One thousand and one nights:

Tales from the East A few stories to get us thinking

Local stories A couple of tales that two of our local forums are proud of

How do you change culture? Central Bedfordshire

Steph Rowley

Working together

Clear expectations

Contract between Parent Reps and Local Authority

“This is a collaborative project…Parent carers will not just attend and contribute to meetings, but they could co-lead or lead workstreams as appropriate”

Trained Parent Representatives

Equal partners

Lead a Workstream on our Support and Aspiration Board

Involved with all workstreams concerned with implementing reforms

Other projects that are important to our families

Keeping it real

Changing more than just the processes

Family centred

“what does it mean?”

Sharing our message

Lead by example

Joint presentations

Involvement and Engagement Officer

Workforce development

SNAP involved in the development and delivery

Not only informs of the change in process but also the impact on families

Created a short film

https://www.youtube.com/watch?v=y29jWXkPv1g

Leading change Bedford Borough

Lynn Hoppenbrowers

Start by knowing where you are…

Bedford Borough SEND reforms phase 2

Children and young people with disabilities aged 0 to 25

Joint Strategic Needs Assessment January 2015

What is a Joint

Strategic Needs

Assessment?

How many local

authorities have

one for Children

with SEND?

…then agree where you are going…

Bedford Borough SEND reforms phase 2

Target state April 2018

Our aspiration for SEND children, young people and their families in Bedford Borough

What will the landscape for children, young people and families living with special educational needs and disability look

like in Bedford Borough in April 2018 once we have fully implemented the Children and Families Act?

…and finally work out how you get

there.

Workstream 1:

Where are we now?

Prepare an analysis

for the health and

well-being board

Joint Strategic Needs

Analysis that outlines

the needs of children

and young people

with disabilities aged

0-25

Lead: Parent Carer

Forum

COMPLETE

Workstream 2:

Where do we want

to be?

Prepare a target state

in conjunction with

all key stakeholders

of what a realistic

achievable yet

ambitious target

state for policy,

commissioning and

services for children

and young people

with disabilities aged

0-25 will look like in

April 2018

Lead: Parent Carer

Forum

COMPLETE EXCEPT

FOR WORKLSTREAM

7

Workstream 3: Education Health and Care Plans Lead: SEND Team

Definition of the EHCP, its processes and conversion of all young people from statements

Workstream 4: The Local Offer Lead: SEND Team

Population of the LO, identification of gaps and the maintenance process

Workstream 5: Joint Commissioning & Personal Budgets Lead: CCG, SEND team, PCF

Determine scope, process and governance for JC and PB

Workstream 6: Keyworking & Independent Support Lead: Keyworking co-ordinator

Determine relationship between KW, IS and IASS. Implement schemes

Workstream 7: Preparing for Adulthood Lead: TBA

Details TBA

Workstream 8: Workforce Development Lead: SEND Team / Parent Carer Forum

Train and provide resources to all parties to implement reforms and drive cultural change

Banding Review Rik Boxer IT Development IT Team

Programme Management Parent Carer Forum

And then keep checking that you are on

track.

Clear governance

and accountability

Metrics – status &

progress vs

targets

The results

…but there’s still lots to improve on.

On track with conversion

timetable

100% compliance with deadlines

Really well received website

Approx 1500 unique visitors a

month

226 people have attended first

wave of training

Why do the regions matter? Kulwinder Bola

Mrunal Sisodia

Sarah Vize

Who are we?

11 forums representing 11 local authorities

Ranging from the large to the small

Very diverse population

Culturally

Ethnically

Prosperity

Complicated

E.g. Essex has 5 CCGs, Central Beds has half a CCG

Forums have different operating models

What are the regions for?

“First, have a definite, clear, practical

ideal, a goal, an objective.

Second, have the necessary means to

achieve your ends: wisdom, money,

materials and methods.

Third, adjust all your means to that

end.”

Aristotle

“A definite, clear, practical ideal, a

goal, an objective.”

Peer to peer support?

Representative group to co-produce with regional bodies?

Strategic lobby group to set the weather?

“…the necessary means to achieve

our ends.” How do we operate in the East?

The building blocks of what we do

Governance

People

Money

The work

Governance (light touch)

Termly meeting of our representatives group comprising of members from

each of our 11 member forums.

Roles and Responsibilities

Code of Conduct

Representative agreement

Feedback forms

Payment policy

Expenses policy

People

2 co-chairs

1 secretary

1 NNPCF regional steering committee member

1 administrator

Money handled by Hertfordshire & their treasurer

27 members nominated to attend regional steering committee meetings

14 regional representatives

Money

Contribution from each

member forum

Discretionary grant from

DfE via Contact a Family

Funding from peer

network

The work

Range of meeting involved in:

Family Health & Experience Forum

Asthma Forum

High Dependency & Critical Care

Forum

Surgical and Anaesthesia Forum

Complex Obstetric Care Forum

Safeguarding Forum

Tertiary Referral Pathway

OFSTED Workshop

Palliative Care Forum

East of England Transition Workshop

Rheumatology Forum

ERPCF meeting

CAMHS Forum

Perinatal Group

Quality Assuring EHCP Workshop

Preparing for Adulthood Workshop

Emergency & Urgent Care Forum

CYP Steering Group

Maternity & Newborn Steering Group

Rheumatology Forum

With whom

SCN

SCN

SCN

SCN

SCN

SCN

SCN

SCN

Peer

SCN

Peer

SCN

ERPCF

SCN

SCN

Peer

Peer

SCN

SCN

SCN

SCN

Co-production with the peer

network The view from our partners

National Parent Carer Network Event

Making the most of the network

Sarah Vize

East of England Peer Lead

East of England SEND Regional Peer

Network

Work collaboratively across the Eastern Region

The difference parent carers make in E of England

Organise peer support activities including workshops, regional events and local working groups focusing on specific elements of reforms.

Working in partnership by sharing resources, ideas and approaches.

Develop rich sustainable networks.

Key network approach

Co-production with parents – making meetings

work with families, improving communication

styles so they equal partners

Transfer reviews for post 16

Being prepared – looking to the future Ofsted

remit with effect from January 2016

Quality review of EHC plans

Delivery across the Eastern Region

East Of England SEND Regional Peer

Network

26 November 2015 – “Making a Difference” Regional Conference

Developing a programme with a spotlight from parent and carers

Regional East of England Conference to include:

• Living Live Event (including young people)

• Supported Internships – Making these a reality – the experience

of a young person from Hertfordshire

• Supported Employment -

Who cares?

Mind the gap

They’re all our children – peer support

The more we support

each other, the more we

support our children.

Leaders are made, not born

Working at a regional level gives us all the

opportunity to grow and learn.

We can apply what we learn in our own

forums and at a national level.

Parent participation is evolving…

…and maybe one day we’ll be where we

need to be in every conversation.