Hope Parkinson Spring 2016 Newsletter

8/19/2019 Hope Parkinson Spring 2016 Newsletter

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April I May I June 2016

HOPE HEALTHCARE SERVICES

National Parkinson’s Awareness Month

Walk 4 Hope

“Capturing Grace”

Movie Premier

Photo by Hope Parkinson Program Care Partner,Frank Moore Jr. rom 2015 PD Sunset Cruise


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Trough all the seasons othe year, Hope HealthCareServices ParkinsonProgram nurturesparticipants in body, mindand spirit. ogether, weparticipate in activitiesand workshops. We listento expert advice and learnnew inormation. Mostimportantly, we connectwith each other orsupport, companionshipand camaraderie.

Spring’s arrival brings a renewed sense o purpose as weenjoy warmer, lighter days. At our Spring Community

Education Seminar, “Finding Hope or Living Wellwith PD,” program participant Jerry Bramlett will sharehis personal story about finding his purpose throughParkinson’s. “You know you’re getting better when you

can help somebody else,” he shared. Learn more aboutJerry’s story and the seminar on page 5.

Spring is also a great time to start thinking about newways to keep moving. April is National Parkinson’sAwareness Month and the perect opportunity to

take action. Tis is why I am excited about the firstWalk 4 Hope. I hope you will join us in supportingand celebrating our wonderul Parkinson community,Saturday, April 30 at Lakes Regional Park. Te walk willbe a great way to spring into action with riends andamily.

Warmest Wishes,

Samira K. BeckwithPresident and CEOHope HealthCare Services

D F H P P

Parkinson’s Disease and UnexpectedHospitalizations I Dr. Amanda AvilaUnexpected hospitalizationsofen result in complications orpeople with PD. Emerging datashows that 75% o hospitalized

patients with PD are not getting their medication ontime, resulting in serious complications or 60% opatients.

Approximately 70% o hospital staffdo not know which drugs worsen PD

symptoms – nor do they know thatmany common medications are unsaeor people with the disease, despite theact that hospitalized PD patients areadmitted 50% more ofen than theirpeers.

Fortunately, there are steps you cantake to stay sae in the hospital. Bringan accurate and complete list o allmedications you are currently taking,

and remember to bring your programmer with you.Ask your hospital doctor to write specific times or yourmedications. Also remember that your PD symptomsmay worsen temporarily.

Parkinson’s Disease Foundation’s “Aware in Care” Kit isa great resource that includes tools and inormation to

help a person with Parkinson’s to optimallyprepare or and manage a hospital stay. Tekit includes a care bag, 24-page hospital

action plan booklet, Parkinson’ disease IDbracelet, medical alert card, medicationorm, act sheet, “I Have Parkinson’s”reminder slips, thank you card and a diseasereminder magnet. Be prepared and orderyour FREE kit today. Visit www.awareincare.org or call 800-4PD-INFO.

Amanda Avila, MDHope Parkinson Program Medical Director

Movement Disorder Specialist, FloridaNeurology Group

2


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Community EducationSeminar

Finding Hope for Living

Well With PD

Friday, April 15 • 1 p.m.Hope Cape Community Room,2430 Diplomat Parkway E., CapeCoral

Special guest speaker Jerry Bramlettwill share his personal story about

his experience with Parkinson’sdisease.

Presentations will be ollowed by aQ&A session.(Questions submitted should notinclude any personal medicaltreatment advice).

Light rereshments will be served.Seating is limited, so please contactMichelle Martin at 239-985-7727 or

[email protected] toreserve a spot.

Hope Parkinson Program Walk 4 HopeSatrday, April 30 at 10 a.m. at Lakes Regional Park, Fort MyersApril is National Parkinson Awareness month. Join us to help raise awareness and support our local Parkinson Communityduring a one- to three-mile walk at 7330 Gladiolus Drive in Fort Myers. $25 registration includes t-shirt and refreshments.Sponsorships are welcome. Register online at donate.hopehcs.org/Walk4Hope, or call 239-985-7727 for more information.

Special Movie Premier Event:Capturing Grace

Tesday, April 5 • 2 p.m.Shell Point – Te Woodlands Grand Cypress Room14441 Woodsong Lane, Fort Myers

Hope HealthCare Services has planned a variety o events or Parkinson’s Awareness month. Please plan to joinus and help raise awareness in the community!

Dave Iverson is a masterful storyteller...CapturingGrace is a poignant reflection on the strength andresilience of the human spirit.— Michael J. Fox

Parkinson’s is personal or filmmaker and director Dave Iverson. He wasthe third member o his amily to receive the diagnosis. While producinga film about Parkinson’s called “My Father, My Brother and Me” or the

PBS Frontline series, Iverson learned about the Mark Morris DanceGroup’s unique partnership with the Brooklyn Parkinson Group and theidea or Capturing Grace was ormed.

Iverson explains that Capturing Grace is a story about the intersectiono two realms: One is occupied by some o the most acclaimed moderndancers in the world – the other is inhabited by a group o people withParkinson’s disease.

“Tis is a film about rediscovery, the rediscovery o a lighter step and thesweetness o motion. And it’s a story about a remarkable communityo dancers – some proessional, some not – but all coming together to

move in space...and in doing so, rediscovering grace. And it is in thatrediscovery that each becomes whole,” said Iverson.

RSVP to [email protected] by Friday April 1.

National Parkinson’s Disease Awareness Month


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It’s All About YouApril 20 - May 25 • 1 - 3:30 p.m.

Wednesdays at Lakes Regional Library 15290 Bass Road, Fort Myers

Want to learn how to get and/or stay active and enjoy your lie?“It’s All About You” is a highly interactive, research-based program that will empowerto better manage your Parkinson’s disease.

Participants will learn how to:

• Be better prepared for your physician visits• Be able to establish short- and long-term goals for better health

• More easily manage your medications• Understand the benets of exercise• Manage the symptoms of stress, pain and fatigue• Make smarter decisions related to healthy eating

Participants in this six-week workshop will receive a copy o the book “Living a HealLie with Chronic Conditions,” by Dr. Kate Lorig. For more inormation on this FREEunique and interactive workshop, or to register, please call 239-424-3122.

ROCK STEADY

BOXINGFighting Back Against PD

Rock Steady Boxing is a uniqueexercise program based on trainingused by boxing pros that hasbeen adapted to benefit peoplewith Parkinson’s disease. Recentstudies indicate that intenseexercise programs like non-contactRock Steady Boxing may be“neuro-protective” and help delaythe progression o Parkinson’ssymptoms.

Te Rock Steady Boxing programat FYZICAL Fitness Terapy &Balance Center in Fort Myersincludes boxing drills andconditioning or optimal agility,speed, endurance, accuracy,hand-eye coordination, ootwork

and overall strength. No boxingexperience is necessary, and maleand emale participants range inage rom mid-30s to early 90s.

Led by RSB certified trainer andcoach Angie Moran, Rock SteadyBoxing classes are availableor those experiencing mild tomoderate PD symptoms. Coachesperorm an assessment on eachparticipant beore they join the

program so they can base work onindividual needs.

For additional inormation or toschedule your assessment, callMike Drumm at 239-561-1177.Classes are offered on a first come,first serve basis. Remember toconsult your physician beorestarting any exercise program.

Flaxseed: Many Benefits forPeople with Parkinson’sFlaxseeds are tiny, glossy brown seeds with a pleasant, nutty flavor and a number ohealth benefits: • they are high in soluble ber, which helps keep blood sugar in control • they are high in insoluble ber, which helps prevent constipation by

keeping the stool so, bulky and easy to pass • 28 grams of axseed (about one ounce) contains 7 grams of ber • they are rich in protective fatty acids • they contain lignans, a substance that appears to protect against cancer

Flaxseeds will pass right through the digestive system i you do not grind them beousing them. Store whole seed at room temperature, and grind as you need it. Or busmall amounts o ground seed and store it in reezer. Once the seed is ground, itbecomes highly perishable and may go rancid.

You can add flaxseed to cold or cooked cereal, casseroles and homemade bread.You can even blend it into ruit smoothies.

I you’d like to try flaxseed, discuss it with your doctor or dietitian. Startwith a small amount – just a hal-teaspoon – to ensure there are no illeffects and that you’re not allergic to flax. You may then want to workup to a tablespoon a day, but go slowly. Abdominal bloating, crampsand gas can result i you try too much at once.

Kathrynne Holden, MS, Moderator of the National

Parkinson Foundation Forum “Ask About Nutrition,” and

author of “Eat Well, Stay Well with Parkinson’s Disease,”

and “Cook Well, Stay Well with Parkinson’s Disease.”

www.nutritionucanlivewith.com.


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Staying Social: 2016 PD Sunset CruiseFriday, May 6 • 6:30-8:30 p.m.

Inspiration in ActionHope Parkinson Program exercise instructor JerryBramlett finds purpose in encouraging others.

Jerry Bramlett’s Parkinson diagnosis came as a shock15 years ago. “I thought it was all over with,” he said.But aer taking one o Hope’s Parkinson 101 classes,Jerry gained a better understanding o how medicationand movement can improve mood and mobility. Hestarted making progress in exercise classes he initiallyound too difficult. When his instructor suggested

checking out ai Chi, it wasn’t long beore Jerry startedshowing his classmates a ew new moves. Aer servingor awhile as a substitute instructor, Jerry becamea year-round Hope Parkinson’s Program exerciseinstructor in 2006.

Jerry teaches the Hope Parkinson Program exercisegroup on uesdays and Tursdays, rom 11 a.m. to

noon in North Fort Myers. Attendance has grown romsix or eight people to more than 35.

“Te biggest killer we have is sitting. You have to keepactive and keep moving,” Jerry said. “You just have topersist and keep trying to work at it. Tere’s nothingyou can’t do.”

Visit hopeparkinson.org/exercise to view a calendar oHope Parkinson Program exercise groups.

Are you interested in a Parkinson’s Dance Workshop?Email [email protected] or call 239-985-7727.On Te Move

Staying social and keeping active improves your qualityo lie and balances your body, mind and spirit. Come join in on the un o a avorite social activity and anannual Hope Parkinson Program tradition: the PDSunset Cruise.

Hope Parkinson Program participants are invited to

enjoy the ellowship o riends while enjoying a sunsetcruise on the beautiul Gul o Mexico. Shell Point’sSuzy Q V has been privately chartered just or us!

Te Suzy Q’s seats are spaced to allow comort andmobility, and the disembarking and embarking areahas plenty o head room and easy access. Te Suzy Q isCoast Guard approved or 26 passengers.

Sunset cruise seating is limited, and reservations arerequired by Friday, April 29. Email [email protected] or call 239-985-7727 to reserve your se

Bottled water and a light snack will be provided. Noother ood or beverages, walkers or wheelchairs, plea$20 per person.


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3-P: Posture, Poles & PDMay 14 – Jne 4 • 10 - 11 a.m.

Satrdays at Hope Cape Commnity Room2430 Diplomat Parkway E., Cape Coral

Pole walking has many benefits, including improving balance and coordination andreducing the ear o alling. Using special rubber-tipped poles outfitted with wriststraps, participants will exercise their arms, shoulders, chest and back muscles – it’s a whole-body workout!

Lindy Smith’s five-week workshop incorporates a gentle warm-up with attention to posture, seated exercises or flexibility,standing challenges and breathing awareness as well as pole walking. Te ultimate goal aer five classes is or those livingwith PD to be more confident and aware o how moving with a purpose enhances lie.

Due to class size, the program is limited to participants with PD or Parkinsonism diagnosis. Loaner poles will be providedcourtesy o LEKI.

Te program is $20 per person, and registration is required by Friday, April 29. A signed doctor’s consent orm is required.

Participants can bring one care partner or support. Please call 239-985-7727 or email [email protected].

Speak EasyWorkshopsMay 12 - June 9

11:30 a.m. - 12:30 p.m. or 2:30-3:30 p.m.rsdays at the Hope Cape Commnity Room

2430 Diplomat Parkway E., Cape Coral

Have you experienced changes in speech and voice resulting rom Parkinson’sdisease? Would you like to improve your speech and voice use with others in a unatmosphere? Speak Easy is a five-week small group speech therapy workshop ledby Mary Spremulli, CCC-SLP, licensed speech-language pathologist and ownero Voice Aerobics. Participants identiy individual goals or improving speech and voice, and work together as a small group to provide eedback and support.

Class members receive a notebook o home practice materials along with a Hi-VOL® voice-on-light bracelet with a calibrated light that provides eedbackhelping users stay loud enough or everyday conversation.

Classes will have a minimum o our people and a maximum o six. $125 or fivesessions includes Hi-VOL® 4 PD audio CD and voice-on-light bracelet. Non-reundable. Sorry, no spouses allowed. Please register by uesday, May 3 by calling

Mary at 941-204-1515.

PD GolfWorkshopSatrday, March 26 • 11 a.m.Alico Family Golf

16300 Lee Road, Fort Myers

Come get in the swing o Spring atthe final instructional opportunitysponsored by Alico Family Gol!Director o Instruction imJankowski’s one-hour workshop wilocus on improving your swing andyour score.

Te cost or this workshop is only$10 per individual and is open toindividuals with all stages o PD.You may register at the ront counte

at Alico Family Gol by 10:45 a.m.the morning o the event.

For more inormation, contact im

at 847-644-1513.

Speak Easy Workshop Participants Speak Out“I’ve learned something about how much effort is required to speak audibly.”

“ I learned exercises to help to keep myself audible.”

“I realize the things I need to change.”

“My wife says my voice is louder and clearer.”

SPRING 2016 WORKSHOPS


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Local Resorces for Parkinson’s DiseaseContact the ollowing organizations or more details and current programming schedules.

NPF National Parkinson FoundationPD Help Line; Patient Education Booklets;Aware In Care Kits; “Ask the Doctor Forum”www.parkinson.org800-473-4636

MJ Fox FoundationPD Research Opportunitieswww.michaeljoxoundation.org

UF Center for Movement Disorders3450 Hull Rd., Gainesville, 32607movementdisorders.ufealth.org352-265-8408

Davis Phinney Foundationwww.davisphinneyoundation.org

PDF Parkinson Disease Foundationwww.pd.org

National Resources

Educational and Navigational Support Area Agency on Aging or Southwest FloridaAging and Disability Resource Center15201 N. Cleveland Ave.,

North Fort MyersHelpline 866-413-5337;www.aaaswfl.org

United Way-211Helps people navigate their way through the maze ohealth and social services agencies by providing themost adequate resources or the client’s situation andpromoting prevention and sel-sufficiency by givingclients easy access to services.www.unitedwaylee.org

Dubin Resource CenterDementia Saety Program, dementia caregivereducation and support groups.239-437-3007; www.alzheimersswfl.org

Chronic Disease Sel-Management Workshop“It’s All About You”239-424-3122

Exercise Health & Wellness

Bonita YMCA Pedaling or Parkinson’s programMarla Ramsey; 239-221-7560

Laughter YogaFort Myers BeachMeg; 614-216-9341;[email protected]

Lehigh Senior Citizens CenterWeekly ai Chi Balance Classes219 Plaza Drive, Lehigh Acres239-369-5355; [email protected]

LMHS SHARE ClubSenior Health & Wellness program serving residentso Southwest Florida ages 50 and older.239-424-3765;[email protected]

Lee County Parks & Recreation PoolsSan Carlos, Lehigh Acres, Fort Myers and Pine Island239-533-7275

Punta Gorda PD Exercise ClassesContact Pete Gaylord at [email protected]

Medical ServicesLMHS PD Rehabilitation Services eamBalance Screenings & PD Rehab ClinicsMary Jo Haughey; 239-434-4962

FYZICAL Terapy & Balance Centers239-561-5616; www.yzical.com/ort-myers

Hope at HomePrivate Duty Nursing Care, Medicare Home Health,Palliative and Hospice Care239-482-HOPE; HopeHCS.org


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E v E N T L O C A T I O N S :

BONITA SPRINGSHope Bonita Springs Community Room: 27200 Imperial Parkway Te erraces: 26455 S amiami rail

CAPE CORAL

Cape Coral Wellness Center: 609 SE 13th CourtHOPE Cape Community Room: 2430 Diplomat Parkway E.

ESTEROEstero Recreation Center: 9200 Corkscrew Palms Blvd.

FORT MYERSCypress Cove “Edison Room”: 10500 Cypress Cove DriveBrookdale Cypress Lake: 7460 Lake Breeze DriveFUMC-Faith United Methodist Church: 15690 McGregor Blvd.Hope HealthPark Community Rooms: 9470 HealthPark CircleShell Point King’s Crown Meeting Room: 14701 Kings Crown Way Shell Point Te Woodlands Grand Cypress Room:14441 Woodsong Lane

LABELLEHope Connections: 475 East Cowboy Way

NORTH FORT MYERSRecreation Center: 2000 North Recreation Park Way

PuNTA GORDAPunta Gorda isles Civic Association Room 3: 2001 Steve StreetSchedules are subject to change.

Hope Parkinson Program Calendar Details

Bonita and Estero classes are

provided in partnership with

PASFI.

Entry to Estero and North

Ft. Myers Lee County Parks and

Recreation acilities requires you

present a Membership Card that

can be purchased at the acility

prior to attending your first

class. Cost is $10 or a lietime

membership.

All events require pre-registration. Please call 239-985-7727 or email [email protected] latest programming information can be found at www.Hopeparkinson.org.

C O L O R K E Y :

Support Groups: Blue

Exercise Classes: Black

Educational Events: Red

Social Events: Green

8

2016 Annual Hope Parkinson SymposiumTe word is out: Tis year’s Symposium at the Harborside Event Center was our best yet! Tank

you to all the participants, volunteers, vendors and sponsors who helped support the event.

With special thanks to …PLATINuM SPONSORS

DISTINGuISHED SPEAKERS

Kelly D. Foote, MD, Amanda Aila, MD and John Baumann


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Home Health Care

Private Duty Nursing

MedicationManagement

Personal Care Assistance

Caregiver Support

Family Education

Palliative Care

Expert Hospice Care

BereavementCounseling

They’re relying on you. And you m

need some help. At Hope, we understand

have many roles in your family - and that few ar

important as your role of caregiver. We can supall you do with our comforting care - coordinat

medical needs, explaining options and providin

emotional guidance for you and your loved one

Together, we can make each day the best possibl

Let Hope be there for you.

hopehcs.org • 239.482.4673

Sometimes loveneeds a helping hand.

Proud Partner Agency

239-985-7727800-859-0314

HopeParkinson.org he Hope Parkinson Program is

provided by Hope HealthCare Services,a not-for-profit, 501 (c)(3)-status

community-based agency.

Hope Hospice and Community Services, Inc.9470 HealthPark CircleFort Myers, FL 33908

PrsUS P

PAPermFt. M

Please shop at Amazon Smile, and choose

us as your charity!Amazon will make a donation to our

organization. Just select name Hope Hospiceand Community Services, Inc.

Hope Parkinson Program

Did You Know?Participants know they can counton the Hope Parkinson Programo provide educational seminars,

movement classes, social events,upport groups, care navigation and,

o course, plenty o un activities.However, most do not know thathe program is unded by generous

donors, community gis and theUnited Way. Te Parkinson Programeam is committed to providingomplimentary membership and

offering Hope-run classes, groups andvents at no (or low) cost.

you believe in the program’s missiono keep everyone living with PDnormed, connected, supported andeeling good, please consider making aax-deductible gi. Donations can be

mailed to: Hope Parkinson Program,470 HealthPark Circle, Fort Myers,

FL 33908 and can be made online atHopeParkinson.org.

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Hope Parkinson Spring 2016 Newsletter

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