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Evaluating the impact of theQuality Research in Dementia (QRD)
Consumer Network on the Alzheimer’s Society’s
Research Programme
Shirley Nurock Ted FreerMembers of QRD consumer network
QRD Involvement in research
• Brainstorming – research priorities
• Application review and prioritisation
• Award Panels
• Project Monitoring
• Dissemination
AIMS
1) To determine the quality of the research funded
2) To determine value of consumer involvement in Alzheimer’s Society research
a) Compare pre and post 2000 QRD programme
b) Compare with an equivalent programme with no consumer involvement
c) Value for money
QRD Evaluation Project
Phase I
Collection of publications and other outcomes from completed projects
Phase II
Postal evaluation of project output and outcomes by QRD consumer network and scientists
EVALUATION CRITERIA
• Publication in scientific peer-reviewed journals using journal impact factors
• Results being used by other groups for policy, research and treatments
• Career development of researchers in dementia research and practice
• Increased awareness of dementia issues resulting from project
DEFINING THE QUESTIONS
Q1. How well were the objectives of the research proposal met?
Q2. How do you rank the level of output from the project?
Q3. How much difference will this research make to people with
dementia?
1--------2--------3--------4--------5--------6--------7--------8--------9--------10
Consumers answer questions by marking on a scale of 1-10, where
1 is a high score, and 10 is a very low score
RESULTSDiscrimination between
the three questionsfor same researcher
Q1. How well were the objectives of the research proposal met?
0
5
10
15
20
25
30
35
1 2 3 4 5 6 7 8 9 10
SCORE
RES
PON
SES
Q2. How do you rank the level of output from the project?
0
5
10
15
20
25
30
35
1 2 3 4 5 6 7 8 9 10
SCORE
RESP
ONSE
SQ3. How much difference will this research make to people with dementia?
0
5
10
15
20
25
30
35
1 2 3 4 5 6 7 8 9 10
SCORE
RESP
ONSE
S
Researcher X
0
5
10
15
20
25
30
35
1 2 3 4 5 6 7 8 9 10
SCORE
RES
ON
SE
RESULTSQ3. How much difference will this
research make to people with dementia?
Researcher Y
0
5
10
15
20
25
30
35
1 2 3 4 5 6 7 8 9 10
SCORE
RESO
PNSE
Reseracher Z
0
5
10
15
20
25
30
35
1 2 3 4 5 6 7 8 9 10
SCORE
RESP
ONS
ES
CONSUMER’S CONCERNS
• More informative final project reports
• Difficult to evaluate quality of output
• More information on what use was made of the results
• More information on grant holders subsequent activities
• Wider dissemination beyond scientific press
FURTHER EVALUATION
Phase III
Consumer-enhanced scientific committees evaluate selected projects
Phase IV
External peer review of the scientific quality of research funded
Phase V
Independent evaluation of the impact of consumer involvement both internally and externally to the Alzheimer’s Society
CONCLUSIONS
• This is an ongoing innovative study
• Stepwise development
• Consumers can evaluate output and quality
Further Information
www.qrd.alzheimers.org.uk
Telephone QRD Office : 020 7306 0845
INFORMATION PROVIDED
• Short summary & conclusion
• Final Report documenting Publications & Abstracts with journal Impact Factors
• Books and/or chapters
• Conference oral & poster presentations
• Further research resulting from project
• Career progression of researchers