Thank you for joining us today and supporting this very important work. For more information on Yorkshire and the Humber Clinical Networks and our work programmes, please visit our website: www.yhscn.nhs.uk. Acknowledgments We would like to thank the members of the Y&H SCN CYP Transitions Task and Finish Group for their time and dedication in putting this resource together: Dr Eric Kelly Emma Andrews Jackie Backhouse Sarah Boul Dr Fiona Campbell Andrew Clarke Helen Collinson Annie Darby Carole Gelder Lee Golze Ruth Hayward Clare Hillitt Bushra Ismaiel Natalie Lyth Carl Mackie Karen McNicholas Angela Monaghan Sue Morgan Priya Narula Karen Poole Louise Porter Philomena Scott Sally Smith Denise Stewart Rachel Tattersall Leona Thorpe Elizabeth Waddington Emm Irving Yorkshire and the Humber Children’s Strategic Clinical Network Launch 28th June 2016 Northern Ballet, Leeds #yhtransition
Transcript
Thank you for joining us today and supporting this very important work.
For more information on Yorkshire and the Humber Clinical Networks and
our work programmes, please visit our website: www.yhscn.nhs.uk.
Acknowledgments
We would like to thank the members of the Y&H SCN CYP Transitions Task and Finish
Group for their time and dedication in putting this resource together:
Dr Eric Kelly Emma Andrews Jackie Backhouse Sarah Boul
Dr Fiona Campbell Andrew Clarke Helen Collinson Annie Darby
Carole Gelder Lee Golze Ruth Hayward Clare Hillitt
Bushra Ismaiel Natalie Lyth Carl Mackie Karen McNicholas
Angela Monaghan Sue Morgan Priya Narula Karen Poole
Louise Porter Philomena Scott Sally Smith Denise Stewart
Rachel Tattersall Leona Thorpe Elizabeth Waddington Emm Irving
Yorkshire and the Humber
Children’s Strategic Clinical Network
Launch
28th June 2016
Northern Ballet, Leeds
#yhtransition
To launch and use the Yorkshire and the Humber;
Transition Guidance for Commissioners and Toolkit for Providers.
To support collaborative working in order to respond and meet the needs of Children and
Young People (CYP) as they transition from children’s to adult services by exploring
opportunities to:
Gain a deeper understanding of adolescence and the needs of young people.
Understand the impact of transition from a patient and parents perspective
Develop relationships across children’s and adults.
Create a young people friendly culture and approach across services.
Develop the workforce & workforce models.
Identifying:
Priorities for transition across the region.
Issues, challenges and barriers for transition across the region.
Steps for moving forward ‘making transition happen’.
Introduction and Aims of the Day Notes
Notes Morning Agenda
Time Agenda
09:00 – 09:20 Registration / Refreshments
09:20 – 09:25 Welcome & Housekeeping Emma Andrews, Quality Improvement Manager, Yorkshire and the Humber Clinical Networks
09:25– 09:40 Introduction Fiona Campbell, Clinical Lead, Yorkshire and the Humber Clinical Networks
09:40 – 09:55 The National Context Elizabeth Stephenson, NHS England
09:55 – 10.20 Transition: getting into young peoples' HEEADSSS!! Rachel Tattersall, Consultant Adolescent Rheumatologist, Sheffield Teaching Hospital
10:20 – 10:30 Transition from a Patient’s and Parent’s Perspective Tom Banks and Roz Banks,
Refreshments
10:45 – 10:55 Young People’s Involvement: Transition Toolkit Logo Design Harriett Wright, Community Project Worker, Healthwatch Leeds.
10:55 – 11:05 Young People’s Involvement: CYP Transition Charter Robyn Wainwright and Caitlin Boyle, Doncaster Youth Council Members
11:05 – 12:00 Yorkshire and the Humber Transition Toolkit & Guidance Emmerline Irving, Quality Improvement Lead, Yorkshire and the Humber Clinical Networks
Lunch
Afternoon Agenda
Time Agenda
13:00 – 13:15 Hassan’s Transition Story Hassan Nazir
13:15 – 13:25 Kirklees Transition Task and Finish Group Carl Mackie, Public Health Manager, Kirklees Council
Leeds Teaching Hospital Trust Louise Porter, Lead Nurse, Healthcare Transition of Children and Young People Sue Morgan MBE, Teenage Cancer Trust Nurse Consultant
14:00 – 15:00 Locality Workshops: Making Transition
Break
15:10 – 15:15 Children are our Future
15:15 – 15:45 Transition Q&A Panel Speakers
15.45 – 16.00 Final Thoughts Fiona Campbell, Clinical Lead, Yorkshire and the Humber Clinical Networks
Emma joined the Clinical Networks in November 2013. Emma’s role involves seeking collaboration between Commissioners, Providers and other key stakeholders across the Yorkshire and Humber region. This work aims to ensure high quality equitable children’s health services as close to home as is safely possible. Emma joined the NHS in 2004 and has spent her NHS career so far working within Networks. This has provided a great opportunity to understand the complexity of health service and working with multiple stakeholders, an opportunity to facilitate change to enable improved services. Her career has also involved working in the New Zealand Health Service initially working with a large provider trust and latterly in the Planning and Funding Division.
Fiona Campbell
Consultant Paediatrician and Diabetologist at Leeds Children’s Hospital
Dr.Fiona Campbell is a actively involved in delivering direct patient care alongside holding a number of strategic medical management roles. She is the Clinical Lead for the National Children and Young People Diabetes Network at NHS England and the Clinical Lead for the Pediatric Diabetes Peer Review Quality Assurance Programme. Dr.Campbell is the Clinical Lead for Child Health in the Strategic Clinical Network (Children’s and Maternity) in Yorkshire and Humber and the Officer for Clinical Standards and Quality Improvement at the Royal College of Paediatrics and Child Health. She has recently taken on the role of Children and Young Peoples representative on the DUK Council of Healthcare Professionals.
Dr Campbell has been involved with many different service improvement initiatives in diabetes care. She sat on the DH Making Every Young Person with Diabetes Matter Implementation Group and Insulin Pump Working Group. She was the Paediatric Clinical Expert involved in NICE TA151 insulin pump guideline group in 2008. She co authored the 5 year National Children and Young Peoples Diabetes Service Improvement Implementation Plan 2013-2018 published by NHS Diabetes in 2013.
Dr. Campbell is also very interested in diabetes quality of care standards for children and young people including those in transition and welcomes the recently published NICE Guidance on Transition and the NHS England Diabetes Transition Specification. She advocates for effective . As part of this work she has been involved in the development of the four Masters Modules in CYP Diabetes Care, Insulin Pump/CGM management, Advanced Technologies in Diabetes Care and the Generic Transition Module run by the University of York. She was also involved in the development and writing of the Foundation Level 1 e learning module in CYP Diabetes care. More recently she has turned her attention to developing self- management education programmes for children with diabetes and their families focusing on education at the time of diagnosis and the ongoing support programme of education required to get best outcomes for the children with diabetes and their families.
Elizabeth Stephenson Children and Young People Policy Lead, NHS England
Elizabeth works in NHS England on the coordination of national health policy relating to children and young people. Previously to that, Elizabeth worked on improving quality of services and patient outcomes within the Medical Directorate of NHS England, after joining the organisation from the Department of Health where she held several policy roles and worked as Private Secretary to two Ministers of State for Care Services, Paul Burstow and Norman Lamb MP.
Rachel Tattersall is an Adolescent Rheumatologist and clinical lead for the integrated Sheffield MSK service. She works in Sheffield at both Sheffield Children’s Hospital and Sheffield Teaching Hospitals. With rheumatology teams at both hospital trusts she runs a seamless service for 10-25 year old patients designed to make the transition from children's’ to adult services as smooth as possible, to give young people in the service as many choices about their care as possible and to support their families. She qualified in Medicine in 1995 and trained in adult rheumatology in Yorkshire and in paediatric rheumatology in Nottingham taking up her consultant post in Sheffield in 2008. She works nationally to promote adolescent rheumatology for the Royal College of Physicians, the British Society for Rheumatology, the British Society for Paediatric and Adolescent Rheumatology and she is chair of BANNAR, the Barbara Ansell National Network for Adolescent Rheumatology. Her research interests are in medicines decision-making and patient agendas in health care. Her interests outside work revolve around her 3 adolescent children!
Speaker Biographies
Harriet Wright Community Project Worker, Healthwatch Leeds
I’m a part time Community Project Worker for Healthwatch Leeds and I
lead on all of our work relating to children and young people.
I co-ordinate a brilliant group of young volunteers called Youth Watch
Leeds who help make sure that young people’s voices are heard in health
and social care services.
http://www.healthwatchleeds.co.uk/youthwatch
Roz Banks Parent
I live with my husband and son Tom just outside York but work in Leeds running a group involved in medical research. Having been completely unaware of the prevalence of mental health issues in young people before Tom became ill, I am pleased to see the much higher profile and funding emphasis which appears to be happening in this area.
Tom Banks Service User
I am 19 years old and live with my family and dog just outside York. I first became ill just before my 15th birthday and have been under the care of CAMHS both as an outpatient and an inpatient until I transitioned across to adult services 16 months ago. I work full-time as a healthcare assistant in endoscopy which I really enjoy and hope eventually to become a paramedic.
Robyn Wainwright Secretary for Doncaster Youth Voice, Member of Youth Parliament.
Hello my name is Robyn. I am 18 years old and am studying Maths, art and
drama in my second year of Sixth Form.
I have many interests including art, performing art, theatre technical and
Cubs.
I am currently the Secretary for Doncaster Youth Voice and also a deputy
member of youth parliament.
Speaker Biographies
Caitlin Boyle youth councillor and a member of youth parliament for Doncaster south
My name is Caitlin Boyle and I'm 17 years old. I am currently studying
fine art, politics and English language.
I am a youth councillor and a member of youth parliament for
Doncaster south.
Speaker Biographies
Emmerline Irving Quality Improvement Lead
Emmerline joined the SCN in May 2014 and over the past 2 years has been work-
ing for the Children's Network and will now continue working as part of the
Maternity Clinical Network, working with providers, commissioners, service users
and 3rd party organisations to improve children's services across Yorkshire and the
Humber.
Emmerline started her career as Youth & Community Worker. After a short period
as a Community Health Development Worker, leading on a Health Action Zone in
Wakefield, Emmerline returned to Bradford Youth Service to manage a Joint Young
People’s Health Development Programme.
Emmerline joined the NHS in 2007 as a Public Health Specialist for Kirklees PCT,
working on a number of portfolio's including the commissioning of Maternity
services and services for children and families. Before leaving Public Health
Emmerline was the Project Lead for a transformation programme across Kirklees,
focusing on a system wide transformation and integration of children’s and family
services across Health and Social Care.
Hassan Nazir Young Person
I’m 23 years old I was diagnosed with congenital muscular dystrophy at 3 months old. I
write my own music and lyrics as a hobby and I aspire to be a music producer in the future.
I also go out with my friend and try live my life to the fullest with out letting my condition
control what I can and can’t do.
Provider Flow Chart
Provider Flow Chart Speaker Biographies
Carl Mackie Public Health Manager, Kirklees Council
“I have been working in a variety of Public Health roles for the last 12 years. I currently work for Kirklees Council as Public Health Manager and lead on a number of areas including improving Children and Young People’s health outcomes. Specifically, I lead on the commissioning of both Kirklees School Nursing and Sexual health services.
I am passionate about supporting Children and Young People to have good mental and emotional
wellbeing and I strongly believe that effective Transitioning and supporting young people to
prepare for adulthood will help achieve this.”
Jacqui Rogers Transition Nurse Service Lead, Alder Hey NHS Foundation Trust
Jacqui qualified as an RGN in 1990, as a Registered Midwife in 1992, and as a
Health Visitor in 2001. She has always been passionate about caring for
women and children, and implementation of the Public Health agenda.
After completing a Master’s Degree in Business Management in the Public
Sector, she experienced some time in general management as a service
manager trying to influence change. However she missed the patient contact
and returned to a Nursing role as Transition Service Nurse Lead at Alder Hey,
and has been leading with Dr Lynda Brook the development of the 10 -steps
Transition Framework on behalf of the Trust.
She has great passion and insight into this role professionally and on a
personal level, as two of her four children have long term conditions and will
require Transition to adult services and lifelong care.
Speaker Biographies
Louise Porter, RN Child, Dip HE, BA hons
Lead Nurse Healthcare Transition of Children and Young People Leeds Teaching Hospitals Trust (LTHT)
I qualified as a children’s nurse in 1996 and have worked at LTHT in children’s services in medicine, Neurology, Neurosurgery, General and Specialist Surgery. I spent 10 years as a ward manager of the children’s surgical ward and a year as Matron for Children’s Surgery. In my current role which is a 3 year project role, I am assessing and developing transition pathways for all services across LTHT. With approximately 37 services requiring transition pathways and more than 10 supporting services we are one of the largest trusts in the country to attempt to provide a consistent approach to transition for all patients and services.
Transition has historically been a difficult area of work in healthcare and with transition high on many peoples agendas at the moment, it has been a fantastic opportunity for me to support the development of a tool kit for transition, for the Yorkshire and Humber region, to develop a more consistent approach to transition which will improve young people’s experience as they move from children’s to adult services. It is essential that we keep young people engaged with services to improve health outcomes in the future.
Sue Morgan, MBE Teenage Cancer Trust Nurse Consultant
Sue has been working in the field of Teenage and Young Adult Cancer for the past 20 years. She was at the founding meeting of TYAC, a professional group, and has been a Board member ever since. She is a very proud parent of the young people’s conference ‘Find Your Sense of Tumour,’ which happens twice a year and reaches around 400 young people each year. She has been a part of the team leading the successful development of TYA cancer services in Leeds and the Yorkshire and Humber region, along with an innovative outreach service to all young people.
She has presented at many conferences locally, nationally and internationally and, with others, has ensured that the model of care to which we all aspire in the UK, is shared across the world. Sue also sits on a number of national TYA groups, Boards and advisory committees in the UK all of which promote the on-going development of TYA cancer care.
More recently she is working in teenage developments across the disease spectrum, especially in Leeds. She helps to facilitate the Leeds Hospitals Youth Forum, has been working with others to develop the recently launched Leeds Children’s Hospital TV www.lchtv.com. Transition is a process which maps all of the work of TYA cancer Care and she has been privileged to be part of leading the implementation across the Leeds Hospitals.
She attributes the success of this growing interest and development of the young people’s specialty in hospitals to the ‘par excellence’ team work amongst dedicated multi professionals and is very proud and honoured to have been a part of it all!
