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NCHS Research Data Center

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NCHS Research Data Center. Wilbur C. Hadden. What is the Research Data Center?. A NCHS data access program An office, with staff, within NCHS A physical space, with security A research facility, with computers. Access to NCHS Data. Public use data files Restricted access Tabulations - PowerPoint PPT Presentation
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Centers for Disease Control and Prevention NCHS Research Data Center Wilbur C. Hadden
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Page 1: NCHS Research Data Center

Centers for Disease Control and Prevention

NCHS Research Data Center

Wilbur C. Hadden

Page 2: NCHS Research Data Center

What is the Research Data Center?

• A NCHS data access program• An office, with staff, within NCHS• A physical space, with security• A research facility, with

computers

Page 3: NCHS Research Data Center

Access to NCHS Data

• Public use data files• Restricted access• Tabulations• Reports, publications, web-site• Journal articles

Page 4: NCHS Research Data Center

Authority for Confidentiality

• Public Health Service Act, section 308(d)

• Informed consent of survey participants and data providers

Page 5: NCHS Research Data Center

Identified Data

• Data records are identified by unique data elements • Name• Social Security Number• Hospital ID number

Page 6: NCHS Research Data Center

Identifiable Data

• Data are made identifiable with data elements that can be related to unique identifiers• Address• Size – e.g. number of beds, height• Specialization – e.g. having a level 1

shock trauma center, or being a farm owner/manager

Page 7: NCHS Research Data Center

Statistical Disclosure

• When information on data providers can be inferred from published data

Page 8: NCHS Research Data Center

Data Accessible in RDC

• Data that are potentially identifiable

• Physician age and sex in NAMCS• Data linked to geographic identifiers• State, county, Census tract

• Data linked to provider characteristics• Hospital size

Page 9: NCHS Research Data Center

RDC Data Access Methods

• On-site access• Remote access• RDC staff assistance /

collaboration

Page 10: NCHS Research Data Center

Data Preparation

• Users cannot take data into RDC• RDC staff prepare data files for

users• Users can provide data to RDC staff• NCHS policy is not to release user

data to others• RDC staff will link user data to

NCHS data

Page 11: NCHS Research Data Center
Page 12: NCHS Research Data Center

On-Site Access• Controlled access facility• Isolated computer network• No e-mail• No internet

• No mountable media on computers• Users cannot take materials into

computer room• No more than 3 users per project

Page 13: NCHS Research Data Center
Page 14: NCHS Research Data Center

Output Disclosure Review

• Only printer is located behind locked door• RDC staff person retrieves

output• Disclosure review performed

before output given to users

Page 15: NCHS Research Data Center

Remote Access

• Send SAS programs to RDC by e-mail• SAS program scanned – a few SAS

commands and not allowed• Program executed• Automated disclosure review of

program output• Output returned by e-mail

Page 16: NCHS Research Data Center

Software in RDC

• SAS (only language available on ANDRE)

• SUDAAN• Fortran• HLM• Stata• Limdep• text editors/viewers

Page 17: NCHS Research Data Center

To Gain Access to NCHS RDC

•Visit the RDC (optional, but suggested)•Discuss proposal with RDC staff•Submit research proposal•Discuss proposal with RDC staff and revise•Pass NCHS review of proposal•Sign “Research Affidavit of Confidentiality”

Page 18: NCHS Research Data Center

Proposal Contents

• Identification of researcher(s)• Source of funding• Description of proposed research• Detailed specification of data sought• Detailed specification of any user

supplied data• Software requirements

Page 19: NCHS Research Data Center

Proposal Evaluation Criteria

•Risk of disclosure of confidential data•Scientific merit and technical feasibility•Availability of resources in RDC•Consistency with NCHS mission

Page 20: NCHS Research Data Center

Cost per Project

File construction and setup

$500 per day

On-site $1000 per week

Remote Access NSFG-CDF $500 per year NHIS-polio $500 per year Files < 130k records $500 per

month Files > 130k records $1000 per

month

Page 21: NCHS Research Data Center

Number of RDC Clients

2000 2001 2002*

Remote Access 7 3 3On Site 4 10 11Staff Programming 1 1 5

*January to July 2002

Page 22: NCHS Research Data Center

Jobs Processed at RDC

2000 2001 2002

*Remote Access 888 441 456

On Site 570 1006 1645Staff Programming 81 212 760

*January to July 2002

Page 23: NCHS Research Data Center

Projects by Data System

2000 2001 2002*

NHIS 6 7 8NSFG 3 7 8NHANES 1 2 1NAMCS 1 1 4Other -- 2 5*January to July 2002

Page 24: NCHS Research Data Center

http://www.cdc.gov/nchs/r&d/rdc.htm


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