NCHS and Public Health Data Standards

Centers for Disease Control and PreventionNational Center for Health Statistics

Mission of CDC’s Mission of CDC’s National Center for Health National Center for Health

Statistics:Statistics:

“NCHS monitors the nation’s health, providing statistical information that will guide actions and policies to improve the health of the American people.”

NCHS and PHDSC NCHS and PHDSC

•Long history of involvement in development and implementation of data standards

•Early supporter of PHDSC; housed initial organization

•Founding member of PHDSC

•Current collaborative projects

•Web-based Resource Center

•Health Care Service: Data Reporting Guide

Vision for 21Vision for 21stst Century Health Statistics Century Health Statistics

Influences on the Population's HealthInfluences on the Population's Health Place & Time

Context

NaturalEnvironment

Cultural Context

Political Context

Community AttributesBiological Characteristics

Social

Built Environment

Health Services

Economic

Population-basedHealth Programs

Collective Lifestylesand Health Practices

The Population’s HealthLevel Distribution

DiseaseFunctioningWell-being

Vision for health statistics Vision for health statistics enterprise: ten guiding enterprise: ten guiding

principlesprinciples•Enterprise-wide

planning

•Broad collaboration

•Protection of privacy, confidentiality and security

•Flexibility to address emerging data needs

•Use of data standards

•Sufficient detail at all levels

•Timely production

•Integrated and streamlined data collection

•Appropriate access and ease of use

•Continuous evaluation

Major NCHS Data SystemsMajor NCHS Data Systems

•National Vital Statistics System

•National Survey of Family Growth

•National Health Interview Survey

•National Health Care Survey

•National Health and Nutrition Examination Survey

•State and Local Area Integrated Telephone Survey

National Vital Statistics National Vital Statistics SystemSystem

National Vital Statistics National Vital Statistics SystemSystem

•57 reporting areas

•Decentralized

•US historical development-self-governing States

•Nothing on registration in US Constitution

•Responsibility based in state law

•Responsibility with provider of services

Vital Statistics Vital Statistics

•Core of our health data system

•Base for public health, social science, economic planning and program development

•Monitor key indicators of health world-wide

•Track progress to goals

•Identify disparities

•Alert to emerging problems

Promoting Consistency and Promoting Consistency and UniformityUniformity

Promoting Consistency and Promoting Consistency and UniformityUniformity

• Model State Vital Statistics Act and Regulations

• Standard Certificates and Reports – standardized worksheets

• Training materials – handbooks, videos, instruction manuals

• Technical assistance – ICD 10

• Software – ACME, MICAR, etc…

Future for Vital StatisticsFuture for Vital StatisticsFuture for Vital StatisticsFuture for Vital Statistics

Revised Birth Revised Birth CertificateCertificate

Revised Death Revised Death CertificateCertificate

Re-engineering Vital Re-engineering Vital StatisticsStatistics

•Automation of records at the source

•Flexibility to revise rapidly, address new data needs

•Speed the flow of data

•Implemented by states along with new standard certificates

•Protocols and standards

Back Office Use Cases DiagramBack Office Use Cases Diagram

Vital Statistics Messaging Vital Statistics Messaging ProjectProject

•To establish standardized messaging for vital events consistent with PHIN

• Joint project – PHDSC, NAPHSIS, State representatives, CDC, and NCHS

•Recognizes value of including vital statistics with its strong state-based system in PHIN

•Next step: Identify state partners for testing and development

Major NCHS Data SystemsMajor NCHS Data Systems

•National Vital Statistics System

•National Survey of Family Growth

•National Health Interview Survey

•National Health Care Survey

•National Health and Nutrition Examination Survey

•State and Local Area Integrated Telephone Survey

Standardizing dataStandardizing data from multiple sources from multiple sources

Standardizing dataStandardizing data from multiple sources from multiple sources

•Medical records from doctors’ offices, inpatient and outpatient hospital care

•Facility questionnaires

•CAPI interviews in the home

•Clinical and laboratory tests

•Medical examination findings

International Standards International Standards Setting Setting

•WHO’s Family of International Classifications•International Classification of

Diseases •International Classification of

Functioning and Disabilities•Summary health measures• Interview and examination survey

methodologies • International Collaborative Efforts

•Injury•Automated Mortality Coding

NCHS support for WHO NCHS support for WHO standards in mortality codingstandards in mortality coding

•NCHS developed automated coding system for mortality data, based on ICD

•Distributes software at no charge

•Offers international ICD coder training course at RTP

•NCHS’s ICE on Automation promotes automated system via meetings, symposiums

•Automation seminar for Eastern European nations in June 2004

Conference FormatConference Format

•Theme: Data for the Public

•Workshop Sessions ( 1 ½ hours)

•Overview of Programs

•In-depth Program Analysis

•Cross-Cutting Issues, such as Data Standards

•Hands-On

•Exhibits – NCHS, CDC and vendors

•Focus groups

Conference RegistrationConference Registration

2004 Invitation: to be mailed soon and will be available also on-line