PowerPoint PresentationA Review of Selected Models of PHA
Intervention and Leadership
Purpose
• To explore intervention research methodologies;
• To identify an outline for an APHA Leadership community-based
research proposal.
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20/03/13 CAAN APHA
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How many APHAs are there?
As of 2011, the Public Health Agency of Canada (PHAC) estimates
that there are 6,380 Aboriginal people living with HIV/AIDS
(6,380/71,300 = 8.95%). The estimated number of Canadians living
with HIV/AIDS is 71,300 (71,300/34,482,779 = .21%)
The estimated percentage of Aboriginal PHAs in the total Aboriginal
population is .55% (6,380/1,172,785).
PHAC estimates that there are 17,980 people living with HIV who do
not know they have it. At this time we do not know how many
Aboriginal people are among the undiagnosed.
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How many APHAs are there?
These figures tell us there is a great need for mentoring and
capacity building for APHAs who come from diverse locations and
backgrounds. Confidentiality, privacy, anonymity and safety are
common issues for many APHAs who are fully engaged in the lives of
their families, communities and workplaces. There are also APHAs
who have disclosed their HIV status publically and continue to be
actively involved in HIV/AIDS awareness and prevention and care,
treatment and support initiatives across Canada.
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How many people are affected by HIV/AIDS?
If each APHA has 10 immediate relatives (partner with 3 children
and 2 parents and 4 siblings)….this would mean there are an
additional 63,800 Aboriginal people affected by HIV/AIDS.
If each APHA has 30 relatives in their immediate extended
family…this would mean there are an additional 191,400 Aboriginal
people affected by HIV/AIDS.
These estimates total 255,200 people which comprises 21.76% of the
total Aboriginal population in Canada (Census 2006)
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Multiple Loss Journey
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Loss of identity and assumptive world (the life we take for
granted).
Complexity of Losses
– Community of meaning
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• Full voting membership by APHAs.
• APHAs involved in research projects and committees.
• APHAs make resolutions to the CAAN Board at the annual APHA
Caucus meeting.
Model 2 Annual International Two-Spirit Gathering
• Organized by Two-Spirit people who were experiencing the first
wave of the HIV pandemic.
• The Vancouver group GVNCS began in 1979 and is still active 34
years later.
• There are 15 groups in Canada and the US. 2- Spirited People of
the 1st Nations was founded in 1989.
• Regional leaders have facilitated communication, advocacy and
access to culturally safe events.
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• Must have a minimum of 3 directors.
• Provide annual report to Corporations Branch.
• Can apply for Charitable Tax Number.
• Can apply for funding to meet organizational mission and
objectives.
• Hold an annual general meeting (AGM) to report to service
users/public. Provide audited financial statements.
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• Can hire staff to deliver projects.
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Model 4 PHA Caucus (Independent or Org. Program)
POSITIVE LIVING BC provides a comprehensive suite of programs and
services. These are generally offered FREE but to Members only,
although some require an appointment to be booked in advance.
Most are available at the POSITIVE LIVING BC offices, with several
available on a daily basis during opening hours of 10:00am to
4:00pm. This includes the Members Lounge, iCafe computer room and
the Advocacy service. There is also a daily schedule of Health and
Wellness sessions and regular meetings of social Groups.
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Model 4 PHA Caucus (Independent or Org. Program)
Peer Navigators are trained and educated on the health issues
surrounding HIV/AIDS, STIs, self care, disease progression and
safer sex. Through a series of supportive discussions, they use
everyday language instead of jargon or medical terminology to make
topics easier to understand.
Their role is to support you in gaining knowledge and developing
HIV self-management strategies, providing you with the important
information you will need to achieve your goals while living with
HIV.
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• Healing Our Spirit BC Aboriginal HIV/AIDS Society (APHA Advisory
Group)
• Since 1999, it has been reported that there are over 1,000 APHAs
in BC.
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Red Road HIV/AIDS Network
• Active group on Facebook
• Status updates include HIV/AIDS related information
• Contact/support with other APHAs
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• Cost of equipment
• Cell phone $80/mon
Doorway 1 • Agency Support
Doorway 2 • Peer Support
Doorway 3 • Individual/Buddy Support
Doorway 4 • Elder/Traditional Support
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• Elders will do healing work with IDU’s
• IDU identified as mode of transmission for 53% of APHAs in
Canada
• Healing the healer
Model 7 Positive Leadership Development Institute
The Positive Change Makers Program was evaluated and found to be an
extremely effective (Tangelder, 2010); one of its recommendations
is: to identify strategies for involving more youth, northern
communities, and Aboriginal communities in the program.
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Model 7 Positive Leadership Development Institute
• Three module training (Core Leadership Training, Communication
Skills Training and Bored? Get on Board!) for people living with
HIV and offers PHAs an opportunity to identify and develop
leadership skills.
• Core Leadership Training seeks to answer the question: “Who am I
as a Leader?” The three main goals of the training are:
- To identify personal values and philosophy; - To develop
leadership skills and practices; - To gain community knowledge and
awareness.
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Model 7 Positive Leadership Development Institute
The curriculum objectives for the training are for participants to
have the opportunity:
• To understand the 5 principles and 10 commitments of
leadership
• To realize individual leadership potential • To participate in
building a network of leaders
within the PHA community • To realize the potential and strengths
that each
individual brings to the network
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Model 7 Positive Leadership Development Institute
• To learn about and practice leadership skills in a safe
environment
• To inspire others to become leaders • To encourage participants
to take on facilitator
and mentoring roles within the community • To expand participants
awareness of our
community
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Model 8 Canadian AIDS Society: One Foot Forward
One Foot Forward: A GIPA Training Toolkit is a collection of nine
educational modules designed by and for people living with HIV/AIDS
to assist them in building capacity and in acquiring leadership
skills that promote their greater and more meaningful involvement
in communities across the country.
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A plain-language, bilingual resource, One Foot Forward offers
training on: - the principle of greater involvement (GIPA); -
effective, knowledgeable leadership; - identity, diversity and
disclosure issues; - community-based AIDS organizations; - boards
and governance; and - working effectively in groups.
• CAS member groups provide services to APHAs
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Manitoba First Nations AIDS Working Group
• Female and male APHA representation
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Do I know how to sound my voice?
Does my voice matter?
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• Mentor and tutor • Skills development • Reading, writing &
computer literacy • Speaking skills • Policy training • Credibility
• Evidence-based advice • Include Two-Spirit and trans •
Representative of region • Consulting with & reporting back to
APHAs
Intervention Research
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Intervention Research
Police detain APHA who tried to provide harm reduction tools to
at-risk peers.
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idle no more…