#hfeaconference2014

26 February 2014

Nick Jones HFEA Director of Compliance

Improving quality of care for the benefit of patients

Workshop overview

IntroductionDebbie Barber, HFEA Authority Member

Strategy Overview Nick Jones, HFEA Director of Compliance Discussion: ‘What is quality from the perspective of patients?’

Table discussions on three key areas of focusPatients, donor conception and quality Summary of discussions

Introduction

The patient

We will put patients’ interests and safety first

Donor conception

We will improve the lifelong experience for donors, donor-conceived people, patients using donor conception, and their wider families

Quality

We will work with clinics to improve quality of care for the direct benefit of patients Quality

HFEA

Donor conception

The patient

Strategy Overview

What delivers good quality care?

Our quality model describes the ways available to us for influencing quality:

We can:Set standardsIncrease and inform choiceGive efficiency, economy and value

Quality

(of care and of outcomes)

Setting standards

Increasing and informing choice

Efficiency, economy and value

We have agreed 3 channels, or areas of focus, for our future strategy:

The patientDonor conceptionQuality

We have not yet drafted strategic objectives – first we want to listen.

Strategy focus

Workshop focus

What is quality from the perspective of patients? “ ”

Your task today is to discuss the ideas under each of the key areas (the patient, donor conception and quality) and tell us:

Which three ideas are most importantWhich three ideas are least importantSuggest an alternative idea to meet our aims

Take 15 minutes to discuss each topic and be ready to summarise your table’s discussions at the end of the workshop.

Table discussions

Three Strategic Areas

The Patient

We will put patients’ interests and safety first

This might mean:Asking patients what they want e.g. expanded information about

success rates, more information about treatment options and risksMore qualitative user experience information, e.g. publishing

feedback, user scoresChanging CAFC to facilitate comparisonsIncreasing support for patients whose treatment is unsuccessful

Three Strategic Areas

The Patient (continued)

We will put patients’ interests and safety first

This might mean:More information at primary care levelPatient representation on the AuthorityPatient inspectorsSharing information about clinic performance with NHS

commissioners.

Donor conception

We will improve the lifelong experience for donors, donor-conceived people, patients using donor conception, and their wider families

This might mean (in addition to supporting the Lifecycle campaign):Ensuring clinics understand their lifelong importance as information

providersOvercoming the barriers to good performance Ensuring donors and those seeking treatment understand legal

parenthood issues

Three Strategic Areas

Donor conception (continued)

We will improve the lifelong experience for donors, donor-conceived people, patients using donor conception, and their wider families

This might mean (in addition to supporting the Lifecycle campaign):Considering what more we could and should do about the

availability of donor gametesExplicitly addressing donation issues experienced by single

women, gay and lesbian couples and ethnic minorities.

Three Strategic Areas

Quality

We will work with clinics to improve quality of care for the direct benefit of patients

This might mean:Identifying what quality means (what is good treatment, beyond

getting pregnant?) Working out the factors behind success rates - quality indicatorsWorking with professional bodies to improve qualityDeveloping a consensus on what constitutes “suitable practices”Enabling clinics to share good practice, peer to peer

Three Strategic Areas

Quality (continued)

We will work with clinics to improve quality of care for the direct benefit of patients

This might mean:More data (success rates, incidents, risks) in the public domain Decreasing the effort needed by clinics to submit data Improving access to data for researchers Reducing the admin costs clinics incur in being regulatedImproving the quality of our internal processes.

Three Strategic Areas

Summary of discussions…

Any questions?

#hfeaconference2014

Thank you.

#hfeaconference2014

#hfeaconference2014

Lunch