World Ds Day............ P. 1&9 DSACC Updates ........ P. 2 Office Hours .............. P. 2 Donate Today ............ P. 3 In this issue... March/April 2017 Volume 17, No. 2 A publication of Down Syndrome Association of Central California Our mission is to enhance the quality of life for all people whose lives are touched by Down syndrome. Birthdays .................. P. 4 Kids Corner ............... P. 4 i Can Bike ................ P. 5 Calendar of Events ..... P. 6-7 the eXtra! Education Corner ....... P. 8 Junior Grizzlies ......... P. 10 Artículos en español .. P. 11-13 Calendario de eventos P. 14-15 3/21 World Down Syndrome Day! We love our 5 & Under Socials and encourage all of our new families to join us at 1 or all of the area events. It's a great opportunity to meet new friends, find local resources and have an incredible afternoon or evening with your little ones! We also welcome families of children slightly older than 5 to join us in welcoming new families! Visalia area Saturday, April 29, 2017 from 5:30- 7:30 pm @ ImagineU Children's Mu- seum Visalia: 210 N Tipton Visalia Join us for an evening of food, fun & new friends and the museum all to ourselves! Merced Area Saturday, May 13, 2017 from 11:00- 1:00 pm @ The Rosotti Edu-Zoo-Cation Center in Applegate Park: 1045 W 25th Street, Merced Join us for an afternoon of food, new friends, fun crafts, bounce house, and more! Fresno Area Saturday, May 20, 2017 from 1:30-3:30pm @Tumble America: 1345 N Willow Ave #140, Clovis, CA FREE! Join us for afternoon snacks, new friends, gymnastic style activities, crafts and more! We invite you to celebrate World Down Syndrome Day (3/21) with us at a few local events! We will DSACC socks and shirts available at each event for purchase! 10-1pm..... DSACC Open House (1491 W Shaw Avenue Fresno, CA) Stop by our office and check out our new look and enjoy some sweets and treats to celebrate World DS day. We will also have crafts for kiddos and games for older ones! Free! 5-7pm..... BBQ & Celebration @ Bright Start: 11535 Avenue 264 Visalia, CA Join us for some food, tunes, crafts and fun... all to celebrate our loved ones with Down syndrome! We kindly as for $10 donation per family Please RSVP by March 16, 2017 to [email protected] or 559.228.0411, or online at www.dascc.org/events/other/WorldDS FIND MORE World Down Syndrome Day on pg 9 PLEASE RSVP 1 week prior to the event by contacting DSACC Staff at 559.228.0411, email: [email protected] or online @ www.dsacc.org/events/other ^ It's time for 5 & under Socials
Transcript
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World Ds Day ............ P. 1&9DSACC Updates ........ P. 2 Office Hours .............. P. 2 Donate Today ............ P. 3
In this issue...
March/April 2017Volume 17, No. 2
A publication of Down Syndrome Association of Central CaliforniaOur mission is to enhance the quality of life for all people whose lives are touched by Down syndrome.
Birthdays .................. P. 4Kids Corner ............... P. 4i Can Bike ................ P. 5Calendar of Events ..... P. 6-7
the eXtra!
Education Corner ....... P. 8Junior Grizzlies ......... P. 10Artículos en español .. P. 11-13Calendario de eventos P. 14-15
3/21 World Down Syndrome Day!
We love our 5 & Under Socials and encourage all of our new families to join us at 1 or all of the area events. It's a great opportunity to meet new friends, find local resources and have an incredible afternoon or evening with your
little ones! We also welcome families of children slightly older than 5 to join us in welcoming new families!
Visalia areaSaturday, April 29, 2017
from 5:30- 7:30 pm@ ImagineU Children's Mu-seum Visalia: 210 N Tipton
Visalia
Join us for an evening of food, fun & new friends and the museum
all to ourselves!
Merced AreaSaturday, May 13, 2017
from 11:00- 1:00 pm@ The Rosotti Edu-Zoo-Cation
Center in Applegate Park: 1045 W 25th Street, Merced
Join us for an afternoon of food, new friends, fun crafts, bounce house,
and more!
Fresno AreaSaturday, May 20, 2017
from 1:30-3:30pm@Tumble America:
1345 N Willow Ave #140, Clovis, CA
FREE!Join us for afternoon snacks, new
friends, gymnastic style activities, crafts and more!
We invite you to celebrate World Down Syndrome Day (3/21) with us at a few local events! We will DSACC socks and shirts available at each event for purchase!
10-1pm..... DSACC Open House (1491 W Shaw Avenue Fresno, CA)Stop by our office and check out our new look and enjoy some sweets and treats to celebrate World DS day.
We will also have crafts for kiddos and games for older ones!Free!
5-7pm..... BBQ & Celebration @ Bright Start: 11535 Avenue 264 Visalia, CAJoin us for some food, tunes, crafts and fun... all to celebrate our loved ones with Down syndrome!
We kindly as for $10 donation per familyPlease RSVP by March 16, 2017 to [email protected] or 559.228.0411,
or online at www.dascc.org/events/other/WorldDS
FIND MORE World Down Syndrome Day on pg 9
PLEASE RSVP 1 week prior to the event by contacting DSACC Staff at 559.228.0411, email: [email protected] or online @ www.dsacc.org/events/other ^
It's time for 5 & under Socials
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The Extra is funded in part by The Fansler Foundation.
Contact Information:Down Syndrome Association of Central California1491 W. Shaw AvenueFresno, CA 93711Phone: (559) 228-0411Fax: (559) 228-0414E-mail: [email protected]: www.dsacc.org
Jennifer Whiting- Program DirectorTerasa Reyes- Office [email protected]
Statement of Policy and Disclaimer:The Extra is the periodic newsletter of (DSACC) Down Syndrome Association of Central California, which serves Central California. Subscription is free to members & friends of the Association. DSACC is affiliated with N.D.S.C and N.D.S.S. The Extra reports items of interest related to Down syndrome, so that the reader may make informed decisions concerning Down syndrome related issues. Any opinions, findings and conclusions, or recommendations expressed in The Extra are those of the individual authors and do not necessarily reflect the views of the officers, Board of Directors, DSACC organization or its membership. All medical related issues should be thoroughly discussed with your doctor before being implemented. DSACC does not endorse the writings of any individual, professional, or organization.
2017 Officers & Board of DirectorsDenise Allshouse - Past PresidentDeepali Desai- PresidentDee Dee Belliston- TreasurerChandel Perkins- SecretaryTerasa Reyes- Member at LargeUrvi Wire- Member at LargeChristie Vick- Member at Large
DSACC Updates A letter from Jennifer Whiting
It is hard to believe a quarter of the year is almost behind us already, but thankfully there is so much more to come!
This year we are excited to announce that with support from the Hillblom Foundation, DSACC is an official sponsor of the Fresno Junior Grizzlies for the 2017 Season! With our sponsorship, we have 10 FREE registrations to give away so go to page 10 to find out how to win one for your child! We will also have 200 discounted tickets for a regular season Fresno Grizzlies game- stay tuned for the date and ticket prices. I can't wait, the game we went to last year was so much fun!
We also have an incredible World Down Syndrome Day Open House & BBQ celebration planned for Tuesday, March 21 (details on page 1), and we are fast approaching our Annual 5 & Under Socials! Don't miss out on the upcoming events and programs, be sure to read through the newsletter thoroughly and always check the calendar pages!
I would also like to invite anyone available to join me and our advocates accept our check from Lithia Subaru of Fresno for the Share the Love event this past winter! We will be meeting at the dealership, 5499 N Blackstone Fresno, CA, at 10:15 am for the 10:30 presentation. If you are able to join me, please let me know- [email protected]!
The DSACC Board of Directors is
•Office Hours•Mon. thru Wed. from 10 am - 3:00 pm
or by appointment.Thurs. & Fri. by appointment only
or for scheduled events. DSACC will be CLOSED:
Closing early @1:00 pm on 3/21Monday, April 17, 2017
If you need to reach someone at the DSACC office, please call (559) 228-0411 or E-mail
2017 Board Meeting DatesBoard meetings take place from 6-8pm at the DSACC office: 1491 W Shaw Avenue.
Board meetings are open to the public.
March 15, 2017 April 19, 2017 August 16, 2017 Sept. 20, 2017 Dec. 20, 2017
The President may call for additional meetings when necessary
still trying to bring on more talent to round out the 2017 roster, so if you are interested in helping shape and mold this organizations future, I encourage you to find out more by attending our March 15 Board Meeting, or contacting DSACC staff at 559.228.0411, we would love to tell you more about what DSACC Board service involves and how vital your role is.
As alawys, if you have any questions or concerns, I love input from our community, so please call me at 559.228.0411 or you can reach me through email at [email protected]
Sincerely, Jennifer WhitingExecutive Director
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Save a tree and sign up to receive the eXtra
electronically at www.dsacc.org!
(opt-in field is on the base of home page)
• I 5 DSACC shirt . $20• Countdown to awesome shirt ... $20• Love doesn't count chromosomes . $20• DSACC blue drink tumbler $10• DSACC travel mug $10• DSACC socks ...... $10Purchase them at the DSACC office orat any of our events until they are sold out!Contact DSACC staff for more info 559.228.0411 or [email protected]
Looking for some DSACC gear?We have some great merchandise for sale!
Have you seen the incredible photo books created for DSACC events?
You can purchase your own copies by visiting our Shutterfly Share account at
www.dsacc.shutterfly.com!
You will need to login or create your own Shutterfly account to place the order
I would like to assist DSACC support their mission. Please accept my donation of..../ Querría ayudar DSACC apoya su
misión. Acepte por favor mi donativo de. ...
$10
$25
$50
$100
$______________________
Name/Nombre
Address/Domicilio
City/State/Ciudad/Estado
ZIP/Código
Phone/Teléfono:
E-mail
Checks can be made payable to/Los cheques pueden ser hechos pagaderos a: DSACC
1491 W. Shaw AvenueFresno, CA 93711
Thank you for your support!
DSACC’s mission is to enhance the quality of life for all people whose lives are touched by Down syndrome.
La misión de DSACC es de aumentar la calidad de la vida para todas las personas cuyas vidas son tocadas por
síndrome de Down.
DONATE TODAY!
Thank you for your support!
Monthly donationsWant to make a difference on a regular basis?
We make it easy with FirstGiving!
Just visit www.dsacc.org and click the DONATE NOW button to pick your amount and set up
automatic monthly donations. Every dollar counts!
Visit WWW.DSACC.ORG to learn more!
Sign up with eScrip and you can earn $150 annually for DSACC!
Sign up online. It's quick and easy!1. Go to www.eScrip.com and
register for the program. It only takes a few minutes and from then on the money rolls in when you shop with eScrip merchants - automatically!
2. Click on "sign-up"3. Follow the instructions to register your grocery
cards and your existing credit/debit cards.Visit www.escrip.com and click on "Family of Merchants" for a location near you! or Shop through DSACC's online mall!http://groups.escrip.com/jsp/mall.jsp?ref=g&id=500653118
Combined Federal Campaign If you are a federal employee, please select us as your
If your birthday is not listed here, please call us and let us know. We will publish missed birthdays.
. . .KIDS CORNER...Handprint Cherry/Almond Blossom TreeWhat better way to learn about our valley than to take a trip to one of the many orchards and check out the beautiful blooms! Then come home and can create your own blooming tree! Supplies:-Q-Tips-Various Shades of Pink/White Craft Paint-Light Blue/Brown Cardstock-Paper plate-Scissors-Pencil-Glue Stick-*Optional*- scrapbook stickers/bird embellishment
Directions:-First trace and trim out your child's handprint/arm out of the brown cardstock. This is the start of the
cherry blossom tree.-Grab your glue stick and glue that cutout to the center of your light blue cardstock.-Grab your craft paint and squirt it on the paper plate. Have your child take a q-tip, dip it into the paint, then onto the branches of their "handprint" tree. Repeat until your cherry blossom tree is nice and full.-To finish off the tree, add other embellishments you see fit, like a bird sticker, and set aside to let it dry completely before displaying proudly.
Nature Craft Journey StickWith our awesome Spring weather, it's the perfect chance to get outside and explore our local parks. A nature stick is a memento from a nature walk. You collect items while out on your walk and attach them to a stick with string. Younger children can use a piece of cardboard with double sided tape. With all nature activities, you must be mindful of taking care of your surroundings, making sure to explain this to children. Look for park rangers to help you identify what you've found, or you can continue the learning at home by exploring the internet together to find out more about your findings. Happy Exploring.
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iCan Bike Program April 10 - April 14, 2017
Sanger High School Gymnasium
iCan Bike is a weeklong bike program that uses adapted equipment to help individuals with disabilities learn to ride a two-wheel bicycle. The Arc of Fresno and Madera Counties is pleased to offer this program through funding from the Central Valley Cycling Charitable Association.
Requirements for Participation: (An individual is eligible to participate only if ALL items listed here apply.)
•Minimum of 8 years of age•Minimum inseam of 20"•With a disability (learning disabilities included)•Able to walk without assistive device•Able to sidestep to both sides•Able to wear a properly fitted bike helmet
•Maximum weight 220 Ibs.•Must have a bike that fits iCan Bike requirements•Must be accompanied by Parent/Guardian during each session•Must be able to attend all 5 sessions (each session is 75 minutes)
Parents are required to attend an Orientation meeting on Sunday, April 9 at Sanger High School Gym: 1045 Bethel Ave, Sanger, 93657 from 3:30-5:00 pm. Camp fee for early registration is $100. After March 15, camp fee is $125. Scholarships may be available to those who qualify. Early registrants will receive a camp T-shirt and bike helmet. Registrations received after March 15 are not guaranteed a camp shirt and may be required to purchase their own bike helmet if the correct size is not available. To register, please go to:www.icanbikefresnoclovis.infoPayment can be made online or by mailing a check (information online). Rider registration is not complete until payment is received.
For further information you may call Ana Duarte at (559) 547-2610.
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Important 2017 dates to take note of...• Sweetheart Ball ................................................... March 11, 2017• Jr Grizzly's Registration Drawing ........................... March 15, 2017• World Down Syndrome Day ................................. March 21, 2017
• DSACC Office Open house 10-1pm• BBQ Celebration in Visalia 5-7 pm
• iCan Bike• Visalia 5 & Under Social ......................................... April 29, 2017• Merced 5 & Under Social ....................................... May 13, 2017• Fresno 5 & Under Social ......................................... May 20, 2017• Step Up for Down Syndrome .............................. October 21, 2017
Please note, dates may be subject to change
Calendar of Events
CA
• Tuesday March 14, 2017• Tuesday, April 11, 2017• Tuesday, May 16, 2017
South Valley 5 & Under Parent Education and Support GroupMeets the first Thursday of the month from 10:00-11:30 am at the Liberty Center, 11535 Avenue 264 in Visalia, in partnership with Bright Start.
• Thursday, March 2: Morning with the Occupational Therapist
• Thursday, April 6, 2017: Mommy & Me Fitness with Oak Street Studio Fitness: Oak Street Studios is joining us for a fun playful yoga class that encourages children’s natural ability to be imaginative through kids yoga. This class will combine yoga poses with songs and stories while using puppets, hula hoops and various props for games. Kids will
increase self awareness, social skills, and build sensory and motor skills.
• Thursday, May 4, 2017: Tuesday, May 16, 2017: Mother's Day Pamper Day! Prepare to be pampered! Students from Milan Institute will be joining us for manicures, pedicures, make-up application and sweet treats for all you wonderful mamas in honor of Mother's Day! If you would like your make-up done, please bring your own foundation & mascara. It isn't necessary but if you would like to join us, we would appreciate you letting us know in advance so that we have enough stations set up, [email protected] or 559.228.0411.
Fresno Play GroupThis playgroup is for our families with kids 5 yrs and younger looking to connect with other parents in a casual play setting. Groups are held from 10-11:30 am the second Tuesday of every month at
PLEASE NOTE, we can provide a translator for any of our
programs and events if given notice that one is needed.
Parent2ParentThis (all ages) group offers emotional support, insight, and understanding to parents of children with any special needs. The group meets the first Wednesday of every month from 7-9 pm at the DSACC office. Meetings are led by Carolyn Tellalian, LCSWPlease know that this group is open to parents and caregivers to a child or adult with ANY disability and a valuable resource for support.• Wednesday, March 1,
2017: IEP Training with State Council on Developmental Disabilities
• Wednesday, April 5, 2017: Support
• Wednesday, May 3, 2017: Self-Determination and CalAble Bill training/informational with Carolyn
Childcare provided with at least 5 days advance notice of meeting- please call us at 559.228.0411
Parenting Network (Visalia) Parent to Parent Support GroupThis group is open to parents and care givers of children with special needs. Childcare IS provided.
Meetings are held from 6:00-7:00 pm at Parenting Network: 330 N Johnson Street, Visalia,
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the DSACC office located at 1491 W Shaw Avenue Fresno, CA 93711. Families with kids slightly older than 5 yrs are always welcome to join as well.
• Tuesday, March 14, 2017: Free play
• Tuesday, April 11, 2017: Mommy & Me Yoga
• Tuesday, May 9, 2017: DIY Mother's Day crafts and gifts! Bring the kiddos by for a morning of crafts and they will help make a special Mother's Day gift from us to you!
Club321We are also excited to announce that Club321 will now welcome teens & young adults from 15-22 years old!• We are going bowling in
March 18! Stay tuned for time details!
Please check your e-mail and the DSACC Facebook page for upcoming events!
DSACC Self Advocate committeeCalling all adults with Down syndrome who are interested in making a difference in the community! On the Advocate committee, they will learn public speaking skills, create their own "story" about their life to share with the community, social skills, and be a voice for members with Down syndrome. Meetings will be the Third Tuesday of the month from 3-4pm at the DSACC office unless noted.
• Tuesday, March 21, 2017: Join us in Visalia for World Ds Celebration from 5-7pm if you can! @Bright Start 11535 Avenue 264 Visalia,
• Tuesday, April 18, 2017: Public Service Announcement Practice
If you are interested, please contact Jennifer at the DSACC office for more information or an application, 559.228.0411 or [email protected]
Down Syndrome & Dementia Support GroupCVRC in partnership with UCSF Fresno Alzheimer & Memory Center offers a support group for parents as caregivers or those directly caring for those with Down syndrome and dementia.
All meetings held the third Wednesday of the month from 1-3 pm at UCSF Fresno Alzheimer & Memory Center: 6137 N Thesta Street, Suite 101 B Fresno, CA.
For more information, please call 559.227.48105 & Under Socials We love our 5 & Under Socials and encourage all of our new families to join us at 1 or all of the area events. It's a great opportunity to meet new friends, find local resources and have an incredible afternoon or evening with your little ones! We also welcome families of children with Down
syndrome who are slightly older than 5 to join us in welcoming new families!
Visalia area: Saturday, April 29, 2017 from 5:30- 7:30 pm@ ImagineU Children's Museum Visalia: 210 N Tipton Visalia, CAPlease RSVP online or to DSACC staff by April 20, 2017, or online @www.dsacc.org/events/other
Merced Area: Saturday, May 13 rom 11:00- 1:00 pm@ The Rosotti Edu-Zoo-Cation Center in Applegate Park: 1045 W 25th Street MercedPlease RSVP online or to DSACC staff by May 3, 2017, or online @ www.dsacc.org/events/other
Fresno Area: Saturday, May 20, 2017 from 1:30-3:30pm@Tumble America: 1345 N Willow Ave #140, Clovis, CAPlease RSVP online or to DSACC staff by May 15, 2017, or online @ www.dsacc.org/events/other
PLEASE NOTE: Sweetheart Ball Wrap Up along with photos and sponsors will be recognized in the next issue due to the event not having taken place until March 11 (after this has gone to print)--------------------------------------------------------------Do you have an event or program to share with DSACC readers? You can submit written information for approval to [email protected] by April 1, 2017
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Want to have take a trip over spring break but not sure what services there are to make your trip with a loved one with Down syndrome a success? There are actually so many places that offer different types of services for people with disabilities and their families. I've gone ahead and collected a few different types of trips your family could take that are located within driving distance. Yosemite National Park• Yosemite National Park is very accessible to people
with disabilities. The park has won these Accessibility Awards: 2010 National Park Service Sustained Park Achievement – Provision and Improvement of Accessibility over a Sustained Period of Time, 2009 National Park Service National Accessibility Achievement Award for Programmatic Achievement – Improving Access to the National Park Service Programs and 2008 Programmatic Accessibility Achievement Award – Deaf Services Program.
• As we know, Down syndrome is a disability that doesn't go away, so it's considered a permanent disability. This makes your loved one with Down syndrome eligible to be the owner of the Interagency Access Pass. This pass is a FREE lifetime pass that is valid at National Parks, Bureau of Land Management, U.S. Fish and Wildlife Service, U.S. Forest Service and Bureau of Reclamation sites. In Yosemite, this pass will allow the pass owner and anyone in the same vehicle free access to the park and a 50% discount on campsites! You can get this pass online for a small fee or you can easily head over to the Sequoia National Park Headquarters in Clovis to get pick it up for free. Call ahead to make sure they're open and check if you need any proof of a permanent Disability. It took me five minutes and they gave my kids lots of fun National Park education coloring books and toys. Who doesn't love Smokey the Bear!?
• Check out their Accessibility guide at www.nps.gov/yose/planyourvisit/upload/access.pdf to see how your loved one can be accommodated.
Disneyland Resort• Disneyland is so accommodating to their guests with
disabilities. There is no one way to explain how amazing their cast members are and how they can help design your trip. Each trip is specifically designed for each guest in need. No two services are exact. When you get to the park, (hopefully an hour before to make your way through security and, the kiosk lines) make a bee line for city hall and make sure to have your loved one with you. Explain why you think your loved one would need to use their Disability Access Service (DAS). They have so many different services that can accommodate anyone's needs. The cast member will help you design a service that can help make your family have a "Magical" day! The design you come up
with may not actually work for your family, but have no fear! You can head back to City Hall and let them know how the service isn't working as planned, and they can help customize it a little differently. They really are there to help your family have the best day and so many cast members do their job so well! Did I mention that the DAS can be used along with a FASTPASS?! Well...it CAN!!!
• Speak to your case manager at CVRC to see how your family can be entered in the lottery for discounted Disneyland Resort tickets. This program is ran by Disneyland Resort, CVRC simply verifies that an individual is a Regional Center client which makes them eligible for the lottery.
• Check out Disneyland Resort services at https://disneyland.disney.go.com/guest-services/guests-with-disabilities/
San Diego Zoo• This zoo has SO many different services available to
guests with disabilities. I haven't actually used this service, but I really would love to make a trip there!
• There are no discounted rates for people with disabilities, BUT they do give free admission to a personal attendant/caregiver to accompany a guest who requires help to access the different programs, activities and facilities.
• There is also a free shuttle service available for guests with limited mobility.
• You can check out other services they offer at http://zoo.sandiegozoo.org/content/guests-disabilities
Local Movie Theaters• Many theaters are now offering Sensory friendly viewing
for movies. These showings typically have lower volumes, brighter lights and usually filled with families who are more forgiving because they understand different needs. Usually there is one showing on a specific day of the month that these are offered.
• Edwards Fresno• My Way Matinee. The showings are at 10:30AM.
Ticket Prices are $6.50• March 11th- The Lego Batman Movie• April 8th- The Boss Baby• http://www.regmovies.com/mywaymatinee
• Sierra Vista Cinemas• Sensory Sensitive Films. The showings are at 10AM
on the last Saturday of the month. Ticket prices are $7.75
• March 25th- Rock Dog• April 29th- Smurfs: The Lost Village• http://www.sregmovies.com/loc_sierravista
• Maya Cinemas Fresno• Maya Cares. The showings are at 10:30AM on the
first Saturday of the month. Guests with disabilities are free and the cost is $3 for each member of the party.
• The movies that will show will be announced on their Facebook page about one to two weeks prior to the show.
Education Corner: Accessible TripsCompiled by Terasa Reyes
Join DSACC and the rest of the world in wearing LOTS OF SOCKS!
Bright colors, patterns, short or tall! We even have our very own DSACC SOCKS!It can be one sock or three socks for three chromosomes...the choice is yours, but we ask you to join us in wearing something which people will ask you about so that you can tell them all about World Down Syndrome Day!
Check out DSACC's SOCKS!
$10 per pair. Each pair comes with 10 informational bookmarks about Down syndrome to share with
schoolmates and friends! Supply is limited! To get your pair, contact DSACC staff at 559.228.0411
To see what other celebrations are going on visit the World Down Syndrome Day web site at: ww.worlddownsyndromeday.org
3/21 World Down Syndrome Day!Dollar Drive for World Down
Syndrome Day!
Help us raise $3,210 for Down Syndrome Association of Central California by 3/21 in honor of World Down Syndrome Day!
You can help by donating $10 dollars (or more) online then be sure to share this event with 10 of your friends and ask them to share with 10 of their friends and keep the sharing going! With just 321 donors, we can reach our goal!
All funds raised stay in the Central Valley helping DSACC provide vital resources and services to enhance the quality of life for all people whose lives are touched by Down syndrome in the Central Valley. Donate today!https://www.firstgiving.com/DSACC/dollars2017
Do you have your DSACC socks yet?
NDSS visits DSA Central CA!Thank you to everyone who came out to welcome Sara Weir, NDSS President and her staff, on February 15, 2017 in Visalia and February 16, 2017 in Fresno. Weir stopped by to speak with us about the Achieving a Better Life Experience (ABLE) Act which was passed in 2014 and accounts will be available in California as early as this October! Weir brought great insight to how this bill was created (it started with 5 parents sitting around a table wanting to set up better futures for their children with Down syndrome) and the limitations and benefits of opening an account. More information about the ABLE Act will be published in our next newsletter so stay tuned!
Photos are greatly appreciated! Also include your contact
information (Name, phone, email)
10 random names from submissions
will be drawn on March 15 2017
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Reuniones Sociales de menores de 5 estan aquí!
Nosotros amamos a nuestros menores de 5 y alentamos a todas nuestras nuevas familias a unisernos a un evento o a todos nuestros eventos. Es una gran oportuinidad conocer a nuevos amigos, descubrir nuevos recursos y pasar una tarde increible con los pequeñines. También le damos la bienvenida a los familiares de niños con Síndrome de Down los cuales tienen un poco más de 5 años, para que se nos
unan en darle la bienvenida a las nuevas familias.
Area de Visalia: Sábado 29 de Abril del 2017
de las 5:30 a las 7:30 pm.En ImagineU Children’s
Museum de Visalia: 210 N Tipton Visalia, CA
GRATIS! Por favor Reserve en línea o con el
personal de DSACC antes del 20 de Abril del 2017.
Gracias a First5 de Tulare por patrocinar este evento!
Area de Merced: Sabado 13 de Mayo
de 11:00 am a 1:00 pmEn el Rosotti Edu-Zoo-Cation Center en Applegate Park:
1045 W 25th Street MercedGRATIS!
Por favor Reserve en línea o comuniquese con el personal de
DSACC antes del 3 de Mayo del 2017
Lo invitamos a celebrar el día mundial del Síndrome de Down (21 de Abril) con nosotros a algu-nos eventos locales! Tendremos playeras y calcetas de DSACC disponibles
a la venta en cada evento!
De 10 a 1pm Open House: 1491 W Shaw ave. Fresno, CAPase a nuestra oficina y vea nuestras. La remodelacion de nuestra oficina y disfrute algunos bo-cadillos para celebrar el día mundial del Síndrome de Down, también tendremos manualidades
para los niños y juegos para los mayores, todo gratis!
De 5 a 7pm tendremos una celebración en Bright Start: 11535 Avenue 264 Visalia, CA
Unasenos para disfrutar de comida, manualidades y diversión…. Todo esto para celebrar a nuestros seres queridos con Síndrome de Down.
Amablamente estamos pidiendo una donación de $10 por familia.
Por favor Reserve en linea o comuniquese con el personal de DSACC antes del 16 de Marzo del 2017 www.dsacc.org/events/WorldDs, 559.228.0411
CELEBRACIONES DEL DÍA MUNDIAL DEL SÍNDROME DE DOWN!
Area de Fresno: Sabado 20 de Mayo
de 1:30 pm a 3:30 pmEn el Tumble America: 1345 N Willow Ave #140, Clovis, CA
GRATIS! Por favor Reserve en línea o
comuniquese con el personal de DSACC antes
del 15 de Mayo del 2017
Por favor Reserve en línea o comuniquese con el personal de DSACC 559.228.0411,
Quieres hacer un viaje durante las vacaciones de primavera, pero no estás seguro de que servicios están disponibles para que tu viaje sea todo un éxito con un ser querido con Síndrome de Down. Hay muchos lugares que ofrecen diferentes tipos de servicios para personas con Discapacidad y sus familias, he recolectado información de diferentes viajes que tu familia pueden hacer esta primavera manejando a una distancia corta.
Parque Nacional YosemiteEl parque nacional Yosemite es muy accesible para personas con discapacidad. El parque ha ganado estos reconocimientos por su accesibilidad: Premio 2010 al Parque Nacional por un Servicio Sostenido – Provisión y Mejoramiento de accesibilidad sobre un periodo de tiempo sostenido, Premio 2009 al Parque Nacional por su Servicio de Accesibilidad y logro Programatico – Acceso Mejorado a los Programas y Servicios del Parque Nacional y Premio 2008 por
su Accesibilidad Programatico – y su Programa de Servicios para Deficientes Auditivos.
Como sabemos, el Síndrome de Down es una discapacidad que no se quita, por lo tanto es considerada una discapacidad permanente. Esto hace a tu ser querido con síndrome de down elegible para adquirir un Pase de Acceso Interagency. Este Pase es un Pase GRATIS de por vida que es valido en todos los Parques Nacionales, al Buro de Manejo de la Tierra, Servicios de la Vida Salvaje y de Pesca de U.S., Servicio de Bosques y la Agencia de Reclamaciones. En Yosemite, este pase le permitira al dueno del pase y a cualquiera en el mismo vehiculo accesar al parque gratis y recibir 50% de descuento en campamentos! Usted puede obtener este pase por internet por una pequena cuota o la puede adquirir gratis en las oficinas centrales del Parque Nacional en clovis. Llame antes para estar seguros de que este abierto, y cheque si tiene que llevar alguna prueba de
La Esquina de la Educación: Viajes accesibles: By: Terasa Reyes
Colecta de Dólar por el Día Mundial del Síndrome de Down!
Ayudenos a alcanzar la meta de $3,210 para la Asociación de Síndrome de Down de California Central antes del 21 de Marzo, en honor al día Mundial de Síndrome de Down!Usted puede ayudar donando $10 dolares o más en línea y asegurandose de compartir este evento con 10 de sus amigos y pedirles que lo compartan con 10 de sus amigos y que sigan compartiendo! Con solo 321 donadores, podremos alcanzar nuestra meta!Todos los fondos recolectados se quedarán aquí en el Valle Central para ayudar a DSACC a proveer recursos vitales y servicios para mejorar la calidad de vida de todas las personas que han sido tocadas por el Síndrome de Down en el Valle Central.Done hoy! https://www.firstgiving.com/DSACC/dollars2017
Unase a DSACC y al resto del mundo usando calcetas de colores y diseños
brillantes, cortos o altos! Nosotros tenemos nuestras propias calcetas de DSACC!
Puede ser una o tres calcetas con tres cromosomas… la opción es suya, pero le estamos pidiendo que se nos una al usar algo que haga que la gente le pregunte sobre eso y así usted les pueda decir sobre el día mundial del Síndrome de Down!Cheque nuestras calcetas de DSACC!Cada par a $10 y cada para viene con 10 libros informativos sobre el Sidrome de Down para compartir con compañeros de escuela o con amigos, existencia limitada, por favor para obtener sus calcetas comuniquese con el personal de DSACC al 559.228.0411
Para ver que otras celebraciones habrán visite la página de internet del Día Mundial del Síndrome de Down: www.worlddownsyndromeday.org
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discapacidad permanente. Me llevo 5 minutos recibir toda la informacion sobre el Parque Nacional y le dieron a mis ninos libros para colorear y juguetes. ¿A quién no le gusta el Oso Smokey?
Pueden checar su guia de accesibilidad en:• www.nps.gov/yose/planyourvisit/upload/access.
pdf para que vean como su ser querido va hacer acomodado de acuerdo a sus necesidades.
Disneyland ResortDisneylandia tiene muchas acomodaciones para sus huspedes con discapacidades. No hay forma de explicar que tan asombroso son sus empleados y como te pueden ayudar ellos a organizar tu viaje. Cada viaje es diseñado especificamente para las necesidades de cada huesped. No hay dos servicios iguales exactamente.Cuando llegas al parque (con suerte una hora antes de haber hecho fila y pasar por seguridad) formate en la linea del City Hall y asegurate de que tu ser querido este contigo. Explicales porque piensas que tu ser querido necesitaria usar el Servicio de Acceso por Discapacidad (DAS). Tienen muchos servicios diferentes que pueden acomodar las nececidades de cualquiera. Alguno de los empleados te ayudaran a disenar un servicio que ayudara a que tu familia tenga un Magico día! El diseño que te den puede que no sea tan efectivo como lo pensaron, pero no te asustes! Tú puedes regresar al City Hall y hacerles saber que el plan no está funcionando como se planeo, y ellos pueden ayudarte a reorganizarlo un poco diferente. Ellos realmente estan ahí para ayudar a tu familia a tener el mejor día y ellos realmente hacen su trabajo muy bien! ¿Yá les mencione que el DAS puede ser usado con un FASTPASS? Bueno… si PUEDES!
Habla con tu trabajador social de CVRC como tu familia puede entrar en el sorteo para recibir boletos con descuento para Disneyland Resort. Este programa lo corre Disneyland Resort, CVRC simplemente verifica que el individuo sea un cliente elegible para el sorteo. ......................
Checa los servicios de Disneyland Resort en https://disneyland.disney.go.com/guest-services/guest-with disabilities/ San Diego ZooEste zoológico tiene muchos servicios diferentes disponibles para los visitantess con discapacidades.
De hecho no he usado este servicio, pero realmente me gustaría ir!
No hay descuentos para las personas con alguna discapacidad, pero la admisión es gratis para la persona que cuida/ asiste al visitante con discapacidad y que requiere ayuda para accesar a los diferentes programas y actividades en sus instalaciones.
Hay también un servicio de transporte gratis disponible para los visitantes con movibilidad limitada. Ustedes pueden checar todos los serivicios que se ofrecen en: http://zoo.sandiegozoo.org/content/guests-disabilities
Movie TheatersMuchos cines están ofreciendo sus películas Amigables Sensoriales. Estas películas normalmente tienen volumen bajo, luces mas brillantes y generalmente son vistas con familias que entienden las diferentes necesidades. Generalmente hay una presentacion de este tipo de peliculas en un día especifico al mes.
• Edwards FresnoLas matines. Las funciones son a las 10:30 AM. El precio de los boletos es de $6.50* 11 de Marzo The Lego Batman Movie* 8 de Abril The Boss Baby * http://www.regmovies.com/my way matinee
• Sierra Vista CinemasPelículas Sensitivas Sensoriales. Las funciones son a las 10:00 AM el último Sábado del mes. El precio de los boletos es de $7.75*25 de Marzo – Rock Dog*29 de Abril – Smurfs: The Lost Village*https://sregmovies.com/loc_sierravista
• Maya CinemasMaya Cinemas se preocupa. Las funciones son a las 10:30 AM el primer Sábado del mes. Visitantes con discapacidades entran gratis y el costo para los familiares o amigos es de $3.
Las películas que se transmitirán serán anunciadas en su página de internet más o menos una o dos semanas antes de la función.
http://facebook.com/MayaCinemasFresno/
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pedicure, aplicación de maquillaje y dulces regalos para todas ustedes maravillosas mamás, en honor por el día de la madre! Si te gustaría que te maquillaran, por favor trae tu propio maquillaje y rimel. Si quiere asistir, apreciariamos mucho si no lo hace saber por anticipado, de esa forma podemos tener suficientes lugares para todas, comuniquese al correo electronico: [email protected] o al teléfono: 559.228.0411
Grupo de Juego de FresnoEste grupo de juego es para nuestras familias con niños de 5 años y más jóvenes que buscan conectarse con otros padres en un ambiente de juego casual. Los grupos se celebrará del 10-11: 30 am el segundo martes de cada mes en la oficina DSACC situado en 1,491 W Shaw Avenida Fresno , CA 93711
• Martes 14 de Marzo del 2017: Juegos en forma libre.
• Martes 11 de Abril del 2017: Yoga con mamá y yo.
• Martes 9 de Mayo del 2017: Día de las madres, manualidades y regalos! Traiga a los niños para una manana de manualidades y ellos ayudaran a hacer un regalo especial de nosotros para usted!
Si usted esta interesado, por favor contacte a Jennifer a la oficina de DSACC para más información o para una aplicación al 559.228.0411 o al correo electrónico [email protected]
Comité de Consejería de
TENGA EN CUENTA, que podemos proveer un interprete para cualquiera de nuestros
programas o eventos si nos avisa que necesita uno.
De Padre a PadreEste es un grupo para todas (las edades) que ofrece apoyo emocional, comprehensivo y entendimiento a padres de niños con necesidades especiales. El grupo se reunirá el primer miércoles de cada mes de 7-9 pm en la oficina de DSACC. Las juntas serán presentadas por Carolyn Tellalian, LCSW y oradores ocasionales.Por favor, tome en cuenta que este grupo está abierto a padres y a cuidadores de salud de niños o de adultos con cualquier discapacidad, es un recurso de apoyo invaluable.• Miércoles 1 de Marzo del
2017: Entrenamiento con un Consejero Estatal sobre IEP y Discapacidades de Desarrollo.
• Miércoles 5 de Abril del 2017: Apoyo
• Miércoles 3 de Mayo del 2017: Auto-determinación y entrenamiento educacional sobre la propuesta de ley CalAble por Carolyn
Habrá cuidado de niños si nos deja saber con 5dias de anticipo antes de la junta – favor de llamar a 559.228.0411
Grupo de apoyo de Padre a Padre en Parenting Network (Visalia)Este grupo esta abierto a padres y a proveedores de cuidado de niños con necesidades especiales. Se proveera cuidado de niños. La reunión sera de 6:00
a 7:00pm en Parenting Network: 330 N Johnson Street, Visalia, CA• Martes 14 de Marzo del 2017• Martes 11 de Abril del 2017• Martes 16 de Mayo del 2017
Sur del Valle menores de 5 Grupo Educacional de Apoyo para Padres Juntas el primer Jueves de cada mes de 10:00 a 11:30am en el Liberty Center: 11535 Avenue 264 en Visalia, en Sociedad con Bright Start. Cada reunión ofrece diversión y actividades informativas, además de pláticas con expertos en temas relevantes.• Jueves 2 de Marzo del 2017:
Mañanas con la terapeuta ocupacional.
• Jueves 6 de Abril del 2017: Mami y yo en forma con Oak Street Studio Fitness: Oak Street Studio se nos une para una divertida clase de yoga que motiva la habilidad natural de los niños a través de la imaginación. Esta clase combinará posiciones de yoga con canciones e historias utilizando marionetas, hula hoops y varios juegos extras. Los niños incrementarán su auto-concientización, habilidades sociales y construirán habilidades motoras y sensoriales.
• Jueves 4 de Mayo del 2017: Martes 16 de Mayo del 2017: Día de las madres! Día de consentir!
• Preparense para ser consentidas! Estudiantes del Instituto Milan se van a unir para proveer manicure,
Calendario de eventos
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DSACCHaciendo un llamado a todos los adultos con Síndrome de Down los cuales estén interesados en hacer una diferencia en la comunidad! En el Comité de Consejería, ellos aprenderán habilidades para hablar en público, crear su propia “historia” sobre su vida para ser compartida con la comunidad, habilidades sociales y para ser una voz para los miembros con Síndrome de Down. Las reuniones serán el tercer martes del mes de 3-4 pm en la oficina de DSACC, a menos que se notifique otra cosa.Martes 17 de Enero del 2017: Recaudación de fondos 101
• Martes 21 de Marzo del 2017: Unasenos si puede en Visalia por el día mundial del SD de 5-7pm.
• En Bright Start localizado en 11535 Avenida 264, Visalia, CA
• Martes 18 de Abril del 2017: Practica de Anuncio de Servicio Público.
• Si usted está interesado, por favor contacte a Jennifer en la oficina de DSACC para más información al teléfono 559.228.0411 o solicite una aplicación a [email protected]
Grupo de Apoyo de Síndrome de Down y DemenciaCVRC en colaboración con la UCSF Fresno Centro de Alzheimer y Memoria ofrece un grupo de apoyo para los padres como cuidadores o personas que cuidan directamente a personas con síndrome de Down y demencia.Todas las reuniones se llevan a cabo el Tercer Miércoles de
cada mes de 1-3 pm en la UCSF Fresno Centro de Alzheimer y Memoria: 6137 N Thesta Street, Suite 101 B Fresno, CAPara obtener más información, por favor llame al 559.227.4810Inviten a todos sus seres queridos a desayunar! Coman y Apoyen a DSACC
Reuniones Sociales de menores de 5 estan aquí!Nosotros amamos a nuestros menores de 5 y alentamos a todas nuestras nuevas familias a unisernos a un evento o a todos nuestros eventos. Es una gran oportuinidad conocer a nuevos amigos, descubrir nuevos recursos y pasar una tarde increible con los pequeñines. También le damos la bienvenida a los familiares de niños con Síndrome de Down los cuales tienen un poco más de 5 años, para que se nos unan en darle la bienvenida a las nuevas familias.
Area de Visalia: Sábado 29 de Abril del 2017, de las 5:30 a las 7:30pm.En ImagineU Children’s Museum de Visalia: 210 N Tipton Visalia, CAPor favor Reserve en línea o con el personal de DSACC antes del 20 de Abril del 2017.Gracias a First5 de Tulare por patrocinar este evento!
Area de Merced: Sabado 13 de Mayo del 2017 de 11:00 am a 1:00pmEn el Rosotti Edu-Zoo-Cation Center en Applegate Park: 1045 W 25th Street MercedPor favor Reserve en línea o comuniquese con el personal de DSACC antes del 3 de Mayo del
2017.
Area de Fresno: Sabado 20 de Mayo del 2017de 1:30 pm a 3:30 pmEn el Tumble America: 1345 N Willow Ave #140, Clovis, CAPor favor Reserve en línea o comuniquese con el personal de DSACC antes del 15 de Mayo del 2017
Por favor Reserve en línea o comuniquese con el personal de DSACC 559.228.0411, email: [email protected] or www.dsacc.org/events/other
------------------------------------------------------------¿Tiene usted algún evento o programa para compartir con los lectores de DSACC? Usted puede aplicar por escrito la información para que sea aprovada a [email protected] antes del 1 de Abril del 2017.------------------------------------------------------------
La oficina de DSACC estara cerrada:
La oficina de DSACC estará cerrada:A la 1:30pm el dia martes 21 de
marzo del 2017 por la celebración de día mundial del DS.
Lunes 17 de Abril
Juntas de la Mesa Directiva para el 2017!
Las juntas se llevan a cabo de 6-8pm en la oficina de DSACC: 1491 W Shaw Ave. Las juntas están abiertas al público. Las juntas son el tercer miércoles de los siguientes meses,
• 15 de Marzo• 19 de Abril
• 16 de Agosto• 20 de Septiembre• 20 de Diciembre
El presidente puede solicitar juntas adicionales si se necesitan.
