NOTICE/AGENDA THE PUBLIC MAY LISTEN IN BY CALLING: 1-800-839-9416 PARTICIPANT CODE: 298-2825 STATE COUNCIL ON DEVELOPMENTAL DISABILITIES SELF-ADVOCACY ADVISORY COMMITTEE MEETING POSTED AT: www.scdd.ca.gov DATE: January 14, 2019 TIME: 1:00 PM – 5:00 PM MEETING LOCATION: Hilton Sacramento Arden West 2200 Harvard St. Sacramento, CA 95815 COMMITTEE CHAIR: ROBERT TAYLOR Item 1. CALL TO ORDER Item 2. WELCOME AND INTRODUCTIONS Item 3. ESTABLISH QUORUM Item 4. PUBLIC COMMENTS This item is for members of the public only to provide comments and/or present information to the Committee on matters not on the agenda. Each person will be afforded up to three minutes to speak.
Transcript
NOTICE/AGENDA
THE PUBLIC MAY LISTEN IN BY CALLING: 1-800-839-9416 PARTICIPANT CODE: 298-2825
STATE COUNCIL ON DEVELOPMENTAL DISABILITIES SELF-ADVOCACY ADVISORY COMMITTEE MEETING
POSTED AT: www.scdd.ca.gov
DATE: January 14, 2019
TIME: 1:00 PM – 5:00 PM
MEETING LOCATION: Hilton Sacramento Arden West 2200 Harvard St. Sacramento, CA 95815
COMMITTEE CHAIR: ROBERT TAYLOR
Item 1. CALL TO ORDER
Item 2. WELCOME AND INTRODUCTIONS
Item 3. ESTABLISH QUORUM
Item 4. PUBLIC COMMENTS
This item is for members of the public only to provide comments and/or present information to the Committee on matters not on the agenda. Each person will be afforded up to three minutes to speak.
A. REVIEW OF COUNCIL AGENDA a. REVIEW OF COUNCIL VOTING ITEMS
B. REVIEW OF SCDD AGENCY ADMINISTRATION/MANAGEMENT ITEMS
ITEMS RELATED TO COUNCIL BUSINESS ARE
INCLUDED IN THE COUNCIL PACKET.
Item 9. SAAC RECOMMENDATION/INPUT TO THE COUNCIL
A. JANUARY 15, 2019 COUNCIL MEETING AGENDA ITEMS
B. GENERAL RECOMMENDATIONS/INPUT TO THE COUNCIL
Item 10. SSAN REPORT
A. HIGHLIGHTS FROM DECEMBER MEETING B. 2017-2018 SSAN ANNUAL REPORT
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Item 11. COMMITTEE AND OTHER UPDATES
A. MEMBERSHIP COMMITTEE B. STATE PLAN COMMITTEE
Item 12. UPDATES AND STANDING AGENDA ITEMS
FOR 2019
A. HEALTHCARE B. EMERGENCY MANAGEMENT C. HOUSING D. PUBLIC BENEFITS
ADDITIONAL AGENDA ITEMS AND MEETING TOPICS MAY ARISE THROUGHOUT THE YEAR DEPENDING ON COUNCIL, STATE AND NATIONAL PRIORITIES.
Item 13. ADJOURNMENT
Accessibility:
Pursuant to Government Code Sections 11123.1 and 11125(f), individuals with disabilities who require accessible alternative formats of the agenda and related meeting materials and/or auxiliary aids/services to participate in this meeting should contact (916) 263-7919. Requests must be received by 5 business days prior to the meeting.
Materials:
Meeting documents and presentations for an agenda item must be submitted to SCDD no later than 2 business days prior to the meeting.
1 A call-in phone line will be available so that members of the public can call in and listen to this meeting, provided there are no unforeseen technical difficulties or other limitations. The meeting will not be cancelled if the call-in phone line is not available. If you wish to participate or to have a guaranteed opportunity to observe and participate, please plan to attend at a physical location.
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NOVEMBER 28, 2018 MINUTES
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Legend: SA = Self-Advocate FA = Family Advocate Page 1
Members Present Members Absent Others AttendingSandra Aldana (SA) Jeana Eriksen (SA) Matthew Lagrand (SA) Maria Marquez (SA) Kimberly Risser (SA) Robert Taylor (SA) Wesley Witherspoon (SA)
Charles Nutt (SA)
Rihana Ahmad Aaron Carruthers Jana Chapman-Plon Alicia Christianson Riana Hardin Leah Hollis Nicole Patterson Alicia Christianson Cindy Smith Chris Snyder
1. CALL TO ORDER
Robert Taylor (SA) called the meeting to order at 1:02 PM.
2. WELCOME AND INTRODUCTIONS
Everyone present introduced themselves.
3. ESTABLISHMENT OF QUORUM
A quorum was established.
4. PUBLIC COMMENT
There was no public comment.
5. APPROVAL OF SEPTEMBER 17, 2018 MINUTES
Members reviewed the minutes from the September 17th meeting.
It was moved/seconded (Eriksen [SA]/Witherspoon [SA]) and carried to approve the September 17th minutes with the suggested changes (Unanimous, see attending members for voting record).
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Amendment
Corrections were made to the voting log from the September meeting.
6. INDIVIDUAL MEMBER ACTION PLANS AND MEMBER UPDATES
SCDD Self-Advocacy Coordinator Riana Hardin provided Committee Members with a history of the Individual Member Action Plan Template. Members discussed the purpose of this item. The following purposes were covered: 1. Help committee members to track their individual activities and projects in between meetings 2. Identify trends in needs and barriers across California that prevent people with I/DD from participating in their communities. Members discussed the differences in learning styles and the difficulty of developing one form that would be useful for all Committee members.
The following motions were made:
It was moved/seconded (Risser [SA]/Wetherspoon [SA]) for SAAC to adopt template #3 of the Member Action Plan. (For: Lagrand, Against: Aldana [SA], Erikson [SA], Marquez [SA], Risser [SA], Taylor [SA], Witherspoon [SA]) Motion Failed.
It was moved/seconded (Risser [SA]/Lagrand [SA]) and carried for SAAC members to use multiple formats to assist them to report their activity in-between meetings. (Unanimous, see attending members for voting record).
7. YEAR END SAAC REVIEW
Committee Chair, Councilmember Taylor, reviewed the themes and accomplishments of the committee for 2018 and expressed his vision for 2019. Topics that emerged for focus in 2019 were: emergency preparedness, access to healthcare services, bullying, transportation, and self-determination.
8. REVIEW OF COUNCIL BUSINESS
SCDD Executive Director Aaron Carruthers provided members with an update on the Council policies, the State Council’s budget, the impact of
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the State and Federal Government on the SCDD and other Council Business.
9. SAAC RECOMMENDATIONS TO THE COUNCIL
The Committee reviewed and discussed the impact of Council business on Californians with I/DD. The following recommendations will be presented to the Council during the November 29th meeting:
It was moved/seconded (Eriksen [SA]/Witherspoon [SA]) and carried to approve support for proposed changes to the Sponsorship Policy. (Unanimous, see attending members for voting record).
It was moved/seconded (Witherspoon [SA]/Marquez [SA]) and carried to recommend approval of the Membership and Executive Committees’ recommendation to allow former Council members to be appointed to their local RAC/SDAC immediately after expiring off the Council provided that the member applies and is appointed by the Membership Committee to the Council for consideration. (Unanimous, see attending members for voting record).
It was moved/seconded (Risser [SA]/Marquez [SA]) and carried to recommend giving delegated authority to the Executive Committee to finalize the updates to the Council Policies. (For: Eriksen [SA], Lagrand [SA], Marquez [SA], Risser [SA], Taylor [SA], and Witherspoon [SA]. Against: Aldana [SA]).
It was moved/seconded (Risser [SA]/Eriksen [SA]) and carried to recommend approval of the 2019-2020 LPPC Legislative Platform. (Unanimous, see attending members for voting record).
It was moved/seconded (Risser [SA]/Marquez [SA]) and carried to recommend approval of the sponsorship request from Adaptive Learning Center for their event “Going to College with a Disability”. (Unanimous, see attending members for voting record).
10. SSAN REPORT
Councilmember Witherspoon (SA) provided the committee with an update on the Statewide Self Advocacy Network and informed members that SSAN would be meeting in early December.
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11. COMMITTEE AND OTHER UPDATES
Committee members shared updates from other Council Committees and were refered to the committee minutes included in the Council Packet.
12. TOPICS OF ONGOING DISCUSSION
Members shared updates related to access to transportation, affordable housing, bullying, building access standards, emergency preparedness, employment, social benefits, voting, and self-determination.
13. TOPICS FOR FUTURE DISCUSSION
Committee members will email agenda items for the next meeting by December 14th.
14. ADJOURNMENT
The meeting was adjourned at 4:50 P.M.
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SCDD TRAINING SURVEY TOOL
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SAAC AGENDA ITEM DETAIL SHEET
ISSUE: SCDD Training Survey
SUMMARY: The Self Advocates Advisory Committee (SAAC) strives to be a voice for all Californians with disabilities by promoting State Council participation and peer advocacy that advances independence and inclusion. SAAC accomplishes this by doing one of the following: speaking up for people with disabilities, learning about issues important to people with disabilities, advising the State Council and staff on issues that affect self-advocates, sharing information about the rights of self-advocates, assisting people with disabilities to be on boards and committees and participating in and leading regional and statewide advocacy groups/networks. Within the capacity of an advisory committee, staff would like SAAC to review the DRAFT SCDD Training Survey. A tool used during regional and statewide trainings for its usability for self-advocates.
BACKGROUND/ISSUES: The SAAC is a committee of the Council that serves as a voice for all Californians with disabilities by promoting State Council participation and peer advocacy that advances independence and inclusion. Regional office staff conduct trainings in the community to educate and build capacity of self and family advocates in California. To determine the effectiveness of a training and measure the impact of the material used in a training, staff use surveys. The survey tool is also a requirement from The Administration on Intellectual and Developmental Disabilities (AIDD) as a part of the reporting process for the SCDD.
Council Staff would like SAAC, as an advisory committee, to provide feedback on the usability and ease of understanding of the DRAFT SCDD Training Survey.
ANALYSIS/DISCUSSION: In preparation for the discussion at the January SAAC meeting, SAAC may want to consider if the DRAFT SCDD Training Survey is easy to understand in its current format with both plain language and use of symbols. Keep in mind that the questions included in the survey tie to the Federal Performance Measures as identified by AIDD. Those performance measures are not in plain language, so staff has developed questions for each measurement in plain language and added pictures to
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assist self and family advocates whom may not read. When assessing the survey tool, please consider the following:
Is the DRAFT SCDD Training Survey in plain language that is easy to understand?
Are the pictures/symbols helpful?
COUNCIL STRATEGIC PLAN OBJECTIVE: Goal 1 of the State Plan: Californians with intellectual/developmental disabilities and their families reflecting the diversity of the state will have increased information and supports to advocate for civil and service rights to achieve self-determination, integration and inclusion in all areas of life.
PRIOR COMMITTEE ACTIVITY: There has been no prior SAAC activity on this SCDD Training Survey.
RECOMMENDATION: None.
ATTACHMENTS:
Included in your packet are the following items:
DRAFT SCDD Training Survey
PREPARED: Riana Hardin, December 19, 2018
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Office: ______________ _________ Title
of Activity: ______________________________
Date: Location: _________
1. Are you a: ☐ Self-Advocate ☐ Family Member
2. Did you like this activity? ☐ Yes ☐ No
3. Did you learn something new from this activity? ☐ Yes ☐ No
4. Will you use what you learned from this activity? ☐ Yes ☐ No
5. Are you a member of any boards, committees or advocacy groups? ☐ Yes ☐ No If yes-are you in a leadership role (examples: chair, vice
chair, other) ☐ Yes ☐ No
6. What else would you like to learn about? Is there anything you want us to know?
If would you like to tell us this information- It helps us to know who was at the activity!
I am (Check one): ☐ Male ☐ Female ☐ Other
I am (Check all that apply):
____ American Indian or Alaska Native ____ Asian
____ Black or African-American ____ Hispanic or Latino
____ Native Hawaiian or other Pacific Islander ____ Multi-racial
____ White
What city do you live in? :
Thank you for filling out our survey!!! DRAFT 11.30.18 dmh
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EMERGENCY MANAGEMENT AND ‘FEELING SAFE BEING
SAFE’ TRAINING
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SAAC AGENDA ITEM DETAIL SHEET
ISSUE: Emergency Management and ‘Feeling Safe Being Safe’
SUMMARY: The Self Advocates Advisory Committee (SAAC) strives to be a voice for all Californians with disabilities by promoting State Council participation and peer advocacy that advances independence and inclusion. SAAC accomplishes this by doing all of the following: speaking up for people with disabilities, learning about issues important to people with disabilities, advising the State Council and staff on issues that affect self-advocates, sharing information about the rights of self-advocates, assisting people with disabilities to be on boards and committees and participating in and leading regional and statewide advocacy groups/networks. Each of the 6 state plan goals has a component of self-advocacy, because self-advocacy affects all aspects of a person’s life. Due to the increased frequency of wild fires in California, the topic of emergency preparedness was requested for the January SAAC meeting.
BACKGROUND: The Department of Developmental Services (DDS) has produced the plain language training materials ‘Feeling Safe, Being Safe’ to help self-advocates prepare for emergency situations. DDS, along with other state agencies provide this training across the state of California. SCDD regional office staff provide this training to self-advocates across the 12 regions of California. A member of SAAC has agreed to provide members with an overview of the training materials and presentation as a starting point for the discussion on how SAAC can work with other agencies to assist in improving access to and awareness of emergency services in their communities and across California.
DISCUSSION: Emergency preparedness has been a reoccurring theme with SAAC as people with intellectual and developmental disabilities have an increase vulnerability during an emergency. In recent years, California has seen an increase of the frequency and severity of wildfires. It is important and necessary to continue to educate people with intellectual and developmental disabilities on best practices for preparing for emergency situations and consider different strategies that committee members, both individually and as a collective can take to affect the most positive systemic change in California.
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When preparing for this discussion item, you may want to consider the following questions:
Does SAAC want to do more work on emergency preparedness and response to wildfires at a more systemic level?
Are there any agencies or contacts that would be good to collaborate with for this project?
What is currently being done to address access to emergency services for people with intellectual and developmental disabilities in California?
Are there any current examples from the November 2018 fires of what went right, what went wrong and what can be improved so that communities are prepared for future emergencies?
PRIOR COMMITTEE ACTIVITY: In response to the 2017 wildfires, SAAC invited both Sacramento Metro Fire and Cal OES Office of Access and Functional Needs to provide SAAC with a training and a briefing related to emergency preparedness.
RECOMMENDATION: None.
ATTACHMENTS:
Included in your packet are the following items:
‘Feel Safe Being Safe’ materials
PREPARED: Riana Hardin, December 20, 2018
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FEELING SAFE,BEING SAFEMy Personal Safety
in anEMERGENCY
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1
FEELING SAFE, BEING SAFE
1
FEELING SAFE,BEING SAFE
FEELING SAFE,BEING SAFEMy Personal Safety
in anEMERGENCY
My Personal Safetyin an
EMERGENCY
This worksheet and magnet will help you make a plan and support you during an emergency.
It will help you think about: ❑ Important people to call.❑ Being safe at home.❑ A safe place to go.
Complete all the pages in the worksheet. Put it in your emergency kit.
The magnet will show important information about you. Fill it in using information from your worksheet. You can use a pen or marker. Put it on your refrigerator.
Have someone help you:❑ Get all the information you need. ❑ Put your emergency kit together.❑ Complete the worksheet.❑ Fill in your magnet.
Department of Developmental ServicesConsumer Advisory Committee, 2010
Program _____________________________ ______________
Regional Center _______________________ ______________
COMMUNITY RESOURCES
911
Office of Emergency Services ______________________________
Fire # ___________________ Police # ______________________
WHERE TO GET INFORMATION TO BE SAFE IN AN EMERGENCY:
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IMPORTANT PEOPLE IN AN EMERGENCY
______________
WHO TO CALL FOR EMERGENCY INFORMATION
Radio Station _______________________________
TV Station _________________________________
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SAFETY TIPS
My kit is ready.
My worksheet is finished and in my kit.1
FEELING SAFE,BEING SAFE
FEELING SAFE,BEING SAFEMy Personal Safetyin anEMERGENCY
My Personal Safetyin anEMERGENCY
My magnet is finished and on my refrigerator.
I practiced telling people about my personal needs.
I told people who care that I am depending on them.
I asked about being safe at work in an emergency.
GOOD IDEAS FOR BEING SAFE
Feeling Safe, Being Safe = Being Prepared
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STATEWIDE SELF-ADVOCACY NETWORK
REPORT
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Report from the Statewide Self-Advocacy Network Highlights from the December SSAN Meeting
The Statewide Self-Advocacy Network (SSAN), a project of the State Council on Developmental Disabilities (SCDD) met on December 5th and 6th, 2018 at the Crowne Plaza Hotel in Sacramento. Here are highlights from this meeting:
Importance of Self-Advocacy:
Self-advocacy is necessary in all aspects of a person’s life. Self-advocacy helps people to develop a sense of worth and dignity, teaches confidence, provides the opportunity to have a seat at the table and leads to becoming active members in the communities.
Focus of Meeting:
DAY 1 of the meeting, members reviewed the SSAN Bylaws. SSAN Chair Robert Balderama established an ad hoc workgroup to review the bylaws and present the updates to the members at the March Meeting. Members of the workgroup are:
Lisa Cooley, Sacramento Regional Representative Nicole Patterson, Department of Developmental Services Paul Mansell, San Diego Regional Representative Kecia Weller, UCLA Tarjan Center Representative Regina Woodliff, Bay Area Regional Representative
Members reviewed and provided feedback to DDS on the publication “Think Ahead” and discussed the importance of end of life planning.
The SSAN workgroups met to discuss current projects and planning for 2019 meetings.
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DAY 2 featured SSAN elections. Other agenda items included: updates from SCDD Executive Director Aaron Carruthers, review of the 2017-2018 SSAN Annual Report, approval of 15th edition of the SSAN Newsletter, and a presentation on federal and state legislative processes, from the SCDD Deputy Director of Policy and Public Affairs, Cindy Smith.
Administrative Updates from SCDD:
SCDD would like to work with SSAN on educating the community about Self-Determination and the rollout of an ambassador’s program. Stay tune for more updates on these projects.
REMINDER: The SCDD Headquarters has a new address: 3831 N. Freeway Blvd. Suite 125. Sacramento, CA 95834. The new phone number is 916-263-7919.
Legislative Training Resources
Official Website for CA State Legislature: http://leginfo.legislature.ca.gov/
California State Assembly Directory: https://www.assembly.ca.gov/
California State Senator Directory: https://www.senate.ca.gov/
Find Your Legislator Tool: http://www.legislature.ca.gov/legislators_and_districts/legislators_and_districts.htm
Official website for information on the U.S. Congress: https://www.congress.gov/
U.S. House of Representative’s Directory: https://www.house.gov/representatives
U.S. Senate Directory: https://www.senate.gov/general/contact_information/senators_cfm.cfm
Self-Determination o Meets the second Friday of the month by teleconference at
12:00 PM
Employment o Meets the fourth Wednesday of the month by teleconference at
1:30 PM
Legislative o Meets the second Wednesday of the month by teleconference
at 1:30 PM
Newsletter/Communication o Check out https://scdd.ca.gov/selfadvocacy/ for the latest issue. o Meets as needed o Please send articles for the September edition to:
Approved December meeting minutes Created a workgroup to review the SSAN Bylaws Approved the DRAFT 2017-2018 SSAN Annual Report Approved 15th Edition of Newsletter Elected New Officers
o Chair: Nicole Patterson, DDS Consumer Advocate o Vice-Chair: Desiree Boykin, ARCA Representative o Secretary: Lisa Cooley, SCDD Sacramento Regional
Representative
Member Activity: Between the months of September and December, SSAN members attended participated in 44 events/meetings, reaching 1674 Californians.
Next Meeting: The next SSAN meeting will be on March 26th and 27th, 2019 at the Crowne Plaza Northeast in Sacramento.
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SSAN 2017‐2018 Annual Report Summary
SSAN Mission Statement
The Statewide Self Advocacy Network (SSAN) promotes leadership and builds bridges that strengthen advocacy among
disability communities by focusing on policy change.
SSAN is a project of the California State Council on Developmental Disabilities.
SSAN has 20 members representing the 12 regional offices of the State Council on
Developmental Disabilities (SCDD), SCDD, state agencies and nonprofits whose
missions are to educate, empower and provide services and support to people
with intellectual and developmental disabilities. SSAN is a training network built
on the idea that SSAN members will train other self‐advocates in their
communities on issues that impact their lives and will produce stronger advocates
who will strengthen the self‐advocacy movement across California. SSAN is one of
the primary vehicles which SCDD uses to achieve Goal #1 of the State Plan.
SCDD Self‐Advocacy Goal #1 in Plain Language – “Californians with developmental
disabilities and their families will have increased support to advocate for their
rights to achieve: self‐determination, integration, and inclusion within their
communities.”
The 2017‐2018 year was full of many accomplishments for SSAN. During the 2017‐
2018 Federal Fiscal Year, the following structural changes took place:
The SSAN Officers updated the SSAN membership application and process
for regional representatives
The SSAN Officers reviewed member applications for the North Coast,
Central Coast and CFILC vacancies
The SSAN Officers participated in a leadership training
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SSAN met 4 times during December 2017 to September 2018 and
received trainings and presentations on the following topics:
“How I got Hired” and the Benefits of Employment
Mock Job Interviews and LEAP Hiring
Vendor Process for Day Programs
ABLE Act Update
Mental Health Awareness – tools & tips
Self‐Determination Orientation Materials by DDS
Updates to the ADA
Building Accessibility – tools and tips
The SSAN Leadership identified plans for:
Continued Communication through Newsletters
Legislative Advocacy
Training Development
Networking
Each meeting includes member reports, legislative updates, training for members,
and resources to distribute.
Each member is on at least one workgroup. The workgroups met a total of 43
times.
Employment met 9 times
Self‐Determination met 9 times
Newsletter met 9 times
Legislation met 9 times
Officers met 16 times
SSAN Members produced 4 Newsletters
SSAN Conducted 129 outreach and trainings events in their communities on all 6
of the State Plan goals reaching a total of 4,589 people.
