by Deb Holtz · To change the state’s · To further develop a con- Persons with Disabilities ad- ministration. abilities will define, develop, and drive the qual- ity assurance system for the services they receive if the goals for a new division within the Minnesota Depart- ment of Human Services (DHS) are met. · To assist people of all ages The grant funds must be used for three purposes: who have a disability to move out of nursing homes Holocaust- cont. on p. 12
Inside Q New Special Ed Rules — p. 3 Q Janet Reno Interview — p. 4 Q 2001 Legislature Review — p. 13 Directory of Organizations — Page 8 Volume 12, Number 10 SOURCES RESOURCES October 10, 2001 New State Program For People With Disabilities by Deb Holtz “ The stakes are too high for government to be a spectator sport. ” —Barbara Jordan Non-profit Org. U.S. Postage PAID Mpls. MN Permit No. 4766 Holocaust- cont. on p. 12 DISABILITY HOLOCAUST REMEMBERED HADAMAR DURING THE WAR by Susan O’Connor New Program - cont. on p. 13 [Last March, while on a faculty exchange to Norway, Augsburg College professor Susan O’Connor traveled with a group of 28 Norwe- gians, some with disabilities, to Hadamar, Germany to visit the site where thousands of people with disabilities were put to death as part of the Nazi program from 1941 to 1945. What follows is an account of her trip.] T he killing in Hadamar began in January 1941. Hadamar, Germany was the site where 15,000 people with disabilities were put to death between 1941-1945. It was part of Hitler’s “euthana- sia” program, the term used to describe what we now know as The Holocaust. Up until August 1941, many of the murders were commit- ted in the infamous gas chambers. After that date, the archbishop of the area began to question what was happening, and from then until the end of the war in 1945, another 5000 people were killed there in a more secretive manner, either by being intentionally over- medicated or by being starved to death. 15,000 people with disabilities were killed at Hadamar, and between 200,000 and 275,000 in total throughout the rest of Ger- many and in surrounding countries. The history of what hap- pened at this institution in 1941 begins much earlier. In 1934, those who didn’t fit into the ideal of the Nazis— the poor, the unemployed, and others, over 400,000 people in all—were steril- ized. This happened to both men and women. The history of Hadamar itself relates initially to people with dis- abilities, although, toward the end of the war, elderly people and even wounded soldiers were sent there to clear out the hospitals. People with all types of disabilities, including epi- lepsy, were sent to Hadamar. Those who were institution- alized at the time were brought from the institutions to what were called “transit centers.” These were like collection sites. Once there were enough people at a transit center, the hospital was called and three buses came out to pick them up and transfer them to Hadamar. They were told only that they were being transferred to another institution. They ar- rived at Hadamar and were unloaded into a large room with beds lined up in a row (similar to what we think of in our state hospitals), where they stayed until their deaths. Three main criteria were used to determine who should be killed. First, could the person work? Second, would the person go back to their family or stay in the institu- tion for the next 20 years? Third, did family members ever visit the person? (If they were, there would be more questions to answer.) Docu- ments would be falsified and doctors would have a list of ailments from which to choose an “official” cause of death for the death certificate— TB, perhaps, or lung disease; maybe heart attack, or some other known killer. This was all legally sanc- tioned. The language used was that they were providing people “mercy deaths,” a chilling phrase to many people with disabilities. Of course, the terms—“euthana- sia” and “mercy killing”— were important to help cover up what was really happen- ing. Doctors, nurses, and admin- istrators were the perpetra- tors. Although administra- tors did not carry out the killings personally, they or- ganized the murders, exam- ining the records but never meeting the people. They made the lists of people to be killed. Each day these lists would be sent to doctors who, in the mornings, would go over the records and decide who would be killed that night. All of these people (doctors, nurses, administra- tors) were from outside of the town of Hadamar so as to avoid any personal connec- tions and maintain the secret. When night came, those selected were told that they were being taken down to the showers. They were led down the dark stairway to the small basement, where up to 80 people at a time were packed. After being taken to this room, they were told to disrobe, and then to enter the shower. As our tour entered this room, the gas chamber, we were met with yellow floor tiles and yellow bathroom- type tiles on the wall. The room—about 15 feet by 12 feet—seemed very tiny, with a single basement window. As we stepped in, Uta, our guide, pointed to the plugged hole where gas would come out of the wall and up to the ceiling as a shower on the people. On the other side, doctors watched as the people fell. The thought of so many people dying in this small room became overwhelming for most of us. It felt to me as if this should be some sort of sacred ground upon which we were standing. I had been prepared for everything I saw, having heard the back- M innesotans with dis- abilities will define, develop, and drive the qual- ity assurance system for the services they receive if the goals for a new division within the Minnesota Depart- ment of Human Services (DHS) are met. The new Community Quality Initiatives Division was formed out of a desire to have a coordinated approach to quality assurance for com- munity services to people with disabilities. In the past, DHS has sponsored many successful quality assurance projects, such as the develop- ment of performance indica- tors in mental health; reviews of chemical health services; and a variety of consumer surveys for people with developmental disabilities, people living with HIV/ AIDS, and people with trau- matic brain injuries. Our division will build upon these efforts and coordinate them for the benefit of all disability groups. We hope to define quality more broadly. Quality mea- surement traditionally has focused on health and safety, and systems processes rather than individually defined quality of life. Assuring that individually defined needs for health and safety are met and providing streamlined, easy-to-use processes are integral components to qual- ity, but they are just parts of the entire picture. Basic questions regarding a person’s quality of life need to be asked. Do people enjoy satisfying, ongoing social relationships? Do they enjoy equal employment opportu- nities? Are people connected to and involved in their communities? These and other more informal aspects of community life need to be considered and measured as part of overall quality. Another priority of the team will be working to improve the consistency and reliabil- ity of information being provided statewide to people with disabilities. We have heard from consumers that systems need to be developed so that people and their families have the informa- tion, tools, and power to direct their own supports and have real choices. Our team will work toward these goals with other divisions within the Continuing Care for Persons with Disabilities ad- ministration. Our division already has engaged a broad base of representatives of people with disabilities while doing our most pressing work this summer: writing proposals for millions of dollars in federal grants to improve services for Minnesotans of all ages with a disability or long-term illness. The grants are sponsored by the Centers for Medicare and Medicaid Services, formerly known as the Health Care Finance Agency. The grant funds must be used for three purposes: · To assist people of all ages who have a disability to move out of nursing homes · To further develop a con- sumer-directed personal care assistance program, and · To change the state’s infrastructure to enable more people of all ages who have a disability to live in the community, rather than in institutions.
Transcript
1October 10, 2001
InsideNew Special Ed Rules — p. 3Janet Reno Interview — p. 42001 Legislature Review — p. 13
Directory ofOrganizations
— Page 8
Volume 12, Number 10 SOURCES RESOURCES October 10, 2001
New State Program ForPeople With Disabilitiesby Deb Holtz
“The stakes are too high for governmentto be a spectator sport.”
—Barbara Jordan
Non-profit O
rg.U
.S. Postage
PAID
Mpls. M
NP
ermit N
o. 4766
Holocaust- cont. on p. 12
DISABILITY HOLOCAUST REMEMBEREDHADAMAR DURING THE WARby Susan O’Connor
New Program - cont. on p. 13
[Last March, while on afaculty exchange to Norway,Augsburg College professorSusan O’Connor traveledwith a group of 28 Norwe-gians, some with disabilities,to Hadamar, Germany tovisit the site where thousandsof people with disabilitieswere put to death as part ofthe Nazi program from 1941to 1945. What follows is anaccount of her trip.]
The killing in Hadamarbegan in January 1941.
Hadamar, Germany was thesite where 15,000 peoplewith disabilities were put todeath between 1941-1945. Itwas part of Hitler’s “euthana-sia” program, the term usedto describe what we nowknow as The Holocaust.
Up until August 1941, manyof the murders were commit-ted in the infamous gaschambers. After that date,the archbishop of the areabegan to question what washappening, and from thenuntil the end of the war in1945, another 5000 peoplewere killed there in a moresecretive manner, either bybeing intentionally over-medicated or by being starvedto death. 15,000 people withdisabilities were killed atHadamar, and between200,000 and 275,000 in totalthroughout the rest of Ger-many and in surroundingcountries.
The history of what hap-pened at this institution in1941 begins much earlier. In1934, those who didn’t fitinto the ideal of the Nazis—the poor, the unemployed,and others, over 400,000people in all—were steril-ized. This happened to bothmen and women. The historyof Hadamar itself relatesinitially to people with dis-abilities, although, toward
the end of the war, elderlypeople and even woundedsoldiers were sent there toclear out the hospitals.
People with all types ofdisabilities, including epi-lepsy, were sent to Hadamar.Those who were institution-alized at the time werebrought from the institutionsto what were called “transitcenters.” These were likecollection sites. Once therewere enough people at atransit center, the hospitalwas called and three busescame out to pick them up andtransfer them to Hadamar.They were told only that theywere being transferred toanother institution. They ar-rived at Hadamar and wereunloaded into a large roomwith beds lined up in a row(similar to what we think of inour state hospitals), wherethey stayed until their deaths.
Three main criteria wereused to determine who shouldbe killed. First, could theperson work? Second, wouldthe person go back to theirfamily or stay in the institu-tion for the next 20 years?Third, did family membersever visit the person? (If theywere, there would be morequestions to answer.) Docu-ments would be falsified anddoctors would have a list ofailments from which to choosean “official” cause of deathfor the death certificate—TB, perhaps, or lung disease;maybe heart attack, or someother known killer.
This was all legally sanc-tioned. The language usedwas that they were providingpeople “mercy deaths,” achilling phrase to manypeople with disabilities. Ofcourse, the terms—“euthana-sia” and “mercy killing”—were important to help coverup what was really happen-ing.
Doctors, nurses, and admin-istrators were the perpetra-tors. Although administra-tors did not carry out thekillings personally, they or-ganized the murders, exam-ining the records but nevermeeting the people. Theymade the lists of people to bekilled. Each day these listswould be sent to doctors who,in the mornings, would goover the records and decidewho would be killed thatnight. All of these people(doctors, nurses, administra-tors) were from outside of thetown of Hadamar so as toavoid any personal connec-tions and maintain the secret.
When night came, thoseselected were told that theywere being taken down to theshowers. They were leddown the dark stairway to thesmall basement, where up to80 people at a time werepacked. After being taken tothis room, they were told todisrobe, and then to enter theshower.
As our tour entered thisroom, the gas chamber, wewere met with yellow floortiles and yellow bathroom-type tiles on the wall. Theroom—about 15 feet by 12feet—seemed very tiny, witha single basement window.As we stepped in, Uta, ourguide, pointed to the pluggedhole where gas would comeout of the wall and up to theceiling as a shower on thepeople. On the other side,doctors watched as the peoplefell.
The thought of so manypeople dying in this smallroom became overwhelmingfor most of us. It felt to me asif this should be some sort ofsacred ground upon whichwe were standing. I had beenprepared for everything Isaw, having heard the back-
Minnesotans with dis-abilities will define,
develop, and drive the qual-ity assurance system for theservices they receive if thegoals for a new divisionwithin the Minnesota Depart-ment of Human Services(DHS) are met.
The new Community QualityInitiatives Division wasformed out of a desire to havea coordinated approach toquality assurance for com-munity services to peoplewith disabilities. In the past,DHS has sponsored manysuccessful quality assuranceprojects, such as the develop-ment of performance indica-tors in mental health; reviewsof chemical health services;and a variety of consumersurveys for people withdevelopmental disabilities,people living with HIV/AIDS, and people with trau-matic brain injuries. Ourdivision will build upon theseefforts and coordinate themfor the benefit of all disabilitygroups.
We hope to define qualitymore broadly. Quality mea-surement traditionally hasfocused on health and safety,and systems processes rather
than individually definedquality of life. Assuring thatindividually defined needsfor health and safety are metand providing streamlined,easy-to-use processes areintegral components to qual-ity, but they are just parts ofthe entire picture. Basicquestions regarding a person’squality of life need to beasked. Do people enjoysatisfying, ongoing socialrelationships? Do they enjoyequal employment opportu-nities? Are people connectedto and involved in theircommunities? These andother more informal aspectsof community life need to beconsidered and measured aspart of overall quality.
Another priority of the teamwill be working to improvethe consistency and reliabil-ity of information beingprovided statewide to peoplewith disabilities. We haveheard from consumers thatsystems need to be developedso that people and theirfamilies have the informa-tion, tools, and power todirect their own supports andhave real choices. Our teamwill work toward these goalswith other divisions withinthe Continuing Care for
Persons with Disabilities ad-ministration.
Our division already hasengaged a broad base ofrepresentatives of peoplewith disabilities while doingour most pressing work thissummer: writing proposalsfor millions of dollars infederal grants to improveservices for Minnesotans ofall ages with a disability orlong-term illness. The grantsare sponsored by the Centersfor Medicare and MedicaidServices, formerly known asthe Health Care FinanceAgency.
The grant funds must be usedfor three purposes:
· To assist people of all ageswho have a disability tomove out of nursing homes
· To further develop a con-sumer-directed personalcare assistance program,and
· To change the state’sinfrastructure to enablemore people of all ageswho have a disability tolive in the community,rather than in institutions.
October 10, 2001 2
Tim Benjamin & Jeff NygaardEditors
ACCESS PRESSCo-Founder/Publisher (1990-1996) ...................................................... Wm. A. Smith, Jr.Co-Founder/Publisher/Editor-in-Chief (1990-2001) ........................... Charles F. SmithBoard of Directors ...................... Bill Dessert, Margot Imdieke Cross, and Steve KuntzCo-Editors ...................................................................... Tim Benjamin and Jeff NygaardCartoonist ......................................................................................................... Scott AdamsProduction .............................................................. Presentation Images, Ellen HoughtonEditorial Assistants ........................... Donna McNamara and Laurie Eckblad Anderson
ACCESS PRESS is a monthly tabloid newspaper published for persons with disabilities by AccessPress, Ltd. Circulation is 11,000, distributed the 10th of each month through more than 200 locationsstatewide. Approximately 650 copies are mailed directly to political, business, institutional and civicleaders. Subscriptions are available for $15/yr.
Editorial submissions and news releases on topics of interest to persons with disabilities, or personsserving those with disabilities, are welcomed.
Paid advertising is available at rates ranging from $14 to $18/column inch, depending on size andfrequency. Classified ads are $8.00, plus 35 cents/word over 20 words.
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What You Said: 2001 Access Press Reader Surveyby Laurie Eckblad Anderson
Thank you to all thereaders who responded
to our 2001 survey in theAugust issue! Your time andthoughtful input is appre-ciated. As a newcomer to theAccess Press staff, I havelearned a lot from reading andworking with the surveys.Because the responses given
are important to us, wewanted to share some of thetrends and highlights withyou.
We received a total of 34responses. A few came infrom close by—other officesin the Griggs MidwayBuilding—and others came in
from as far away as Willmar,Crookston, and River Falls,Wisconsin. Most of therespondents are people withdisabilities, and many ofthose without disabilitiesstated that they have a familymember, co-worker, and/or afriend with a disability.
When asked how long theyhave been reading AccessPress, the answers rangedfrom three months to “sincethe beginning.” One readereven claims to have beenreading the paper “forever!”Lots of people suggested newplaces to make Access Pressavailable, including largechurches, all supermarkets,all public libraries, andanywhere you can get the City
Pages and the Skyway News.
When asked what their favoriteregular features of the paperare, the top three vote-getterswere: in-depth articles,political coverage, and culturalissues within the disabilitycommunity.
Respondents also had a chanceto determine what additionsmight be made to the paper,space allowing. The top threeamong the choices givenwere: technology anddisability, medical issues forpeople with disabilities, andeducational opportunities forpeople with disabilities.
When given a chance to maketheir own suggestions for
additions, various readersvoted for more fun in thepaper with items such ascrossword puzzles and shortfiction by and about thedisabled. Another trend wasfor items dealing with sociallife, such as low-cost activities,and social outlets for thoseover 50. Some unique sug-gestions for additions includedmore photos, new productreviews by users, and “dirtypolitics and disability.”
Throughout the survey therewas strong support for hardnews topics. Unique requestsincluded votes for moreinvestigative articles, featureson specific disabilities, andinsurance information ondevices for the disabled.
Many readers also want us toadd items that are moreentertaining or more personal,such as poetry by readers,book and website reviews,and success stories aboutpeople with disabilities inbusiness and other areas.
Our advertisers can takeheart, because practicallyevery respondent reads atleast one of our three types ofads (display, employment,and classified) and most readtwo or more types. Two-thirds of those responding goon to use the products andservices of our advertisers!
When asked what they likedmost about Access Press,many people mentionedpolitical coverage andlegislative updates, the hopeand inspiration it gives them,and keeping the communityinformed. Some of the uniqueanswers included: “the feistyattitude,” the fact that it’s freeat drop-sites, and the layoutand use of color.
Some readers mentioned thatthey would like to get the
BRING YOUR BOSS TO LUNCHTuesday, Oct. 23, 2001
11:30 a.m. to 1:00 p.m.
University Club420 Summit Ave.Saint Paul, MN
Come to our annual Employer Recognition Lunchsponsored by the Saint Paul Mayor’s Advisory
Committee for People with Disabilities
Call 651-266-8891to reserve your table.
Optional $15 donation per person • Limited seating
Survey - cont. on p. 4
On the front page thismonth, Augsburg pro-
fessor Sue O’Connor gives usa chilling tour through adeath camp in Hadamar,Germany where, between1941 to 1945, the Nazis putto death 15,000 disabledindividuals, calling it “mercykilling”. Professor O’Connorhas been instrumental inbringing this photo exhibi-tion to Augsberg College,
one of two sites in the UnitedStates that the exhibit will bedisplayed. From ProfessorO’Connor’s description of theeffects this display had on her,it is a must see, and for manyof us who are not likely totravel to Germany, a once-in-a-lifetime opportunity to seethe fate of the disabilitycommunity just one genera-tion earlier.
***
Also on page 1, Deb Holtz ofthe DHS explains a new stateprogram. The new programhas three purposes, all ofwhich improve the quality oflife in community-based liv-ing for people with disabili-ties. Some heavy hitters fromthe disability community willbe involved in running thisprogram. Check it out. Thiscould be a very positive stepforward.
***
Another veteran of the dis-ability community has passedaway. Larry Kegan was apioneer in sexual educationfor people with spinal cordinjuries. Larry was also in-strumental in developing acommunity-based living fa-
cility in Mexico in the early70s which was depicted in theTom Cruise movie “Born onthe Fourth of July”. Larry’smusical talent allowed him toshare the stage with musicalicons like Bob Dylan and NeilYoung. Larry will be missedand our sympathies go out tothe Kegan family.
***
Our Culture Column is miss-ing this month. ColumnistLolly Lijewski, like all of us,was devastated by the attackin New York and WashingtonD.C.. Lolly reminded me ofhow vulnerable we really arehere in America, especially usin the disabled community.How will the new regulationsat the airports affect disabledtravelers? Lolly was spending
time researching these effectsthrough her many contacts inthe transportation arena andwasn’t able to find time forher column. Hopefully, Lollywill have some answers to thisquestion for us in futurearticles. This attack has put ina whole new light on a signthat many of us see every day:“In An Emergency Use TheStairs.”
***
John Tschida and the staff ofCourage Center made itpossible for me to interviewformer Attorney General JanetReno August 25th. Drivingover to the Courage Centerfacility in Golden Valley Iimagined myself interviewingthe hard-nosed, strictly-busi-ness woman who is portrayed
in the media. Much to mysurprise, I found myselfmaking conversation with awonderful, warm-hearted,soft-spoken woman whomade me as comfortable as ifI were chatting with alongtime friend. Thanks toall who made this interviewpossible.
***
We have finally found thetime here in the office tocatch up on some of theinternal tasks that were puton the back burner while wewere in transition. Thankyou for your patience, and aHUGE thank you to all thefriends that have renewedtheir donations. It is yoursupport that keeps the ballrolling.
3October 10, 2001
We are: ♦ PCA Choice Provider ♦ Employer of Record ♦ Fiscal Agent
Call Nancy or Sally Today:
PCA CLIENTS
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New Special Education Rules Coming In Novemberby Sue Abderholden
Last January the Minne-sota Department of Chil-
dren, Families and Learning(DCFL) proposed new rulesgoverning special educationin Minnesota. The rules wererewritten to reflect the newfederal regulations which wereissued in March of 1999, andto changes required by theMinnesota legislature thatyear.
DCFL used many methods toobtain input. They looked atpast task force reports, con-vened a group to compare tocompare state and federalregulations and convened newtask forces to reach agreementon specific areas of the rules.
The first hearing on theproposed rules took place inJanuary. Many families andadvocates were concernedthat there was not enough timebetween when the rules werepublished and the date of thehearing to do a full analysis ofthe changes and to notifyfamilies. The hearing officeragreed, and a new hearing
was scheduled for April. Atthe April hearing so manypeople wished to commentthat another day was added toaccommodate them all. Thehearing officer released hisreport on September 4, 2001.The rules will then be re-viewed by an AdministrativeLaw Judge, submitted to theRevisor’’s Office, filed withthe Secretary of State and theGovernor, and then publishedin the State Register. DCFL isanticipating that the new ruleswill be effective by mid-November.
Many Changes Coming
So what are the changes?There are many significantchanges of which families andadvocates should be aware.
The first change is that manydefinitions and requirementsthat were duplicative, mean-ing that they were also in thefederal regulations, were de-leted from the Minnesotaregulations. There were someexceptions to this, for ex-
ample when entire sections ofthe federal regulations wereplaced in to Minnesota rules.On the surface, this action ofreducing duplication makessense. In practice, however, itwill mean that families willneed copies of both theMinnesota and federal regula-tions to understand the specialeducation system.
Extended school year ser-vices (ESY) are critical tomany students who have adisability. Without them theycould regress to a point thatthey spend a significant por-tion of the new school yearrelearning skills. The pro-posed regulations define re-coupment and regression andestablish when a child isentitled to ESY services,including that it is needed toensure the pupil receives afree and appropriate educa-tion. Advocates are con-cerned that the criteria mayprevent some students fromreceiving ESY because therules have a long recoupmentstandard. However, they also
believe that it may be easier toobtain ESY services for somestudents during breaks in theschool year other than thesummer break.
Advocates pushed to havelegislative language includedin the regulations that requiresschool districts to have spe-cial education advisory com-mittees. Some school districtshave mistakenly believed thatthey didn’t have to involveparents, and advocates felt itwould be helpful to includethat language in the regula-tions. They were not success-ful in convincing the depart-ment to include this language.
DCFL proposed changes tocriteria for several disabili-ties. The criteria for ““Emo-tional or Behavioral disor-ders” were changed to recog-nize behaviors that don’tstand out, such as withdrawal,and others associated withdepression. For the first time,a functional behavior assess-ment will be required forchildren who have an emo-
and Rolli-Moden Cata-log are sponsoring a modelingcontest for wheelchair gimps.Two men and two women willbe chosen. You don’t need tobe a Hollywood glam gimpand don’t have to look like abody perfect ab sitting in awheelchair; you just gotta be awheelchair crip 18 or older(geezers welcome) with dig-nity, energy, and poise.
To enter, send four good-quality color photos (4 x 6inch prints) of your bodaciousself in different poses. Photosshould be clear, sharp, andrealistic (no hanging from thechandelier or perching upon atree limb unless these areregular activities). Include atyped page with your name,
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Winners get the following: aphoto shoot with professionalphotographer, photos fea-tured in New Mobility andRolli-Moden, $200 in dudsfrom Rolli-Moden, $200 worthof books and mags, and a 4-year subscription to NewMobility plus other mags.
Please note that all photosbecome the property of NewMobility and may be used infuture promotions. Also, win-ners are not guaranteed ongo-ing modeling work. Judges’decisions are final.
The deadline for submissionsis December 30, 2001. Send
tional or behavioral disorder.Other changes were made tothe criteria that were notsupported by the advocacycommunity. The impact ofthese changes won’t really beknown until they are fullyimplemented.
DCFL is proposing to changethe name and criteria forstudents who have mentalimpairments. This categorywill now be labeled “Devel-opmental Cognitive Disabil-ity,” as recommended by atask force. Many advocateswere opposed to this changebecause they felt it would beconfusing to families since itblends two labels into one.Advocates also were con-cerned that the criteria aremore restrictive than standarddefinitions used in the field.
Also changed were the crite-ria for “Other Health Im-paired,” or OHI. The diagno-sis for Attention Deficit Dis-order/Attention Deficit Hy-peractivity Disorder (ADD/ADHD) will now need to bemade by a licensed physician,although documentation cancome from mental healthprofessionals. Advocates wereconcerned because a fieldsurvey of the new criteriashowed approximately 39%of the children classified asOHI would lose their eligibil-
ity for special education.
Changes were also made tosections involving evalua-tions, Individualized Educa-tion Program development,conciliation conferences, anddue process procedures. Manyof these sections, however,simply adopted language fromthe federal regulations.
Many advocacy organiza-tions commented on theproposed regulations, such asPACER Center, Arc Minne-sota, and the Disability LawCenter. Their comments canbe obtained by contactingthem, or check on theirwebsites. (see below)
PACER Center will developmaterials that reflect the newrules once they are published.Families and advocates areencouraged to download therules from the DCFL orPACER website. The federalregulations can be down-loaded from the web as wellthrough www.fape.org.
Website addresses for organi-zations mentioned in thisarticle are: PACER Center:www.pacer.org; Arc Minne-sota: www.arcminnesota.com;Disability Law Center: www.mnlegalservices.org/mdlc/)MN DCFL: www.cfl.state.mn.us/
your entry to: New Mobility/Rolli-Moden, Modeling Con-test, PO Box 767, SantaMonica, CA 90406.
IN-HOME ASSESSMENTS TO DETERMINE MEDICAL EQUIPMENT NEEDS
standing ovation as sheproudly walked onto thestage to accept the NationalCourage Award this pastAugust 25th. She accepted theaward on behalf of manypeople, beginning with the sixother people that were hon-ored that night: Jim Williams,Emmit McGarrity, Kris Flaten,Mark Curran, Linda Baune,and Mike Chevrette.
I had the opportunity to speakwith Ms. Reno earlier that dayat Courage Center. She dis-cussed with me some of thethings that she would haveliked to have done during hertenure as United States Attor-ney General to enhance com-pliance to the ADA. Shetalked about trying to per-suade businesses “by the right
of it,” that compliance is theright thing to do, the smartthing to do, and that we allneed to do it together. Shesaid that “All America has todo is look around and see thenumber of people who haveaccess to recreational oppor-tunities, rental cars, restau-rants, stadiums to realize thatthe bottom line of America ishelped with compliance.”
I asked Ms. Reno how wecould get the entire popula-tion to embrace the ADA likethey have with other civilrights laws. She said, “therehas to be a moral force behindthe law.” Again and again,she said, business peoplewould come to her depart-ment expressing that theregulations were “terrifying.”The regulations had beendrafted for the most part
before she got there.
Ms. Reno spoke of the need tohave public support behind acivil rights law in order for itto be effective. “If we want tohave the moral force of someof the civil rights laws thenit’s got to be implementedwith regulations that conveythe fervor of that moral force.The ADA didn’t conveymoral force and businessesmoaned and groaned about it.I think that is what has sloweddown the acceptance of theADA as a civil rights law.One thing that appalled mewas the costs involved inproviding access to side-walks. I thought if we cansend people to the moon weought to be able to develop amachine that comes in andgrinds down the curb, vacu-ums it up, and resurfacesthe sidewalk all in oneaction at a reasonable cost.To my knowledge, that ma-chine has not been developedyet.” She explained to mehow she thought too manypeople were concerned withthe up-front costs and not thereturn on investment.
In the course of her speechupon receiving the CourageAward, former Attorney Gen-eral Reno touched on manysubjects related to disability.Here are a few excerpts fromher comments:
On one of her role models—“one of the greatest people Ihave ever met”—Corrine
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Gautier Davis of the DadeCounty Welfare Department:“What she taught me was themagnificence of the humanspirit. That we can doeverything for others, butnothing is the substitute forthe spirit that the heart andsoul engender in specialhuman beings. And we honorthose tonight who have thespirit and who have helpedengender the spirit in thosethat face difficulties andobstacles in living.”
On the Courage Center anddisability rights in Minnesota:“I think it is important that wespread the word about theCourage Center. No programis any better than the peoplewho constitute it. And I’m notsure that you can match whatyou have done here inMinnesota. But we can try.And we can organize this areato an even greater extent. Wecan organize communitiesacross this nation to ensurethat there is no one left out.Not the most severely dis-abled, not anyone is left outbecause of their disabilities.That we look at everyone asthough their abilities becomepossibilities and that the word“disabilities” is forgotten.”
On organizing: “Communityorganization is one of themost difficult tasks that socialworkers, counselors, policeofficers, or anyone can under-take. But it is one of the mostvital and if we could organizethe communities of American
to ensure that we reach out ineffective ways to give every-one opportunity to be theirbest, we can make a differ-ence. First, by preventingproblems and one of thebeginnings is ensuring thatevery child in America has agood strong foundation oflearning, of health care, ofhousing, of nurturing, ofnutrition, so that they cangrow in the strongest, mostpositive ways. And that child-ren who are born in this worldwith defects are given an evenfirmer foundation, knowingthat if we commit monies upfront—and time, and re-sources, and expertise, andresearch up front—we canmake far more of a differencethan if we wait until they are21, or 25, or 30. Those earlyyears are such formative yearsand we can help form a futurefor those children in thatsituation.”
On mental illness as adisability: “Let us analyzewhat the disabilities are inAmerica. And take steps toaddress them in an educated,
thoughtful way. Is it mentalillness? How does it happen?What are the circumstances?What can be done to preventit? What can be done to makesure that services for thementally ill are available in aconvenient fashion all acrossAmerica?”
On prevention and treatmentof medical conditions thatlead to disability: “When youcannot prevent [disability],what can you do then? We areon the threshold of break-throughs for spinal cordinjuries that, as AdlaiStevenson would say, ‘stag-ger the imagination and con-vert vanity to prayer.’ It is atime when further researchmay open the door to answerquestions that we have onlydreamed might be answered.But let us take the energy inthis room and start looking atwhat we can do in a concen-trated, informed way, basedon an analysis of the data, toidentify every disability andto figure what we can do,short-range and long-term, toprevent the problems.”
SURVEY - Cont. from p. 2
paper faster in the mail.Others wanted us to include“more specific hypocrisyand discriminationhighlights.”
Many readers expressedgeneral satisfaction with thepaper, saying things like“Keep up the good work”and “Thanks for keeping usinformed.”
Thanks to the 34 of you whofilled out a survey forhelping to keep US informed!
Your comments will help usas we try to take AccessPress into the future. Thesurvey is an important part ofour planning, but it isn’t theonly way for our estimated25,000 readers to give usfeedback. So, to the 24,966readers who didn’t have timeto fill out a survey, weencourage you to write, call,fax, or e-mail us any timewith your ideas.
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5October 10, 2001
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Accessible Space, Inc. (ASI) offers subsidized one and two bedroomapartments for individuals with physical disabilities. We have housingin the Twin Cities metropolitan area, St. Cloud, Brainerd, GrandRapids, Hibbing, Austin, Marshall, Willmar, and Duluth.
The apartments are fully wheelchair accessible and each building hasa central laundry room, large community room, secured entry and anon-site caretaker.
ASI also offers shared personal care services 24 hours a day, at mostlocations, for adults with a physical disability and/or traumatic braininjury who qualify for Medical Assistance.
For more information call (651) 645-7271 or (800) 466-7722. Forservices or housing call Cami, for employment as a personal careattendant call Al or Angie.
Accessible Space, Inc.
Letter To The Editor . . .The following performances will be Audio Described (AD) for people who are blind or have low
vision, or Interpreted in American Sign Language (ASL)for people who are deaf or hard of hearing.
Accessible PerformancesThis is in response to theAccess Press September 10th
column on Mental Illness/Brain Disorders. It is unfortu-nate that Pete Feigal feels hehad lost his soul because hebelieved in working coopera-tively with the Mental HealthAssociation (MHA) and otherorganizations that membersof NAMI-MN disagreed with.We at NAMI-MN spent manyhours in collaboration withMHA and the many organiza-tions that make up the MentalHealth Legislative Network.However, in the past, and thisyear, we believed in someissues that weren’t supportedby all, and chose to pursuethem independently. Despitethese differences, yeomaneffort by all involved, whetheron joint initiatives or anindependent issue, the resultsin the past session wereextremely successful. Thiswas clearly pointed out instories in Access Press. Wefeel that it was a banner yearfor families and personsaffected by severe and persis-tent mental illness.
There have always beenchanges with state organiza-tions and Boards of Directors.It is appropriate for affiliatesto ask about any concerns andto help foster positive changes.The Board members, 13strong, have addressed the
issues and our organization isstrong and vibrant. The topthree priorities for the Boardare: (1) assure a solid finan-cial basis, (2) fully supportour NAMI-MN staff, and (3)establish NAMI-MN as thepowerful voice on mentalillness.
Responses to meet our needsfor funding from appealletters, grant requests, andfund-raising events have beenpositive. As a result of agenerous gift, NAMI-MN, inconjunction with Clear Chan-nel Communications, willhave ten poster-sized bill-boards in the Twin City areaplaced on primary and sec-ondary arteries in the morepopulated areas. This is partof a “Mental Illness Aware-ness Week” campaign withthe message, “Schizophreniais a treatable medical condi-tion” designed to educate andto bring hope. Additionally,five other organizations havepartnered with NAMI-MN todo more poster-sized bill-boards in November. We feelthe program will lessen thefear and stigma surroundingthis common but misunder-stood illness.
In November, NAMI-MNwill be holding our annualconference featuring numer-ous workshops for consum-
Bradshaw’s Shadows byRichard Bradshaw; 10/12-13;AD Fri., 10/12, 7:30; In theHeart of the Beast Puppet &Mask Theatre, Mpls; *$5-8;612-721-2535, www.hobt.org
Twelfth Night by WilliamShakespeare; runs thru 10/28;ASL Sun., 10/14, 2:00;Commonweal Theatre,Lanesboro, 507-467-2525 or800-657-7025; www.commonwealtheatre.org
Description of the World;AD Sun., 10/14, 7:00; The-atre de la Jeune Lune,Minneapolis, 612-333-6200;www.jeunelune.org
The Legend of Sleepy Hol-low by Washington Irving;10/12-21; ASL Sun., 10/21,2:00; Young People’s The-atre production; RochesterCivic Theatre, 507-282-8481;www.rochcivictheatre.org
Dracula by Steven Dietz 10/19-28; ASL Sun., 10/21,2:00; Ctrl MN Com. Theater,at Paramount Theatre, St.Cloud, 320-259-5463; www.
paramountarts.org or www.cmct.org Mature themes, notrecommended under age 16.
Strike! Turn Out at the Millby Eliza Anderson, music/lyrics by Gary Rue; 10/19-11/4; ASL Sun. 10/28, 2:00; ADTues., 10/30, 11:00; SteppingStone Theatre, Landmark Cen-ter, St. Paul, 651-225-9265;www.steppingstonetheatre.org
How to Improve Your GolfGame by David Babcock; 10/26-12/2; AD Fri., 11/9, 8:00;ASL Sun., 11/11, 3:00; MixedBlood Theatre, Mpls, 612-338-6131; $10; www.mixedblood.com
Driving Miss Daisy by AlfredUhry; 11/9-18; ASL Sun., 11/18, 2:00; Central Minnesota
Community Theater at theBlack Box, St. Cloud, 320-259-5463; www.paramountarts.org or www.cmct.org
La Befana; 11/20-12/23; ASLWed., 11/21, 10:00 a.m., Sat.,Dec. 1, 2:00; AD Fri., 12/7,10:00 a.m., Sun., Dec. 9,2:00; In the Heart of the BeastPuppet & Mask Theatre,Mpls, 612-721-2535; www.hobt.org
Tartuffe by Moliere; ADFri., 11/30, 8:00; Theatre dela Jeune Lune, Minneapolis,612-333-6200; www.jeunelune.org
Bingo, by Michael Heitzman,David Holcenberg & IleneReid; 9/18-12/9; AD/ASLSat., 12/1, 2:00; OrdwayMcKnight Theatre, St. Paul,651-224-4222, TTY 651-282-3100; www.ordway.org
The Nightingale 11/30-12/9;ASL Sun., 12/2, 3:00; ADFri., 12/7, 7:30; The UrbanSpectrum Theatre Co. per-formed at Central City The-atre, Mpls, 612-869-5080.
ers, family members, andproviders. Topics include es-tablishment of mental healthcourts, diagnosing and treat-ing bipolar disorder in chil-dren, implementation of theMedicaid Rehabilitation op-tion, research on schizophre-nia, ECT (electro-convulsivetherapy) from the perspectiveof a professional and aconsumer, affordable hous-ing, community support ser-vices, and mental healthlegislation.
At the conclusion of theconference, NAMI-MN willhold a business meeting atwhich fifteen new Boardmembers will be elected,increasing the Board to astrong 25 members, andintroduction of a top-notchExecutive Director withtwenty years of experience inworking for and with personswith disabilities. Also, anannouncement will be madefor the formation of our firstever Advisory Council con-sisting of community leadersand experts in mental illness,housing, diversity, etc. I cango on, but in conclusion,NAMI-MN is very alive,well, and we look forward tocelebrating a very successful25th Anniversary in 2002.
Joseph R. Zwack, President,NAMI-MN
The Metropolitan Council will hold two public forums in early November to gatherinformation from riders and other consumers on how well the Metro Mobility
program is meeting their transportation needs.
Public forums are scheduled as follows:• Thursday, November 1, 2001, 7:30 - 9:00 p.m., Minneapolis Convention Center
- Room 103-F, 1301 2nd Avenue S., Minneapolis• Friday, November 2 2001, 12 noon - 1:30 p.m., Mears Park Centre Bldg.,
Chambers, 230 E. 5th Street, St. Paul.
All interested persons are encouraged to attend the forums and offer comments.People may register in advance to speak by calling Metro Mobility Customer Servicesat 651-602-1111, or 651-221-9886 TTY. Riders may also wait and sign up to speakat the forums. Sign language interpreter services will be provided at the forums.Upon request, reasonable accommodations to persons with disabilities will beprovided if requested by October 19.
The forums are designed so people can comment on how Metro Mobility is workingfor them and offer ideas for improvement. Metro Mobility staff members will be onhand to answer general questions and respond to comments. Riders seekingfollow-up on a specific incident or concern are asked to contact the Metro MobilityCustomer Services Department at 651-602-1111 (651-221-9886 TTY).
Riders who do not attend a forum can still participate as follows:• Dave Jacobson, Metropolitan Council Metro Mobility Service Center, 230 East
Fifth Street, St. Paul, MN 55101• Fax comments to Dave Jacobson at 651-602-1660• Send TTY comments to Dave Jacobson’s attention at 651-221-9886• E-mail comments to: [email protected].
Comments will be accepted until Friday, December 14, 2001.
METRO MOBILITY PUBLIC FORUMS FORRIDERS SET FOR EARLY NOVEMBER
Martha Hage & Sam Jasmine’sRADIO SHOW
Disabled & Proud, It’s Not An Oxymoron
KFAI • Every Tues. • 7:30 p.m. • 106.7 FM — St. Paul • 90.3 FM — Mpls
10/16: Jean Parker, Disability RadioWorldwide
10/23: Pledge Week – Call in your pledge!
10/30: Artist of the Month: Renownedmusician Joseph Baird
11/6: No Disabled and Proud due toelection night coverage.
October 10, 2001 6
I once met a man who neverslept. It wasn’t that he
couldn’t sleep, he justwouldn’t. He was afraid to.He told me that every badthing that had happened tohim came when he was asleep,or unprepared, or when he hadsomehow let his guard down,or been soft or weak. Hereasoned that by alwaysstaying awake, he could see
danger coming, protect him-self, and be safe. Exhausted,but safe.
The tragic events of Septem-ber 11th, and the grief andfear they brought, made meremember this man. Livingwith the unpredictability ofthe diseases of mental illnessand multiple sclerosis, and theunpredictability of simply
living, has given me anintimacy with fear and, likethis man, I once believed themyth that I could minimizedanger by taking total controlof my environment.
When fear comes, we hardenour hearts and bodies toprotect ourselves. Sometimeswe’re paralyzed, unable tomove, sometimes we racearound, trying to make our-selves into a moving targetand harder to hit. We buildfortresses and walls, draftarmies, pay insurance compa-nies, doctors, and govern-ments to protect us fromdanger as we try to minimizethe risks of being human. Butwhen we live in fear fromeverything that can hurt us, weinsulate ourselves from lifeitself, because pain, fear,danger, grief, death are un-avoidable ingredients of life.No matter how hard we workand try to get all our “ducks inone line,” things that can hurtus will inevitably touch us atsome time in some way.
Americans spend more than$50 billion on security equip-ment to protect their homes
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Mental Illness/Brain Disorders
Be Not Afraidby Pete Feigal
and property. As a nation, wespend more than $300 billiona year on planes, tanks, guns,and soldiers to protect our-selves. We spend billions onhealth and life insurance toshield us from the costs ofillness and death. And with allthese expenditures, thousandsof dollars for every man,woman and child in theUnited States, nobody feelssafe. Even before September11th.
Gandhi said, “Where there isfear, we lose the way of ourspirit.” When we are in fear,we focus all our attention onthe point of danger and loseour capacity to find anycourage, security, or peace inourselves. We become soobsessed with what threatensus that we lose sight of our“hearts of courage.”
It seems that genuine faith,strength and courage comesfrom the ability to trust inwhat is most fundamentallytrue within ourselves. Cir-cumstances will change, andthings good and bad are goingto happen. Our lives and theworld can change in a
heartbeat. Sometimes we’llhave joy, and sometimes we’llhave sorrow. Many timeswe’ll be afraid. But the objectof faith and courage is not toeliminate difficult circum-stances. It’s not about trustingin a God who will save usfrom danger, or who—if onlywe believe strongly enough—will make everything better.The real question of faith andcourage is when pain and lossinevitably come our way, dowe pull back in fear that wewill be destroyed, or do wedeepen our trust in our innatecapacity to endure them?
The most-used phrase in theChristian gospels is “be notafraid.” It’s used over 300times. The gospels werewritten at a time when earlyChristians were being ar-rested and persecuted, so theyweren’t saying “be not afraid”because there was nothing tobe afraid about. They weresaying that if you had thatstrong, quiet place inside, thattrust in your own spirit, itdidn’t matter if you werearrested or persecuted, itdidn’t matter if you wereattacked by terrorists, orbattling mental illness or
multiple sclerosis. If you havethat place of courage andserenity in your heart, nomatter what, things will be allright.
Faith isn’t an insurance policyto protect us from life. Truesafety doesn’t come from theabsence of danger, but fromthe presence of faith andcourage. If we seek our safetywithin our own hearts and notin the manipulation of envi-ronment and circumstance,that’s the only time we can besafe.
That’s how we “stay awake”in this dangerous world. Andby making our hearts vulner-able by loving and trustingothers, friends, family, apower higher than ourselves,we may find that we can letour guards down for a fewhours, share the burden ofdanger, and let ourselvesfinally rest in safety, knowingthat someone else we trustwill stand guard, and we allcan be watchful for eachother.
So be not afraid. Get somesleep. I’ll take the first watch,you take the second.
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The terrorist events inNew York and Washing-
ton have generated manyfeelings and activities. One ofthe activities for me has beento be able to remember thatwe must not see this horror asacts of one religious group,but rather as acts perpetratedby individuals who are con-trolled by a need for extrem-ism and violence, and acompletely warped justifica-tion system.
It was ironic that, as I waslistening to the unfoldingevents in New York, I wasalso going through stacks ofdocuments piled on my desk.Buried in the middle of thispile was a handout wereceived at one of ourdiversity training programs. Itis a colored card that has aworld map on it. Below theEarth are hands of multi-colored individuals reachingup to the globe with the words“You are entering a Hate FreeZone” above and below.
How apropos it was for me tofind this and immediately
reinforce my need, in facteveryone’s need, to resisthate and stereotyping. It was amessage that reminded methat we have to be able tofocus on individuals ratherthan classes, groups, or entirecultures. It said to me that—above all—I must not hate.
Since September 11th, I havetried to learn more about howpersons with diverse culturalbackgrounds around me havereacted to this catastrophicevent. I have heard fear ofincreased prejudice, retalia-tion, unworthiness, shame,and uncertainty about theability to move about withinthe general community. I havealso seen a pulling together, awillingness to interact anddiscuss concerns and feelings.I have felt a bonding toimprove efforts to work sideby side and to move forward.
Many of us have had to drawon our inner spirituality tohelp us reflect and understandwhy and how we will goforward without increasedsuspicion, prejudice, and even
Religion and Disability
How Do I React?by John Schatzlein
Question? Complaint? Comment? Write to Nicole: % Access Press, 1821University Ave. W, #104 S; St. Paul, MN 55104; HelloNicoleAccess @yahoo.com
Hello Nicole:Hello Nicole,
My 12-year-old son, Tim, isdealing with big emotionalissues. We have Tim into acounselor, but he’s not spe-cifically trained for the trialsof an adolescent with adisability. It’s incredible tome that there is no one thatseems to be an “expert” withthese issues. Tim is stillstruggling and is depressedoften, angry at other times. Hedoesn’t like to talk about itwith me, so I’m not even sureexactly what his issues are,but I definitely understandhow he can get depressed. Atthis age, the need for assis-tance with private things likebathing, dressing, and usingthe toilet is more difficult forhim to accept than when hewas younger. I’m able-bodiedso I can’t even imagine howirritating it all must be forhim. I regularly tell him he’smy hero because he’s dealtwith far more in his 12 yearsthan 95% of people do in theirentire lifetime. Do you haveany recommendations?
Sincerely, Dad
Dear Dad,
Adolescence is when we arestriving to be independent anddefine who we are, yet, at thesame time, we desperatelyneed to fit in and be sociallyacceptable. This dichotomy isenough to frustrate any teen-ager—add to it a disabilitythat limits independence andcarries a heavy social stigma,and it’s easy to see why yourson is having difficulty.
Although you can’t take awayyour son’s pain, your re-
sponse to his pain will affecthow he thinks about himselfand his life, and how he learnsto cope during hard times.Many parents, however il-logically, feel responsible fortheir child’s difficulty andbelieve it’s their duty to makethe “problem “ go away. Noone wants to see their childrensuffer, but if we can start tosee difficult times as usefullearning processes (ratherthan as problems to beavoided) we can teach ourchildren to feel more comfort-able and hopeful within theirdepression, anxiety, or anger.Likewise, since your son’sissues focus in large partaround the negative implica-tions of his differences, it isespecially important that youvalidate the normalcy of yourson’s emotions so that hisdepression, for example, doesnot just become somethingelse “wrong “ with him. Helphim understand that his feel-ings of depression or angerabout not being able to be asindependent as he wants to be,or because he feels cast outsocially at times, is not aproblem, but a healthy andnormal response to an unfairsituation.
The attitude you take whentalking with your son is just asimportant as the words yousay. Talk to him as an equal.Make sure you are expressingcompassion, and not pity, forhis situation. To the degreethat you have trouble imagin-ing yourself coping in yourson’s position your son willhave trouble finding supportfrom you in learning how tocope. Do not tell your son thathe is your hero. When some-one tells me I am heroic, I feel
what they are really saying is:“You must be exceptional be-cause your life is so horriblethat no regular person couldlive that way.” While I knowthey mean well, these types ofstatements are insulting andisolating. It is much more help-ful to say, “I can see how thisis really hard and I admire theway you are handling it. I doubtI could do any better with itthan you are.”
Once you have the channels ofcommunication open withyour son, regularly ask him ifthere is anything you could doto make things easier. Brain-storm ideas that could in-crease his independence andprivacy, and be willing tomake changes in the family’sroutine if necessary. As muchas possible, introduce yourson to adults with disabilitieswho are living happy, inde-pendent, and productive livesso that he can start to see howit can be done. Havingdisabled role models is ex-tremely important, yet that issomething that is often miss-ing from the lives of childrenwith disabilities.
Make sure that if he is nothappy with this therapist, youoffer him other options. Al-low him to experiment andfind a therapist or supportgroup he connects with. Trustthat he knows what is good forhim. The more your son has asense of control over his life,and the more he learns that hecan manage without having tobe Superman, the better hewill feel about himself and hisabilities.
-- Nicole
hatred. Strength, derived fromthis inner spirit, will prevail.Over time it will give us thedirection and energy neededto carry forward with arenewed commitment to makethis world a better place. Itwill prevent isolationism byhelping us understand that weneed each other, irrespectiveof culture, functional abili-ties, gender, religion, orsexual orientation.
We will all be impacted byrecent events. We will need tobe strong, work together, andseek better understandingand awareness of each other.
John Schatzlein works in theCatholic Charities Office forPersons with disAbilities
Pleasepatronize your
Access PressAdvertisers.
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October 10, 2001 8
Directory of Organizations forPersons with Disabilities
archennepincarver.orgARC - MN, Bob Brick, 651-523-0823, 1-800-582-5256,
[email protected] - Suburban, Marianne Reich, 952-890-3057ARRM, Bruce Nelson, 651-291-1086Justice for All, 202-488-7684, Justin and Yoshiko DartMN Consortium for Citizens With Disabilities, Tom Brick,
651-296-3478MN Developmental Achievement Ctr Assoc, 651-647-9200North Suburban Consumer Advocates for the Handicapped
MN Children with Special Health Needs, 651-215-8956,1-800-728-5420 V/TTY
MN Dept. of Human Services, Traumatic Brain InjuryProgram, 651-582-1938
MN Gov. Council On Dev. Disabilities, Deborah Tompkins,651-296-4018 V, 651-296-9962 TTY
MN State Council on Disability, 651-296-6785MN State Services for the Blind, 651-642-0500, 800-652-9000St. Paul Advisory Commitee for People w/Disabilities, Roger
Schwagmeyer, 651-266-8891
HEALTH ORGANIZATIONSChildren’s United Hospital, 651-220-8000Gillette Children’s Hospital, Lynn Carpentier, 651-229-3845Health Psychology Clinic, U of M, 612-624-9646Methodist Hosp. Ctr. for Senior Services, 952-993-5041Methodist Hosp. Parkinson Center, 952-993-5495Methodist Hosp. Stroke Supp. Grp., 952-993-6789Shriner’s Hospitals for Children, Karen Boyer 612-596-6105Sister Kenny Institute, Deb Rasmussen, 612-863-4622
HEARING IMPAIRMENT SERVICESDeaf Blind Services MN, Jean Greener, 612-362-8454 V/
TTY, [email protected] & Hard of Hearing Services Metro, Marie Koehler, 651-
297-1313 TTY,651-297-1316MN Assoc. of Deaf Citizens, Inc., Douglas Bahl, 763-757-
5998 TTYMN Commission Serving Deaf & Hard of Hearing People,
[email protected] Institute, Wendy Brower, 952-935-9343Down Syndrome Assn. Of MN, 651-603-0720, [email protected] Consumer & Family Regional Resource Center, 218-
728-3531East Suburban Resources, Sue Schmidt, 651-351-0190 or
MRS 800-627-3529ELCA Committee on Disabilities, Linda Larson, 612-788-
8064Epilepsy Found., John Thompson, 651-646-8675, 800-779-
Editor’s Note: Please let us know if there are any errors in your listing, and tell us what you think of the new format.If you would prefer your organization be in a different category, please let us know your wishes. Thank you!
Directory - cont. on p. 9
9October 10, 2001
RESOURCE CENTERS continuedHemophilia Foundation of MN, 763-323-7406Independence Crossroads, Rob Olson, 612-854-8004,
[email protected] Family Service, Maggie Spears, 612-348-5788League of Women Voters, 651-224-5445, [email protected] Society of America, MN Chapter, 952-545-3309Lupus Foundation of America, MN Chapter, 612-375-1131,
[email protected] Disease Network of MN, Linn Olivier, 651-644-7239MN AIDS Proj., Lorraine Teel, 612-870-7773, 612-870-0700MN Resource Center, Kim Feller, 612-752-8102MN Stroke Association, 800-647-4123, www.strokemn.orgMuscular Dystrophy Assoc., Christina Van Vooren, 952-832-
5517 (Mpls. district), 952-832-5716 (St. Paul district)National Ataxia Foundation, Donna Gruetzmacher, 763-553-
0020, [email protected]’l Center for Youth w/ Disabilities, Elizabeth Latts, 612-
U of M AFFILIATED PROGRAMSInstitute on Community Integration, Vicki Gaylord,
[email protected], 612-624-4512U of M Disability Services, 612-626-1333 V/TTY,
[email protected] of M Disabled Stud Cultural Ctr, 612-624-2602, 612-626-
7003 TTY
VISION IMPAIRMENT SERVICESAm. Council of Blind Services, James Olsen, 612-332-3242BLIND, Inc., Joyce Scanlan, 612-872-0100Candle in the Window, Kathy Szinnyey, 1-502-895-0866Commu. Ctr for the Blind, Dave Andrews, 651-642-0513
VOCATIONAL SERVICESAccessAbility, Inc., Darren Mack, 612-331-5958,
[email protected] to Employment, Lori Sterner, 763-543-6980V/TTYGoodwill Industries/Easter Seal, Lynette Bergstrom, 651-646-
2591 V, goodwilleasterseals.orgHennepin County Vocational Services Program, Shanna Melton,
612-348-8370, shanna.melton@co. hennepin.mn.usLifeworks Services, Susan Sczcukowski, 651-365-3732,
[email protected] Training Services, Barbara Kale, 651-641-0709Rise, Inc., 763-786-8334, [email protected], Inc., Phil Saari, 651-489-2595Vinland Center, Carol Jackson, 763-479-3555 V/TTY, vinland
Ramp Project Transition Program ADA InformationMeeting Rooms Computer Lab Resource Library
Support Groups ...Chemical Dependency with Physical DisabilityGLBT with Disability
Chemical Dependency with Traumatic Brain Injury
1600 UNIVERSITY AVE. W., SUITE 16, ST. PAUL, MN 55104-3825651-646-8342 VOICE 651-603-2001 TTY 651-603-2006 FAX
HTTP://WWW.MCIL-MN.ORG
Diamond Hill Townhomes
We are currently accepting applications for our waiting list atDiamond Hill Townhomes, a great property located near theMpls. International Airport.
We have two and three bedroom townhomes that are HUDsubsidized and rent is 30% of the total household's adjustedgross income.
We have a large number of mobility impaired accessible unitsand we are scheduling appointments for persons in need of amobility impaired accessible unit immediately.
To schedule an appointment please call (612) 726-9341
IN BRIEF . . . .Give Feedback On State Services
October is “Access For All” Month
Grants For Artists With Disabilities
Minnesota Department ofHuman Services (DHS)
Commissioner Michael O’Ke-efe has named 14 people to acommittee that will advise thestate’s metropolitan area di-rect services for people withmental illness, developmentaldisabilities, chemical depen-dency, traumatic brain injury,and other disabilities.
Named to the State OperatedServices (SOS) Metro Net-work Regional Advisory Com-mittee are: Daniel Fischer ofBloomington; Steven Kuntzof Crystal; Sister Jo Lambertof St. Paul; Margaret Lunacekof New Brighton; MustafaMohamed of Minneapolis;
Norman Munk of Minneapo-lis; Kari Myrold of Cologne;Beth Nelson of Eagan; KimOpat of Robbinsdale; RijutaPathre of Maplewood; EddieJane Pelkey of Cedar; PeggyMann Rinehart of Minneapo-lis; Trisha Stark ofMinnetonka; and Julie Young-Burns of Minneapolis.
The advisory committee willbe charged with bringingobservations, questions, andconcerns to the attention ofthe DHS commissioner, SOSmanagement, and the SOSGoverning Board, a citizengroup that sets strategic policydirection for the system.
Metro Regional DisabilityCommittee Named
DHS’ SOS administrationincludes the state regionaltreatment centers and alsoprovides other community-based services to people withdisabilities, often in partner-ship with other health careproviders. The SOS MetroNetwork includes Anoka Re-gional Treatment Center, East-ern Minnesota State OperatedCommunity Services, and theMinnesota Extended Treat-ment Options Program inCambridge.
This information is availableon the DHS website:www.dhs.state.mn.us
Governor’s DD CouncilSeeks Applicants
The Minnesota Governor’sCouncil on Developmen-
tal Disabilities is seeking ap-plications from people withdevelopmental disabilities andparents of children withdevelopmental disabilities toserve on the 25-memberCouncil. Meetings are heldon the first Wednesday ofeven-numbered months at theEarle Brown Center on theUniversity of Minnesota’s St.Paul Campus. The Council isa federally mandated andfunded advisory groupcharged with providing infor-mation, education, and train-ing that will enable peoplewith significant disabilities tobecome independent, produc-tive, and included in commu-nity life. Council membersare appointed by the Gover-nor.
A developmental disability isdefined as a severe, chronicdisability that is attributableto a mental or physical im-pairment or a combinationthereof; is manifested before
the individual attains age 22;and is likely to continueindefinitely. If applied toinfants and young children,this term describes individu-als from birth to age nine,inclusive, who have substan-tial developmental delay orspecific congenital or ac-quired conditions with a highprobability of resulting indevelopmental disabilities ifservices are not provided.
Developmental disabilities re-sult in substantial functionallimitations in three or more ofthe following major life activ-ity areas: self care, receptiveand expressive language,learning, mobility, self-direc-tion, capacity for independentliving, and economic self-sufficiency. Developmentallydisabled individuals need acombination and sequence ofspecial, interdisciplinary, orgeneric services, supports, orother assistance that are oflifelong or extended durationand are individually plannedand coordinated.
Applications are due beforeDecember 1, 2001. A one-page application form is usedfor all appointments by theGovernor. The form is avail-able by writing to the Secre-tary of State, Open Appoint-ments, 180 State Office Build-ing, 100 Constitution Ave.,St. Paul, 55155-1299 or bycalling the Secretary of State’sOffice at 651/297-5845. Ap-plicants may also complete orsubmit an application onlineat www.sos.state.mn.us (Goto “Open Appointments” andthen “Forms.”)
For additional informationabout the Governor’s Councilon Developmental Disabili-ties, contact Colleen Wieck,Executive Director, at 651/296-9964; 877/348-0505 toll-free; 651/296-9962 TDD.You may also e-mail her [email protected] orvisit the Council’s website atwww.mnddc.org or www.mncdd.org
Call For Volunteers
Local Employer Recognized
Governor Ventura has pro-claimed that October, 2001 is“Access for All Month.”With this proclamation, thestate recognizes MikeChevrette’s organization andits goal of “gathering and
As reported in the May 2001Access Press, the State ofMinnesota is reorganizingsome of its programs thatserve people with disabilities.
VSA arts of Minnesota willaward six $1,000 grants toMinnesota artists with dis-abilities through its ArtistRecognition Grant Program,funded by the Jerome Foun-dation. The program’s goalsare: to recognize excellencein arts produced by personswith disabilities; to providefinancial awards and tangibleencouragement to artists with
In conjunction with MentalIllness Awareness Week (Oc-tober 7-13), HennepinCounty’s Mental Health Vol-unteer Program requests yourhelp. Volunteers are needed
The State is soliciting input onthis process from citizens. Tolearn about the process andgive your input, visit thespecial website that the State
has set up for this purpose atwww.mntransition.org orcall (651) 215-1094.
disseminating accessibletravel information for personswith disabilities...” Statingthat “the disabled communityis the only minority group thatanyone can join at any time,”the proclamation notes that
“improved access breaks downbarriers and enhances thequality of life” of all Minne-sotans. The State also sees thework of “Access for All” as away to bring in more tourism.
disabilities so their work inthe arts might continue; and toidentify Minnesota artists withdisabilities who are dedicatedto making arts productionand/or presentation a centralpart of their lives.
The program is open toindividuals in all art disci-plines: visual, performing,written, media, etc. This in-
cludes grant recipients from1996-98. The applicationdeadline is Friday, November9, 2001. For an application,call 612-332-3888 or 1-800-801-3883 (in greater Minne-sota) or e-mail [email protected]. If you need a formatother than standard print,specify PC diskette, audiotape, Braille, or large print.
to spend time with peopleaffected by mental illness.Participating volunteers areasked to meet every otherweek with one person toprovide support, encourage-
ment, and friendship. If youare interested in volunteering,please call Jackie Connolly at(612) 348-2875 or e-mail [email protected]
Fifteen Dakota County em-ployers will be recognized at aluncheon for their outstandingachievements in hiring peoplewith disabilities. The October16, 2001, luncheon will behosted by the Dakota CountyRehabilitation Services, apartner of the MinnesotaWorkforce Center. It starts at11:30 a.m. at the Old Chicago
Restaurant in Apple Valley(14998 Glazier Avenue).
The “Recognize Your Boss”luncheon is designed toheighten awareness of thecontributions that people withdisabilities bring into thepublic workforce. The eventalso honors the Octoberobservation of National Dis-
ability Awareness Month.
Rehabilitation Services, sup-ported by both State andfederal funds, assists peoplewith disabilities who needservices to help them enter theworkforce, or to find and keepa job. To locate an RS officein your area, call (651) 296-5616.
Open Forum On IDEACongress is planning changesto the Individuals with Dis-abilities Education Act(IDEA). The PACER Center,in collaboration with the U.S.Dept. of Education and theGreat Lakes Area RegionalResource Center, will presentan open forum to give feed-back to the federal govern-
ment on how important spe-cial education is, why itworks, and how it could bebetter. Minnesota is one ofonly seven states to beselected by the EducationDepartment to host such apublic forum.
The forum will be held in two
sessions on Tuesday, Oct 23rd:One session is 1 to 4 p.m., andthe other is 6 to 8 p.m. Bothsessions will be held at thePACER Center in Blooming-ton, 8161 Normandale Boule-vard. For more information,call PACER at 952-838-9000in the Metro area or toll-freeat 1-800-537-2237.
In Brief - cont. on p. 15
11October 10, 2001
October 10, 2001 12
HOLOCAUST- Cont. from p. 1ground upon our arrival theprevious night. But the realityof standing in the space whereit occurred, and hearing againthe HOW of it all, wasoverwhelming. I listened, butI couldn’t take it all in. I heardthe words, but I had to shutdown at times to try to processthe enormity of it.
From the gas chamber wewere led into the dissectionroom. It reminded me of abasement laundry room: ce-ment, stark, cold. There infront of us was a large, thick,gray, cement table fastened tothe ground. It lay tiltedslightly, with a drain at thebottom. Bodies were some-times brought here, and bodyparts, especially brains, wereremoved. They would then besent to one of three universi-ties in Germany, where theywere used for teaching pur-poses. Not until studentsfound out about this in the1990s, and demanded thatthey be buried, was thepractice discontinued. Utatold us “there are still prob-ably body parts being used insome Universities.”
For some reason, on that daythis room overwhelmed me. Irealized that at certain times Isort of went numb and thenonce I could muster up thecourage to let the feelings in
again I would break down.
From the dissection room wemoved to the crematorium.We began to walk down a sortof hallway where we passedunder about four arches. Ithought it was odd when, atthe end of the hall, it lookedlike an altar. When I gotcloser, I saw it was a picture ofthe ovens. The ovens hadbeen removed, but we stoodaround the small area wherebodies were burned. 10,000people were gassed and cre-mated between January andAugust 1941 in this smallbasement.
Later in the day, we had asmall ceremony here wherewe placed some flowers, and afew people in the group madesome comments. Around thecorner were pictures of someof the people who died,hanging there as thoughkeeping a watchful eye, ormaking us look into theirs andremember. The place was sostill, so cold, yet so filled withlessons that reach to the verycore of one’s soul.
Because we stayed right in thebuilding, on the second floor,we were able to come backalone, or with one or twopeople, and process it a littlemore. I went back with Per, aman who had lived in an
institution for 20 years inNorway. As we stood there inthe gas chamber, he solemnlybowed his head and said, “I
can only imagine myselfbeing in here, seeing people Iknow. One falls, and thenanother, and then you say‘When will it be me?’ Or,worse yet, ‘Will I be thelast?’”
The next day we visited thecemetery. As we climbed thestairs up a beautifully land-scaped hill we could not helpbut notice on our left the
barbed wire fence three layersdeep. This area still housesthose labeled “criminallyinsane.” We questioned why
this was still in use but noanswer was given.
Those who died by over-medication and starvationwere buried, 10 deep, here inthe cemetery. No names, onlynumbers. Decades later thecemetery was converted into asimple grassy area with stoneimages from each religion.They said the families likethat they can see the symbolsif they visit. It seemed ironicto me that this place could begiven the appearance ofserenity, where nothing hap-
pened. It seemed as though itwas covered up and somehowthe images of a cross, a Star ofDavid, and the Islamic cres-cent moon (though not accu-rately portrayed) made it allOK.
The most striking image forme was the stone wall aroundthe small graveyard. In onesmall section there was aniron gate. When I walkedover and looked out throughthe iron bars, I saw a beautifulgreen field. It was large andexpansive, and the sky met it,and it looked as though itcould take you anywhere.There was something aboutthe field that drew you to it.That image, seen through thewrought-iron gate that held usin, provided a powerful end-ing to our stay.
Many questions stayed withme upon my return fromHadamar. I ask myself,“Would I have spoken up in1941... especially for peoplewith disabilities? Do we do ittoday?” That last questionhaunts me even more now as Ithink of my/our work in thefield. I feel, even morestrongly, that there are somethings I don’t want to be partof, and I feel very clear aboutthat.
I don’t know how one putsclosure on such an experi-ence. I don’t think one can,nor should. Each time I re-tellthe story something new
overwhelms me, or teachesme, or even makes me smile.Maybe the sense of closure isin the action that we take afterbeing there. What we dotoward others as profession-als, friends, family, and moreimportantly as humans I—guess—are the true test of theimpact. That, too, is a dailystruggle.
Before traveling to Germany,I met a woman psychiatristfrom Norway who was instru-mental in bringing the exhibitto her country. She was in her70s when she heard about thisand began questioning howher peers could commit suchacts. What she was left withafter her pursuit was theconnections that exist today,those things that have becomepart of the norms of manysocieties, including the UnitedStates. I did not come awaywith that “distancing” feelingof “How could THEY dothis?” Rather, I must askmyself if I see the sameattitudes and beliefs that ledto Hadamar being perpetu-ated in our own time, in ourown country. And I askmyself if my behavior con-tributes or complicates thingsin any way? I’m fearful theanswer is yes.
Augsburg College will besponsoring a photo exhibit inNovember based on theHadamar camp; for detailssee the notice on this page.
HADAMAR PHOTO EXHIBITNOVEMBER 7th–11th
A photographic exhibit of Hadamar Germany, the site where15,000 people with disabilities were killed between 1941and 1945 as part of Hitler’s euthanasia program, will be ondisplay from November 7th through November 11th in theChristensen Center commuter lounge at Augsburg College.
An opening reception, with comments about the exhibit, willbe held on Wednesday, November 7, at 7:00 p.m. in theHoversten Chapel in the Foss Center at Augsburg College,2211 Riverside Avenue in Minneapolis.
The event is sponsored by the Diversity Committee atAugsburg College, the Minnesota Association for HigherEducation and Disabilities (MNAHead), Access Press,Advocating Change Together (ACT), and the AugsburgDisability Association (ADA)
You are invited to come and witness an important part ofhistory. To learn more, call the college at 612-330-1494.
Preferred Home Health ServicesServing physically and emotionally challengedindividuals throughout the metropolitan area.
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The Metropolitan Center forIndependent Living is celebrating
20 GREAT YEARS
Join us for our Annual Meeting and Celebrationon October 24, 2001
5pm to 9pm - Dinner at 6:15pm (cost $10 each)
Four Points Sheraton : 400 North Hamline Avenue, St. Paul.
Please RSVP with payment by October 18, 2001For more details call 651-646-8342 or TTY 651-603-2001
13October 10, 2001
ACCESS IS FREEDOM!National Handicap Housing Institute, Inc.
Now accepting applications forGarfield Commons
— under construction indowntown Bloomington
Community Enrichment Through Housing Diversity
CALL 651-639-9799
NEW PROGRAM - Cont. from p. 1
Receiving these funds wouldadvance Minnesota’s van-guard work in moving peoplefrom institutions to the com-munity and in expanding lifechoices for them and theirfamilies. We need to developconsumer-directed, person-centered service systems soindividuals with disabilitiesare engaged in the systemsdesign process before ser-vices are developed, ratherthan asking people to fit intoservice models after the fact.
The grant funds also wouldenhance our efforts to bringmany consumers to the table.We will know by October 1,
2001, if we are awarded thegrants. [Editor’s note: Just aswe were going to print, AccessPress received word thatUnited States Department ofHealth and Human ServicesSecretary Tommy G. Thomp-son announced that the Min-nesota DHS has been awardedtwo grants: $900,000 for theConsumer Directed PCA ini-tiative, and $2.3 million forthe Real Choice SystemsChange initiative.] With orwithout the federal funds,however, consumers will beinvolved in this system. Weare especially concerned aboutengaging people with whomwe traditionally haven’t con-nected well: people withsevere disabilities, peoplewho are homeless, peoplewho are immigrants and maynot speak English, peoplewith very low incomes, tribes,and communities of color.Staff will be doing outreach inthese communities.
Our goal in forming thisdivision was to assemble ateam of people with diversedisability backgrounds andexperiences. Most of our staffmembers have personal expe-riences as consumers and/oras parents, siblings, or adultchildren of people with dis-abilities. Their backgroundsinclude personal and profes-sional experience in the areasof developmental disabilities,traumatic brain injuries, men-tal health, HIV/AIDS, physi-cal disabilities, and chemicalhealth. Professional experi-ence also includes work indirect services delivery, sur-rogate decision making, con-tinuing care policy, programevaluation, quality assuranceand improvement, researchand data collection and man-agement, the Americans withDisabilities Act, disabilityand diversity training, andoutreach to tribes and com-
munities of color. The teamwill focus its efforts in threeprimary areas: citizen en-gagement in the design andmonitoring of quality assur-ance and improvement sys-tems, performance measure-ment and evaluation, andpolicy development andimplementation. Team mem-bers include: KatherineFinlayson, planning director;Jean Martin, data systemslead; Karen Pedersen, out-comes evaluation and perfor-mance measurements; LindaWolford, lead policy special-ist; Sandy Foy, liaison tocounties; JoAnn CardenasEnos, assistive technologyexpert and consumer outreachto tribes and communities ofcolor; Joyce Jorgenson, con-sumer outreach lead; KellyMoch, special projects con-sultant; and Marsha Nadeau,administrative support.
People will be informed in anumber of ways – primarilythrough community and con-sumer organizations repre-senting them or local socialservice agencies – aboutopportunities to participate indeveloping a quality assur-ance system. Meanwhile,anyone interested in moreinformation about ourdivision’s activities is encour-aged to contact the Commu-nity Quality Initiatives Divi-sion to request a copy of theone-page abstracts describingthe grants and/or to have theirnames added to a mailing listfor future contact. Call 651-634-5099, voice; 651-582-1808, fax; 1-800-627-3529,TTY; or 1-877-627-3848,speech-to-speech through theMinnesota Relay Service.
Deb Holtz is director of theCommunity Quality Initia-tives Division within theMinnesota Department ofHuman Services.
Legislative Review 2001,Part 3: A Variety OfChangesby Anne L. Henry
Editor’s Note: This is thefinal part of a three-partseries explaining the ins andouts of the various laws andpolicies affecting people withdisabilities put in place by thelegislature in 2001. Part 1 ofthis three part series had to dowith the income, asset, andeligibility standards for pro-grams serving people withdisabilities. Part 2 focusedon laws having to do withcommunity supports to allowpeople to get out and stay outof institutions and live inde-pendently in the community.This month’s Part 3 includesone final provision having todo with community supports,and then summarizes all ofthe various “uncategor-izable” provisions passedinto law this past session.
Reorganization ofDisability Waivers
The 2001 legislature ap-proved a proposal by theDepartment of Human Ser-vices (DHS) to reorganizethree separate disability waiv-ers into one waiver. Thepurpose of the new “disabilitywaiver” is to provide commu-nity care to persons under 65years of age who need thelevel of care provided in anursing home or a hospital.The new disability waiverrequires that individuals areoffered an informed choicebetween institutional care andcommunity-based care, andthat persons receive casemanagement including as-sessment, development of anindividual service plan, assis-tance with obtaining serviceproviders and access to ser-vice plus coordination, evalu-ation, annual reviews andinformation on an individual’sright to services includingtime lines and appeals.
The legislation re-quires a statewideaverage paymentamount shall beimplemented January1, 2002 with anaggregate, needs-based method forallocating funds. Thisnew aggregatemethod of fundingshould better servepersons with higherneeds than the cur-rent individual capbased on an averagenursing home or hos-pital payment. Con-sumer-directed com-munity supports arerequired to be of-fered as an option toall eligible persons
by January 1, 2002. ByJanuary 1, 2003, the Commis-sioner is required to simplifyand improve access to ser-vices through the establish-ment of a common servicemenu for all persons using thedisability waiver.
Until the new payment systemis in place January 1, 2002,the Commissioner can ap-prove higher waiver fundingbased upon the extraordinaryneeds of the individual begin-ning July 1, 2001. The higheramount must be necessary toprevent institutionalization orto get the person out of afacility.
Child MaltreatmentReview Panel
Funding was approved for AChild Maltreatment ReviewPanel allowing persons torequest a review of decisionsby DHS or the Department ofChildren, Families, and Learn-ing (DCFL) on child maltreat-ment reports. The ChildMaltreatment Review Panel ispatterned after the VulnerableAdult Review Panel estab-lished in 1999.
Autism Therapies
A new service entitled “Inten-sive Early Intervention Be-havior Therapy Services forChildren With Autism Spec-trum Disorders” has beenadded to the list of servicescovered by Medical Assis-tance as of January 1, 2003.
The provision has detailedeligibility requirements, in-cluding IQ and age criteria,along with continuation crite-ria after six months oftreatment. In his message onthe signing of the Health andHuman Services Omnibus
bill, Governor Ventura ex-pressed fiscal and policyconcerns with this section. Hestated that he expects theLegislature to work with DHS“to make improvements” nextsession to address the narrowfocus in both diagnosis andtreatment strategies.
Medical AssistanceManaged Care Will
Remain Voluntary forPersons with DisabilitiesUnder 65 Years of Age
Language which eliminatedthe requirement that managedcare remain a voluntary op-tion for persons with disabili-ties under 65 was changed bythe Legislature. The volun-tary status of managed carefor persons under 65 eligiblefor Medical Assistance nowhas no expiration date so thatany managed care will have toremain voluntary.
New Requirements WhenSame Agency Provides
Both Day and ResidentialServices
New language requires that anindividual needing both dayand residential services shouldhave two different agenciesprovide these services. How-ever, the same agency mayprovide both day and residen-tial services if the person andtheir legal representative areoffered a choice of providersand agree in writing to bothday and residential servicesfrom the same provider. Theperson’s Individual ServicePlan must describe how theperson will be protected andin contact with individuals notemployed by the agency.
Medicaid Funding for DayPrograms
The commissioner of humanservices is required to requesta day services home andcommunity waiver to allowMedicaid reimbursement forsupported employment andcommunity inclusion daytraining and habilitation (DT& H) services. The provisionwill require counties to paythe non-federal share to matchfederal Medicaid funds. Cur-rently, counties pay the fullcost for about 1 in 4 adultswith developmental disabili-ties who participate in DT &H services. The section iseffective either July 1, 2003or two years after federalapproval of the waiver, which-ever is later.
Public GuardianshipChanges
Several significant changeswere made to the PublicGuardianship Statute, includ-ing a new requirement that aguardianship service providermeet the ethical and bestpractice standards of theNational Guardianship Asso-ciation. Although countiesare not considered guardian-ship service providers, thisnew definition shouldbe helpful in trying toget counties to con-tract with qualifiedprivate entities toLeg. - cont. on p. 14
October 10, 2001 14
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1991 Ford E150 Handi-capped Van. 51,000 miles.Crow River lift.. Very goodcondition and clean. 763-449-0365
1992 Ford Econoline con-version van. Handicap acces-sible-driveable. Crow Riverlift. Excellent condition. Norust, a must see. Call Judy orleave message, 651-464-1768.
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1993 “Vibo” Pontoon Boat24FT w/2/3 Canopy Wheel-chair Widened Doors-Smallfold down ramp on frontentrance. Less than 130 hoursuse on 40 Horse Force Motor.Elec. Start, Power Tiller, Fishdepth finder, Live-well. Ask-ing $450000. Previous ownerswheelchair users. Contact:J.Schatzlein 952-881-2129 or651-215-2216.
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Stonehouse Square Apart-ments, 215 NE BROAD-WAY ST., MPLS., 1 BDRMSection 8 Rental Apartments.4 units designed for physi-cally handicapped persons.Occupants pay 30% of theirincome as rent. Now accept-ing applications for thewaiting list. CALL 612-378-3945 Mon-Thurs, 2 pm - 6 pmFriday 9 am - 1 pm
Lewis Park Apartments:Barrier free housing withwheelchair user in mind.Section 8 subsidized. One-and two bedroom units. Formore information on avail-ability call (651) 488-9923.St. Paul, MN Equal Opportu-nity Housing.
Seward Square Apartments:We are currently acceptingapplications for our waitinglist at Seward Square Apart-ments in Minneapolis. SewardSquare is barrier-free housingand is federally subsidized.For an application, please call(612) 338-2680. Equal Op-portunity Housing.
Holmes-Greenway HousingOne and two bedroom apart-ments designed for physicallyhandicapped persons. Conve-nient SE Minneapolis loca-tion. Call (612) 378-0331 foravailability information. EqualOpportunity Housing.
MISCELLANEOUS
Charlie Smith’s cats are indesperate need of a home.Jasmine and Lizzy are twofemale cats, very friendly andin good health. Would like tokeep them together but willsplit them up if necessary. Forinfo call 612-970-4048
“Words of Love” is a CD bySnoopi Botten, a musicianwith cerebral palsy whowrites and performs inspira-tional songs using a syntheticspeech system. To order, call(612) 872-7233 or visitSnoopi’s website at http://hometown.aol.com/dectalk/myhomepage/index.html.
LEGISLATIVE REVIEW - Cont. from p. 13
perform guardianship duties.
Language clarifying that acounty guardian does nothave to be found inadequateor unfit to be removed in favorof a family member wasadopted. Family membersmust still be found to be ableto act in the person’s bestinterest.
Funding of $250,000 per yearfor two years was provided toassist counties to transferpersons from public to privateguardianship.
Patient Protection Act
A number of patient protec-tion provisions were adoptedafter changes were made tomeet Governor Ventura’s ob-jections to the inclusion ofstate employee health plans inthe access to specialty careprovision. The Act providesfor 1) recommendation to theLegislature on health cover-age during participation in aclinical trial, due January 15,2002; 2) continuity of careimprovements for some medi-cal conditions; and 3) accessto specialty care, includingrequiring a process for obtain-ing a “standing referral,”conditions for a mandatorystanding referral, and coordi-nation of services by aspecialist.
Minnesota FamilyInvestment Plan (MFIP)Extensions for ParentsCaring for Children orAdults with Disabilities
Participants eligible for ex-tension of the 60-month cashassistance limit include thosewho are ill or incapacitated,those whose presence in thehome is required to care for afamily member whose illnessis expected to last more than30 days, or will qualify forMFIP benefits beyond 60months, and who are care-givers for a child or adult whoqualifies for home care or as aperson with severe emotionaldisturbance or serious andpersistent mental illness.
In addition, parents who weregranted extensions can qualifyfor employment and trainingservices for the number ofmonths spent in exempt sta-tus.
DHS Licensing StaffIncreases
A DHS budget proposal toincrease licensors to improveservice was funded for over$2 million for 14 new staff.The appropriation requiresDHS to meet the promisedoutcomes of: reduced averagelength of investigation oflicensing complaints to 75days; completion of all licens-ing reviews with one or twoyears as required in statute;
and completion of negativelicensing action decisionswithin 45 days of countyrecommendations.
State Waiver of Immunityfor Violations of Federal
Rights Statutes
The Legislature decided toallow current, former, andprospective state employeesto sue the state for violationsof the Americans with Dis-abilities Act, the Age Dis-crimination in EmploymentAct, the Fair Labor StandardsAct, and the Family MedicalLeave Act. The United StatesSupreme Court in the Garretcase has recently held thatunder the Eleventh Amend-ment, a state is immune fromdamage actions in federalcourt unless it waives itsimmunity. This Act clears theway for such lawsuits.
Other Changes
A criminal background checkevery three years will berequired for non-family pri-vate guardians for two ormore persons
The Council on Disabilitywhich was to sunset as anagency this July, is extendedto July 1, 2003.
Anne Henry is an attorneywith the Disability Law Cen-ter in Minneapolis.
15October 10, 2001
ADMINISTRATIVEASSISTANT
Great Opportunity below!
Faegre & Benson LLP,Minnesota’s second largestlaw firm, has an exciting, newopening for an AdministrativeAssistant. This position willprovide administrative sup-port to our rapidly growingLitigation Technology Ser-vices department. You willprepare general correspon-dence and documents; pro-vide telephone support; rec-oncile invoices for payment;provide initial orientation totemporary staff; maintain listsof client & matter names;schedule conference rooms;create & run various reports;maintain departmental calen-dars; track and review billablehours for staff; along with avariety of other duties andprojects.
Our ideal candidate will havearound three years of admin-istrative experience with ex-cellent organizational, com-puter & communication skills.In addition, our candidate willbe people, service & action-oriented and have a proactiveflexible work style. Faegre &Benson LLP offers competi-tive wages and an excellentbenefits package, including adiscounted bus program-Metropass. For additionalinformation about Faegre &Benson, visit our website atwww.faegre.com. Please sendresume and salary history toHuman Resources:
Large, technically progres-sive law firm seeks program-mer/analyst to join our Ad-vanced Applications Depart-ment for projects in VisualBasic, Active Server Pages,IES+, XML, MS SQLServer, Exchange, Access,and Office/VBA, all underWindows 2000/XP. Weprefer strong writing skillsand experience with any of thefollowing: document man-agement systems and otherlegal applications; currentWord, Excel, and Outlookobject models; CDO; ADO;DHTML; Active Directory;Web Services; SharePoint;BizTalk; COM+; Microsoft.NET Framework. Bachelor’sdegree required; ComputerScience major preferred, orequivalent experience. Weoffer a professional workenvironment, competitivewages and an excellent ben-efits package, including adiscounted bus program -Metropass. For additionalinformation about Faegre &Benson, visit our website atwww.faegre.com. Please sendresume and salary history toHuman Resources:
Faegre & Benson LLP, one ofMinnesota’s leading law firms,is seeking applicants for anew position in our Trusts andEstates practice group. Youwill be working with lawyersand paralegals with a varietyof matters, and will beresponsible for maintainingprobate estates on a dailybasis; collecting and transfer-ring estate and trust assets;preparing accountings of es-tate and trust administrations;and preparing federal andstate estate tax, fiduciaryincome tax, and gift taxreturns. We prefer a 4-yeardegree and/or a paralegalcertificate and 2 or more yearsof relevant experience. Wewill also consider recentgraduates with an interest inprobate; who possess math-ematical aptitude, a strongaccounting background andexperience with computerspreadsheet applications.
Our ideal candidate will bedetail-oriented, possess ex-cellent communication & ana-lytical skills, be able to workindependently & exercisegood judgment. Faegre &Benson LLP offers competi-tive wages and an excellentbenefits package, including adiscounted bus program-Metropass. For additionalinformation about Faegre &Benson, visit our website atwww.faegre.com. Please sendresume, salary history, writ-ing sample and transcripts toHuman Resources:
If you have excellent writingand research skills and arelooking for an exciting careeropportunity in Internationaland Immigration Law, wemay have just the job you’vebeen looking for. Faegre &Benson, Minnesota’s 2nd larg-est law firm, is seekingapplicants for a Paralegalposition in our ImmigrationLaw Group. You would workwith attorneys and have ex-tensive interaction with multi-national corporate clients;research and draft petitionsand prepare government fil-ings on behalf of leadinginternational scientists, busi-ness executives and highlyskilled technical workers.
We are seeking candidateswith a BA or MA in LiberalArts with a strong academicrecord and strong computersoftware skills. Interest andexperience in InternationalAffairs and foreign languagesa plus. Must have demon-strated abilities in writing andresearch. For additionalinformation about Faegre &Benson, visit our website atwww.faegre.com Send re-sume and writing samples toHuman Resources:
Gray Plant Mooty, a 130+attorney downtown Minne-apolis law firm, has thefollowing open position:
COLLECTIONS/CREDIT MANAGER
Experienced person to man-age/administer credit and col-lections for our law firm, andprovide supervision for apart-time collections clerk. Aminimum of 3 years of relatedexperience and/or trainingrequired. Collection experi-ence in a professional serviceenvironment a plus.
We offer a professional workenvironment, educational op-portunities, a culture empha-sizing work/life balance, com-petitive salaries & benefits(including medical, dental,profit sharing and 401k).Send resume with cover letterto HR, Gray Plant Mooty,3400 City Ctr; 33 S. 6th St.,Mpls, MN 55402; fax to 612-333-0066; or e-mail [email protected].
Equal Opportunity andAffirmative Action
Employer
ADMINISTRATIVEASSISTANT
Centex Multi-FamilyCommunities, L.P.
Centex Multi-family Commu-nities, L.P., is the multi-family development arm ofCentex Development Com-pany, L.P., an affiliate ofCentex Corporation. Estab-lished in 1950 in Dallas,Texas, Centex Corporation isa Fortune 500 Company andthe nation’s premier companyin construction-related busi-ness. Centex Multi-FamilyCommunities, L.P., has animmediate opening for anAdministrative Assistant inthe Twin Cities Area. Theideal candidate will haveoutstanding interpersonalskills and an excellent tele-phone manner, computer ex-perience, strong clerical andorganizational skills, the abil-ity to type a minimum of 60wpm and be able to work withminimal supervision. Salarycommensurate with experi-ence. Please submit resumeto: Centex Multi-FamilyCommunities, L.P., c/o Kelly& Fawcett, P.A., 2350 U.S.Bancorp Piper JaffreyPlaza, 444 Cedar Street, St.Paul, MN 55101, or fax to(651) 223-8019. Applica-tions must be submitted to theabove address by Friday,October 19, 2001 at 5:00 p.m.
Centex Multi-Family Com-munities, L.P., is an EqualOpportunity/Affirmative Ac-tion Employer.
OUTREACH WORKERLegal Aid (MMLA) seeks FTor PT translator/outreachworker. Fluency in Hmonglang & familiarity with cul-ture req. Sal: FT-$21,670 +,DOE (pro-rate for PT); fullypd fam hlth & excel vac bens.Resumes to: Susan Carroll,1206 42nd Ave N, MpIs,MN 55412. EOE/AA. Open‘til filled.
EXPLORE NEWEMPLOYMENT
OPPORTUNITIESAs a leading rehab & resourcecenter for people with dis-abilities we offer a variety ofopenings in the followingareas:· Clerical· Seasonal Card Sales· Therapists & Aides· Nursing/CNAs
Please call our job hotline at763-520-0518 or visit ourwebsite at www.Courage.orgfor details on current posi-tions available. CourageCenter, 3915 Golden ValleyRoad, Golden Valley, MN55422. Fax 763-520-0866.EOE. We seek diversity.
Accounting
CLIENTS & MATTERSASSISTANT
Faegre & Benson LLP,Minnesota’s second largestlaw firm, is seeking applicantsfor a Clients & MattersAssistant. This person reportsto our Credit and CollectionsManager and performs vari-ous client and matter mainte-nance functions including:opening, closing, and updat-ing client and matter informa-tion on our Elite AccountingSystem; generating conflictsof interest reports for newmatters; generating and dis-tributing various reports re-lated to the clients/mattersdatabase; researching clientpayment applications; post-ing cash receipts; and othercash accounting functions.Candidates should have a 2yr. accounting or businessdegree; 2+ years accountingand/or database experience ina corporate or service indus-try environment; excellentcommunication and analyti-cal skills; and a team-orientedwork style. We offer a com-petitive salary, outstandingbenefits package, and excep-tional opportunity for profes-sional growth. For additionalinformation about our lawfirm, visit our website atwww.faegre.com. Please sendyour resume and salary his-tory to Human Resources:
Ramsey CountyRamsey County invites you to join us in building a bettercommunity through public service in the following fields:
• Administrative, Management and Technical Services• Building and Facility Services• Clerical and Secretarial Services• Community and Social Services• Court, Legal and Law Enforcement Services• Property Records/Revenue Services• Public Works and Transportation Services• Parks and Recreation Services
Contact our Job Hotline for a recorded listof current job openings at:
(651) 266-2666
Ramsey County Human Resource Dept.430 RCGC West50 West Kellogg BoulevardSaint Paul, Minnesota 55102(651) 266-2700 or (651) 266-2728 (TDD)
You may also view a list of current job openingsand other useful Information, or download
application materials, on internet at:www.co.ramsey.mn.us
Please patronize yourAccess Press Advertisers — andtell them where you heard aboutthem. They bring you your paper.
Chronic FatigueConferenceOn Sunday, October 28th, theChronic Fatique Syndrome(CFS) Association of Minne-sota and the American Asso-ciation for CFS will sponsor aconference entitled “The Well-Informed CFS Patient: Open-ing doors to Better Care.”
The conference will bring pa-tients and providers togetherin a number of presentations,covering such issues as medi-cal research, clinical prac-tices, psychological support,
alternative therapies, legalstrategies, and advocacy.
The conference will be held atthe Holiday Inn Select inBloomington, MN, from 9a.m. to 6 p.m. For more info,contact Val Baertlein, Execu-tive Director, Chronic FatigueSyndrome Association of Min-nesota, 651-644-4975 or 866-644-4975 toll-free. Or, on theweb, visit http://www.immunesupport .com:443/ track/events/aacfs.cfm
IN BRIEF - Cont. from p. 10
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------------------------------------- IN MEMORY-------------------------------------Troy Fahlenkamp & Valerie Birosh by David Dreier Mabel Heuer by Dawn DoeringMiss Irene MacKaloney by Roger Hoffman Bill & Renee Smith by Becky J. Bugbee-TongBill Smith by Joe & Peg Figliuzzi Uncle Bill & Aunt Renee Smith by Mary & Henry PattridgeCharlie Smith by Lee Ann Erickson Charlie Smith by Barbara KaneCharlie Smith, by Tracy Kochendorfer Charlie Smith by Sister Kenny InstituteRuth Riggs by Corbin Kidder Bill & Renee Smith by Helen ThompsonBill, Renee, & Charlie Smith by Kathy & Paul West Linda Wolford in memory of Tony Lebahn
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