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Guidelines for use of Social Media in Patient Participation Groups
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GuidelinesforuseofSocialMediainPatientParticipationGroups

PatientsAssociationPatientParticipationGroupInformation&SupportPackDocument10

AnintroductiontoFacebookandPatient

ParticipationGroups(PPGs)

WhatisFacebook?! Itisanonlineplacewhereyoucanconnectwithothers,sharingwords,photosandotherimages.

! Thereisnowordlimit.

! Youcansharephotoalbums.

! Youcanseekotherpeople'sopinions(andgiveyourown).

! Youcaninteractwiththepeopleyouchoose.

! Youcansendprivatemessages,likeemails,toindividualsorgroups

PatientsAssociationPatientParticipationGroupInformation&SupportPackDocument10

Howdoesitwork?

1. Becomefriendswithsomeone,orlikeapagesotheirinformationwillappearonyourhomepage.

2. Theinformationyoupostisstoredonyourprofile.

3. You’llreceiveanotificationwhenpeoplerespondtoyouortagyou.

4. Ifyoutagsomeone,you’redrawingtheirattentiontoitandmakingitvisibletoyourfriendsandtheir

friends.

Whoisusingit?1. Peopleuseitinformallytokeepintouchwithfamilyandfriends.

2. Theyfindoutinformationaboutservicesandproductstheylike.

3. Theymaybemorehonestastheyknowthepeopletheyareinteractingwith.

4. ManypeopleuseFacebookonadailybasisandmayhavesupplementaryaccountsonTwitteror

Instagram.

5. Peopleusecommunityforumssuchas‘Buy,Swap,Sell’sitesor‘Spotted’pagestofindoutaboutand

commentonwhat’shappeningintheirarea.

PatientsAssociationPatientParticipationGroupInformation&SupportPackDocument10

HowtogetthebestforthePPG

1. You’llhaveapageoragroup.

2. Haveclearinformationonyourprofile,explainingwhatthegroupisandwhatyouhopetoachieve.

3. Connectwithothercommunityorganisationsandsharetheirinformation.

4. Keeppeopleuptodatewithwhatishappeningatthesurgery.

5. Askquestionstohelpyouunderstandpeople’sperspectives.

PatientsAssociationPatientParticipationGroupInformation&SupportPackDocument10

1.Notifications2.Messages 4.Mainaccount5.Page

3.Status

PatientsAssociationPatientParticipationGroupInformation&SupportPackDocument10

PatientsAssociationPatientParticipationGroupInformation&SupportPackDocument10

AnintroductiontoTwitterandPPGsWhatisTwitter?

• Itisknownasamicro-bloggingplatform

• Ithasa140characterlimit(spacesincluded)

• Itremovesgeographicalandhierarchicalboundaries

• Anyprofilecantalktoanyotherprofile

• (Some)Peoplesharetheirthoughts,feelings,experiences–eventheirlivesonit

• Itbringscommunitiesofinteresttogether.

PatientsAssociationPatientParticipationGroupInformation&SupportPackDocument10

Whoisusingit?

PatientsAssociationPatientParticipationGroupInformation&SupportPackDocument10

Howdoesitwork?

https://twitter.com>signedintomyprofile>thisiswhatIseeTimelineoftweetsfrompeopleIfollow

Suggestedprofilestofollow

Trendingtopicsandhashtags

Summaryofmyaccount

Username

PatientsAssociationPatientParticipationGroupInformation&SupportPackDocument10

Howdoesitwork?

…allcompletelypublictopeoplewhoaresignedinornot.

Thequestion

Theanswer

PatientsAssociationPatientParticipationGroupInformation&SupportPackDocument10

Whatisahashtag?• Awayofhighlightingaterm/phraseoracronym

• Amethodof‘tagging’contenttodowithacertaintopic

• ArelicofwhenTwitterdidn’thaveasearchfunction:#cornwall#NHS#PatientSafety

• Anyonecanmakeoneup

• Checkthehashtagis“clean”

Whatisatweetchat?• TakesadvantageofTwitter’sopenness

• Includethechat’shashtaginyourtweet

• Itgetsseenbyalllookingatthehashtag

• Theyreply…chataway!

PatientsAssociationPatientParticipationGroupInformation&SupportPackDocument10

PatientsAssociationPatientParticipationGroupInformation&SupportPackDocument10

WhocanseewhatonTwitter?! AssumeanyoneintheworldwithaninternetconnectioncanseewhatyoupublishonTwitter

! ThereareDirectMessages(DM)whichareprivate

! Buttheyonlytakeascreenshottoshare

HowdoIfindpeopleandpeoplefindme?

! Searchbysubject,keywords,name,organisation,hashtags

! Twitternaturallybringscommunitiesofinteresttogether

! Seewhothepeopleyoufollow,follow

Buildingacommunitytakestime,patienceandpersistence.

PatientsAssociationPatientParticipationGroupInformation&SupportPackDocument10

WherecanIfindoutmore?

https://support.twitter.com

PatientsAssociationPatientParticipationGroupInformation&SupportPackDocument10

Tips

• Goodhashtagstostartwith:

#nhssm#PatientSafety#NHSCitizen

• Goodaccountstofollow:

@PatientsAssoc@PatientVoiceSth@NHSCitizen@PatientOpinion

• FindoutmoreaboutplanningsocialmediaworkandsettingobjectiveswithNHSEmployerssocialmedia

toolkit:http://www.nhsemployers.org/your-workforce/need-toknow/social-media-and-the-nhs/a-social-

media-toolkit-for-the-nhs

PatientsAssociationPatientParticipationGroupInformation&SupportPackDocument10

Tips

Passwords:

• Changethemeverymonth

• Don’tusethesameonefordifferentaccounts

• Makeitdifficulttoguess.NeveruseanyvariantofPASSWORD!

Ifyouareworriedaboutyouraccount'ssecurityuse‘loginverification’(akatwo-stepverification)tosignin:

https://support.twitter.com/articles/20170388-using-login-verification

Updates:

Alwaysupdateyourappsandbrowserstothelatestversion.

FormoreinformationpleaseclickheretoseethesocialmediawebinarthatwasrunforPPGsinApril2015


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