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One in Six 14 April 2016

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    14 

    April 2016

    We acknowledge the traditional owners of country throughout Australia, and their

    continuing connection to land, sea and community. We pay our respect to them

    and their cultures, and to elders both past and present. We acknowledge the

    challenge that faces Indigenous leaders and families to overcome the unacceptably

    high levels of ear health issues among first Australians.

    National Deafness Sector SummitThe Honourable John Howard OM AC, 25th Prime Minister of

     Australia will present a key-note address at the National

    Deafness Sector Summit on 7 May in Sydney. 

    Renowned ENT surgeon performs 1,000th 

    cochlear implant surgery “Deafness is not a hindrance, but an amazing part of my

    identity which I have used to leverage myself to greater

    ambitions,” said recipient Jessica Laing.

    Future of Hearing Services A coalition of not for profit organisations has alerted political

    parties, ahead of a federal election, to issues of deep concern

    to the Australian public.

    The planned transition of some client groups from the

     Australian Government Hearing Services Program to the NDIS

    is being actively investigated. There has been a recent

    announcement on the potential change of ownership of the

     Australian Government hearing services provider, Australian

    Hearing.

    Miss Universe Australia finalist claims to

    have ‘healed’ deaf girl  A former model working in Uganda performed the ‘healing’ by

    putting her fingers in the girl’s ear and chanting a prayer. 

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    The Libby Harricks Memorial Oration will be presented by The Honourable John Howard OM AC,25th Prime Minister of Australia. Mr Howard wore two hearing aids throughout his professionalcareer.

    Since 1999, the Libby Harricks Memorial Oration series has raised awareness of important issuesrelating to hearing loss and deafness. In 2016 it is a key-note address at the National DeafnessSector Summit.

    The Summit is a national conference for the one in six Australians who are hard of hearing, Deaf,deafblind, have a hearing loss or a chronic ear or balance disorder, and the families who supportthem.

    It will launch a campaign to make Hearing Health & Well-being a National Priority in Australia.*

    When: Saturday, 7 May 2016, from 9:30 AM to 5:00 PMWhere:  Australian Hearing Hub, Macquarie University Sydney

      General admission price $65.00. Tickets are limited 

    Real time captioning, hearing augmentation and Auslan interpreting will be provided  Morning and afternoon teas and lunch included  Endorsed by Audiology Australia for 9 CPD points for its members attending the event (no.

    CPD1517 131)

    We acknowledge a funding contribution by the Australian Government as a National DisabilityConference initiative, and the Australian Hearing Hub for providing the meeting place.

    Learn more and register to attend herewww.eventbrite.com/e/national-deafness-sector-summit-libby-harricks-memorial-oration-tickets-21284949858  

    * The campaign to make Hearing Health & Well-being a National Priority in Australia receivesfinancial support from The Deaf Society, Oticon Australia, Ai-media, SHHH (Self-Help for Hard ofHearing People), Hearing Life, Conexu Foundation, Audiology Australia, Western Hearing Services, AudioClinic, Cochlear Ltd, Adelaide Digital Hearing Solutions, Victorian Hearing.

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    Renowned surgeon celebrates 1,000 cochlear

    implant surgeries

    Royal Institute for Deaf and Blind Children (RIDBC) celebrated

    a significant milestone when Associate Professor Catherine

    Birman, Medical Director of SCIC Cochlear Implant Program,

    performed her 1,000th cochlear implant surgery.

     As a prominent Ear, Nose and Throat surgeon, A/Prof Birman

    knows how important technology is for children and adults

    experiencing moderate to profound sensorineural hearing loss.

     “It is a great honour to be part of so many different people’s

     journeys to better hearing. Technology has come a long way

    since Professor Graeme Clark’s first cochlear implant recipient

    in 1978, with SCIC recipients receiving a cochlear implant at

    ages from 3 months to 95 years and hearing through the implant getting better and

    better,” said A/Prof Birman.

    21 year old university student Jessica Liang from Auburn NSW received her second cochlear

    implant this month from A/Prof Birman.

    Jessica was diagnosed with profound hearing loss at 12 months of age and hasn’t lookedback since receiving her first cochlear implant at just 22 months.

     “I cannot imagine a world without sound. My cochlear implant

    has allowed me to dream big, explore opportunities and

    connect with other people around me. Deafness is not a

    hindrance, but an amazing part of my identity which I have

    used to leverage myself to greater ambitions,” said Jessica.

     “I was nervous but also excited about receiving my secondcochlear implant and I’m very much looking forward to

    hearing sounds through my right ear and no longer having to

    adjust my position accordingly,” said Jessica.

     “Don’t be afraid to shout out to the world about your deafness. I know you might be

    struggling with your hearing, I struggled at one point but everyone has his or her own

    challenges. Did you know that by 2050, 1 in 4 Australians are projected to have some form

    of hearing loss? You’re not alone so step up to the challenge and take action to educate

    yourself on your hearing levels and set daily goals to manage your hearing,” said Jessica.

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     Australian model claims she has ‘healed’ a deaf

     African child through a very bizarre method

     A Gold Coast model, who was a finalist in the Miss Universe Australia competition, claims to

    have ‘healed’ a young deaf girl — by putting her fingers in the girls ear, and chanting a

    prayer twice over. 

    Rebecca Ronald, who has modeled for Lorna Jane and surf brand Billabong, was working in

    Uganda when she ‘healed’ the young girl.

     “As (her partner) Riley & I were preaching, she stood out to me and I had such a

    compassion for her. Afterwards while we were praying for each individual, I asked her to

    come aside & as I went to speak, her friend intervened to say that she was deaf.

     “I had just finished preaching on what God had been teaching me about; the power of

    faith, and knowing my God can do all things, I said to her, ‘you are about to hear for the

    first time’.

     “I prayed once — nothing happened, then I felt Holy Spirit say, put your fingers in her earand command them to open.”

    Ms Ronald said the miracle was an example of “why God can do all things.” “Sounds easy,

    but in the moment, it can be the hardest thing because is requires the very thing I taught

    on, faith with power which opposes human reasoning — so I did and when I finished

    praying, her face lit up and overjoyed she said ‘I can HEAR for the first time!!!!’’

     “The Lord told me to expect miracles this trip & miracles is what we are seeing,’ she said.

    From news.com.au

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    Join the conversation to help primary school students who are hard of hearing or Deaf,

    overcome communication barriers in mainstream schools.

     Are you a parent of a primary school student who is Deaf or hard of hearing? Are there

    gaps in the support available to help your child at school?

    Conexu Foundation is a national non-profit organisation that uses technology to break

    down communication barriers. It is currently researching the role technology and related

    supports could play in assisting students, their families and teachers.

    Join a conversation and discuss your experiences to explore any unmet need and potential

    solutions. You don’t need to know anything about technology. You just need to share your

    everyday experience.

    The focus groups will be held in person in Melbourne, Sydney and Brisbane during April and

    May. The groups are expected to last around 2 hours and you will be reimbursed for any

    out of pocket expenses as well as a small financial incentive to thank you for your time.

    If you would like more information or to register your interest, please contact Tamara at

    Proof Research via the phone on 07 3392 4446 or email [email protected] 

    Do you want to take part in testing Cochlear’s new program,

    Telephone with Confidence? 

    The program is suitable for anyone with a Cochlear™ Nucleus® implant who would like to

    build their confidence using the phone.

    For more information on the Australian program, please email [email protected] and

    visit the Cochlear Facebook page: https://www.facebook.com/CochlearANZ/ 

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    Sydney Deaf Rugby LeagueFootball Club is hosting our

    SPECIAL 50 YEARS

    CELEBRATION LUNCHEON

    on Saturday 29 October 2016from 11.00am to 5.00pmat Bankstown Sports Club

    8 Greenfeld Parade

    Bankstown, NSW 2200

    Major Event too good to be missed!

    *   *

    **

    SYDNEY DEAF

    RUGBY LEAGUE

    1966-2016 SDRLFC50SDRLFC50

    Event Ticketing via Eventbrite: 

    https://deafrugbyleagueparty.eventbrite.com.au

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    The planned transition of some client groups from the Australian Government Hearing

    Services Program to the National Disability Insurance Scheme is being actively investigated

    by the Government.

    There has been a recent announcement on the potential change of ownership of the

     Australian Government hearing services provider, Australian Hearing.

     A coalition of not for profit organisations has alerted political parties, ahead of a federal

    election to these issues of deep concern to the Australian public.

    Both of these issues have the potential to have a detrimental effect on the outcomes of the

    most vulnerable client groups unless certain safeguards are put into place to ensure that

    the quality and standards of service delivery are not compromised through changes to

    existing arrangements.

    The implementation of the National Disability Insurance Scheme will see contestabilityintroduced to paediatric hearing services in Australia for the first time. Australian Hearing

    has been the sole provider of hearing services to Deaf and hard of hearing children for

    almost 70 years. The ability of the market to provide these services is untested which

    introduces areas of risk in terms of access, equity, and clinician skill, standards and service

    quality. The National Health Service in the United Kingdom investigated making paediatric

    hearing services contestable and decided against it as they could not find a sufficient

    number of providers willing to take on this client group. Additionally, if the Government

    proceeds with the transfer of ownership of Australian Hearing to a consortium which

    includes an early intervention provider, the provision of independent advice in relation to

    early intervention services may be lost.

    There is a very strong message from the families of children with hearing loss that they

    would rather forego the choice of provider in order to retain the high quality and trusted

    service they receive from Government-owned Australian Hearing.

     Attend the 9th National Deafness Sector Summit in Sydney next month to receive

    a comprehensive briefing.  Register at www.eventbrite.com/e/national-deafness-sector-

    summit-libby-harricks-memorial-oration-tickets-21284949858 

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    SHHH would like to collaborate with audiologists in relation to the services that

    it offers to those with hearing loss.

    SHHH Australia Inc (Self Help for Hard of Hearing People) believes that patients who are

    well supported after they have been fitted with hearing aids achieve a more successful

    hearing experience outcome and are more likely to become a repeat client and in turn will

    refer others. Supported patients also integrate far better back into society and there is less

    likelihood of further downstream hearing related health problems. SHHH does not wish to

    take business away from audiology practices but would aim to complement and extend the

    service provided for patients.

    SHHH believes that patients experiencing hearing loss need support both before they seek

    professional diagnosis and after they have been fitted with assistive devices (e.g. hearing

    aids), as part of the rehabilitation process.

    SHHH can provide Outreach presentations on such topics as Hearing Loss and its

    Management and Effective Communication Techniques. Shhh provides information on

     Assistive Listening Devices that can be used around the home e.g. alarms, volume control

    phones etc, as well as reading material on hearing loss issues. Shhh is also happy to workwith individuals and small groups to assist their adjustment to wearing hearing aids and

    their ability to interact in a variety of situations. A range of other related services is also

    available.

     As SHHH recognises that all audiology practices vary in size and in the scope of their

    services, they would be very happy to initially meet with audiologists at their practices to

    discuss ways that they may be able to work together and towards achieving more

    successful outcomes for the practice and those with hearing loss.

    SHHH runs a hearing aid bank in which they offer donated hearing aids to be fitted to those

    who meet their criteria determined by need. Not only can you donate any available devices

    to Shhh, you can play an active part in the hearing aid bank by offering your professional

    services by fitting donated hearing aids to Shhh approved patients in your own clinics.

    Contact Shhh to be part of this scheme.

    Email: [email protected] Website: www.shhhaust.org 

    From the newsletter of Independent Audiologists Australia www.independentaudiologists.net.au 

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    http://www.vision6.com.au/em/mail/view.php?id=1029807&a=44437&k=3d0800c 

     Anticancer drug restores Hearing in some patients

    The anticancer drug bevacizumab restores hearing loss in some patients with

    neurofibromatosis type 2 (NF2), according to researchers from the Johns Hopkins Medicine,

    the National Institutes of Health and Massachusetts General Hospital. The study published

    in the Journal of Clinical Oncology on March 14 states that the drug stops blood vessel

    growth that feeds the tumours.

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     An intravenous infusion of bevacizumab costs up to $6,000 per dose. It is commonly used

    to treat colorectal and lung cancers, macular degeneration and diabetic retinopathy.

    The researchers explain that NF2 is a hereditary tumour condition that progresses to

    deafness because of the vestibular schwannoma tumours that grow on the nerves for

    hearing. Additionally, these tumours produce vascular endothelial growth factor (VEGF)

    and can also cause brain stem compression and balance problems.

    Bevacizumab decreases the VEGF levels so these can no longer promote blood vessel

    growth that feeds the tumours, thus preventing some cancers.

    Researchers found thirty-six percent of subjects experienced hearing improvement.

    Some experienced high blood pressure, bruising and bleeding but none suffered from

    further hearing loss.

    From Australia Network, http://www.australianetworknews.com/anticancer-drug-restores-hearing-patients/ 

    New CEO for Deaf Children Australia

    Olympian decathlete Dean Barton-Smith AM has been appointed Chief Executive Officer of

    Deaf Children Australia.

    Dean represented Australia at the 1990 and 1994 CommonwealthGames and the 1992 Olympic Games in the Decathlon (Athletics) -

    recognised as the first deaf Australian to achieve such a feat in his

    chosen event. He is also a four time Deaflympian (including multiple

    world record holder and medallist) and was appointed Australian

    Deaflympic Team Captain (Male) for the 2005 Melbourne Deaflympic

    Games.

    In 2013, Dean was honoured with the Member of Order of Australia award for services to

    athletics and the community and for advancing sport and recreational opportunities for deafand hard of hearing people.

     “My experiences and my life journey have taught me a lot. It is my goal to ensure that any

    child who is deaf or hard of hearing does not experience any barriers to life, including

    education," Dean Barton-Smith said.

    "I share a common vision with Deaf Children Australia, which is aligned with my personal

    values. We need to ensure that we understand the challenges that children, young people

    and adults experience in those different life phases."

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    Emerging and accomplished women leaders in the health sector are advised that the

    National Industry Scholarship grant Initiative that has supported the development of

    women leaders since 2010 has been reinstated for the period commencing July 1st 2015

    though to December 31st 2016.

    Women managers/leaders within the health sector are eligible to apply for scholarship

    grants at two levels.

        $12,000 individual grants for senior executive-level women to undertake the

     Advanced Leadership Program

        $4,500 individual grants for emerging and mid-level managers to undertake the

     Accelerated Leadership Performance Program

    Download the expression of interest form:

    http://sable.madmimi.com/click?id=2715.4446.1196.1.b3785870721c5e0011a8940731f6c5ae 

    Know someone who might like to receive One in

    Six?To subscribe, drop us a line to [email protected] 

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