of 21
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FMD Chat Together 2013
Where Weve Been,Where Were Going
Sarah E. Kucharski
CEO/Chairman & Founder
@FMDChat #FMDAware
facebook.com/fmdchat
7/29/2019 FMD Chat Together 2013 - We're We've Been; Where We're Going
2/21
Visit FMD Chat at facebook.com/fmdchat.
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3/21
Closed FB group = 214 members
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Visit rareconnect.org >> Fibromuscular Dysplasia
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5/21
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Visit fmdchat.org
7/29/2019 FMD Chat Together 2013 - We're We've Been; Where We're Going
7/21
Overall Pageviews = 33,738
Pageviews Last Month = 1,365
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Added to 37 lists including: Society for Interventional Radiology, Mayo Clinics Center
for Social Media, CardioRad (Cedars-Sinai & UCLA), UVA Health System, and
Boston Childrens
7/29/2019 FMD Chat Together 2013 - We're We've Been; Where We're Going
9/21
Learn more about the Healthcare Hashtag Project at symplur.com.
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10/21
Visit FMD Chats YouTube channel via fmdchat.org >> Connect
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Rare Disease Day
Feb. 28, 2013
Visit rareadvocates.org
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Histiocytosis Association of America
Jim & Leisa Greathouse
Alternating Hemiplegia of Childhood
Jeff Wuchich
FMD Chat
Sarah E. Kucharski
Rare Disease Day
Feb. 28, 2014
rarediseaseday.org
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NIH Rare Disease Day
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15/21
Visit nopw.org.
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16/21
7/29/2019 FMD Chat Together 2013 - We're We've Been; Where We're Going
17/21
MedCity News ENGAGE
Washington, D.C.
June 5-6
medcitynews.com
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18/21
The Walking Gallery of Healthcare
@ReginaHolliday
reginaholliday.blogspot.com
7/29/2019 FMD Chat Together 2013 - We're We've Been; Where We're Going
19/21
Visit medicinex.standford.edu.
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20/21
Visit bcrenalagency.ca.
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Goals for 2014
Participation in RDLAs RDD in DC & RDD at NIH Monthly chats on Facebook and Twitter
Website redesign
501c3 status
NORD membership
Research funding
FMD Chat 2014 4th Annual US Conference on Rare Diseases and Orphan Products
