Knowledge Management in

Distributed NetworksJuly 27, 2015

Melanie DaviesKyle Erickson

Objective: Discuss how PopMedNet helps facilitate research and new learning

o Research performed with PopMedNeto PopMedNet features for researchers

Outline

• Medical product safety surveillance• Public health surveillance• Clinical trials• Observational research• Prep-to-research/feasibility• …and more

Types of research and investigations

Network Operations Centers

Individual Researchers

Who are investigators?

How do I access data?

How do I access data? Distributed model gives access to

data that might otherwise not be available

Secure Network Portal

Investigator

43

Review & Run Query

Review & Return Results

Data Partner N

43

Review & Run Query

Review & Return Results

Data Partner 1

DataMart Client Desktop Application

DataMart Client Desktop Application

• Enrollment•Demographics• Utilization• Pharmacy• Etc

• Enrollment• Demographics• Utilization• Pharmacy• Etc

How quickly can I expect

results?

Menu-driven queries decrease turnaround time

How quickly can I expect results?

Monitor request statusesHow quickly can I expect results?

What expertise do I

need?

Menu-driven queries don’t require any technical expertise

What expertise do I need?

Find patients aged 18-65 in Boston, MA with diabetes (ICD-9 code 250 or ESP criteria type 1 diabetes or type 2 diabetes) who have had at least two visits for diabetes in the past two years and have had a diagnosis of hypertension at any time. Do not include patients who have had a stroke in the past two years.

Who can I collaborate

with?

Search for organizations that meet specific criteria

Who can I collaborate

with?

Search for organizations that meet specific criteria

Who can I collaborate

with?

Search for organizations that meet specific criteria

Who can I collaborate

with?

What data sources and data elements

are available?

Search for DataMarts that meet specific criteria

What data sources and data elements

are available?

Search for DataMarts that meet specific criteria

What data sources and data elements

are available?

Search for DataMarts that meet specific criteria

What data sources and data elements

are available?

Search for DataMarts that meet specific criteria

What data sources and data elements

are available?

Search for Registries that meet specific criteria

What data sources and data elements

are available?

Search for Registries that meet specific criteria

What data sources and data elements

are available?

Query data characterization dataWhat data sources and data elements

are available?

Currently available data characterization requests:- Race distribution- Ethnicity distribution- Diagnosis codes- Procedure codes- Principle discharge diagnosis distribution- NDC usage- Pharmacy dispensing amount supply distribution- Pharmacy dispensing days supply distribution- Data completeness

Coming Soon- Age Range distribution- Sex distribution- Height distribution- Weight distribution

Query data characterization dataWhat data sources and data elements

are available?

Query data characterization dataWhat data sources and data elements

are available?

Query data characterization dataWhat data sources and data elements

are available?

What requests have already been

done?

See what other investigators are querying

What requests have already been done?

See what other investigators are querying

What requests have already been done?

Search for previous requestsWhat requests have already been done?

Search for previous requestsWhat requests have already been done?

Copy previous requestsWhat requests have already been done?

• Distributed research networks enable investigators to access data that might not otherwise by available to them• PopMedNet provides many features to support

investigators, including:• Menu-driven queries• Organization, DataMart, and Registry metadata

searching• Data Characterization requests• Request searching

Summary

Questions?

?

• What barriers do you see to submitting requests using PopMedNet or in any distributed network?• What features would be useful for you in

PopMedNet?

Discussion Questions