Reflections FALL 2012 • VOLUME 17 • NUMBER 2 A LEGACY OF GIVING The impact of Alzheimer’s disease on caregivers motivated the Sauls to support quality of life research Linda and Bill Saul first heard of Alzheimer’s disease in the mid-1970s when a friend sent Bill’s mother a Washington Post article about a then little-known disease with a note, “This sounds like what Wilf has.” Wilf, Bill’s father, was clearly suffering from some progressive, debilitating condition, but no one had any idea what it was or what to do about it. Forty years ago, Alzheimer’s disease was poorly understood even by the medical community, a fact that was reinforced when Bill’s mother took the article to their family doctor. He severely chastised her for her self-diagnosis, saying, “You shouldn’t bother me with this. Alzheimer’s disease is a very rare disease which affects people in their forties. Your husband is just getting old.” As his father continued to decline, Bill became increasingly concerned about the effect that his father’s condition and needs were having on his mother, who not only insisted on being her husband’s primary caregiver, but quietly suffered the indignities and shame that came with the stigma of having a loved one who acted so strangely. In the 1980s, Linda and Bill, both of whom were senior executives in the Canadian marketing and advertising industry, wanted to help ensure that others living with Alzheimer’s disease received proper diagnosis and treatment. They also wanted to do anything they could to ensure that caregivers like Bill’s mother were properly recognized and supported with information and services. That’s why they became early financial supporters of the newly formed Alzheimer Society of Toronto and Bill joined the Communications Committee of the Alzheimer Society of Canada (ASC). He subsequently joined the ASC Board. (continued on page 2) A L Z H E I M E R S O C I E T Y to
Transcript
Refl ectionsFALL 2012 • VOLUME 17 • NUMBER 2
A LEGACY OF GIVING
The impact of Alzheimer’s disease on caregivers motivated the Sauls
to support quality of life research
Linda and Bill Saul fi rst heard of Alzheimer’s disease in the mid-1970s when a friend sent Bill’s mother a Washington Post article about a then little-known disease with a note, “This sounds like what Wilf has.” Wilf, Bill’s father, was clearly suffering from some progressive, debilitating condition, but no one had any idea what it was or what to do about it.
Forty years ago, Alzheimer’s disease was poorly understood even by the medical community, a fact that was reinforced when Bill’s mother took the article to their family doctor. He severely chastised her for her self-diagnosis, saying, “You shouldn’t bother me with this. Alzheimer’s disease is a very rare disease which affects people in their forties. Your husband is just getting old.”
As his father continued to decline, Bill became increasingly concerned about the effect that his father’s condition and needs were having on his mother, who not only insisted on being her husband’s
primary caregiver, but quietly suffered the indignities and shame that came with the stigma of having a loved one who acted so strangely.
In the 1980s, Linda and Bill, both of whom were senior executives in the Canadian marketing and advertising industry, wanted to help ensure that others living with Alzheimer’s disease received proper diagnosis and treatment. They also wanted to do anything they could to ensure that caregivers like Bill’s mother were properly recognized and supported with information and services. That’s why they became early fi nancial supporters of the newly formed Alzheimer Society of Toronto and Bill joined the Communications Committee of the Alzheimer Society of Canada (ASC). He subsequently joined the ASC Board.
(continued on page 2)
Circle of Hope Members
ALBERTA
Alison Jenner Herbert & Laddie Martin Lucella C. Ross Al & Daisy Schoen Elwyn Starr
BRITISH COLUMBIA
Anonymous (33) Janet M. & Karl A. Baur J.D. Caughlin Pat Cowan Earl DesLaurier Bob & Sue Hastings Paula Jakeman Jack & Nancy Jefferson Anna Krause Rosemary Lear Jack & Judy Love Phyllis Marchment Patricia Mitchell Barbara Nightingale Rose Pascal Luce Prud’homme Sandy Riley Gail Steiger
David & Nancy Street Andy & Cheryl Szocs Helen Wilson
MANITOBA
Cal & Ben Shell
NEW BRUNSWICK
Audrey Coleman Mary Ruth Hawkins Pauline & Albert Spatz Wilma van der Torre
NEWFOUNDLAND & LABRADOR
Marlene Burton Christopher English in honour of Basil, Kathleen and Margaret Victor Tucker
NOVA SCOTIA
Ellen Agger James D. Grant Fiona Kirkpatrick Parsons Andrew Cornford-Matheson
ONTARIO
Brent Allen in honour of Mary Bernice Allen Anne-Marie Ambert Wilhemina Bakkenes M. Ballantyne
Deborah Barker Sally Bennett Politidis M. Blakely R.N. Bose Jean-Guy Bourgeois Russ Buchanan Pauline de Champlain Jennifer Childs in memory of Poppa Childs Les Dakens Karen Del Degan Brian Collins & Amanda Demers Alison Denton in memory of Roland Sablick Kathy Dewling Les Ficzere in memory of Roza Ficzere Donald Hodges Maria & Jack Hudolin Bettie-Jane de Jersey William Johnson Kit Julian Holger Kluge Sandra G. Knight Hanna & Ben Levy Nancy MacArthur Charles & Peggy MacDonald Al & Marilyn MacLean Sage C. McRae in honour of Betty McRae Craig Mellish Wilmer Minke in honour of Shirley R. Minke Vaughan Minor
Kim Morgan Douglas & Joan Napier Jeff Renaud Helen Rotenberg in memory of her sisters Steve & Susan Rudin Linda & Bill Saul E. Savage Lois Martin & William Seeley Ruth & David Smorodinski Jean E. Sonnenfeld Jean Spero Ken Stead Linda Stebbins Laraine & Richard Tapak Bill Twaddle Ernest & Mavis Underwood Rick Vader Bep Vanderkooy Jean Anne Verity Jan Vicars Heather E. Watt Kathy Wright
QUEBEC
Cheryl Babcock Jeanine Trudeau
SASKATCHEWAN Gerald Naylen
The Circle of Hope community honours, recognizes and thanks donors who have made a provision for a future gift to the Alzheimer Society via their Wills, gifts of life insurance, annuities, charitable trusts or endowment funds. Through the vision of these donors, we can invest in critical research for a cure and enhance the quality of life for people with dementia.
If you would like more information on joining the Circle of Hope, please let us know by returning the enclosed response card.
Alzheimer Society of Alberta and Northwest TerritoriesAttn: Mr. Bill GaudetteWeb: www.alzheimer.ab.caCharitable Registration # 12969 0343 RR0001
Alzheimer Society of British ColumbiaAttn: Mr. David WalkerWeb: www.alzheimerbc.orgCharitable Registration # 11878 4891 RR0001
Alzheimer Society of ManitobaAttn: Ms. Trudy MatteyWeb: www.alzheimer.mb.caCharitable Registration # 10670 5353 RR0001
Alzheimer Society of Newfoundland and LabradorAttn: Ms. Shirley LucasWeb: www.alzheimernl.orgCharitable Registration # 13207 1374 RR0001
Alzheimer Society of New BrunswickAttn: Ms. Chandra MacBeanWeb: www.alzheimernb.caCharitable Registration # 89328 0263 RR0001
Alzheimer Society of Nova ScotiaAttn: Ms. Sarah LyonWeb: www.alzheimer.ca/nsCharitable Registration # 10670 5379 RR0001
Alzheimer Society of OntarioAttn: Ms. Colleen BradleyWeb: www.alzheimer.ca/on Charitable Registration # 11878 4842 RR0001
Alzheimer Society of Prince Edward IslandAttn: Ms. Corrine Hendricken-EldershawWeb: www.alzheimer.ca/peiCharitable Registration # 13879 1389 RR0001
Alzheimer Society of SaskatchewanAttn: Ms. Dianne CraigWeb: www.alzheimer.ca/skCharitable Registration # 12996 3617 RR0001
For more information, please complete the enclosed response card or contact:Alzheimer Society of Canada Attention: Ms. Janet Farrell 20 Eglinton Avenue West, 16th FloorToronto, ON M4R 1K8 Phone: 416-488-8772 • 1-800-616-8816 Fax: 416-322-6656 E-mail: [email protected]: www.alzheimer.ca Charitable Registration # 11878 4925 RR0001
A L Z H E I M E R S O C I E T Y
to
(continued from page 1)
Bill recently refl ected that “Each year as the Board evaluated the allocation of research dollars, visions of my mother coping with my father’s failing health slipped into my head and I reconfi rmed my strong support for ASC’s policy to support research into both fi nding a cure and enhancing the quality of life of people with Alzheimer’s disease and their caregivers.”
Bill and Linda have a particular personal interest in supporting quality of life research that contributes to the signifi cant improvement in the lives of people with Alzheimer’s disease. They also recognize how much more research is required if progress is to continue. When they updated their Wills a few years ago, the Sauls designated their legacy gift to support the Alzheimer Society Research Program, and specifi ed that their gift support quality of life research projects. Naguib Gouda, CEO of the Alzheimer Society of Canada, adds, “We are deeply grateful for the generosity and compassion of Linda and Bill Saul, who recognize the need. Not only will this research continue to improve quality of life for people with dementia and their caregivers, it will help us raise awareness, promote early diagnosis and improve doctor-patient communication. We hope other donors are inspired to follow their lead and become members of the Circle of Hope.”
Leadership Message – Naguib Gouda, CEO Alzheimer Society of CanadaResearch is at the core of what we do at the Alzheimer Society and Canadian scientists are on the leading edge of unravelling this disease. This year, the Alzheimer Society Research Program provided approximately $3.3 million in new grants and training awards to researchers across the nation. With continued investment, Canada could hold the key to ending or preventing dementia in the next decade. Your support, and the support of thousands of others across Canada, puts us on the path to a world without Alzheimer’s disease and other dementias.
Make a Gift of Publicly Traded Securities to the Alzheimer Society
It’s simple!
By donating stocks or mutual funds directly to the Alzheimer Society, you can:
• Eliminate your capital gains tax • Make a signifi cant contribution • Have your gift honoured and celebrated during your lifetime
This giving option is attractive for donors who may have appreciated stock and want to make a donation from savings rather than cash fl ow.
Gifts of publicly traded securities and mutual funds can also be given through your Will. This is an excellent way to reduce capital gains taxes upon death, thereby signifi cantly reducing taxes and may increase inheritances to your loves ones.
Making a gift of stock is simple and convenient. To start building your living legacy today, call and speak to one of our Planned Giving specialists at 1-800-616-8816 or email us at [email protected].
A L Z H E I M E R S O C I E T YR E F L E C T I O N S F A L L
For Mirza Faisal Beg, that meant hiking to Mt. Kilimanjaro’s summit in 2010. By day, with support from the Alzheimer Society, Beg, an engineering professor at BC’s Simon Fraser University, studies ways to detect Alzheimer’s disease. As a hobby, he likes to climb.
When he had the chance to reach the top of one of the world’s highest mountains and raise money for our organization, he didn’t hesitate. “I’ve come to realize the great challenges faced by caregivers and families whose lives are turned upside down. It’s a way to show my understanding and passion, driven by my own scientifi c perspective.”
When Beg moved to the base of Coquitlam’s Burke Mountain, he became an avid hiker. Hiking is a great leveler, he says, just you and the mountain. It also provides a sense of serenity.
Beg’s team studies signatures in MRI brain scans of those with Alzheimer disease and compares them with those of healthy brains. “There is no good way to detect the disease in its early stages.
We work at tracking the earliest signs of changes in the brain and build computational tools to measure changes in the shape, volume and form of brain structure.”
His work could lead to a diagnostic tool, which would allow, with a high probability, early detection of Alzheimer’s and other neurodegenerative diseases.It would help families seek the best treatments and support and let people, in the early stages of Alzheimer’s disease, plan and direct their future care.
Beg predicts he will make future global mountain climbs. He also predicts his work may benefi t him or someone in his close family. “The older we live, the greater the chances are of facing Alzheimer’s disease. All families will inevitably reap the benefi ts of everyone’s investment today in Alzheimer’s research.”
Some people will go to any heights for the Alzheimer Society!
Information contained in this newsletter is not intended as specifi c fi nancial planning or legal advice. You should always consult your legal
advisors, fi nancial planners and family members when considering a planned gift. For permission to copy or use the information enclosed in this
newsletter, please contact the Alzheimer Society of Canada.
(continued from page 1)
Bill recently refl ected that “Each year as the Board evaluated the allocation of research dollars, visions of my mother coping with my father’s failing health slipped into my head and I reconfi rmed my strong support for ASC’s policy to support research into both fi nding a cure and enhancing the quality of life of people with Alzheimer’s disease and their caregivers.”
Bill and Linda have a particular personal interest in supporting quality of life research that contributes to the signifi cant improvement in the lives of people with Alzheimer’s disease. They also recognize how much more research is required if progress is to continue. When they updated their Wills a few years ago, the Sauls designated their legacy gift to support the Alzheimer Society Research Program, and specifi ed that their gift support quality of life research projects. Naguib Gouda, CEO of the Alzheimer Society of Canada, adds, “We are deeply grateful for the generosity and compassion of Linda and Bill Saul, who recognize the need. Not only will this research continue to improve quality of life for people with dementia and their caregivers, it will help us raise awareness, promote early diagnosis and improve doctor-patient communication. We hope other donors are inspired to follow their lead and become members of the Circle of Hope.”
Leadership Message – Naguib Gouda, CEO Alzheimer Society of CanadaResearch is at the core of what we do at the Alzheimer Society and Canadian scientists are on the leading edge of unravelling this disease. This year, the Alzheimer Society Research Program provided approximately $3.3 million in new grants and training awards to researchers across the nation. With continued investment, Canada could hold the key to ending or preventing dementia in the next decade. Your support, and the support of thousands of others across Canada, puts us on the path to a world without Alzheimer’s disease and other dementias.
Make a Gift of Publicly Traded Securities to the Alzheimer Society
It’s simple!
By donating stocks or mutual funds directly to the Alzheimer Society, you can:
• Eliminate your capital gains tax • Make a signifi cant contribution • Have your gift honoured and celebrated during your lifetime
This giving option is attractive for donors who may have appreciated stock and want to make a donation from savings rather than cash fl ow.
Gifts of publicly traded securities and mutual funds can also be given through your Will. This is an excellent way to reduce capital gains taxes upon death, thereby signifi cantly reducing taxes and may increase inheritances to your loves ones.
Making a gift of stock is simple and convenient. To start building your living legacy today, call and speak to one of our Planned Giving specialists at 1-800-616-8816 or email us at [email protected].
A L Z H E I M E R S O C I E T YR E F L E C T I O N S F A L L
For Mirza Faisal Beg, that meant hiking to Mt. Kilimanjaro’s summit in 2010. By day, with support from the Alzheimer Society, Beg, an engineering professor at BC’s Simon Fraser University, studies ways to detect Alzheimer’s disease. As a hobby, he likes to climb.
When he had the chance to reach the top of one of the world’s highest mountains and raise money for our organization, he didn’t hesitate. “I’ve come to realize the great challenges faced by caregivers and families whose lives are turned upside down. It’s a way to show my understanding and passion, driven by my own scientifi c perspective.”
When Beg moved to the base of Coquitlam’s Burke Mountain, he became an avid hiker. Hiking is a great leveler, he says, just you and the mountain. It also provides a sense of serenity.
Beg’s team studies signatures in MRI brain scans of those with Alzheimer disease and compares them with those of healthy brains. “There is no good way to detect the disease in its early stages.
We work at tracking the earliest signs of changes in the brain and build computational tools to measure changes in the shape, volume and form of brain structure.”
His work could lead to a diagnostic tool, which would allow, with a high probability, early detection of Alzheimer’s and other neurodegenerative diseases.It would help families seek the best treatments and support and let people, in the early stages of Alzheimer’s disease, plan and direct their future care.
Beg predicts he will make future global mountain climbs. He also predicts his work may benefi t him or someone in his close family. “The older we live, the greater the chances are of facing Alzheimer’s disease. All families will inevitably reap the benefi ts of everyone’s investment today in Alzheimer’s research.”
Some people will go to any heights for the Alzheimer Society!
Information contained in this newsletter is not intended as specifi c fi nancial planning or legal advice. You should always consult your legal
advisors, fi nancial planners and family members when considering a planned gift. For permission to copy or use the information enclosed in this
newsletter, please contact the Alzheimer Society of Canada.
Refl ectionsFALL 2012 • VOLUME 17 • NUMBER 2
A LEGACY OF GIVING
The impact of Alzheimer’s disease on caregivers motivated the Sauls
to support quality of life research
Linda and Bill Saul fi rst heard of Alzheimer’s disease in the mid-1970s when a friend sent Bill’s mother a Washington Post article about a then little-known disease with a note, “This sounds like what Wilf has.” Wilf, Bill’s father, was clearly suffering from some progressive, debilitating condition, but no one had any idea what it was or what to do about it.
Forty years ago, Alzheimer’s disease was poorly understood even by the medical community, a fact that was reinforced when Bill’s mother took the article to their family doctor. He severely chastised her for her self-diagnosis, saying, “You shouldn’t bother me with this. Alzheimer’s disease is a very rare disease which affects people in their forties. Your husband is just getting old.”
As his father continued to decline, Bill became increasingly concerned about the effect that his father’s condition and needs were having on his mother, who not only insisted on being her husband’s
primary caregiver, but quietly suffered the indignities and shame that came with the stigma of having a loved one who acted so strangely.
In the 1980s, Linda and Bill, both of whom were senior executives in the Canadian marketing and advertising industry, wanted to help ensure that others living with Alzheimer’s disease received proper diagnosis and treatment. They also wanted to do anything they could to ensure that caregivers like Bill’s mother were properly recognized and supported with information and services. That’s why they became early fi nancial supporters of the newly formed Alzheimer Society of Toronto and Bill joined the Communications Committee of the Alzheimer Society of Canada (ASC). He subsequently joined the ASC Board.
(continued on page 2)
Circle of Hope Members
ALBERTA
Alison Jenner Herbert & Laddie Martin Lucella C. Ross Al & Daisy Schoen Elwyn Starr
BRITISH COLUMBIA
Anonymous (33) Janet M. & Karl A. Baur J.D. Caughlin Pat Cowan Earl DesLaurier Bob & Sue Hastings Paula Jakeman Jack & Nancy Jefferson Anna Krause Rosemary Lear Jack & Judy Love Phyllis Marchment Patricia Mitchell Barbara Nightingale Rose Pascal Luce Prud’homme Sandy Riley Gail Steiger
David & Nancy Street Andy & Cheryl Szocs Helen Wilson
MANITOBA
Cal & Ben Shell
NEW BRUNSWICK
Audrey Coleman Mary Ruth Hawkins Pauline & Albert Spatz Wilma van der Torre
NEWFOUNDLAND & LABRADOR
Marlene Burton Christopher English in honour of Basil, Kathleen and Margaret Victor Tucker
NOVA SCOTIA
Ellen Agger James D. Grant Fiona Kirkpatrick Parsons Andrew Cornford-Matheson
ONTARIO
Brent Allen in honour of Mary Bernice Allen Anne-Marie Ambert Wilhemina Bakkenes M. Ballantyne
Deborah Barker Sally Bennett Politidis M. Blakely R.N. Bose Jean-Guy Bourgeois Russ Buchanan Pauline de Champlain Jennifer Childs in memory of Poppa Childs Les Dakens Karen Del Degan Brian Collins & Amanda Demers Alison Denton in memory of Roland Sablick Kathy Dewling Les Ficzere in memory of Roza Ficzere Donald Hodges Maria & Jack Hudolin Bettie-Jane de Jersey William Johnson Kit Julian Holger Kluge Sandra G. Knight Hanna & Ben Levy Nancy MacArthur Charles & Peggy MacDonald Al & Marilyn MacLean Sage C. McRae in honour of Betty McRae Craig Mellish Wilmer Minke in honour of Shirley R. Minke Vaughan Minor
Kim Morgan Douglas & Joan Napier Jeff Renaud Helen Rotenberg in memory of her sisters Steve & Susan Rudin Linda & Bill Saul E. Savage Lois Martin & William Seeley Ruth & David Smorodinski Jean E. Sonnenfeld Jean Spero Ken Stead Linda Stebbins Laraine & Richard Tapak Bill Twaddle Ernest & Mavis Underwood Rick Vader Bep Vanderkooy Jean Anne Verity Jan Vicars Heather E. Watt Kathy Wright
QUEBEC
Cheryl Babcock Jeanine Trudeau
SASKATCHEWAN Gerald Naylen
The Circle of Hope community honours, recognizes and thanks donors who have made a provision for a future gift to the Alzheimer Society via their Wills, gifts of life insurance, annuities, charitable trusts or endowment funds. Through the vision of these donors, we can invest in critical research for a cure and enhance the quality of life for people with dementia.
If you would like more information on joining the Circle of Hope, please let us know by returning the enclosed response card.
Alzheimer Society of Alberta and Northwest TerritoriesAttn: Mr. Bill GaudetteWeb: www.alzheimer.ab.caCharitable Registration # 12969 0343 RR0001
Alzheimer Society of British ColumbiaAttn: Mr. David WalkerWeb: www.alzheimerbc.orgCharitable Registration # 11878 4891 RR0001
Alzheimer Society of ManitobaAttn: Ms. Trudy MatteyWeb: www.alzheimer.mb.caCharitable Registration # 10670 5353 RR0001
Alzheimer Society of Newfoundland and LabradorAttn: Ms. Shirley LucasWeb: www.alzheimernl.orgCharitable Registration # 13207 1374 RR0001
Alzheimer Society of New BrunswickAttn: Ms. Chandra MacBeanWeb: www.alzheimernb.caCharitable Registration # 89328 0263 RR0001
Alzheimer Society of Nova ScotiaAttn: Ms. Sarah LyonWeb: www.alzheimer.ca/nsCharitable Registration # 10670 5379 RR0001
Alzheimer Society of OntarioAttn: Ms. Colleen BradleyWeb: www.alzheimer.ca/on Charitable Registration # 11878 4842 RR0001
Alzheimer Society of Prince Edward IslandAttn: Ms. Corrine Hendricken-EldershawWeb: www.alzheimer.ca/peiCharitable Registration # 13879 1389 RR0001
