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#ACSCD201931 OCTOBER - 2 NOVEMBER 2019 - LAGOS, NIGERIA
EYO FESTIVAL, LAGOS STATE
4 ACSCD 2019 | www.acscd.org
Schedule at a Glance 02
Welcome Note 06
ACSCD Co-Chair 06
ACSCD Grand Patron 07
Minister of Health 08
Floor Plan 08
Sponsorship Opportuniti es 09
Daily Schedule 13
Day 1 - Thursday, October 31 14
Day 2 - Friday, November 1 16
Day 3 - Saturday, November 2 20
See You in 2020 23
CONTENTS
CONGRESS PROGRAM SPONSOR
www.acscd.org | ACSCD 2019 5
Dear Esteemed Guests,
ACSCD and its host city Lagos State are delighted to welcome you the 1st African Congress
on Sickle Cell Disease. We are excited to be welcoming you to this beautiful city and hope that
you are ready to make the most of what promises to be an impact driven and enlightening
three days of learning for us all.
The Congress represents a unique and ideal platform for the International sickle cell
community to meet, discuss, share, learn and connect in order to fi nd solutions to reduce the
impact of sickle cell on communities in Africa and around the world.
The theme for the Congress is ‘Overcoming Sickle Cell Disease - Power of the collective voice’
which is a true inspiration in the program layout, as the aim is to foster collaboration and rapid
learning into concrete actions for impact. Over the course of the three-day event, you will
experience extensive networking and meeting opportunities and we would encourage you to
make the most of these. There will be focus sessions to promote greater interactivity between
presenters and delegates, and a Patient Pavilion on the exhibit fl oor. The program promises to
be educative.
We are very confi dent that everyone who attending the African Congress on Sickle Cell
Disease will leave Lagos inspired and full of new thoughts and ideas to continue their own
eff orts in the fi ght against sickle cell disease. As this event brings together a unique group
of people who share much in common, we look forward to joining eff orts and accelerating
progress through your active participation.
DrAjaere
Dr. David Ajaere DHBM, DNM, ND, FANM, FNCPFounder/Chief Medical DirectorDr. SickleCell, Center for Sickle Cell Disease.
On behalf of the Organizing Committee of ACSCD 2019.
WELCOME NOTE
Olalekan Makinde
Dr. Olalekan Makinde MBBS, MPH, MWACP, FMCPH, FRSPH(UK), MBAChief Executi ve Offi cerOlusegun Obasanjo Foundati on
6 ACSCD 2019 | www.acscd.org
It is with great pleasure that I welcome you all to this occasion, marking the inaugural African Congress on Sickle Cell Disease (ACSCD)
The theme being; “Overcoming Sickle Cell Disease: Power of the Collective Voice” connotes a core message to all delegates as it is known that Sickle Cell is a neglected tropical disease that requires signifi cant attention in Africa, and especially in Nigeria.
The growing burden of sickle cell disease in Africa is undeniable. Sickle cell disease (SCD) is one of the world’s most common genetic diseases, aff ecting an increasing number of people. It poses a signifi cant public health problem notably in sub-Sahara Africa, the Middle East, parts of India, the Caribbean, and Brazil. It is at this time, we come together as a collective to seek best practices and innovation to addressing the challenges of sickle cell disease and to further ensure we achieve successful outcomes for a healthier Africa.
As you deliberate on critical issues on sickle cell disease aff ecting Africa and the world, I hope that you will also enjoy our legendary hospitality.
Once again I welcome you to Nigeria, to ACSCD 2019 and wish you a very productive meeting.
H.E Chief Olusegun Obasanjo GCFR. Ph.D. Former President of the Federal Republic of Nigeria
The Grand Patron of ACSCD 2019.
HIS EXECELLENCY, CHIEF OLUSEGUN OBASANJO, GCFR Ph.DFormer President of the Federal Republic of Nigeria.
ACSCD 2019 GRAND PATRON
www.acscd.org | ACSCD 2019 7
Dear Delegates,
It is my honour and privilege to welcome you to the 1st African Congress on Sickle Cell Disease (ACSCD). This event is billed as one of the giant strides taken in recent times to better understand and address the devastating effects of Sickle Cell Disease in Africa.
The conference is expected to provide a platform for knowledge exchange, sharing of our experiences of best practices and informed recommendations on Sickle Cell management, control and policies.
We welcome you and your organization as you add your voice to the ACSCD theme titled ‘Overcoming Sickle Cell Disease: Power of the Collective Voice’ and be part of this event, as we chart a way forward together with world-renowned sickle cell and public health experts, health ministries, NGOs, policy and decision makers, caregivers, development partners, the media from across Africa and beyond and most importantly patient representatives for a collective voice towards sickle cell disease prevention in Africa and the world at large.
We have the obligation to do our best possible towards sparing this generation and generations to come from the financially devastating, emotionally and physically agonizing and stigmatizing effects of stigmatization, morbidity and mortality from Sickle cell Disease.
We look forward to hosting you at this conference and hope you have a great moment and memory of our hospitality.
Welcome to Lagos, Nigeria, to ACSCD 2019!
Dr. Osagie EhanireHonourable Minister for Health, NIGERIA
WELCOME NOTE - MINISTRY OF HEALTH, NIGERIA
8 ACSCD 2019 | www.acscd.org
ACSCD 2019 CONGRESS PARTNERS & SPONSORS
IN ASSOCIATION WITH HOST CITY
KNOWLEDGE PARTNER OFFICIAL PRINT PARTNER
INNOVATOR PARTNER ADVOCATE PARTNER
PATRON PARTNERS
CHARITY PARTNER OFFICIAL RESEARCH(CRO) PARTNER
SUPPORTED BY
www.acscd.org | ACSCD 2019 9
MEDIA PARTNERS
SUPPORTING PARTNERS
ACSCD 2019 CONGRESS PARTNERS & SPONSORS
10 ACSCD 2019 | www.acscd.org
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www.acscd.org | ACSCD 2019 11
CONGRESS PROGRAM SPONSOR
DAILY SCHEDULE
Open To All Registered Delegates
THURSDAY, OCTOBER 31
OPENING CEREMONY
3:00 pm - 6:00 pm
Join the ACSCD Grand Patron His Excellency Chief Olusegun
Obasanjo and other special guests as we mark the offi cial
opening of ACSCD 2019
Welcome RemarksHer Excellency, Dr. Ibijoke Sanwo-Olu, First Lady of Lagos State
Opening Keynote & Conversation - Living With Pain, Finding JoyAnne Welsh, Founder& President, Arise Consult, United Kingdom
Keynote Talk - Learnng & Unlearning Throught Life’s JourneyOyindamola Adesina , Simbi Interactive, Nigeria
Keynote Talk - Sickle Cell Stigma - A Woman’s PerspectiveSamira Sanusi, Samira Sanusi Sickle Cell Foundation, Nigeria
Keynote Talk - Self Care or Self Hurt.. Managing Chronic Care in a Stressful EnvironmentToyin Adesola, Sickle Cell Advocacy & Management Initiative, Nigeria
My Story - Yasmine PonleYasmine Ponle, Sickle Strong Warrior Foundation, Ghana
Keynote Conversation - Exploring the Impact of Sickle Cell Disease on Earning Potential and Possible Solutions in the Nigerian ContextPanelist: Greg Emuze: CrimsonBow SCI, Princess Oluwakemi Magaji, Opeyemi Emoruwa
Closing Remark
3:50 pm - 6:15 pm -
Women Overcoming Sickle Cell Symposium (WOSC)
Plenary Hall
3:50 pm - 4:00 pm
4:00 pm - 4:20 pm
4:20 pm - 4:35 pm
4:35 pm - 4:55 pm
4:55 pm - 5:15 pm
5:15 pm - 5:30 pm
5:30 pm - 6: 15pm
6:15 pm
Plenary Hall
GRAND PATRON
HIS EXCELLENCY,
CHIEF OLUSEGUN OBASANJO
OPENING PRAYERS
BISHOP EMMANUEL
OBIORAH,
SATURDAY, NOVEMBER 2
Plenary Hall
Highlights
www.acscd.org | ACSCD 2019 13
DAY 1THURSDAY, OCTOBER 31
3:30 - 4:20
4:20 - 4:45
4:45 - 4:50
4:50 - 5:20
5:20 - 5:40
5:40 - 6:00
6:00 - 6:10
6:10 - 6:20
Welcome Remarks
- Dr. Osagie Ehanire; Honorable Minister of Health, Nigeria
- Prof. Jean-Marie Dangou; WHO Africa
- Dr. David Ajaere; CMD, Dr. SickleCell - Center For Sickle Cell Disease
Special Address
H.E Chief Olusegun Obasanjo, GCFR - Former President of The Federal Republic of
Nigeria
How to make the best out of your Congress Participation
Keynote Address - Importance of meaningful intra-country partnerships in the fi ght
against sickle cell Disease in Nigeria
Dr. Evelyn Ngige, Director of Public Health, Federal Ministry of Health Nigeria
Nigeria’s strategy towards Sickle Cell Control: Needs of a multicultural society
Dr. Alayo Sopekan, Desk Offi cer, Sickle Cell Program, Federal Ministry of Health, Nigeria
The Role Of Government in Sickle Cell Prevention and Screening: Support of Lagos
State Ministry of Health in Sickle Cell Control and Care Lagos Ministry of Health
Commissioner For Health, Lagos State Ministry of Health
How will ACSCD help the international sickle cell community create the platform
Dr SickleCell/Olusegun Obasanjo Foundation
Closing Remarks
WELCOME RECEPTION2:30 pm - 3:30 pm
Exhibit Hall
3:30 am - 6:00 pm
ACSCD 2019 Opening Ceremony
Plenary Hall
14 ACSCD 2019 | www.acscd.org
DAY 2FRIDAY, NOVEMBER 1
Plenary - Sickle Cell Disease in Africa: Challenges and Opportunities
Dr. David Ajibade, Brain and Body Foundation, Nigeria
Plenary - Treatment Options For Sickle Cell Disease in Africa: What are we
investingin?
Prof. Bazuaye Nosakhare, University of Benin Teaching Hospital, Nigeria
Plenary - A Call to Action of Sickle Cell Trait
Dr. Stephen Boateng, Sickle Cell 101, USA
Plenary - Eff ective Advocacy to Reduce Stigma and Improve the Quality of Life of the Families aff ected by Sickle Cell Disease
Mrs. Lanre Tunji-Ajayi, Sickle Cell Awareness Group of Ontario, Canada
Plenary - Policy and Action for Sickle Cell Control: The African Perspective
1. Overview of policy strategies in Nigeria
Dr. Alayo Sopekan, Ministry of Health, Nigeria
2. Control and Management Strategies for Sickle Cell Disease: Perspectives from Ghana
Dr. Enam Bankas, Sickle Life, Ghana
3. Outreach Programs And Advocacy of Sickle Cell Disease Care in Kenya
Samuel Mbunya, AMPATH Hematology & Oncology, Kenya
4. Overview of sickle cell in Tanzania
Pascazia Mazeze, Sickle Cell warriors, Tanzania
5. Overview of policy strategies in Uganda
Hon. Dr. Prosperous Nankindu, Minister of Health, Buganda Kingdom, Uganda
Q&A
proposed by: Dr SickleCell - Center for Sickle Cell Disease
A Cure for Sickle Cell Disease Exists: A Partnership Model to Promote Equitable Access to Curative Bone Marrow Transplantation
Randal Mills, Ph.D., The National Marrow Donor Program / Be The Match, USA
proposed by: The National Marrow Donor Program / Be The Match
9:00 am - 10:40 am
Plenary Hall
11:10 am - 12:20 pm
Plenary Hall
11:10 am - 12:20 pm
Plenary Hall
11:10 am - 12:20 pm
Plenary Hall
11:10 am - 12:20 pm
Plenary Hall
2:10 pm - 2:35 pm
Plenary Hall
16 ACSCD 2019 | www.acscd.org
PATIENT VOICES - PATIENT PAVILION1:10 pm - 1:50 pm
Exhibit Hall
Breaking The Cycle Of Pain
Dr. David Ajibade, Brain and Body Foundation, Nigeria
The Relationship Between The Patient and The HEalth Worker: A Healing
Therapy.
Emmanuel Ibekwe – Dabma Sickle Cell Foundation
Keying into Possibilities and Opportunities
Oyindamola Adesina – Simbi Interactives
QUESTIONS AND ANSWERS
1:10 pm - 1:20 pm
1:20 pm - 1:30 pm
1:30 pm - 1 :40 pm
Plenary - The Opportunities and Challenges of Implementing Bone Marrow Transplant Cure in Nigeria
Panelist
1. Prof. Bazuaye Nosakhare, Department of Hematology, University of Benin Teaching
Hospital, Benin city.
2. Prof. Sunday Ocheni, Department of Haematology and immunology UNTH Enugu
3. Dr. Olowoselu Festus, Department of Haematology and Blood Transfusion, College of
Medicine, University of Lagos.
4. Dr. Rahman Bolarinwa, Department of Haematology and Immunology, Obafemi
Awolowo University, Ile-Ife, Nigeria
Moderator - Dr Udo Christiana, Senior Registrar, National Hospital Abuja
Session proposed by: The Africa Leadership Forum
Blood Needs In Sickle Cell Disease
1. Blood needs in Sickle Cell Disease, Keeping Up Supplies
Dr. Bodunrin Osikomaiya, Lagos State Blood Transfusion Service, Nigeria
2. Professional Misconduct, Patronizing Qualifi ed Health Facilities and Motivation For
Safe Blood Products
Ayodeji Faremi, The State Hospital Management Board, Osun State, Nigeria
Sickle Cell Disease and Mental Health
1. Psychosocial Complications in Sickle Cell Anemia
Okechukwu Chioma
2. The Need For Psychological Treatment as Part of Treatment For Sickle Cell Patient
Toluse Francis
Taking Chage, Clinical Updates on Sickle Cell Trait
Dr. Stephen Boateng, Sickle Cell 101, USA
“The Four Horsemen” of Sickle Cell Disease - Practical tips and strategies
Dr. David Ajibade, Brain and Body Foundation, Nigeria
2:35 pm - 4:05 pm
Plenary Hall
4:35 pm - 5:15 pm
Room 2A
4:35 pm - 5:15 pm
Room 2B
4:35 pm - 5:00 pm
Plenary Hall
5:00 pm - 5:25 pm
Plenary Hall
5:25 pm - 5:45 pm
Plenary Hall
5:45 pm - 6:30 pm
Plenary Hall
Highlight: Patient Stories
Movie Preview
19 ACSCD 2019 | www.acscd.org
XThe Front eXperiment
Editors of Disruption...
www.tfx.musicatloud.africa
Catalizing disruption in a fast-changing digital world.
www.acscd.org | ACSCD 2019 20
DAY 3FRIDAY, NOVEMBER 2
Plenary - Setting Priorities For National, Regional and Global SCD Prevention and Control Programs
Prof. Jean-Marie Dangou; Coordinator of NCD Primary Preventi on (NPP), NCD
Integrated Management, WHO Africa
Plenary: How Database, technology, diagnosti cs and supply chain focus can increase quality medications in the system
Vivian Nwakah, Medsaf
Plenary - Youth Empowerment for Sickle Cell AnemiaSharon Browne-Peters, Cells of a Generation, Nigeria
Plenary - Anything is Posible.. Or Not?Oyindamola Adesina , Simbi Interactives, Nigeria
Coffee Break
Plenary - Alternative Medicine and Sickle Cell Anemia: Looking withinMr. Believe Oshiuhwu, SickleCell Herbal Solutions, Nigeria
Plenary - Mesenchymal Cell-based Therapy: An alternative to joint replacement in sickle cell anaemia patients with vascular necrosisDr. Pradeep Mahajan, Chairman and MD, StemRx Bioscience Soluti ons
Plenary - Transplant with Haploidentical Donors: A New InnovationDr. Satyendra Katewa – Head, Pediatric Hematology Oncology and Bone Marrow Transplant,
Manipal Hospital India
Lunch & Networking
9:00 am - 9:25 am
Plenary Hall
9:25 am - 9:50 am
Plenary Hall
9:50 am - 10:15 pm
Plenary Hall
10:15 am - 10:40 am
Plenary Hall
10:40 am - 11:10 pm
Exhibit Hall
11:10 am - 11:35 am
Plenary Hall
11:35 am - 12:00 pm
Plenary Hall
12:00 pm - 12:25 pm
Plenary Hall
12:25 pm - 2:10 pm
Plenary Hall
20 ACSCD 2019 | www.acscd.org
Women Overcoming Sickle Cell Symposium
See Page 13 For Details
Understanding The Role of Christain Care Giving in Sickle Cell Management
ECC Okwunu, Deputy Chairman, Pentecoastal Fellowship of Nigeria
Muslim Couples And Their HealthProf. Ishaq Akintola, Director Muslim Rights Concern, Nigeria
Highligh: Project Presentations
Projects:
1. The Mentorship Project
2. Project Better - Creating Better Advocacy for Sickle Cell Warriors
3. Feed a Warrior Program: Nutritional Management of Undernutrition in Sickle Cell
Disease
4. Sickle Cell Clinic Day - Easing access to point of sickle cell care in rural areas in Ngora
District, Eastern Uganda
Oral Abstract Presentations
Presentation:
1. Dual burden eff ects of Viral Hepatitis B infection on Oxidative Stress of Sickle Cell
Disease Patients at Ede Government District Hospital, Southwest, Nigeria.
2. THE PUNNETT SQUARE AND THE 25% CHANCES COUPLES BOTH WITH SICKLE CELL
TRAITS HAVE TO BIRTH CHILDREN WITH SICKLE CELL DISORDERS
3. Talinum fruticosum soup signifi cantly infl uence pack cell volume in sickle cell anemia at
Federal capital teritory of Nigeria West Africa
4. Randomized Clinical Trial of Hemoxide Supplement For Sickle Cell Anaemia
Management: a Study Protocol
Sickle Cell Advocacy Contest Award and Close of Congress
Adherence to the New Disease Guidelines in Treatment of Children With Sickle Cell Anemia
Panelist:
1. Dr. Felix Alakalolo, Consultant Pediatric and Laparoscopic Surgeon, Lagos University
Teaching Hospital.
2. Dr. Bamigboje; Consultant Pediatrician
3. Abdullahi Muhammad Yakasai, Health association partner from the PACFaH@Scale
project
4. Dr. Rahila Aliyu Mukhtar, Health association partner from the PACFaH@Scale project
Moderator: Kenneth Emeka Enwerem,
Session proposed by: The Africa Leadership Forum
3:50 pm - 6:15 pm
Plenary Hall
4:35 pm - 4:55 pm
Room 2B
4:55 pm - 5:15 pm
Room 2B
4:55 pm - 5:35 pm
Exhibit Hall
4:35 pm - 5:35 pm
Room 2A
6:15 pm
Plenary Hall
2:10 pm - 3:40 pm
Plenary Hall
www.acscd.org | ACSCD 2019 21
thank you
SEE YOUIN 2020
FOR A BIGGER EXPERIENCE
www.acscd.org