Date post: | 16-Jul-2015 |
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Health & Medicine |
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Understanding and Treating Psychosocial Barriers
Patient discussion board subjects uncover “invisible” symptoms
“Anxiety orMS...Scared”
“Newbie with questions”
Shifting the Focus from Medical to PsychosocialPsychosocial factors are predictors of quality of life in MS
Bring on the Healthcare Extenders!
Professionals who focus primarily on psychosocial issues
Pharmacist
Griswold Home Care
Counselor, Social Worker
Discharge Planner
Nurse (RN, LPN, APN)
What is Multiple Sclerosis? (MS)
“The quality of life in patients with MS is not solely
determined by physical disability, but rather by the
level of social support, living area, depression, level of education,
employment, fatigue and religiosity…we suggest that these should be
evaluated in every patient with MS as they may be modified by
targeted interventions.”
(Yamout et al, 2013)
Subjects Matter
Highlighting a Disconnect with Patients & Prescribers
- Numbness or weakness in one or more limbs- Partial or complete loss of central vision- Double vision or blurring of vision- Tingling or pain in parts of your body- Electric-shock sensations that occur with certain head movements- Tremor, lack of coordination or unsteady gait- Slurred speech- Fatigue- Dizziness
- Overwhelmed with diagnosis - Overloaded by amount of information they are given- Depression due to isolation and mounting losses- Fear and uncertainty about the future- Loss of roles: parent, spouse, worker, active member of society- Impact on family and relationships- Concern about financial issues- Difficulty with activities of daily living- Travel concerns
Prescriber Patient
DisconnectMedical vs. Psychosocial
Primary focus on managing physical symptoms with medication due to time
limitations
Primary focus on managing psychosocial (“invisible”) symptoms yet reluctant to
discuss with their prescriber
Advocacy/Support Groups
“Am I just crazy?”
“Depression and MS”
“Taking meds through airport
security?”
“Scared of romance”
Family andFriends
Government Agencies
PT/OT/Speech
MS Non-medical Toolkit Solutions
© 2013 Griswold International, LLC
Support NetworkAwareness and access
to family, friends, peers, advocacy
Surrounding EnvironmentFinancial issues, competing
needs, access to care/services
Values, Emotions, Beliefs, and Attitudes
Anxiety, depression, uncertainty, fear, anger, isolation
KnowledgeUnderstanding of MS and
how to self-manage
Self-efficacyConfidence in diagnosis,
care team, treatment, ability to manage
MS/treatment
• Multiple Sclerosis (MS) is a chronic, often disabling disease that attacks the central nervous system (CNS), which is made up of the brain, spinal cord, and optic nerves.
• Symptoms may be mild, such as numbness in the limbs, or severe, such as paralysis or loss of vision.
• The progress, severity, and specific symptoms of MS are unpredictable and vary from one person to another. Today, new treatments and advances in research are giving new hope to people affected by the disease.
National MS Society - www.nationalmssociety.org
MS Connections: http://bit.ly/ZAeO5a Living with MS: http://bit.ly/Z0gXWT MS Learn Online: http://bit.ly/YseGDZ
Mood Changes and MS: Understanding Depression – National MS Society: http://bit.ly/Z0gmobMood Changes and MS: Managing Anxiety – National MS Society: http://bit.ly/X7yxIYCareer Crossroads: Employment and MS Part 1 – National MS Society: http://bit.ly/Z0gyni MS in a Personal Relationship – National MS Society: http://bit.ly/YbkkuU
MS Quality of Life Inventory: http://bit.ly/Ya0a7xPlainTalk: A booklet about MS for families: http://bit.ly/ZLn3Pb Clinical Practice Guidelines: http://bit.ly/XuId66
Videos
Tools Resources
Sources:
Yamout, B et. al. (2013) Predictors of quality of life among multiple sclerosis patients: a comprehensive analysis; EuropeanJournal of Neurology, DOI: 10.1111/ene.12046.http://onlinelibrary.wiley.com/doi/10.1111/ene.12046/abstractHealthboards.com http://www.healthboards.com/boards/multiple-sclerosis/index425.htmlNational MS Society http://www.nationalmssociety.org/about-multiple-sclerosis/what-we-know-about-ms/index.aspx