www.Marianjoy.org Physical Medicine and Rehabilitation for Adults and Children VOLUME 16: Issue 4

New Opportunities for the Future of Rehabilitation Page 2

Unlocking the Future

Marianjoy Gives Voice to Locked-In Author

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Marianjoy Matters

Improving Rehabilitation Outcomes

The New Aquatic Therapy and Fitness Center

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Redefining Rehabilitation

The New Marianjoy Assistive Rehabilitation Technology Institute

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Because of Marianjoy

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Grand Opening:Rehabilitation Through Innovation

MARIANJOYMATTERS

Dear Friends,The enduring legacy of Marianjoy is embedded in the compassionate and caring spirit of our physicians and associates who strive to meet the rehabilitation needs of our patients every day. This legacy is an integral part of the mission of the Wheaton Franciscan Sisters, who founded Marianjoy over 40 years ago.

The professional staff at Marianjoy is constantly working to develop innovative treatment options to achieve the best possible outcomes for our patients. This can be seen in the opening of our state-of-the-art hospital in 2006, which today stands as a model of patient care in the rehabilitation industry. Our steadfast commitment is to continue to enhance our care offerings by focusing on advances in technology and development of applied research. Patients and families can experience this commitment firsthand through the services provided in our new Aquatic Therapy and Fitness Center; Assistive Technology Center; and Conference and Education Center.

In this issue of Marianjoy Matters, we highlight the recent Grand Opening of these new areas, as well as the role they will play in developing ever-improving methods of delivering care to our patients through the advancement of the art and science of rehabilitation care.

All of us at Marianjoy are very proud of these new enhancements and the potential they offer for current and future patients. We recognize our legacy is rooted in the mission of our founders; sustained through the generous and ongoing support of the community; and driven by the dedication and commitment of our associates.

Many Blessings,

Marianjoy President and CEO Kathleen Yosko (right) is joined by Marianjoy board member Bonnie Wheaton and Rosa Berardi of the Coleman Foundation during the Grand Opening of the new Assistive Rehabilitation Technology Center.

WWW.MARIANJOY.ORGMARIANJOY LEADERSHIP

HOSPITAL BOARD OF DIRECTORS Chairman, Maureen Beal National Van Lines, Inc. Vice Chairman, John Oliverio President and CEO, Wheaton Franciscan HealthcareTreasurer, Kathleen Dvorak Richardson ElectronicsSecretary , Thomas A. Keiser Wallace Road EnterprisesPresident and CEO, Kathleen Yosko Marianjoy, Inc. Steven Danekas, JD Swanson, Martin & BellAlex Demos Professional Paving & Concrete Co., Inc.Patrick J. Kronenwetter, JD Wolin, Kelter, & Rosen LTDJohn Mueller G&W Electric Jeffrey Oken, MD Marianjoy Medical GroupDorothy OReillyNoel Rao, MD VP Medical Affairs, Marianjoy Rehabilitation HospitalWalter ReillyPadma Srigiriraju, MD Marianjoy Medical Group James Sutherland

FOUNDATION BOARD MEMBERS Chairman, John Mueller G&W Electric Vice Chairman, John WalleriusTreasurer, Brett Dale, JD Huck Bouma, P.C.Secretary, Scott Cross The Northern Trust CompanyGeorge Bradshaw, JD Huck Bouma, P.C.Holly French President, Marianjoy Auxiliary Robert LyonJohn Millner John J. Millner & Associates, Inc.Robert MudraScott Park Wayne Hummer Investments Doug Pattison Harpo, Inc.Matthew Wanzenberg Wanzenberg and AssociatesKathleen Yosko President and CEO, Marianjoy, Inc.

PRESIDENTS ADVISORY COUNCIL Maureen BealMichael BirckDonald H. FischerWill GillettJames Huck, JDPeter Huizenga, Timothy MoenRobert J. Schillerstrom, JDDonald SveenJeffrey SwallowKathleen Yosko President and CEO, Marianjoy, Inc.

MARIANJOY AUXILIARY OFFICERSHolly French, PresidentJayne Stefani, TreasurerCarol Hickey, Secretary

New Opportunities for the Future of Rehabilitation

With assistive technology, like the IREX virtual reality system, our therapists can more effectively help patients optimize their balance, mobility, and range of motion.

Dr. Norman Aliga, Medical Director, Marianjoy Musculoskeletal Program

Marianjoy Medical Group physicians (from left to right) Dr. Noel Rao, Dr. Melissa Xenidis, Dr. Sonia Shetty and Dr. Jeffery Oken on a tour of the new enhancements.

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Kathleen C. Yosko Dr. Noel Rao President & CEO Vice President, Medical Affairs Marianjoy Rehabilitation Hospital Marianjoy Rehabilitation Hospital

Background Photo: Marianjoy Conference and Education Center Green Rooftop Garden

Cover photo: (from left to right) Holly French, President, Marianjoy Auxiliary Board; John Mueller, Chairman, Marianjoy Foundation Board, and CEO, G&W Electric; Kathleen C. Yosko, President and CEO, Marianjoy Rehabilitation Hospital; Maureen Beal, Chairman, Marianjoy Board, and CEO, National Van Lines; and John Oliverio, President and CEO, Wheaton Franciscan Healthcare, pause before cutting the ribbon to commemorate the event.

Rosa Berardi of the Coleman Foundation explores DynaVisionTM, one of the many new technology devices on display at the Grand Opening.

To learn more about Aquatic Therapy at Marianjoy Rehabilitation Hospital, visit www.Marianjoy.org.

Improving Rehabilitation Outcomes

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WWW.MARIANJOY.ORGMARIANJOY MATTERS

The New Aquatic Therapy Center includes:

Warm saltwater, which requires fewer harsh chemicals to maintain, and is easier on patients and therapists skin and respiratory systems

Seated therapy areas, where the pulsating water, similar to that of a whirlpool, works to loosen stiff or tight muscles; increase circulation; and reduce joint pain; while providing added resistance for workouts

Multiple entry options, including a lift for those with limited mobility; an accessible, sloping ramp; and large stairs, to accommodate patients of all ability levels

A dedicated area with shallower depth and grading designed for younger children who can benefit from the buoyancy of water as they learn to walk and perform weight-bearing activities

A deep well where patients can work on vertical stabilization exercises or postural floating in the water without touching the bottom

Family Locker Rooms where individuals and their caregivers can change privately in large, accessible stalls before participating in aquatic therapy

A Fitness Center where therapists can set up an exercise program for their patients on equipment that can be adapted for use by an individual with a disability

A 10,000-square-foot Rain Garden, filled with beautiful native plants specially designed to absorb rainwater, can be viewed from the pool

Additional environmentally sustainable features include 16 solar panels that heat the pool, thus conserving energy utilization

The New Aquatic Therapy and Fitness Center

The benefits of warm-water therapy in physical rehabilitation have long been recognized. By decreasing the force of gravity on the body, the buoyancy of water provides ease of movement and offers an environment to address balance issues safely, without the fear of falling. The waters hydrostatic pressure also offers sufficient resistance to increase body awareness and improve muscle strength and endurance. As a result, patients in the Aquatic Therapy Program can achieve their treatment goals with less joint and muscle stress than in a traditional clinical environment. Aquatic therapy at Marianjoy is used either in conjunction with land-based therapy or as a stand-alone treatment option, performed by physical or occupational therapists.

Other benefits of warm-water aquatic therapy include:

Post-operative pain reduction Spasticity reduction

Joint pain reduction Low-impact resistance

Graded-depth weight-bearing environment

with Accessible Green Rooftop Garden

Conference Center and Education Center

Photo: Marianjoy Conference and Education Center Green Rooftop Garden

For those patients who cant support their own weight, the pool offers a way for them to participate in physical therapy. In the water, Marianjoy therapists have the potential to make gains with a patient that may not be made through land-based therapy alone.

Dr. Larissa Pavone, Marianjoy Pediatric Physician

As a research and teaching hospital, Marianjoy clinicians are dedicated to advancing the art and science of rehabilitation. To advance their research and educational efforts, the hospital unveiled a new Conference and Education Center.

The new conference center will enable our clinicians to collaborate with leaders from hospitals, universities, and professional organizations to develop practice standards that embrace opportunities to improve the quality of life for persons with disabilities, says Dr. Noel Rao, Marianjoy Medical Director and Director of the Marianjoy Residency Program.

The 7,700-square-foot meeting space is home to the Marianjoy Professional Learning Institute (MPLI), which provides education and training to health professionals in the field of Physical Medicine and Rehabilitation. The MPLI hosts medical experts from around the country, as well as many Marianjoy clinicians and researchers who are regarded as innovators in the field.

Since 2011, Marianjoy authors have contributed more than 50 scholarly articles to the scientific community. Additionally, they have presented 135 posters and platform presentations at 43 different professional conferences, both nationally and internationally.

The Conference and Education Center features four breakout rooms and cutting-edge multimedia/presentation systems for educational seminars and community events. Adjacent to the Conference Center is an environmentally-friendly Rooftop Garden, which is accessible to patients and visitors.

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The Assistive Communication and Daily Living Center provides therapy and technology-based solutions to individuals with disorders requiring augmentative and alternative communication methods. The Daily Living Center also includes environmental controls that will enable individuals to turn lights on and off, use small appliances, and open doors.

The Balance and Vestibular Center provides physical therapy designed to improve vestibular function and postural controls in order to reduce falls and decrease dizziness.

The Driver Rehabilitation Center helps individuals with disabilities learn or relearn how to drive and gain independence. Adaptive vehicles are configured to suit individuals with varying ability levels.

The Center also offers a low-vision program for teens and young adults. It is one of the most highly regarded driving programs in the Midwest.

The Gait Analysis and Mobility Center specializes in walking and gait analysis for patients following a stroke, spinal cord injury, and other neuromuscular disorders.

The Prosthetic and Orthotic Center evaluates, treats, and supports individuals with amputation and orthotic needs. The team works with certified prosthetists and orthotists to restore mobility and offer solutions for a more active lifestyle.

WWW.MARIANJOY.ORGMARIANJOY MATTERS

Redefining RehabilitationThe New Marianjoy Assistive Rehabilitation Technology Institute

Assistive Communication and Daily Living Center

The Marianjoy Independent Living Center is designed to immerse individuals in real-life situations they will face when returning home, allowing them to practice overcoming obstacles in a controlled, safe environment. The Center includes a fully functioning kitchen, dining room, living room, home office, laundry room, bedroom, and three separate bathrooms, with various high- and low-technology options, to give patients a hands-on experience. Together, patients and therapists can identify potential difficulties and determine the best solutions, whether through technological options or practical structural modifications to the home, to help increase their independence and accessibility.

Fully Accessible Kitchen: Front-facing controls and a drawer-style microwave enable access to appliances from a wheelchair. Height-adjustable and pull-out cabinets allow easy access to kitchen necessities. Adjustable countertops provide a working surface from a standing or seated position.

Dining Room: Patients can practice daily activities, such as setting the table, navigating around furniture, crossing various flooring surfaces, and transporting items between rooms.

Three Bathroom Configurations: A high-tech bathroom can be accessed by way of the ceiling track system and features a walk-in tub with seat and a roll-in shower. The alternative bathrooms replicate traditional layouts and allow for experimentation with a variety of equipment options.

Bedroom: The Sleep Number voice-activated bed allows individuals to raise or lower the head of the bed without lifting a finger. Individuals with mobility restrictions may practice using the ceiling track to move from the bed into the bathroom.

Living Room: Voice-activated controls adjust the lighting or change the television channel. A motorized lift chair assists individuals to a standing position.

Home Office: The home office displays a fully adaptable, height-adjustable desk for computer access and includes lighting options and magnifiers.

Laundry Room: Front-facing controls and front-loading machines allow for easy access to laundry facilities from a seated position.

The Swallowing and Voice Center conducts thorough diagnostic evaluations and treatments of swallowing difficulties, using advanced equipment and technology to improve swallowing and voice production.

The Wheelchair and Positioning Center uses advanced technology and pressure-mapping to measure and evaluate patient body-weight distribution. SmartWheel technology measures propulsion that helps improve mobility and reduce the risk of injury. The Center also provides wheelchair comparisons, training, and follow-up assessments.

Patients of the Marianjoy Assistive Rehabilitation Technology Institute will work with specially trained therapists and clinicians to find solutions to everyday problems of daily living frequently encountered by individuals with disabilities. Assistive technology refers to equipment used to maintain or improve functional capabilities. It has been shown to augment educational, vocational, and recreational opportunities for individuals with functional limitations and disabilities. New technologies can be used to improve mobility, communication, and activities of daily living for the thousands of individuals living with a disability in our community and beyond. By enabling adults and children to lead healthier, more active, and independent lives, assistive technology can support these patients as they work to overcome the challenges that might otherwise impede their ability to participate in daily life.

The Institute consists of seven distinct Centers that apply advancements in technology to benefit individuals with disabilities by maximizing functional independence, as described below:

Using assistive technology, our clinicians will be better able to assess specific body mechanics; test and evaluate therapeutic alternatives; and utilize this knowledge to benefit our patients by helping them maximize their abilities.

Kathleen Yosko, President and CEO of Marianjoy

To learn more about the Marianjoy Assistive Technology Institute, visit www.Marianjoy.org.

MARIANJOY MATTERS

Unlocking the Future: Marianjoy Gives Voice to Locked-In Author

When 33-year old Jos Rodriquez awoke with a bad headache and numbness on his left side, he immediately knew something was wrong. He drove himself to the hospital, where he experienced seizures and was put on life support, as specialists raced to determine the cause. A science fiction/fantasy author in his free time, one of Joss most prized assets is his active imagination. However, he never envisioned what would prove to be his own greatest trial: a brain-stem stroke resulting in cerebromedullospinal disconnection, more commonly known as Locked-In Syndrome. This rare but severe neurological disorder can occur following trauma to the head and brain. Patients who experience disorders of this nature most often include those with Amyotrophic Lateral Sclerosis (ALS), a traumatic brain injury, oras in Joss casea stroke. Typically, the result is complete loss of voluntary muscle control, including movement and speech, except for eye blinks or upward eye movements. Following a stay in the intensive care unit of an acute care hospital, Jos was sent for inpatient rehabilitation at Marianjoy.

In the past, there was little chance for recovery from this level of trauma. However, today, the innovative therapeutic approaches Marianjoy physicians and therapists have learned and developed help to unlock patients like Jos, offering him a greater chance for a meaningful recovery. One development in particular that Jos is grateful for is his ability to communicate. Before coming to Marianjoy, I didnt know if Id ever have the chance to express my words againand for a writer, thats devastating, he said. Fortunately, speech-language therapist Stephanie Bay recognized Jos could use Tobii Eye-Gaze technology to communicate with his eyes. Tobii utilizes an Excel menu, accessible with an optimized cursor

which tracks the movement of the eyes, to enable writing and editing functions for the user. Since beginning his therapy, and with the help of other physical and occupational therapists, Jos has progressed to supporting his communication efforts with a keyboard and traditional mouse. Now, he is also beginning to vocalize single-syllable wordsand with all of these developments, he has a lot to say. The Tobii technology has been fantastic for Jos, says his father. He can use it to send text messages, emails, and calls, along with interacting on Facebook. Its really helped him to stay socially connected. Hes even using the Tobii to write his memoir. I have drawn a lot from my experience, says Jos. Right now, Im trying to put it on paper. I write because once I start, I have to finish.

Beyond regaining his ability to communicate, Jos has also benefitted from therapy with technology for movement. Weve been using functional neuromuscular electrical stimulation (ESTIM or NMES) to assist with re-educating Joss atrophied muscles, especially in his lower extremities, says Marianjoy Physical Therapist Kelly Ball. When he arrived at

Marianjoy, Jos had difficulty sitting up. Working with his physician and therapist, he set a goal to regain his ability to walk. Now, thanks to his hard work, he walks nearly 30 feet every daywith the capability of up to 70. He has truly surpassed any expectations and goals that weve set with him, says Ball, but from the moment I first met him, I was confident he would succeed. He has always been motivated and inquisitive about his condition and his therapy goals. Jos has progressed past my wildest dreamsand I know he will continue to improve.

Jos continues to receive physical, occupational, and speech therapies. My goal now is to be as close as possible to how I was before my stroke, he says. The technology at Marianjoy has helped me to regain a lot of movement from my head down to my right side. An electronic stimulator is giving me some movement on my left side, and I am able to operate my wheelchair, as well as feed myself, with my right hand. Like a real-life hero in the science-fiction stories he writes, Jos has overcome adversity by accessing the latest technological and treatment breakthroughs in the science of rehabilitation at Marianjoy.

Before coming to Marianjoy, I didnt know if Id ever have the chance to express my words again

and for a writer, thats devastating.

Jos Rodriquez, communicating through the use of

Tobii Eye-Gaze Technology

Benefitting from Assistive Technology The Brain Injury team at Marianjoy has a great deal of pride in what Jos has accomplished thus far. He always brings an upbeat, hardworking attitude to his therapy, and his family support is outstanding as well. These have combined to allow us to help transition Jos safely to life at home.

Kelly Ball, Physical Therapist (Right)

Dr. Anjum Sayyad Medical Director, Marianjoy Brain Injury Program

Locked-In Syndrome is an uncommon affliction, but its results are often devastating. Initially, it results in complete quadriplegia, as well as paralysis in much of the face, in which only upward eye movement is preserved.

Marianjoy is well-equipped to assist patients with conditions of this nature. Effective treatment and reestablishment of quality-of-life requires a holistic, multidisciplinary approach by an experienced team of experts. This includes physical, occupational, and speech-language therapies; as well as case management, rehabilitative nursing, assistive technology, and neuropsychology, all under the care and direction of a physiatrist with expertise in Brain Injury Medicine.

Medically, after one year, Jos continues to improve and change. He is able to feed himself soft foods, as well as control his power wheelchair effectively with his right hand. He has full strength in the right side of his body, as well as emerging movement in the left side. He can take steps using a cane with the assistance of a physical therapist. With his augmentative communication equipment, he is even writing a book, detailing his experiences with disability and Marianjoy.

While Locked-in Syndrome is a debilitating condition, it can be effectively treated at Marianjoy offering patients hope for regaining functional and meaningful lives.

MEDICAL INSIGHT

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To see Jos walk, visit www.Marianjoy.org.

Because of Marianjoy...

Jennifer

My life is still full. And, Ive taken on yet another passiongetting the word out about strokes. I want people to know there is life after a stroke and to educate them.

Because of Marianjoy, Jennifer was able to run a 5K race seven months after experiencing a rare stroke and vertebral artery dissection. Through several therapy sessions in Marianjoys Swallowing Center, Jennifer was able to remove her tracheotomy tube and regain the ability to eat and speak safely. With an emphasis on balance and walking in the Vestibular Center, Jennifer was able to get back on her feet and closer to her goal of completing the 5K race.

Melika

I can envision a future where Melika can walk by herself. At Marianjoy, we receive everything that Melika needs. For this, I must say, thank you, thank you, thank you. Melikas Mother

Because of Marianjoy, Melika received the care she needed to walk by herself after a disability, caused by a premature birth, limited her mobility. Working closely with the pediatric outpatient physicians and therapists at Marianjoy, Melika is walking and playing independently.

Marianjoy associates are always humbled when a former patient or family member begins a sentence with the words Because of Marianjoy What follows is an affirmation of the impact that doctors, nurses, therapists, and support staff have on patients through expert rehabilitation. Because of Marianjoy, thousands of adults and children with disabilities each year explore new possibilities, regain independence, and improve the quality of their lives.

The Legacy Project detailed in this issue of Marianjoy Matters was designed to inspire Because of Marianjoy storieslike those shared herefor current and future generations of patients in need of rehabilitation.

Together with donors, Marianjoy Rehabilitation Hospital is creating the future of rehabilitation, ensuring that the community will have access to world-class rehabilitative healthcare for years to come. Behind every inspirational patient story are the generous individuals and organizations whose giving spirit allows Marianjoy to remain at the forefront of innovative rehabilitation services.

This donor-driven campaign is a true partnership among Marianjoy friends, family, staff members, and former patients who have united to shape the future of rehabilitative care. The entire $7.5 million needed for this project will be raised exclusively from the Marianjoy donor community.

Recognizing the visionary donors whose leadership gifts paved the way

WWW.MARIANJOY.ORG

$1,000,000 +Magnetrol International, Inc.

$500,000 + Bon and Holly French

$200,000 + Coleman Foundation, Inc.

$100,000 + Robert and Jane Hilb

Marianjoy Auxiliary

John and Anne Mueller

Northern Trust

$50,000 +

Ball Horticulture

Robert Berry

Will and Kathleen Gillett

Illinois Department of Commerce and Economic

Opportunity

Westlake Health Foundation

Bonnie Wheaton

$25,000 +Maureen Beal

Charles Berndt

Betty Bradshaw

Michael and Mary Ann Hedderman

John and Diane Oliverio

Dorothy OReilly

Kenn and Barb Skora

Pamela Solem

John and Liz Wallerius

Kathleen Yosko

Joseph Zajac

$10,000 + Sandra Beal

Michael and Katherine Birck

John and Susan Brady

Dennis and Sandra Calvanese

Community Foundation of the Fox River Valley

DuPage Community Foundation

Elkay Manufacturing Company

Emil J. and Marie D. Kochton Foundation

Jerry and Linda Girsch

Dr. Mary Keen and Charles Kirchoff

Joseph and Helen Keim

Thomas and Pamela Keiser

Denise LeBloch

Michael and Josephine Lepore

Robert and Norma Lyon

Dr. Nelson and Bridget McLemore

Albert and Mimi Rose

Kathleen Ruroede and Patrick Barry

Dominic and Jeanne Serpico

Betty Smykal

Tim and Priscilla White

$5,000 + Dr. Scholl Foundation

Donald and Cay Fischer

Giving DuPage

Tom and Barbara Hebda

Peter and Heidi Huizenga

Patrick and Mary Beth Kronenwetter

Ed and Brandi Moore

Ismene Munch and Ron Hearlston

Dr. Jeffrey and Todra Oken

Dr. Anjum Sayyad and Sajid Dalvi

Margaret Sindelar

Willis Foundation

James and Susan Young

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Melika plays with parachutes in pediatric therapy.

Jennifer (far right) poses with Marianjoy therapists at the Cadence 5K Run.

Warren

You never realize how important the role of a physical or occupational therapist is until you need them. And without them, I wouldnt be where I am today. I was ready to give up in the beginning, but they kept encouraging me and saw my potential. Im so thankful for that.

Because of Marianjoy, Warren returned to everyday activities, like cooking dinner for his wife, after being diagnosed with Guillain-Barr syndrome, an autoimmune disorder in which the bodys immune system attacks parts of the nervous system.

Warren jokes with his physical therapist during a session.

Because of Marianjoys Donors

26W171 Roosevelt RoadWheaton, Illinois 60187 800-462-2366 www.Marianjoy.org Facebook.com/MarianjoyRehab @MarianjoyRehab

Wheaton Franciscan Healthcare

MARIANJOY Rehabilitation Hospital

Wheaton Downers Grove Oakbrook Terrace Oak Park Palos Heights

26W171 Roosevelt Road, Wheaton, Illinois 60187 800-462-2366 www.Marianjoy.org

InpatIent OutpatIent Subacute phySIcIan clInIcS

ABOUT MARIANJOY Marianjoy Rehabilitation Hospital is a state-of-the-art facility with 127 beds for inpatient and subacute rehabilitation care. Marianjoy offers inpatient rehabilitation programs in stroke; brain and spinal cord injury; musculoskeletal and neuromuscular disorders; and pediatrics. Our Wheaton campus features uniquely designed accessible gardens, a labyrinth, a chapel, and a meditation room. Marianjoy maintains an extensive network of inpatient, subacute, and outpatient sites, as well as physician clinics throughout the Chicagoland area. Marianjoy Rehabilitation Hospital was founded in 1972 by the Wheaton Franciscan Sisters and is a member of Wheaton Franciscan Healthcare.

Over the past 10 years, we have provided patients with high-tech tools that can improve their everyday lives while remaining committed to the compassionate, high-touch care that is a symbol of Marianjoy.

Advances in technology have transformed what is possible for people with disabilities. Re-learning to walk, talk, swallow and regain functionality of a limb is now enhanced with the latest rehabilitation tools.

From a $200 electronic tablet to a $200,000 electronic lift, technology is giving more and more individuals with disabilities the opportunity to increase their mobility and independence.

Please consider using the enclosed envelope to contribute to their independence by helping Marianjoy secure the most advanced equipment for rehabilitation.

High-Touch Meets High-Tech

With the help of Marianjoy therapists, communication efforts are supported with the use of Tobii, an augmentative communication device.