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HEADWAY Newsletter

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  • THE BRAIN INJURY ASSOCIATION OF NEW HAMPSHIRE52 Pleasant StreetConcord, NH 03301

    CHANGE SERVICE REQUESTED

    NonprofitOrganizationU.S. PostagePA I D

    Concord, NH03301

    Permit No. 1665

    Non-Profit 501 (C) (3) 02-0397683Phone: (603) 225-8400Fax: (603) 228-6749

    Family Helpline: (800) 773-8400Office Hours: 8:30 - 4:30 (M-F)

    Information & Resources (only) (800) 444-6443

    IN THIS ISSUE...Never too Young...................................................................... Page 1Presidents & Executive Directors Messages ........................ Page 2Never too Young (contd) ..................................................... Page 333rd Annual Brain Injury & Stroke Conference .................Page 4&5Disabilities Rights Center Article............................................ Page 6Survivor Art Exhibit ............................................................... Page 7Caregivers Respite Camp ....................................................... Page 8INSIGHTS .............................................................................. Page 9

    NEVER TOO YOUNGWith the word CONCUSSION leading thenews these days, its understandable whymany people think that concussions are relegated to football players, those who playprofessional sports, or others engaged in sometype of dangerous or other high risk activity.

    The reality of concussion today is that every-one is eligible. Just ask Concord, NH residentBrooke Mills. Only fourteen years old at thetime of her concussion, Brooke is, at least inpart, the new face of concussion in America.

    Brooke was in her freshman year at ConcordHigh School when her life forever changed. It was a typical March day back in 2014.Like other freshman, she was in a mandatorygym class.

    I went to pick up a volley ball in gym class atthe same time a boy was going to kick it, sheshared. He kicked me in the head instead ofkicking the ball.

    Before her concussion, Brooke was intimatelyfamiliar with getting around school. She hadquickly learned to master the art of gettingfrom class-to-class with ease. She was unable,

    however, to find the Nurses Office withouthelp after being kicked in the head. This was the first outward sign that something wasnt quite right.

    The school immediately called Brookes mom,Stephanie, letting her know about the accident,and advised that Brooke be picked up fromschool.

    She seemed okay, and she really wanted togo back to school, says Stephanie. Not yetknowing the complete impact of her recentblow to the head, Brooke was back in schoolthe very same day. She promptly fell asleepin English class, something she would neverhave done before, Stephanie continued.Brooke missed a total of two weeks of schoolimmediately following her concussion.

    A couple of days later, Brooke and her momwere at the pediatricians office and the resulting diagnosis was as expected - a concussion. Cognitive rest was prescribed forBrooke. My mom took away my phone, recalls Brooke. She wanted me to rest asmuch as I could. Her symptoms were verytypical to those who have experienced

    Continued on page 3

    THE VOICE OF BRAIN INJURY Help, Hope and Healing

    I SSUE # 6 5 , SPRING 2 0 1 6

    IN THIS ISSUE...SAVE THE DATES .............................................................. Page 10Brain Matters - New Monthly Educational Series................ Page 12Summer Camps Available..................................................... Page 13Spotlight on Krempels .......................................................... Page 14Measuring Outcomes in Post-Acute Brain Injury Rehabilitation .............................................................. Page 15 & 16BIANH Supports and Services ............................................ Page 17BISCP and Elliot Clinics ...................................................... Page 18

    N E W S L E T T E RGOING GREEN? If you would like to receive the HEADWAY Newsletter by email, please contact [email protected]

    By David A. Grant

  • PRESIDENTS MESSAGE

    Spring 2016 - Page 2 HEADWAY Newsletter

    BIANH Officers &Board of Directors

    EXECUTIVE COMMITTEEPresidentFreddi Gale, CBIS, ConwayVice-PresidentRobin Kenney, Ed.D., PeterboroughSecretaryScott Dow, CBIST, HampsteadFamily Council RepresentativeDiane Schreck, NashuaJeannine Leclerc, KeeneSurvivor RepresentativePaul Van Blarigan, HollisProfessional RepresentativeJeremiah Donovan, MBA, CBIS, HillsboroImmediate Past PresidentLaura Flashman, Ph.D., GranthamExecutive DirectorSteven D. Wade, Concord

    BOARD OF DIRECTORSDavid F. Bauer M.D., LebanonDonna Beaudin, OTR/L, CBIST, NHA, SalemRobert S. Carey, Esq., ConcordPatricia Ciarfella, Center OssipeeCatherine Costanzo, Esq., HennikerLaura Decoster, ATC, ManchesterGina England, MA, CC-SLP, ContoocookDavid Eby, Esq., ManchesterPhilip Girard, MS, DeerfieldDavid Grant, SalemJay Hamel, LondonderryPeter Isquith, Ph.D., VermontRosalie Johnson, DoverEllen Keith, MSW, Center OssipeeElizabeth Kenney, PeterboroughJon Lanteigne, BedfordMichael Palmieri, ConcordHeather Rousseau, New BostonSchuyler Scribner, DurhamGarry Sherry, MS, North ConwayWilliam Storo, M.D., Concord

    EX OFFICIOJohn Capuco, Psy.D., ConcordBud Elkind, CBIST, KeeneNewton Kershaw, Jr., Esq., ManchesterJohn Richards, MS, MBA, Peterborough

    Publisher Brain Injury Association of New Hampshire

    Editor Renee FistereDesign/Layout Cantin Design Inc.Printer Upper Valley Press

    EXECUTIVE DIRECTORS MESSAGE

    The Brain Injury Association of New Hampshire was recently awarded a $25,000grant from the John W. Hart Memorial Fundof the New Hampshire Charitable Foundation.This grant will help to strengthen our outreachand support of newly injured brain injury survivors and their family members. Thegrant will support the development and implementation of a brain injury survivor andfamily member centered hospital dischargeplanning model that will provide them withthe tools and information they will need upontheir discharge to navigate the system of careand access available services within theircommunity.

    As I look out my office window and write this message,it is still winter but not a usual winter regarding temperatures or precipitation. By the time you read thisedition of Headway, I feel that the air will be warmerand possibly the earliest of spring bulbs may be peeking up through the ground.

    March is Brain Injury Awareness month. What does this mean?

    The Brain Injury Association of America leads the nation by conducting the awareness campaign. Thetheme is Not Alone. So much information can befound on their web site www.biausa.org. Flyers, posterscan be downloaded; there are pre-recorded public service announcements, fact sheets, advocacy tool kit,links to social media and information about Brain Injury Awareness Day in Washington, DC.

    Submission & Editorial Policy: HEADWAY is published by the Brain Injury Association of New Hampshire. The Editor invites and encourages contributions in the form of articles, special reports and artwork. BIA of NH reserves the right to edit or refuse articles submitted for consideration. The Association does not endorse, support, or recommend any specific method, facility, treatment or programmentioned in this newsletter. Please submit items to: Editor, Brain Injury Association of NH, 52 Pleasant Street, Concord, NH 03301. For advertising rates please call 603-225-8400.

    by Freddi Gale, BIANH President

    NEW HAMPSHIRE CHARITABLE FOUNDATION GRANT WILL HELP OUTREACH TO NEWLY INJURED

    by Steven D. Wade BIANH Executive Director

    I am looking forward to attending the Brain InjuryAwareness Day on Capitol Hill; this will include theBrain Injury Awareness Fair, Briefing on Concussion,and meetings with Congressmen Bill Pascrell, Jr. andThomas J. Cooney, Co-Chairs of The CongressionalBrain Injury Task Force among others in Congress whowill be in attendance. The task force is comprised ofover 80 bipartisan members, whose mission is to furthereducation and awareness of brain injury-including itsincidence, prevalence, prevention, and treatment. Manyof you reading this message can certainly relate to thestruggles regarding brain injury.

    Please know that you can count on our team from thesmall state of New Hampshire to help educate Membersof Congress and their staff on the full range of effects ofbrain injury, the challenges, and recoveries of personsliving with brain injury, and the services and supportsavailable to them.

    The Outreach to the Newly Injured pilotproject will be implemented at HealthSouthRehabilitation Hospital in Concord, to supportnewly injured survivors and their families byassisting them at the time of discharge fromacute rehab. This will provide families withinformation on community supports that willresult in a smooth transition back to home,school, and work after brain injury.

    On behalf of the entire brain injury commu-nity, we wish to express our gratitude to theNew Hampshire Charitable Foundation forsupporting this project..

    Marching Onward for Brain Injury Awareness!

  • HEADWAY Newsletter Spring 2016 - Page 3

    She simply wasnt recovering as she and herfamily had expected.

    Starting school again that fall, Brooke discovered that the very act of learning exacerbated her symptoms. It became clearthat more than a pediatricians opinion wasneeded. Seeking out someone who had moreexperience with concussions and traumaticbrain injury, Brooke and her mom soon foundthemselves at the office of a local concussionspecialist.

    Hoping to come away with new insight, newunderstanding and a protocol to help moveBrooke toward wellness, the visit to the concussion specialist didnt go as planned.He was quick to offer an experimentalAlzheimers drug, a depression medication,anxiety medica