MOLLA ISLAM

PhD Student.Faculty of Health and Wellbeing.

Centre for Health and Social Care Research.

Sheffield Hallam University.

RESEARCH AIM

To enable capacity and capability

with members of a peer advocacy group with a diagnosis of Autism

through the use of Participatory Research Methodologies

RESEARCH OBJECTIVES The main objectives are to:

Develop social skills Develop skills of group work (e.g., organisational

skills) Develop new skills as a co-researchers (on one or

more research projects) Develop new skills in research methods that may

contribute to the development of emergent research methods

Measure what difference my engagement with the group has made to them in terms of contributing to the self monitoring of stress for self management.

AUTISM… SOME FACTS AND FIGURES

Autism is a condition which affects individual's social communication

People have difficulty organising self, life etc.

About 1 in 88 children has been identified with an autism spectrum disorder (ASD) according to estimates from CDC's Autism and Developmental Disabilities Monitoring (ADDM) Network.

AUTISM… SOME FACTS AND FIGURES(Cont…)

ASDs tend to occur more often in people who have certain genetic or chromosomal conditions.

Parents who have a child with an ASD have a 2%–18% chance of having a second child who is also affected.

ASDs are almost 5 times more common among boys (1 in 54) than among girls (1 in 252).

AUTISM… SOME FACTS AND FIGURES (Cont…)

Studies have shown that among identical twins, if one child has an ASD, then the other will be affected about 36-95% of the time. In non-identical twins, if one child has an ASD, then the other is affected about 0-31% of the time.

The majority (62%) of children the ADDM Network identified as having ASDs did not have intellectual disability (intelligence quotient <=70).

RECENT PROJECT OF THE GROUP The stress sensor (Q Sensor) is a device that is

worn on the wrist (similar to a watch).

RECENT PROJECT OF THE GROUP(Cont...)

The stress sensor (Q Sensor) measures the stress level

THE Q SENSOR The sensor (Q sensor) measures

emotional arousal via skin conductance, a form of electrodermal activity that increases during periods of excitement, attention or anxiety and lower during states such as boredom or relaxation. In addition, the sensor also measures temperature and activity, which can be used to differentiate between periods of physical activity and stress. So, not only are high stress levels measurable, but also periods of less stimulation, so that the sensor can indicate when the tour should speed up, as well as slow down.

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FUTURE RESEARCH PROJECT IDENTIFIED BY THE GROUP

Multi-User Virtual Environments

FINDINGS... The use of Participatory Research and my own role as

co-collaborator attending the weekly meetings help them get organised minutes and agenda for the meetings easy read ethics protocol, participant's information

sheet and consent form facebook- (Social Capital) separate web page for the group (Group's identity) separate notice board for the group (Group's identity)

METHODOLOGY

Influence of Participatory Research Methodology Participatory Action Research (PAR)

METHODS Mood Diary

Participation with Consent form

Facebook

Correlating digital data with mood diary data

GIVING SOMETHING BACK…

Shared presentations

Shared Publication

Put in a bid with CLAHRC

THANK YOU…