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Good Morning
Connecting with National Cancer Institute
Sara Comstock, ICC, NCI CIS Sara Comstock, ICC, NCI CIS
Maebe Brown, NCI CISMaebe Brown, NCI CIS
“This information is presented to enhance your efforts in
conducting cancer control interventions
in your Community”
Quick Assessment of Your Experience with NCI Resources
““One or two things I hope to learn at this Session”
1.2.
Programs
CANCER 101A Cancer Education and Training Program for American Indians and Alaska Natives
Goal►Provide basic information about cancer
Audience Community Members, Cancer
Patient/Family Education, Healthcare Staff
Cancer 101 CurriculumCancer 101 Curriculum► Module 1 - Cancer Data
► Module 2 - What is Cancer?
► Module 3 - Cancer Screening and Early
Detection
► Module 4 - Cancer Diagnosis and Staging
► Module 5 - Cancer Risk Factors and Risk
Reduction
► Module 6 - Basics of Cancer Treatment
► Module 7 - Support for Patients and Caregivers
How to Access?How to Access?
Posted on www.CancerIowa.orgPosted on www.CancerIowa.org
Call ICC @ 319-335-8144Call ICC @ 319-335-8144
Clinical TrialsClinical Trials
Why Care About Clinical Why Care About Clinical Trials?Trials?
Clinical Trials save lives by leading to:Clinical Trials save lives by leading to:
Improved cancer care delivery and treatment Improved cancer care delivery and treatment management.management.
Prevention of specific cancers in healthy Prevention of specific cancers in healthy people who are at high risk for cancer.people who are at high risk for cancer.
► Fewer than 3% of adults with cancer Fewer than 3% of adults with cancer participate in clinical trials. participate in clinical trials. Less than 5% of all eligible people with cancer
o Few over age 65o Ethnically diverse populationso Even fewer in many large prevention trials
► Many people are:Many people are: Unaware of the option of clinical trial Unaware of the option of clinical trial
participation.participation. Misinformed about the clinical trial Misinformed about the clinical trial
process.process.
Clinical Trials Education Series Clinical Trials Education Series (CTES)(CTES)► Group of 13 different educational resources to Group of 13 different educational resources to
support targeted education and outreach support targeted education and outreach programs.programs.
► CTES Includes:CTES Includes: WorkbooksWorkbooks BookletsBooklets
BrochuresBrochures
VideosVideos
Slide ProgramsSlide Programs
Web-based CoursesWeb-based Courses
For:For:► Individuals who want to develop a Individuals who want to develop a
basic understanding of clinical trialsbasic understanding of clinical trials
Content:Content:► Clinical trial processClinical trial process► How clinical trials lead to advances in How clinical trials lead to advances in
carecare► Participant protectionParticipant protection► Barriers to participationBarriers to participation► Finding clinical trialsFinding clinical trials► Exercises and reviewsExercises and reviews
Basic Workbook (91 pages)
In-Depth Program (96 pages)
For:For:► Health care professionalsHealth care professionals► Others seeking a more in-depth Others seeking a more in-depth
understanding of clinical trialsunderstanding of clinical trials
Content:Content:► Same as basic workbook and Same as basic workbook and
more (e.g., designing a trial and more (e.g., designing a trial and interpreting results)interpreting results)
► Conducting, locating, and Conducting, locating, and referring to trialsreferring to trials
► Case studyCase study
For:For:► Individuals and organizations Individuals and organizations
engaging their communities in clinical engaging their communities in clinical trials outreach and education trials outreach and education activitiesactivities
Content:Content:► Educating yourself and othersEducating yourself and others► Reaching underserved populations in Reaching underserved populations in
your community/outreachyour community/outreach► Working with the mediaWorking with the media► Working with medical organizationsWorking with medical organizations
A Resource Guide for Outreach, Education, and Advocacy (116 pages)
Trainer’s Guide for Cancer Education (115 pages)
For:For:► Health professionals and lay Health professionals and lay
people who conduct group people who conduct group training sessions with training sessions with community and scientific community and scientific audiencesaudiences
Content:Content:► Steps to plan, implement, and Steps to plan, implement, and
evaluate trainingsevaluate trainings► Examples of training methodsExamples of training methods► Worksheets/planning toolsWorksheets/planning tools
Brochures
For:► Cancer patients considering
a clinical trial (purple cover)► Medicare recipients
considering a clinical trial (green cover)
Content:► What are clinical trials?► What are my rights?► What are the risk and
benefits?► What questions should I ask?► What does Medicare pay for?
Also available in Spanish Coming Soon: Brochure on Prevention Clinical
Trials in English and Spanish
Booklet & DVD
For:For:► Cancer patients considering a Cancer patients considering a
clinical trialclinical trial
Content:Content:► What are clinical trials?What are clinical trials?► What happens in a clinical trial?What happens in a clinical trial?► Should I take part?Should I take part?
Available in English and Spanish
19 pages 28 pages
Ask Me about Clinical Trials Posters and Button
It can be worn by It can be worn by health care health care providers, clinical providers, clinical staff, patients, and staff, patients, and advocates. advocates.
Posters come in two designs, one
featuring a group of patients and
the other a health care provider.
Slide Programs Slide Programs (CD-ROM)(CD-ROM)Cancer Clinical Trials: The BasicsCancer Clinical Trials: The Basics ► For general audiencesFor general audiences► Includes speaker’s notesIncludes speaker’s notes
Cancer Clinical Trials . . . The Way Cancer Clinical Trials . . . The Way We Make Progress Against We Make Progress Against CancerCancer
► For limited literacy audiences in a For limited literacy audiences in a community settingcommunity setting
► Includes speaker’s notesIncludes speaker’s notes
Clinical Trials: In-Depth Clinical Trials: In-Depth InformationInformation
► For health professionals For health professionals ► Presenter prepares speaker’s notesPresenter prepares speaker’s notesComing Soon: Spanish Slide Program
Web-based Course (with CME)Title:Title:► Incorporating Clinical Trials into Incorporating Clinical Trials into
Your PracticeYour Practice
((http://cme.nci.nih.govhttp://cme.nci.nih.gov))
For:For: ► Health care professionalsHealth care professionals
Content:Content:► Challenges and solutions to Challenges and solutions to
participation in clinical trialsparticipation in clinical trials► Practical information to help guide Practical information to help guide
patients considering the option of patients considering the option of a clinical triala clinical trial
Also available: Human Participant Protection Education for Research Teams
How to Access?How to Access?►Resources can be:Resources can be:
DownloadedDownloaded Ordered onlineOrdered online Ordered by telephoneOrdered by telephone
http://www.cancer.gov/http://www.cancer.gov/clinicaltrialsclinicaltrials
Education in Palliative & End of Life Education in Palliative & End of Life Care for Oncology (EPEC-O)Care for Oncology (EPEC-O)
► Multimedia train the trainer curriculum Pain and symptom Pain and symptom
managementmanagement Care planningCare planning CommunicationCommunication
► Multimedia train the trainer curriculum Pain and symptom Pain and symptom
managementmanagement Care planningCare planning CommunicationCommunication
Tools
Cancer Control P.L.A.N.E.TUnderstandingRisk web site
Understanding Cancer SeriesPublication Locator
Lots of “Information” Out There . . .
What burns me up is that the answer is here somewhere staring usin our face!© The New Yorker Magazine
Cancer Control PLANET**Plan* Link *Act *Network with
Evidence-based Tools
Gateway to data and research-tested resources that can help planners, program staff, and researchers to design, implement, and evaluate evidence-based cancer control programs.
Understanding Cancer Series
www.cancer.gov/cancertopics/UnderstandingCwww.cancer.gov/cancertopics/UnderstandingCancerancer
Cancer Risk: Understand the PuzzleCancer Risk: Understand the Puzzle► NCI Interactive Site about cancer risk for NCI Interactive Site about cancer risk for
cancer free adultscancer free adults► TopicsTopics
Definition of RiskDefinition of Risk Risk Information for six common cancerRisk Information for six common cancer Action Steps to lower ones riskAction Steps to lower ones risk Tips for understanding cancer news storiesTips for understanding cancer news stories Tools to use with your doctor to manage cancer Tools to use with your doctor to manage cancer
riskrisk
Risk - http://Risk - http://understandingrisk.cancer.govunderstandingrisk.cancer.gov
Ordering Publications
►Hundreds of Publications Reports, Booklets, Pamphlets, Kits
►Multitude of cancer-related topics for both health care professionals and patients.
“This information was presented to enhance your
efforts in conducting cancer control interventionsin your Community”
Can you list one or two things you learned at this Session are?
Sara ComstockIowa Cancer Consortium(319) [email protected]