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Going Green: Workshop November 12th 2016 Mayston M, Forbes D & Carroll J 1 Going Green - The challenges of using evidence to influence therapy practice for children who have cerebral palsy Margaret Mayston, Dawn Forbes & Jenny Carroll APCP National Conference 2016 Brighton Neurodisability - From Birth to Transition RESEARCH BASE KNOWLEDGE & FRAMEWORKS PRACTICE GUIDELINES THERAPISTS’ EXPERTISE ICF FCS SOUND CLINICAL REASONING CLASSIFICATIONS GROWTH CURVES Why we do what we do? WHY WE DO WHAT WE DO = 2 Mayston 2016 Workshop outline: A review of the evidence Relevance for service delivery and interventions Therapists’ role in EBP Framework for evidence based practice Your role………………… Interact using the responders Participate in the discussion Share experience 3 Is your responder working? A. Yes B. No C. Don’t know D. Not 100% sure Yes No Don’t know Not 100% sure 86% 3% 10% 0% 4 5 Maximise activity/participation; minimise residual impairments Happy children and families! Training functional tasks: optimal task performance; maximum participation practise and training; home activities Maintain muscle length: prevent secondary problems tone reduction/hands on/off; taping; orthotics; equipment; surgery; BoNTA Muscle activation & strengthening Facilitation, FES, repetition, loading, weight bearing, resistance Cardiovascular & general fitness exercise physiology; nutrition/diet; sport recreation Specific training: driving neuroplastic change e.g. CIMT, treadmill, robotics; Wii, VR; imagery Train postural reactions: specifically and as part of task Sensory, perceptual & cognitive function: ?sensory integration; education. neuropsychology Social/ behavioural Participation, communication: AAC; recreation, sport ‘Tools’ of therapy/intervention/management Mayston, 2007 Modify environment; Contextual factors Mobility aids; play area; family After assessment, goal setting, how do you decide which therapy/intervention tools to use? A. I consider the experimental evidence B. I do what I learnt on a course C. I do what the senior therapist suggests D. I don’t think too much, I just do it; it’s intuitive E. I have my preferred intervention e.g. Bobath, task training I consider the experiment.. I do what I learnt on a c... I do what the senior ther... I don’t think too much, I ... I have my preferred inte... 39% 0% 36% 25% 0% 6
Transcript
Page 1: ICF - csp.org.uk · ICF FCS SOUND CLINICAL REASONING CLASSIFICATIONS CURVES Why we do what we do? ... “Overview of the current state of CP intervention evidence” in order to:

Going Green: Workshop November 12th 2016

Mayston M, Forbes D & Carroll J 1

Going Green - The

challenges of using

evidence to influence

therapy practice for

children who have

cerebral palsy

Margaret Mayston, Dawn Forbes & Jenny Carroll

APCP National Conference 2016 Brighton

Neurodisability - From Birth to Transition RESEARCH

BASE KNOWLEDGE &

FRAMEWORKS PRACTICE

GUIDELINES

THERAPISTS’

EXPERTISE

ICF

FCS

SOUND

CLINICAL

REASONING

CLASSIFICATIONS

GROWTH

CURVES

Why we do what we do?

WHY

WE DO

WHAT

WE DO

=

2

Mayston 2016

Workshop outline:

• A review of the evidence

• Relevance for service delivery and interventions

• Therapists’ role in EBP

• Framework for evidence based practice

Your role…………………

• Interact using the responders

• Participate in the discussion

• Share experience

3

Is your responder working?

A. Yes

B. No

C. Don’t know

D. Not 100% sure

YesNo

Don’t kn

ow

Not 100% su

re

86%

3%10%

0%

4

5

Maximise activity/participation;

minimise residual impairments

Happy children and families!

Training functional tasks:

optimal task

performance; maximum

participation

practise and training; home

activities

Maintain muscle

length: prevent

secondary problems

tone reduction/hands

on/off; taping; orthotics;

equipment; surgery;

BoNTA

Muscle activation &

strengthening

Facilitation, FES,

repetition, loading,

weight bearing,

resistance

Cardiovascular &

general fitness

exercise physiology;

nutrition/diet; sport

recreation

Specific training:

driving

neuroplastic

change

e.g. CIMT, treadmill,

robotics; Wii, VR;

imagery

Train postural

reactions:

specifically and as

part of task

Sensory, perceptual

& cognitive function:

?sensory integration;

education.

neuropsychology

Social/ behavioural

Participation,

communication: AAC;

recreation, sport

‘Tools’ of therapy/intervention/management Mayston, 2007

Modify

environment;

Contextual

factors

Mobility aids;

play area; family

After assessment, goal setting, how do you

decide which therapy/intervention tools to use?

A. I consider the experimental

evidence

B. I do what I learnt on a course

C. I do what the senior therapist

suggests

D. I don’t think too much, I just

do it; it’s intuitive

E. I have my preferred

intervention e.g. Bobath, task

training

I consid

er the e

xperim

ent..

I do w

hat I le

arnt o

n a c...

I do w

hat the se

nior t

her...

I don’t

thin

k too m

uch, I

...

I have m

y pre

ferr

ed inte

...

39%

0%

36%

25%

0%

6

Page 2: ICF - csp.org.uk · ICF FCS SOUND CLINICAL REASONING CLASSIFICATIONS CURVES Why we do what we do? ... “Overview of the current state of CP intervention evidence” in order to:

Going Green: Workshop November 12th 2016

Mayston M, Forbes D & Carroll J 2

There is a lot of experimental evidence to

support therapy intervention. What is your

opinion?

A. Strongly Agree

B. Agree

C. Somewhat Agree

D. Neutral

E. Somewhat Disagree

F. Disagree

G. Strongly Disagree

Strongly

Agree

Agree

Somew

hat Agr

ee

Neutral

Somew

hat Disa

gree

Disagre

e

Strongly

Disagre

e

3%

0%

14%

6%

31%

44%

3%

7 8

Evidence from

systematic

Research

Patient/client

preference

Clinical expertise

Evidence based practice/therapy

Empirical evidence Experimental evidence

“analysing, synthesising, and evaluating the best available

evidence and integrating it with individual expertise and service

users needs……..” Frontline, 05.10.11; see Sackett 1997

Family/child focus

The literature review (published October 2013 [265 citations]:

Purpose:

“Overview of the current state of CP

intervention evidence” in order to:

1. Inform decision making ….. across a

wide span of disciplines.

2. Rapid comparison of similar

interventions for clinical decision

making

3. Comprehensive resource for planning

knowledge transfer priorities.

9

I read the Novak article and concluded…..

A. That it was interesting but not useful as a guide to clinical practice

B. That it could be a useful guide to intervention

C. Read all the studies cited

D. Did not have any strong thoughts about it

E. It made me very frustrated and angry

F. Did not read it

G. Have never heard about it

H. Do not know what all the fuss was/is about

That it

was i

ntere

stin

g b..

That it

could

be a

use

ful .

..

Read all th

e studie

s cite

d

Did n

ot have any s

trong .

..

It m

ade me very

frust

rat..

Did n

ot read it

Have neve

r heard

about it

Do not k

now w

hat all t

he...

24%

15%

12%

0%

6%

18%18%

9%

10

Data representation in figures:

1. Size of circles represents the

volume of published work:

calculated by number of

papers and level of evidence

calculated using Oxford levels

of evidence (5= RCT).

2. Location on y-axis

corresponds to GRADE

system rating

3. Colour correlates to the

Evidence Alert System. “The

traffic codes provide a simple

common language that can be

used by therapists,

researchers, managers, and

families to develop a shared

understanding of the

implications of best-available

evidence” Novak, 2012. 11

Results:

12

Page 3: ICF - csp.org.uk · ICF FCS SOUND CLINICAL REASONING CLASSIFICATIONS CURVES Why we do what we do? ... “Overview of the current state of CP intervention evidence” in order to:

Going Green: Workshop November 12th 2016

Mayston M, Forbes D & Carroll J 3

Results:

13

Results:

14

• 166 papers; 64 interventions; 131 outcomes.

• Evidence alert system easy to ‘use’- but an

oversimplification and can lead to misuse.

• Some interventions not interventions e.g. hip

surveillance

• Some interventions ‘service ‘delivery’ e.g.

home programmes

• ‘Systems’ compared to single intervention

• Mixed type of evidence used for the review

• No reference to GMFCS levels

• No reference to age and stage of

development

• Unjustified attack on NDT?

The response - Novak et al 2014:

• A summary of evidence not a clinical ‘cook-

book

• Systematic reviews can aid, but never

replace, sound clinical reasoning

Reflections on Novak et al 2013:

15

Other reviews:

AACPDM levels

of evidence

16

• 37 studies of ‘conceptual approaches: Bobath; Conductive

Education; SI; Vojta, Functional therapy.

• Level II evidence for horse riding on posture; NDT on gross

motor functioning; goal therapy effective for attainment of

functional goals and participation

• “Robustness of evidence too weak and number of studies too

small”

• Advise a targeted approach based on ICF levels

Other reviews: Martin et al PT & OT in Paeds, 2010

17

• 34 articles: strength and functional training; NDT and

treadmill training (PBWSTT) for children aged 4-18

years

• Strength training most studied; no significant

differences for intensity of treatment.

• Oxford levels of evidence; all studies rather than RCTs

(e.g. Antilla, 2008)

Morgan et al 2016: Early intervention

• Infants birth to 2 years; 34 studies; 10 RCTs

• NDT was the most common intervention as experimental

or control

• Moderate to large treatment outcome had components of:

child initiated, environmental modification/enrichment;

task specific training.

• Potential benefits outweigh risk of harm

• Review by Spittle et al (2012) suggests that EI for

preterm infants improves cognitive outcome but this is not

sustained into school years

• Parent-infant interaction: 18

Page 4: ICF - csp.org.uk · ICF FCS SOUND CLINICAL REASONING CLASSIFICATIONS CURVES Why we do what we do? ... “Overview of the current state of CP intervention evidence” in order to:

Going Green: Workshop November 12th 2016

Mayston M, Forbes D & Carroll J 4

GMFCS I-III vs IV-V?

Bilateral vs unilateral?

Some examples of studies:

• Pin et al 2013: Systematic review of effects of

BoNTA. Poor level of studies; no conclusion

• Sewell et al 2016: Effect of spinal fusion on QOL.

• Bryant et al 2013: 6 week exercise on GMFM in

non-ambulant children (control, treadmill, bike)

• Williams & Pountney 2007: static bike training with

non-ambulant children.

• McDowell et al 2015: Efficacy of FCS in an area of

the UK. MPOC used as outcome.

• Lack of QOL studies: see Davey et al 2015 on

social participation and families of children with CP.

19 20

Evidence and current knowledge/clinical guidelines

EBP

Child and family

perspective

Therapists’

expertise

Evidence from

systematic Research

and consideration of

current knowledge,

frameworks,

guidelines…..

The ICF framework is considered to be the

universal framework for health professionals.

Which statement best reflects your view of it?

A. I know about it but am not sure how useful it is for my practice

B. The ICF is my usual clinical framework

C. I try to use it but it is difficult because not everyone else does.

D. I do not enough know about it.

E. I am not interested in using it

I know

about it b

ut am

n..

The ICF i

s my u

sual c

linica

...

I try

to u

se it

but i

t is d

iff...

I do n

ot enough

know a

...

I am

not i

ntere

sted in

usi.

.

13%

47%

0%

13%

28%

21

Clinical tool: Communication

with families

Clinical tool:

what level(s) to

work at

Clinical tool: communication

Between professionals

Clinical tool:

education

Clinical tool:

research

ICF (2001-2)/ICF-CY (2007)

Clinical reasoning tool

Clinical assessment/

outcome measure tool

Important for

environmental

considerations

Important link

to FCS

Clinical tool:

Service

planning/

delivery

Considers

personal

/cultural factors

22

Mayston 2016

I read the literature regularly and keep up to date

with new ideas and knowledge. What is your

opinion?

A. Strongly Agree

B. Agree

C. Somewhat Agree

D. Neutral

E. Somewhat Disagree

F. Disagree

G. Strongly Disagree

Strongly

Agree

Agree

Somew

hat Agr

ee

Neutral

Somew

hat Disa

gree

Disagre

e

Strongly

Disagre

e

18%

24%

45%

0%0%

6%6%

23 24

EBP

Child and family

perspective

Therapists’

expertise

Evidence from

systematic Research

and consideration of

current knowledge,

frameworks,

guidelines…..

Evidence based practice……

Implications for clinical practice:

• Service delivery: how? (Dawn)

• How therapists practice & evaluate:

therapy specific activities (Jenny)

Page 5: ICF - csp.org.uk · ICF FCS SOUND CLINICAL REASONING CLASSIFICATIONS CURVES Why we do what we do? ... “Overview of the current state of CP intervention evidence” in order to:

Going Green: Workshop November 12th 2016

Mayston M, Forbes D & Carroll J 5

Service delivery

25 Bobath Childrens’ Therapy Centre Wales

Do you have clear pathways for service delivery?

A. Yes

B. No

C. Not sure

D. Pathways for some areas but not all.

YesNo

Not sure

Pathways f

or som

e areas..

.

29%

46%

6%

20%

26 Bobath Childrens’ Therapy Centre Wales

Intervention? Approach?

Theory? Service delivery?

Management process?

e.g. motor control = theory e.g. hip surveillance = monitoring

27 Bobath Childrens’ Therapy Centre Wales

CIMT Fitness

OT post botox

Goal directed

Bimanual training

Context focused therapy

Home Programmes

Hip surveillance

Botulinum toxin

Pressure care

Anti-convulsants

Diazepam

SDR

Bisphosphonates

Casting Signpost

28 Bobath Childrens’ Therapy Centre Wales

Q: what’s the difference?

Outreach

block

Standard therapy

block

Single consult

e.g. 13 models of delivery

Same intervention

Intervention = treatment modality/what you will deliver Service delivery = structure of how to deliver intervention

29 Bobath Childrens’ Therapy Centre Wales

Home programmes

Not a new concept

Model of service delivery

Output

Outcome dependent on clinical reasoning

30 Bobath Childrens’ Therapy Centre Wales

Page 6: ICF - csp.org.uk · ICF FCS SOUND CLINICAL REASONING CLASSIFICATIONS CURVES Why we do what we do? ... “Overview of the current state of CP intervention evidence” in order to:

Going Green: Workshop November 12th 2016

Mayston M, Forbes D & Carroll J 6

Goal directed training

Not new concept

Model of service delivery Can measure success

An element of motor control theory

31 Bobath Childrens’ Therapy Centre Wales

What is your opinion of the role of OT post botulinum toxin in management?

A. It is a model of service delivery.

B. It is a treatment modality.

C. I am not sure

D. I do not have an opinion

It is

a model o

f serv

ice d

...

It is

a treatm

ent modalit

y.

I am

not s

ure

I do n

ot have

an o

pinio

n

66%

0%

23%

11%

32 Bobath Childrens’ Therapy Centre Wales

Separate but interwoven & equally important

e.g. Family centred service 33

Bobath Childrens’ Therapy Centre Wales

Personalised therapy plan

driven by hypotheses

34 Bobath Childrens’ Therapy Centre Wales

Wisdom

Knowledge

Information

Data

35 Bobath Childrens’ Therapy Centre Wales

36 Bobath Childrens’ Therapy Centre Wales

Page 7: ICF - csp.org.uk · ICF FCS SOUND CLINICAL REASONING CLASSIFICATIONS CURVES Why we do what we do? ... “Overview of the current state of CP intervention evidence” in order to:

Going Green: Workshop November 12th 2016

Mayston M, Forbes D & Carroll J 7

Cognitive ability

Time available

GMFCS level

Age

Associated difficulties

Classification

Clinical reasoning (wisdom) Research & knowledge

Right input, Right time, Right dose? 37

What is your opinion of the role of OT post botulinum toxin in management?

A. It is a model of service delivery.

B. It is a treatment modality.

C. I am not sure

D. I do not have an opinion

It is

a model o

f serv

ice d

...

It is

a treatm

ent modalit

y.

I am

not s

ure

I do n

ot have

an o

pinio

n

97%

0%0%3%

38 Bobath Childrens’ Therapy Centre Wales

Over to Jenny

39 Bobath Childrens’ Therapy Centre Wales Page 40

No clear research evidence for what

to do for a specific child.

Bobath Childrens’ Therapy Centre Wales

Page 41

Do you consider other factors than research

evidence for your clinical reasoning

A. Always

B. Never

C. Sometimes

D. Don’t know

E. Occasionally

Alway

s

Never

Sometim

es

Don’t kn

ow

Occasio

nally

100%

0% 0%0%0%

Bobath Childrens’ Therapy Centre Wales Page 42

Let’s look at the options

Bobath Childrens’ Therapy Centre Wales

Page 8: ICF - csp.org.uk · ICF FCS SOUND CLINICAL REASONING CLASSIFICATIONS CURVES Why we do what we do? ... “Overview of the current state of CP intervention evidence” in order to:

Going Green: Workshop November 12th 2016

Mayston M, Forbes D & Carroll J 8

Page 43

Evidence Based Practice (Medicine) Triad

Individual Clinical

Expertise

Patient Values

and

Expectations

Best

Research

Evidence

EBP

Sackett 1996

Bobath Childrens’ Therapy Centre Wales Page 44

Best

Research

Evidence

EBP

Bobath Childrens’ Therapy Centre Wales

Page 45

Individual

Clinical

Expertise

EBP

Bobath Childrens’ Therapy Centre Wales Page 46

Individual therapists’ clinical expertise is an essential

component of successful therapy. What is your

opinion?

A. Strongly Agree

B. Agree

C. Somewhat Agree

D. Neutral

E. Somewhat Disagree

F. Disagree

G. Strongly Disagree

Strongly

Agree

Agree

Somew

hat Agr

ee

Neutral

Somew

hat Disa

gree

Disagre

e

Strongly

Disagre

e

23%

46%

29%

0%0%0%3%

Bobath Childrens’ Therapy Centre Wales

Page 47

Rate the importance of individual therapy

expertise in relation to the two components of the

triad?

Very im

portant

Not im

portant

Fairl

y im

portant

As im

portant a

s oth

er ...

Don’t kn

ow

20% 20% 20%20%20%• More important

• Equally important

• Less important

• Not important at all

• Don’t know

Bobath Childrens’ Therapy Centre Wales Page 48

Individual Expertise

• Gain as much expertise as possible

• Up to date science

• Child development

• Different approaches

Bobath Childrens’ Therapy Centre Wales

Page 9: ICF - csp.org.uk · ICF FCS SOUND CLINICAL REASONING CLASSIFICATIONS CURVES Why we do what we do? ... “Overview of the current state of CP intervention evidence” in order to:

Going Green: Workshop November 12th 2016

Mayston M, Forbes D & Carroll J 9

Page 49

Individual Expertise

• Train your critical thinking and analysis

• Constantly challenge your clinical

reasoning

• Develop your observational skills

• Find a framework for doing this that helps

you

Bobath Childrens’ Therapy Centre Wales Page 50

1. How do typical children function in the considered area?

2. Why do they do so?

3. How do the atypical children function in this area?

4. Why don’t they do as the typical children?

5. Why do they do as they do?

6. What would be better for them in the long term?

7. How can they be helped to achieve this? Dan 2010

Bobath Childrens’ Therapy Centre Wales

Page 51

Patient

Values

and

Expectations

EBP

Bobath Childrens’ Therapy Centre Wales Page 52

Body Functions

and Structure

(Impairment)

Activity

(Limitations) Participation

(Restrictions)

Environmental

Factors

Personal

Factors

Health

Condition

International Classification of Functioning Disability and Health

(WHO 2001)

Page 53

What we can do to consider child

and families values and

preferences

Bobath Childrens’ Therapy Centre Wales

Carroll

Forbes and

Parkinson

2014

Page 10: ICF - csp.org.uk · ICF FCS SOUND CLINICAL REASONING CLASSIFICATIONS CURVES Why we do what we do? ... “Overview of the current state of CP intervention evidence” in order to:

Going Green: Workshop November 12th 2016

Mayston M, Forbes D & Carroll J 10

Page 55

Do you measure the outcome of each

intervention?

A. Not sure

B. Never measure an outcome

C. Sometimes measure an outcome

D. Usually measure an outcome

E. Always measure an outcome

F. Measure several outcomes

Not sure

Never m

easure

an o

utcom

e

Sometim

es measu

re a

n ...

Usually

measu

re an

ou...

Alway

s measu

re an o

ut...

Measu

re se

vera

l outc

omes

0% 0%

12%

3%

50%

35%

Bobath Childrens’ Therapy Centre Wales Page 56

Measure results for the individual

• PREMS

• PROMS

• Outcomes

Bobath Childrens’ Therapy Centre Wales

Page 57

Patient Report Experience Measures

(PREMS)

• Measure of Process of Care (MPOC)

• Patient stories

Bobath Childrens’ Therapy Centre Wales Page 58

Patient Reported Outcome Measures

(PROMS)

• EQ-5D

• PedsQL

• Patient stories

Bobath Childrens’ Therapy Centre Wales

Page 59

Domains of quality

PREMs

Experience of care - What do patients think

of the process of care eg dignity,

information, trust in staff, cleanliness,

timeliness?

PROMs

Effectiveness of care - Does it reduce

symptoms, improve function, improve

quality of life?

Safety - Does it cause harm eg mortality,

complications?

Bobath Childrens’ Therapy Centre Wales Page 60

Outcome Measures

• Goals

– SMART

– Goal Attainment Scaling (GAS)

Bobath Childrens’ Therapy Centre Wales

Page 11: ICF - csp.org.uk · ICF FCS SOUND CLINICAL REASONING CLASSIFICATIONS CURVES Why we do what we do? ... “Overview of the current state of CP intervention evidence” in order to:

Going Green: Workshop November 12th 2016

Mayston M, Forbes D & Carroll J 11

Page 61

Measure goals

• For individual

• For service

Bobath Childrens’ Therapy Centre Wales Page 62

Using goals for service audit

Bobath Childrens’ Therapy Centre Wales

Page 63

Evidence Based Practice Triad

Individual Clinical

Expertise

Patient Values

and

Expectations

Best

Research

Evidence

EBP

Sackett 1996

Bobath Childrens’ Therapy Centre Wales Page 64

Summary……………

Page 65

This workshop has broadened my view of

evidence based practice. What is your opinion?

A. Strongly Agree

B. Agree

C. Somewhat Agree

D. Neutral

E. Somewhat Disagree

F. Disagree

G. Strongly Disagree

Strongly

Agree

Agree

Somew

hat Agr

ee

Neutral

Somew

hat Disa

gree

Disagre

e

Strongly

Disagre

e

46%

37%

17%

0%0%0%0%

Page 66

What one thing will you take away from the

workshop?

A. Some ideas on how to understand research evidence

B. It has broadened my thinking on evidence based practice

C. I will think more about service delivery vs intervention

D. I will go in to more depth in my clinical reasoning

E. I will routinely use outcome measurement in my practice

F. All of the above

G. Some of the above

Some id

eas on h

ow to

u...

It has b

roadened m

y thin

...

I will

thin

k more

about se...

I will

go in to

more

depth

..

I will

routin

ely u

se o

utc...

All of t

he above

Some o

f the a

bove

0%

26%

12%

6%

32%

9%

15%


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