Gluten-free Diet Information Since 1995

Morocco Forum: Gluten free food

1. Re: Gluten free food Jul 13, 2009, 7:18 AMDestination Expert   for Morocco If you stick to tagines, brochettes and salad you should be

fine but you will have to avoid the bread that is served with every meal. Couscous can be made from a variety of grains so you will have to check before you eat it. There are also lots of fresh fruit available plus nice yoghurt.

Moroccan Chicken with Coriander & Lime Dressing

I'm a big fan of harissa, and Belazu do a lovely very authentic one with rose petals, its a hot and spicy aromatic paste

EXPECTED RESULTS

1.1. Dissemination of knowledge and practical skills Dissemination of knowledge and practical skills for the identification and management of for the identification and management of food induced disease in infants and children. food induced disease in infants and children.

3.3. Set sustainable diagnostic tools, applicable at field Set sustainable diagnostic tools, applicable at field level, for the point-of-care diagnosis of at risk level, for the point-of-care diagnosis of at risk children. children.

2.2. Establishment of a MEDI-CEL network, Establishment of a MEDI-CEL network, expanded in the field outside the reference expanded in the field outside the reference hospitals.hospitals.

6.6. Field Actions to support the optimal strategies Field Actions to support the optimal strategies to feed children and avoid food induced to feed children and avoid food induced diseases.diseases.

5.5. Establishment of tools for the risk stratification Establishment of tools for the risk stratification of newborn, infants and children (where risk is of newborn, infants and children (where risk is genetic, infectious diseases, malnutrition)genetic, infectious diseases, malnutrition)

4.4. Establishment of a central repository of Establishment of a central repository of diagnostic facilities and risk stratification.diagnostic facilities and risk stratification.

EXPECTED RESULTS

N° of families reached by the preventive messagesN° of families reached by the preventive messages

OUTCOME INDICATORSOUTCOME INDICATORS

Development of agreed and on-the-field evaluated Development of agreed and on-the-field evaluated guidelinesguidelinesN° of diagnostic test performed, quality controls N° of diagnostic test performed, quality controls done by ref laboratoriesdone by ref laboratoriesN° of children diagnosed and brought to careN° of children diagnosed and brought to care

Identification of 4-5 risk factors in the different Identification of 4-5 risk factors in the different communitiescommunities

N° of health professional trained in the fieldN° of health professional trained in the field

N° of diets developed and applied for the care of N° of diets developed and applied for the care of infantsinfants

PLAN OF ACTIVITIES

1.1. The European Laboratory for Food Induced The European Laboratory for Food Induced Diseases (ELFID) , from the University of Diseases (ELFID) , from the University of Naples Federico II, will take the burden of the Naples Federico II, will take the burden of the co-ordination of the activitiesco-ordination of the activities.

3.3. The ‘hub & spoke’ methodology will be The ‘hub & spoke’ methodology will be adopted for the progressive training at adopted for the progressive training at national level. national level.

2.2. In field training will be activated together In field training will be activated together with an in build evaluation systemwith an in build evaluation system.

4.4. Each Participant country will propose one Each Participant country will propose one reference person for the projectreference person for the project

5.5. In field training will be activated together In field training will be activated together with an in build evaluation system.with an in build evaluation system.

6.6. MEDICEL will be related to the PREVENT-CD EU MEDICEL will be related to the PREVENT-CD EU Project and to the European Society for Project and to the European Society for Pediatric Gastroenterology and Nutrition Pediatric Gastroenterology and Nutrition (ESPGHAN)(ESPGHAN)

PLAN OF ACTIVITIES

We have to implement innovative up-to-date dissemination strategies

R R R R

1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 16 17 18 19 20 21 22 23 24

   

       

           

     

     

               

         

   

TIME TABLE OF MEDICEL PROJECTTIME TABLE OF MEDICEL PROJECT

•Start up & Planning- WEB site of Network

•Development of on-the-field evaluated guidelines

•Capacity Building & Knowledge sharing

•Development of a common data and bio bank

•Dissemination of diagnostic tools

•Development of sustainable strategies for the care of food induced diseases patients

•Analisis of Genetic and environmental Risk factors

•Dissemination of results and reporting

Next meeting: Next meeting: 15 September 2010 15 September 2010

Waiting for you in NAPLES…..Waiting for you in NAPLES…..