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SOMEWHERE OVER THE RAINBOW…
CONCUSSION CARE
MBIA ConferenceApril 11,2013
Leslie Seymour, MD, MPH; Jon Roesler, MSAnna Gaichas, MA; Mark Kinde, MPH
I. BackgroundA. Problem in MinnesotaB. Need for new way of trackingC. Committee formed
II. Creation of online reporting system
A. ConcernsB. Technical DevelopmentC. Pilot programD. Issues encountered
III. Results to Date
IV. FutureA. Expansion of systemB. Assessing long-term outcomes
Background
Concussion
“Any trauma induced alteration in mental status that may or may not include a loss
of consciousness.”
National Data
~ 300,000 sport-related TBI’s per year Leading Causes (in order):
football girls’ soccer boy’s soccer girls’ basketball
Concussion rate higher in competition vs. practice
Problem in Minnesota2002-2011
N
Data from Minnesota State TBI RegistryIssue: Hospitalized patients only
Sport & Rec ConcussionsMinnesota, 2002-2011, Ages 5-
19
Data from the Minnesota Hospital Association
Issue: Identification of sport and recreation
N
Sport vs. Recreation
Sport Place for recreation
and sport From jumping or
diving into pool Fall from skis Fall in sports Struck by or
against in sport
Recreation ATV or snowmobile Watercraft related Unpowered aircraft Fall from playground
equipment Fall from scooter, roller
skates, or snowboard Fireworks Drowning from
sport/rec Air-gun or paintball gun
MHA Data
Cause of Concussions Minnesota, 2002-2011, All Ages
N
Cause by age-groupMN 2002-2011
55%
N
Age group
Need for new data collection system
To more accurately understand the nature of the problem in Minnesota, of Sports Related Concussion in youth.
Registry captures hospitalized cases only. Billing data does not provide sufficient
identification of the sport involved. Current data does not capture:
- those treated by AT only- those seen in urgent care- those seen by their own family
physicians
Vast majority of cases
Sports-related Concussion Committee
2 physician’s with large patient loads of SRC
Athletic trainer who oversees high school athletic trainers from the Fairview Health System
A representative from the MSHSL A representative from the MN Department
of Education A nurse from Gillette Hospital’s pediatric
TBI rehabilitation unit A representative from MBIA
Creation of online reporting system
Concerns Technical Development Pilot program Issues Encountered
Concerns
Privacy! Information to collect Who Reports / Burden of Reporting Timely Accurate Complete Statutory Authority Action (So What? / Now What?)
Technical Development
System modeled after RIO Not as extensive Addition of some academic impact questions
In-house programmers (# of hours?) Systems Analyst Web Developer
Who will pilot?
Demographic Data
Signs/Symptoms
Academic Information
Pilot
Schools with Fairview AT Recruited school contact Initial Paper reporting Transitioned to Electronic
Issues
Principals did not respond Some schools chose not to participate in
academic portion Privacy (Education data vs health data) Users accessing SRCRS Time-lag Loss of dedicated CDC funding!!!!!
Prelim Results
Concussions by gender Concussions by sports and gender Concussions by type of event Athletes missing school
Percent of Concussions by Gender
Percent
Sports Included: Basketball, Football, Hockey, Soccer, Volleyball, Wrestling
Concussions by Sport & GenderMinnesota, 2012-13, Pilot System Preliminary Findings
Rates
*Rates are per 100 participants
Rate
*
Concussions by Type of Event
Rate*
*Rates are per 100 events
Number/Percent Athletes that Missed any School
N
Missed School
School Missed
N=2
<1%
87%
N
Days of School Missed
Issues
Small N’s Reporting Bias of AT’s Student doesn’t report Data awaits validation Difficulty getting academic reporters
Future
Maintaining and/or Expanding System? ????Longitudinal Follow-up????
(most kids have ok outcomes) Repeat concussions Time lag between concussions
Societal acceptance of concussions
System Expansion
Can we take it statewide?
Longitudinal Follow-upThe End of the Rainbow
Is the return to play protocol being followed? Are schools making proper accommodations? What about Resource Facilitation referrals?
When? After multiple repeat concussions? Symptomatic for an extended period – how long?
How? Brochure, letter, phone call? Who: AT’s, Academic contacts, Principals?