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GAME CHANGE - Center for the Study of Social Policy · 2019. 11. 26. · GAME CHANGE: TRANSFORMING...

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GAME CHANGE TRANSFORMING SYSTEM DESIGN FOR YOUTH AND YOUNG ADULTS WITH MENTAL HEALTH CHALLANGES Johanna Bergan Gwen White
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Page 1: GAME CHANGE - Center for the Study of Social Policy · 2019. 11. 26. · GAME CHANGE: TRANSFORMING SYSTEM DESIGN FOR YOUTH AND YOUNG ADULTS WITH MENTAL HEALTH CHALLENGES . YOUTH THRIVE

GAME CHANGETRANSFORMING SYSTEM DESIGN FOR

YOUTH AND YOUNG ADULTS WITH

MENTAL HEALTH CHALLANGES

Johanna Bergan

Gwen White

Page 2: GAME CHANGE - Center for the Study of Social Policy · 2019. 11. 26. · GAME CHANGE: TRANSFORMING SYSTEM DESIGN FOR YOUTH AND YOUNG ADULTS WITH MENTAL HEALTH CHALLENGES . YOUTH THRIVE

Game Change – Why and What

▪ Young Adults of Transition Age (YATA)

•Poor outcomes

•Possibility of better outcomes

▪ What – Policy and Practice

Page 3: GAME CHANGE - Center for the Study of Social Policy · 2019. 11. 26. · GAME CHANGE: TRANSFORMING SYSTEM DESIGN FOR YOUTH AND YOUNG ADULTS WITH MENTAL HEALTH CHALLENGES . YOUTH THRIVE

Interplay of Three Forces

Individual Developmental

TransitionInstitutional Transition

Family

Developmental

Transition

Page 4: GAME CHANGE - Center for the Study of Social Policy · 2019. 11. 26. · GAME CHANGE: TRANSFORMING SYSTEM DESIGN FOR YOUTH AND YOUNG ADULTS WITH MENTAL HEALTH CHALLENGES . YOUTH THRIVE

There is No Magic Age

▪ Developmental changes accumulate gradually

over time

▪ Functional capacities build gradually over

time

Page 5: GAME CHANGE - Center for the Study of Social Policy · 2019. 11. 26. · GAME CHANGE: TRANSFORMING SYSTEM DESIGN FOR YOUTH AND YOUNG ADULTS WITH MENTAL HEALTH CHALLENGES . YOUTH THRIVE

There is No Magic Age

▪ Families are the individuals who continue to

be involved with youth after they leave school

and child serving systems

▪ Need for Adult Allies

Page 6: GAME CHANGE - Center for the Study of Social Policy · 2019. 11. 26. · GAME CHANGE: TRANSFORMING SYSTEM DESIGN FOR YOUTH AND YOUNG ADULTS WITH MENTAL HEALTH CHALLENGES . YOUTH THRIVE

Institutional Transitions

▪ Mediated by bureaucratic and legal, rather

than cultural or natural, guidelines.

▪ Requirements to access services, pay sources,

philosophy and approach to services differs.

Page 7: GAME CHANGE - Center for the Study of Social Policy · 2019. 11. 26. · GAME CHANGE: TRANSFORMING SYSTEM DESIGN FOR YOUTH AND YOUNG ADULTS WITH MENTAL HEALTH CHALLENGES . YOUTH THRIVE
Page 8: GAME CHANGE - Center for the Study of Social Policy · 2019. 11. 26. · GAME CHANGE: TRANSFORMING SYSTEM DESIGN FOR YOUTH AND YOUNG ADULTS WITH MENTAL HEALTH CHALLENGES . YOUTH THRIVE
Page 9: GAME CHANGE - Center for the Study of Social Policy · 2019. 11. 26. · GAME CHANGE: TRANSFORMING SYSTEM DESIGN FOR YOUTH AND YOUNG ADULTS WITH MENTAL HEALTH CHALLENGES . YOUTH THRIVE

MAKE IT STOP!!!!

Page 10: GAME CHANGE - Center for the Study of Social Policy · 2019. 11. 26. · GAME CHANGE: TRANSFORMING SYSTEM DESIGN FOR YOUTH AND YOUNG ADULTS WITH MENTAL HEALTH CHALLENGES . YOUTH THRIVE

Game Change

Page 11: GAME CHANGE - Center for the Study of Social Policy · 2019. 11. 26. · GAME CHANGE: TRANSFORMING SYSTEM DESIGN FOR YOUTH AND YOUNG ADULTS WITH MENTAL HEALTH CHALLENGES . YOUTH THRIVE

Where to Start to Change the Game?

▪ Change policies and system structures

▪ Change services and practices

▪ Partner with young adults and caregivers

11

Page 12: GAME CHANGE - Center for the Study of Social Policy · 2019. 11. 26. · GAME CHANGE: TRANSFORMING SYSTEM DESIGN FOR YOUTH AND YOUNG ADULTS WITH MENTAL HEALTH CHALLENGES . YOUTH THRIVE

Where We Are Today: The Cliff

Page 13: GAME CHANGE - Center for the Study of Social Policy · 2019. 11. 26. · GAME CHANGE: TRANSFORMING SYSTEM DESIGN FOR YOUTH AND YOUNG ADULTS WITH MENTAL HEALTH CHALLENGES . YOUTH THRIVE
Page 14: GAME CHANGE - Center for the Study of Social Policy · 2019. 11. 26. · GAME CHANGE: TRANSFORMING SYSTEM DESIGN FOR YOUTH AND YOUNG ADULTS WITH MENTAL HEALTH CHALLENGES . YOUTH THRIVE

Youth Guided

Syst

em

s o

f C

are

Su

pp

ort

Ch

ildre

n

and

Yo

uth

Sy

stem

s Su

pp

ort

You

ng

Ad

ult

Tran

sition

s

Approaches to Transition

Youth Driven

Redefine Family Role

New Partners;Seamless Coordinated

Care

Evidence Informed

14

Family Driven

Separate Child & Adult Systems

Evidence Based

Page 15: GAME CHANGE - Center for the Study of Social Policy · 2019. 11. 26. · GAME CHANGE: TRANSFORMING SYSTEM DESIGN FOR YOUTH AND YOUNG ADULTS WITH MENTAL HEALTH CHALLENGES . YOUTH THRIVE

Key Policy Tenants

Promote a density of developmentally-appropriate and appealing services from which individualized service and treatment plans can be constructed.

Provide continuity of care from ages 14 or 16 to ages 25 or 30.

Provide continuity/coordination of care across the many systems that offer relevant services.

Davis & Koyanagi (2005)

Page 16: GAME CHANGE - Center for the Study of Social Policy · 2019. 11. 26. · GAME CHANGE: TRANSFORMING SYSTEM DESIGN FOR YOUTH AND YOUNG ADULTS WITH MENTAL HEALTH CHALLENGES . YOUTH THRIVE

Key Policy Tenants

Support family role to ages 25-30.

Support expertise in this age group and disability population.

Davis & Koyanagi (2005)

Page 17: GAME CHANGE - Center for the Study of Social Policy · 2019. 11. 26. · GAME CHANGE: TRANSFORMING SYSTEM DESIGN FOR YOUTH AND YOUNG ADULTS WITH MENTAL HEALTH CHALLENGES . YOUTH THRIVE

Key Policy Tenants 2019

Administrative Support for Young Adult Driven Practices

• Availability of Peer to Peer Support

• Mandated inclusion of young adults & caregivers in governance

structures

• Leadership development

• Life skills and education opportunities

• Workforce development

• Inclusion of young adults & caregivers in the workforce

• Expectations of partnership with existing youth & caregiver

programs and organizations

• Proactive system of supports

• Low barrier drop-in centers

Page 18: GAME CHANGE - Center for the Study of Social Policy · 2019. 11. 26. · GAME CHANGE: TRANSFORMING SYSTEM DESIGN FOR YOUTH AND YOUNG ADULTS WITH MENTAL HEALTH CHALLENGES . YOUTH THRIVE

Key Policy Tenants 2019

Policy Change to eliminate the cliff approach to

services

• Increase access to adult system

• Ease restrictive eligibility criteria

•Create a bridge between child and adult systems

•Overcome limited services & supports for this

population

• Support parents & caregivers

Page 19: GAME CHANGE - Center for the Study of Social Policy · 2019. 11. 26. · GAME CHANGE: TRANSFORMING SYSTEM DESIGN FOR YOUTH AND YOUNG ADULTS WITH MENTAL HEALTH CHALLENGES . YOUTH THRIVE

THOUGHT

WORK

Page 20: GAME CHANGE - Center for the Study of Social Policy · 2019. 11. 26. · GAME CHANGE: TRANSFORMING SYSTEM DESIGN FOR YOUTH AND YOUNG ADULTS WITH MENTAL HEALTH CHALLENGES . YOUTH THRIVE

Three Key Policy Questions

• Are young adults identified in children’s

services and provided age tailored services?

• Is there a formal or informal agreement

between the adult and child serving systems?

• Can young adults access adult services and are

developmentally appropriate services

available? Koroloff, Masselli, White, 2014

Page 21: GAME CHANGE - Center for the Study of Social Policy · 2019. 11. 26. · GAME CHANGE: TRANSFORMING SYSTEM DESIGN FOR YOUTH AND YOUNG ADULTS WITH MENTAL HEALTH CHALLENGES . YOUTH THRIVE

Access to Developmentally Appropriate

Services

Do criteria for accessing adult mental health

services exclude some young adults?

Is there a variety of developmentally-

appropriate services in the

adult system from which

individualized service and

treatment plans can be constructed?

Are service coordinators

available in the adult system that have been trained on working with young adults?

Page 22: GAME CHANGE - Center for the Study of Social Policy · 2019. 11. 26. · GAME CHANGE: TRANSFORMING SYSTEM DESIGN FOR YOUTH AND YOUNG ADULTS WITH MENTAL HEALTH CHALLENGES . YOUTH THRIVE

CULTURE SHIFT

Change takes time

Page 23: GAME CHANGE - Center for the Study of Social Policy · 2019. 11. 26. · GAME CHANGE: TRANSFORMING SYSTEM DESIGN FOR YOUTH AND YOUNG ADULTS WITH MENTAL HEALTH CHALLENGES . YOUTH THRIVE

Changing Community Culture

▪Offer informal supports

▪Partner with family and youth-run

organizations

▪ Ensure everyone has a role and

everyone has a responsibility

▪Create buy-in and train the workforce

Page 24: GAME CHANGE - Center for the Study of Social Policy · 2019. 11. 26. · GAME CHANGE: TRANSFORMING SYSTEM DESIGN FOR YOUTH AND YOUNG ADULTS WITH MENTAL HEALTH CHALLENGES . YOUTH THRIVE

The Way Forward

▪ Ensure everyone has a role and a

responsibility

▪ Challenge the status quo

▪ Shift our unconscious biases

▪ Build non-traditional partnerships

▪ Incorporate flexible financing mechanisms

Page 25: GAME CHANGE - Center for the Study of Social Policy · 2019. 11. 26. · GAME CHANGE: TRANSFORMING SYSTEM DESIGN FOR YOUTH AND YOUNG ADULTS WITH MENTAL HEALTH CHALLENGES . YOUTH THRIVE

Shifting Community Culture

▪ Shift from independence to

interdependence

▪Recognize the impact of intersection of

social and environmental context on

transition

▪ Embed lived experience beyond peer

support

Page 26: GAME CHANGE - Center for the Study of Social Policy · 2019. 11. 26. · GAME CHANGE: TRANSFORMING SYSTEM DESIGN FOR YOUTH AND YOUNG ADULTS WITH MENTAL HEALTH CHALLENGES . YOUTH THRIVE

Non-Traditional Partnerships

▪ Partner with youth and family-run

organizations

•Provide peer support

•Offer education & training

•Participate in advocacy

•Support agency climate and culture change

•Support integration of young adult &

caregivers at all levels

Page 27: GAME CHANGE - Center for the Study of Social Policy · 2019. 11. 26. · GAME CHANGE: TRANSFORMING SYSTEM DESIGN FOR YOUTH AND YOUNG ADULTS WITH MENTAL HEALTH CHALLENGES . YOUTH THRIVE

THOUGHT WORK

Page 28: GAME CHANGE - Center for the Study of Social Policy · 2019. 11. 26. · GAME CHANGE: TRANSFORMING SYSTEM DESIGN FOR YOUTH AND YOUNG ADULTS WITH MENTAL HEALTH CHALLENGES . YOUTH THRIVE

Practice and Policy Impact

What can YOU do to change practice

or policy to address this poor

otucomes?

Page 29: GAME CHANGE - Center for the Study of Social Policy · 2019. 11. 26. · GAME CHANGE: TRANSFORMING SYSTEM DESIGN FOR YOUTH AND YOUNG ADULTS WITH MENTAL HEALTH CHALLENGES . YOUTH THRIVE

Contact Information

▪ Johanna Bergan

• Executive Director, Youth MOVE National

[email protected]

• 202.808.3988

▪ Gwen White

• The Institute for Innovation & Implementation

[email protected]

• 410.960.0067

Page 30: GAME CHANGE - Center for the Study of Social Policy · 2019. 11. 26. · GAME CHANGE: TRANSFORMING SYSTEM DESIGN FOR YOUTH AND YOUNG ADULTS WITH MENTAL HEALTH CHALLENGES . YOUTH THRIVE

Continue the Discussion

YOUNG ADULT SERVICES AND SUPPORTS

(YASS)

LEARNING COMMUNITY

JOIN at:

https://theinstitute.myabsorb.com/#/login.

Page 31: GAME CHANGE - Center for the Study of Social Policy · 2019. 11. 26. · GAME CHANGE: TRANSFORMING SYSTEM DESIGN FOR YOUTH AND YOUNG ADULTS WITH MENTAL HEALTH CHALLENGES . YOUTH THRIVE

GAME CHANGE: TRANSFORMING SYSTEM DESIGN FOR YOUTH AND YOUNG ADULTS WITH MENTAL HEALTH CHALLENGES

YOUTH THRIVE – NOVEMEBER 13, 2019

Three Policy Questions:

• Are young adults identified in children’s services and provided age tailored services?

• Is there a formal or informal agreement between the adult and child serving systems?

• Can young adults access adult services and are developmentally appropriate services available? (Koroloff, Masselli, White, 2014)

Access to Developmentally Appropriate Services

• Do criteria for accessing adult mental health services exclude some young adults? • Is there a variety of developmentally-appropriate services in the adult system from

which individualized service and treatment plans can be constructed? • Are service coordinators available in the adult system that have been trained on

working with young adults? (Koroloff, Masselli, White, 2014)

YOUNG ADULT SERVICES AND SUPPORTS (YASS)

LEARNING COMMUNITY

JOIN at: https://theinstitute.myabsorb.com/#/login

CONTACT INFROMATION

Johanna Bergan

Executive Director, Youth MOVE National

[email protected]

202.808.3988

Gwen White

The Institute for Innovation & Implementation

[email protected]

410.960.0067


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