Multiple Sclerosis Society Wigan Branch Front Page Newsletter July/August 2011 Multiple Sclerosis Society - Registered Charity Numbers 1139257/SC041990 Registered as a LTD Company in England and Wales. 07451571 Wigan Branch Newsletter August 2011 Author: MS Trust 01 July 2011 A proposed new system could be fairer and allow more people to be cared for in their own homes. Palliative care is often thought of as end of life care but it also includes treating people with long term disabling conditions that are not necessarily life threatening. It aims to achieve the best possible quality of life for an individual and their family through the management of symptoms and by providing emotional and spiritual support. An independent review into the funding of palliative care was commissioned by the government and published today. It reveals that the present system is confusing and inconsistent. It proposes a new system that should cut the postcode lottery, save money and allow more people to be cared for in their own homes. Research on palliative care in MS was part of the evidence used by the enquiry. In 2009, a group at King's College in London had compared short term palliative care with a standard package of care for people severely affected by MS. They found that palliative care was effective but also saved money. Access to palliative care is vital for people who become severely affected by long term neurological conditions such as MS. This report is an important step towards ensuring that everyone has the same opportunity to get the care they need. Pam Macfarlane, Chief Executive, MS Trust Review of palliative care funding, published today.
Transcript
Multiple Sclerosis Society Wigan Branch Front Page Newsletter July/August 2011
Multiple Sclerosis Society - Registered Charity Numbers 1139257/SC041990Registered as a LTD Company in England and Wales. 07451571
Wigan BranchNewsletter
August 2011
Author: MS Trust
01 July 2011
A proposed new system could be fairer and allow more people to be cared for in their own homes.Palliative care is often thought of as end of life care but it also includes treating people with long term disabling conditions that are not necessarily life threatening. It aims to achieve the best possible quality of life for an individual and their family through the management of symptoms and by providing emotional and spiritual support.
An independent review into the funding of palliative care was commissioned by the government and published today. It reveals that the present system is confusing and inconsistent.
It proposes a new system that should cut the postcode lottery, save money and allow more people to be cared for in their own homes.
Research on palliative care in MS was part of the evidence used by the enquiry. In 2009, a group at King's College in London had compared short term palliative care with a standard package of care for people severely affected by MS. They found that palliative care was effective but also saved money.
Access to palliative care is vital for people who become severely affected by long term neurological conditions such as MS. This report is an important step towards ensuring that everyone has the same opportunity to get the care they need.
Pam Macfarlane, Chief Executive, MS Trust
Review of palliative care funding, published today.
Multiple Sclerosis Society Wigan Branch 2 Newsletter July/August 2011
Coffee Mornings why not join us on Tuesday mornings at 11am every other Tuesday, (next one being August 9th2011) join us for breakfast: coffee, tea, toast and jam at “The Mount” Orrell, Wigan
Monthly get togethers’ are still doing the rounds, our next one being held at the “Harvester, Leigh” on August 25th at 7.30pm. At the “Mount, Orrell” on the 22nd September at 7.30pm
Fun day! Come along and join us at
St Aiden’s field, Winstanley, Wigan.Sunday 28thAugust 2011 at 11.30am
Club bar, open for refreshments
Events Page
Small Fun FairBouncy CastleBeat the goalieBall in the BucketSplat the RatThrow the Wet SpongeSecond hand book stall
Shove pennyTombolaHook the DuckTuck shopCandy flossIce creamCake Stall
Multiple Sclerosis Society Wigan Branch 3 Newsletter July/ August 2011
Events PageContinued……..
Dear Members, This year we have been chosen as one of the Wigan Mayor’s Charities. We are very excited about this and feel it a great honour.
Halloween Night Fancy Dress Party(Back by popular demand)
Wednesday, Oct 26th 7.30pm, @ the Cricket Club, Bulls Hey, Wigan.
This is one for all the family!Tickets are £2 for adults and £1 for children
“Please could you bring a plate contribution to the buffet, of sweet or savoury items?”
Christmas BallAshfield House, Standish, Wigan.Saturday 3rd December @ 7.30pm
Our Christmas Ball for the last two years has been a huge success, with fabulous food, great service and a wonderful ambience, I am sure our third one, will be just as
successful.
The cost of the tickets will be £27.00(That is cheaper than their party night tickets) to book tickets, phone any committee
member. Phone numbers on page 11 of the newsletter.
Multiple Sclerosis Society Wigan Branch 4 Newsletter July/August 2011
Multiple Sclerosis Society - Registered Charity Numbers 1139257/SC041990Registered as a LTD Company in England and Wales. 07451571
Q: How do you keep your husband from reading Your e-mail
A: Rename the mail folder 'Instruction Manual.'
Quick Crossword 11
Across1. Eternal (9)6. Water barrier (3)7. Precious gem (7)9. Mistake (5)10. One of the senses (5)12. Expert (3)13. Beer mug (5)14. Score (5)16. Very old (7)18. Self (3)19. Stage name (9
Down1. Military chaplain (5)2. Compunction (7)3. Survival (9)4. Fifth sign of the zodiac (3)5. Emblem (5)8. Tried (9)11. Physician (7)13. Frighten (5)15. Tempest (5)17. Drinking vessel (3)
'It's just too hot to wear clothes today,'Jack says
as he stepped out of the shower, 'Honey,
what do you think the neighbourswould think
if I mowed the lawn like this?'
'Probably that I married you for your Money’
Leigh Group of Friends Wigan MS Society
Programme for 2011
The Leigh Group of Friends barge trip that took place in June and July was a
huge success
The weather made the trip an exceptional day. Like all hot and sunny days, it makes us and the countryside
around us look and feel so much better.
The trip was so well received that they are planning it again for next year.
So book your tickets early!
9August 2011 Alternative Therapies for MS
13 September 2011
Keep Your Brain Active
Monday 3 October 2011
Harvest FestivalAt Kingsleigh
Church
8 November 2011
Murder Mystery
13 December 2011
Christmas Meal
Looking Forward to Seeing You at the Next Meeting
Leigh Sports Village, Atherleigh Way, Leigh WN7 4JY 7:45pm for 8:00
Multiple Sclerosis Society Wigan Branch 5 Newsletter July/August 2011
Multiple Sclerosis Society - Registered Charity Numbers 1139257/SC041990Registered as a LTD Company in England and Wales. 07451571
Active Living Referral Scheme
Active Living Referral Scheme offer a wide variety of sessions tailored to meet participant’sindividual needs. To access our service participants must obtain a signed Active Living Referral note from their local Health Professional (GP, Practice Nurse, Health Care Assistants, Physiotherapist etc). They must then contact our team on 01942 488481 to book in for a consultation at one of many sites across the Wigan Borough (Robin Park, Ashton Leisure Centre, Hindley Leisure Centre, FX Leisure-Orrell, Total Fitness, 101 Club, Howe Bridge Sports Centre, Leigh Indoor Sports Centre and from the end of August Wigan Life Centre).
During an initial consultation participants will discuss existing medical conditions, current medication, likes and dislikes in terms of physical activities and set future goals for themselves. This will then help the officer to support the participant in devising a physical activity programme tailored to suit their health needs and achieve their goals. Participants will be supported continuously throughout their time with us and their physical activity programme will be constantly reviewed.
Types of activities that our team provide include: Gentle PacesA session designed for Stroke, MS & Parkinson’s. This session offers programmes tailored to participant’s individual needs,
focusing on balance, co-ordination, agility and confidence.HydrotherapyOffering ease of movement and structured supervised sessions tailored to each participants needs, hydrotherapy is a popular warm water based activity to those with mobility problems.Exercise After Stroke Rehab CircuitFollowing guidelines set by Queen Margret University. The team used knowledge gained via Laterlife’s Exercise and Fitness Training after Stroke qualification to develop a basic circuit session designed for stroke survivors.Easyline Technogym CircuitUsing air resistance Easyline Technogym equipment, this circuit offers an easily accessible alternative to gym equipmentXBOX KinnectUsed within the circuit sessions XBOX kinnect offers interactive gaming, allowing participants to be the controller. Falls Prevention/ Functional AbilityDesigned for those at risk of falling or who have experienced falls. This session builds confidence in participants giving them the skills to take part in daily activities without relying on walking aids.Adapted CyclingThis session offers an accessible alternative to cycling, adaptations include, hand bikes, tricycles, accompany & vello plus (wheelchair adapted cycles)101 ClubThe 101 Club offers motorised machinery as an accessible alternative to gym equipment. All sessions are tailored to participants individual needs and enable participants to slowly build up their resistance.Supervised GymParticipants are offered a wide choice of venues days/times for these supervised structured sessions. Each participant receives an individual programme tailored to suit their needs, and are confident in knowing they are taking part in a gym based activity in a safe environment.The above are just a small selection of the activities our team have to offer, for more information please view our website ;www.wlct.org/activelivingPhone: 01942 488 481
Multiple Sclerosis Society Wigan Branch 6 Newsletter July/August 2011
Wigan Branch MS Society:Contact Number: 07963345329
National MS Helpline0808 800 8000 (Mon-Fri 9am-9pm)
Local Support Development ManagerLeo Brightley: Tel, 020 8438 0918Mob: 07788717589
Service Development OfficerTracey Cole: Tel: 02084380984Mob: 07919698308
MS NursesDenise Winterbottom at Salford Royal(Formerly Hope Hospital)Tel: 0161 206 161
Kerry Much at the Walton CentreTel: 0151 529 5645
Karen Lea, Community Matron for Neuro Sciences. Taylor Neuro Community Team, STOT Unit, Leigh Infirmary, The Avenue, Leigh WN7 HIS.Tel: 01942 264 255
Therapy Centre Marsh Green Community Centre,Kitt Green Road, Wigan, WN5 0EFPhone No: 01942 217 696Mobile No: 07759286285Opening Times: Monday 9.00am to 12pmWednesday 9.00am to 1.30pmThursday 9.00am to 1.00pm
Support for young peoplewww.mssociety.org.uk/pieces
Aimed at people aged 18 – 40.
Kids and Teenswww.youngms.org.uk
Young Peoples Newsletter!!www.staying-positive.co.uk
Multiple Sclerosis Society Wigan Branch 7 Newsletter July/August 2011
MS Society responds to Daily Mail Article
15TH JUNE 2011
The MS Society has received a number of calls and enquiries from people affected by MS in relation to an article that was published in the Daily Mail on Saturday 11 June.
We've spoken to the paper and requested that the inaccuracies in the report are addressed and amended. Alongside submitting a formal statement, we've sent the following letter to the letters page:
"Following your article entitled 'I'm terminally ill ... and this saccharine portrayal of assisted suicide appalls me' (Daily Mail, 11 June), we have had a number of calls from people with multiple sclerosis (MS) who have been upset by some inaccuracies in the article. I would therefore like to take this opportunity to correct these to avoid further upset to people with MS, as well as their family and friends.
"The first dangerously misleading point is in the headline - although there is currently no cure for MS, it’s not a terminal illness. Secondly, there is no evidence to support the statement that people die 30 years after being diagnosed. Most people are diagnosed with MS in their 20s and 30s and, like people without MS, most will live for decades. Current evidence suggests that life expectancy is reduced by 5-10 years but it is hoped that this has been improved upon in recent times with the advent of better treatments and care for people with MS. Lastly, the use of the word ‘contract’ is not an accurate way of describing how someone develops MS as you cannot catch MS - it is not contagious."
We'll keep you updated on the progress of our attempt to amend these inaccuracies
Brothers prepare to hike for multiple sclerosis
Healthcare News04/07/2011
Two brothers from Peterleeare preparing to set out on a trek to raise money for
research into multiple sclerosis.
David and Peter Taylor-Gooby, aged 65 and 64 respectively, are heading to the mountains of Romania to benefit the Multiple Sclerosis Society.
They will tackle the Fagaras Ridge, a challenging 50-mile hike across a mountainous route, and they hope their efforts will bring more than £500.
"We have called it the Dracula Walk because it is in Transylvania where he was supposed to live," David Taylor-Gooby told the Journal.
"I do not expect we shall meet him though, but if we have time we shall try and see some of the old castles where he might have lived."
It follows news reported by the BBC that Scotland's only respite centre for people with multiple sclerosis may have been saved, after plans were announced to convert it into a charity.
Q: What do you call an intelligent, good looking, sensitive man?
A: A rumour
( all complaints send too: oops! Person withheld their number)
Multiple Sclerosis Society Wigan Branch 8 Newsletter July/August 2011
Megan and Ashleigh's Campaign for FES
Megan Silver felt compelled to start a campaign on behalf of her husband Ashleigh who has Primary Progressive MS. Ashleigh was told he should be eligible for functional electrical stimulation (FES) but was then left in limbo for months waiting for a decision on getting funding for it.
How the campaign started
In February 2010 Ashleigh was assessed by an MS Physiotherapist and he was told he was suitable for FES. This could potentially enhance his walking ability, increase his mobility, independence, motivation and give him an all round better quality of life. His GP submitted an Individual Funding Request for him to receive FES to the local East Kent & Coastal Primary Care Trust (PCT).
As June approached Megan telephoned the PCT to find out what was happening. She was told that the provision of spasticity treatment was being reviewed and a decision would be made in July.
Megan feared that the delay in receiving FES could restrict Ashleigh's current walking ability and the longer they had to wait for the FES device, the higher the risk that he would loose his eligibility to receive one. She contacted local MP Gordon Henderson, explained the situation and asked for his help. Mr Henderson contacted the PCT himself and was told the review had been delayed and a decision was not expected until October.
What happened next
Megan said: "My husband was becoming less mobile and there was a risk that if this went on any longer he would not be eligible for this device which would keep him walking for much longer with all the social and health benefits associated with increased mobility."
In September she wrote to Simon Burns the Minister for Health and the Customer Service Centre at the Department of Health explaining the difficulties they were experiencing. At that time funding was not refused but they were just left in limbo, unable to make an appeal
From the frustration of not getting any answers Megan wrote to the Ombudsman with a formal complaint sending copies to their MP, Gordon Henderson. He also agreed to address this to the Minister for Health Andrew Lansley. Megan continued to write letters and send evidence.
Things only started to happen following the communication from Gordon Henderson MP that he would contact the Secretary of State, a direct complaint from Megan to the Chief Executive of the PCT and the placing of a freedom of information request to find out how many people had been funded for FES since the review started.
As a result of the campaign
Ashleigh received funding from the East Kent & Coastal Primary Care Trust for his FES, which he started in January 2011. This made a huge difference to his life, making him more stable on his feet and his walking safer.
Megan said: “The frustrating thing is that if he had received it a year earlier he would not have lost his confidence, which has suffered over the last year as he had several bad falls. Also he would have been able to walk further a year ago and it may have helped to maintain that level of mobility.
Overall getting the FES has been very positive and Ashleigh uses it all the time and has not had a fall while using it. It would have just given him so much more if he had been able to get it when he should have. I had to be persistent in writing letters to get the result we wanted. It proves that you can win if you persevere, but it shouldn’t have been this hard.”
Since their campaign other people in the area have received FES. The cost to the PCT- £1019 in the first year and £180 thereafter.
The cost to Ashleigh and Megan is priceless.
Multiple Sclerosis Society Wigan Branch 9 Newsletter July/August2011
Lucky Numbers
Have you all got your lucky numbers yet?
Please get in touch with Ken Sutton!”
Who knows, 2011 maybe your year!
Phone number: 01942 715349
And the grand total is......16 June 2011
At the busiest ever Northern Leisure Show held back in May
at the Marquis Lancashire Showground, we managed to raise a fantastic amount of money on our refreshments stand to donate to the MS Society charity.
Over the weekend our hospitality team worked tirelessly to keep not only our customers refreshed but our hot and bothered sales team too. This year we nominated the MS Society as
the recipient of the donations and this amounted to a grand total of £204.
Over 90% of the MS Society's income comes from individuals, either through donations, taking
part in sponsored events or
leaving a legacy. Without the support of these generous
individuals the MS society
would not be able to continue funding vital services or to
invest in the research
programmes that will hopefully one day bring about the cure
for MS. We would like to thank
everyone who donated to this worthy cause.
Mrs Siriol Morrison with husband and Sales Executive Andrew Morrison, collecting the cheque from Branch Manager Lee Morley
Find us on face book!
Newly diagnosed people often think of the MS Society as being
a little old fashioned.
but we are really challenging that.
Look on our new face book site!
Multiple Sclerosis Society Wigan Branch 10 Newsletter July/August 2011
Free YogaLessons
Are being held every FridayBetween
3.30pm & 4.30pm@
Hope School, Kelvin GroveMarus Bridge,
Wigan
Join Sue Johnson & Friends
For a very warm Welcome
For further informationPhone: 01942 207 483
Free PilatesClassesEvery Tuesday
@The Therapy Centre
Marsh Green Community Centre,Kitt Green Road,Wigan, WN5 0EF
@12.00pm - 1.00pm
and 1.00pm - 2.00
With our Neuro Physio TherapistVicki
Please phone Heather to book a
Session!
Phone: 07702025280 or01257 421 207
Pilates Classes!Pilates is a low form of exercise that’s works both mind and body together. What it does is, it challenges the body into teaching the normal movements that you will have lost through unfortunately having episodes of MS, and Pilates re-teaches you how to move again.
The benefits from Pilates are just huge. There are so many benefits ranging from just a general feeling of relaxation, well-being and increased energy levels, not necessarily straight after the class, but normally a few days later. It helps you to use muscles that you thought you’d never be able to use again, it helps stretching, helps joints, it also helps you to regain the function that you’ve lost and the more you do it, and the more consistently you do it over the longer term, I think the benefits are endless really.
We have two classes on a Tuesday.The classes take place every Tuesday At “The Therapy Centre”, Marsh Green Community Centre,Kitt Green Road, Marsh Green, Wigan
The first class between 12-1.00pmThis is a beginner’s class, and is aimed at people who have a low level of movement.Then the Intermediate class between 1.00-2.00pm this class is for people who have a slightly higher level or good level of movement.
The classes are free, to MS members.Paid for through donations and fundraising.
Multiple Sclerosis Society Wigan Branch 11 Newsletter July/August 2011
Carer’s world radio
Is broadcast from the UK, connecting carer’s with news, information, and
support….
www.carersworldradio.com
Wigan Branch
Who’s who in the Wigan Branch?www.mssocietywiganbranch.co.uk
