Alzheimer’s Scotland National ConferenceDementia Awareness Week 2016

global to local: research, practice, innovation

Kate Swaffer3 June 2016

Many people only see the missing bit(s)

We are mothers, fathers, lovers, daughters, wives or husbands, employees or employers, friends, grandmothers, aunties…

It is a tragedy that so many only see our deficits.

My Unseen Disappearing World...

It’s looks like a swan, calm and serene on the surface, paddling furiously below to stay afloat.

Language matters

Please always refer to the DEEP Words Matter or the

Alzheimer’s Australia Dementia Language Guidelines

People with dementia are NOT the ones with the most challenging of behaviours

2014: Support for people with dementia, by people with dementia Exclusive membership Weekly online support groups 24/7 chat rooms Monthly online cafes Monthly webinars Master classes http://www.infodai.org http://www.joindai.org

2015: Demand for a Human Rights approach to dementia globally

1. We have human right to a more ethical pre and post diagnosis pathway, including rehabilitation.

2. Being treated with the same human rights as everyone else, under the Disability Discrimination Acts and UN Convention on the Rights of Persons with Disabilities

3. Research that focus on care as much as a cure.

2015: Dementia appropriately recognised in disAbility awards

2016: World Dementia Council appropriately includes two people with dementia

2016: The release of Dementia Alliance International’s Human Rights Publication during DAW2016 in the UK is a milestone for all people with dementia around the world.

THANK YOUThank you@KateSwafferhttp://kateswaffer.com http://www.infodai.org kateswaffer@infodai.org