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NN/LM PSR Regional Advisory
Committee Meeting
Alan Carr, Acting Associate DirectorNational Network of Libraries of Medicine
Pacific Southwest Region (NN/LM PSR)UCLA Louise M. Darling Biomedical Library
March 27, 2013
Program Overview
NN/LM– Mission, Goals and Objectives– Structure– Pacific Southwest Region– 2011-16 Proposal
NN/LM PSR – Network & Outreach Programs – Communication Tools
National Network of Libraries of Medicine (NN/LM)
Nationwide network of libraries and information centers that have health collections and provide health information services
Funded and administrated by the U.S. National Library of Medicine (NLM)
Mission
To advance the progress of medicine and improve the public health
Providing U.S. health professionals with equal access to biomedical information
Improving the public’s access to information
Goals To develop collaborations with Network
libraries to improve access to and sharing of biomedical information resources throughout the nation;
To promote awareness of and access to biomedical information resources for health professionals and the public; and
To develop, promote, and improve access to electronic health information resources by network member libraries, health professionals, and organizations providing health information to the public.
Objectives
Developed in response to a Request for Proposals (RFP) - 5-year NLM contract
16 Network Program objectives 7 Outreach Program objectives Regional objectives determine the services
that are provided The Regional Advisory Committee (RAC)
provides input on the objectives
Types of Services Provided
Training and Assistance Exhibits and Presentations Access to Health Information
Resources and Services Educational Brochures Funding Consulting and Referrals
NN/LM Structure 8 Regional Medical Libraries (RMLs) Over 140 Resource Libraries Nearly 6,000 Network members 3 National Centers
– National Training Center – Outreach Evaluation Resource Center– Web Services Technology Operations
Center
NN/LM Pacific Southwest Region
Extremely diverse culturally, ethnically, racially, and linguistically
Population distribution (urban, rural) 14 million speak languages other
than English at home Growing senior population Medically underserved
New Objectives for 2011-16
Continue with emergency preparedness
Continue e-licensing program with SCELC
Retention of selected print publications
Assist librarians in promotion of evidence-based health information
Promote the role of libraries in e-science
Promote programs with RECs Promote the role of libraries with
CTSAs
2011-16 National Initiatives
Promotion of MedlinePlus Connect Outreach to Community Colleges Promotion of ClinicalTrials.gov
Results K-12 Outreach Science Boot Camp
Regional Advisory Committee (RAC)
Provides advice and feedback – Assessing regional needs– Program development, priorities
Communicates and promotes programs
Identifies health professionals, others lacking adequate health information access
RAC Representation (16)
Health professionals Health sciences librarians Public and school libraries Health information consumer
groups Community colleges Community-based organizations
Full and Affiliate Members in the Pacific Southwest Region
Full Affiliate Total
Arizona 37 50 87
California 233 195 428
Hawaii 13 10 23
Nevada 14 10 24
Pacific Basin
4 8 12
PSR 301 273 574
Network Members in the Pacific Southwest RegionAcademi
cHospital Public Other
Arizona 24 39 14 10
California
125 215 31 57
Hawaii 8 10 1 4
Nevada 9 7 5 3
Pacific 2 7 1 2
PSR 168 278 52 76
How are libraries changing?
Retirements! Vacancies may not be filled.
New roles for librarians. Chains are consolidating
libraries/services. Some hospital libraries are being
eliminated/downsized due to budget cuts.
Some hospital libraries are being merged with other departments.
Key Network Programs
Membership– Educational materials– Funding for outreach projects
DOCLINE & Document Delivery– Implementing regional document delivery
plan– Contributing to DOCLINE development– Providing training and support
DOCLINE Trends
DOCLINE usage has decreased 46% since 2002; 8% in the last year
Loansome Doc usage has decreased 68% since 2002
NLM is investigating the declining trends
Currently conducting resource sharing survey with DOCLINE libraries
Outreach Program Areas
Health Professionals and Public Health Workers
Consumers Exhibits and Presentations Information Technology and Policy
Awareness Technology Improvement
Outreach to Health Professionals
Target health professionals who lack easy access to biomedical information; such as community health and public health workers
Outreach funding awards Minority institutions (community
colleges) E-science initiatives
Consumer Health Information Services
Target public libraries, community-based organizations
Focus on those who serve minorities, senior citizens, other special populations
Collaborate on NN/LM K-12 cross regional initiative
Develop culturally sensitive materials, classes
Provide outreach project preparation assistance
Communication Tools
PSR-News Announcement List Midday at the Oasis Webinars Latitudes and NewsBits Blogs Facebook page Twitter Feed
– HootSuite to Manage and Schedule Tweets
Blog Usage StatisticsArticles February 2013 Views
New Children’s Electronic Health Record Format Announced!
139
Changes to Northern California Kaiser Permanente Libraries DOCLINE Accounts
137
Update on NIH’s Public Access Policy
131
Demographic Report on Asian American, Native Hawaiians and Pacific Islanders in California
129
Call for Proposals: MLGSCA/NCNMLG 2013 Joint Meeting July 24-26 at UCSD
127
Publisher Supplied Author Keywords Now Displayed in PubMed!
118
Your Ideas!
How do you use social media to promote your programs and/or services?
What strategies have worked well?
MedlinePlus Connect Initiative
Kelli Ham, MLISConsumer Health and Technology Coordinator
NN/LM Pacific Southwest Region
What is MedlinePlus Connect?
Behind the scenes system that connects information in the electronic health record to information in MedlinePlus
Works for diagnoses, lab tests and medications
MedlinePlus Connect Task Force
Define audience Learn about the target community’s
needs and available resources Articulate outcomes Track and evaluate outreach efforts Identify best practices Share findings
Potential Audiences
Medical librarians RECs FQHCs HIT personnel
– Hospitals and other healthcare organizations
– Community college HIT program faculty Vendors (NLM)
Potential Barriers
Lack of awareness (even at basic MedlinePlus level)
Fear that ‘free’ equates to low quality or extra work
Vendors – no financial incentive
What have we done so far?
Defined audiences Key informant interviews Convened day-long meeting
– Consensus that toolkit would be most helpful
– Brainstormed contents of toolkit– Future meetings will continue the work
Kay Deeney, MLS, AHIPEducational Services CoordinatorNN/LM Pacific Southwest Region
Outreach to Community Colleges
Task Force
Facts about Community Colleges
Train everyone from EMTs to Health IT to RNs
Multi-disciplinary library staff! Library as place Faculty collaboration
NLM National Initiative for Community College Outreach
Articulate desired outcomes for outreach to community colleges, for example: – links to MedlinePlus, PubMed – training activities – partnerships with NN/LM – membership in NN/LM – links to MedlinePlus Connect
Learn about the target community’s needs and available resources
NLM Initiative, continued
Determine how outcomes will be measured, how data will be collected, and a timeline for activities
Identify and document effective practices for providing health information outreach to community college community
Communicate findings to the NN/LM community and stakeholders
What have we done with CCs so far?
Phone interviews with community college librarians and faculty
Pilot training Jan, 2012 with Shasta College, Redding, CA
LibGuide for community college library training, April 2012 – http://guides.nnlm.gov/content.php?pid=330235
&sid=3297873
– 4 Classes– PubMed, MedlinePlus, Mobile Apps, Special Populations
Roundtable discussion at AzLA
Lori TagawaCommunity Outreach CoordinatorNN/LM Pacific Southwest Region
March 27, 2013
ClinicalTrials.gov Results Task Force Update
ClinicalTrials.gov
A registry and results database of publicly and privately supported clinical studies of human participants conducted around the world
142,567 studies with locations in all 50 states and in 183 countries
95 million page views per month and 60,000 unique visitors daily
ClinicalTrials.gov: Contents
Find and view clinical studies– Search for open clinical studies– Browse studies by category or location– Search for studies that include
results Learn more about clinical research Manage study records Use site tools and data
ClinicalTrials.gov website
http://clinicaltrials.gov/
ClinicalTrials.gov Results Database
Launched in September 2008 to implement Section 801 of the Food and Drug Administration Amendments Act of 2007 (FDAAA 801)
Results information includes– Participant flow– Baseline characteristics– Outcome measures and statistical analyses– Adverse events
8,500 studies with results
ClinicalTrials.gov Results Database: Purpose
Provide public record of basic study results in a standardized format
Promote fulfilling of ethical responsibility to participants; use of research results to contribute to medical knowledge
Mitigate "publication" and "outcome reporting" biases
Facilitate systematic reviews and other analyses of the research literature
ClinicalTrials.gov Results Task Force: Charge
1. Identify priority target populations2. Learn about target populations’ needs and available
resources3. Determine extent of existing promotional efforts4. Articulate desired outcomes5. Develop logic model to describe how outcomes will
be achieved6. Determine how outcomes will be measured, how
data will be collected, and timeline for activities7. Make recommendations to NLM about how best to
promote on a national level8. Communicate findings to NN/LM community
ClinicalTrials.gov Results Task Force: Audience and Goals
Primary: Educate health sciences librarians and researchers as to the availability of the results
Secondary: Inform health sciences librarians and researchers of the obligation to report
ClinicalTrials.gov Results Task Force: Outcomes of Training
Greater use of database Incorporation of database in other
training Increase of compliance Increase in results
ClinicalTrials.gov Results Task Force: Strategies
NN/LM– Moodle course (3.0 MLA CE, pending)– Short presentations (30-60 minutes)
NLM– Educational materials– Results Database Train-The-Trainer
Workshop
Presentations
Abstract: “…Taught by an experienced medical librarian, this presentation will describe ways in which ClinicalTrials.gov can be a resource for researchers and clinicians, as well as provide a brief overview of requirements for registering and reporting results of clinical trials… In addition to submitting their own studies, researchers can find previous unreported study results, investigate research funded by particular sources and find potential collaborators on future projects.”
Registering for Clinical Trials
http://prsinfo.clinicaltrials.gov/registering.pdf
Train the Trainer Workshop
http://clinicaltrials.gov/ct2/manage-recs/present#ResultsTrainTrainer
Discussion
What strategies should be utilized to identify and train researchers on ClincialTrials.gov Results?
K-12 Outreach Initiative
Kelli Ham, MLISConsumer Health and Technology Coordinator
NN/LM Pacific Southwest Region
K-12 Task Force
Define audience Learn about the target community’s
needs and available resources Articulate outcomes Track and evaluate outreach efforts Identify best practices Share findings
Task Force Approach
Voluntary participation by region Regional approach varies greatly
– Educators – School librarians– School nurses– Public librarians– Students
What have we done with K-12 so far?
Defined primary audience and types of outreach– Training to educators – Outreach at conferences via exhibits
In the process of creating tracking and evaluation tools
PSR’s Recent Activities
Exhibits and presentations at school nurse association conferences
In process of identifying magnet schools in California with emphasis on environmental science and medical career track curriculum
Arizona outreach
Some Great Resources
http://kidsenvirohealth.nlm.nih.gov/
Afterschool Science Club Curriculum
From ToxTown For teachers or
science clubs Classroom
Activities Interactive
Resources Career Exploration
http://www.toxtown.nlm.nih.gov/text_version/teachers.php