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Overview of the Community Engagement ProgramA resource for faculty, staff, students, and
community
Nuts & Bolts of Community Based Participatory Research Workshop
April 11, 2014Crystal Evans, MS Program Manager
Presentation Objectives• Provide an overview of the
Community Engagement Program’s mission, goals, and resources.
• Determine how the Community Engagement Program can help you
Community Engagement Program Team
Faculty – Lee Bone, MPH, BSN, Associate Professor, JHU-
SPH– Hae Ra Han, PhD, Associate Professor, JHU-SON– Pamela Ouyang, MBBS, Professor, JHU-SOM
Staff– Crystal Evans, MS, Program Manager
Community Research Advisory Councils– Johns Hopkins East Baltimore – Johns Hopkins Bayview
Community Engagement ProgramMission
1. Build the capacity of researchers and community members to conduct community-engaged research.
2. Create a forum for community members and researchers to collaborate on research activities.
3. Support community driven research and outreach
4. Enhance the dissemination of research to practitioner and lay communities.
Community Engagement Program Activities Activit
yGoal Impact Measure
Consults Provide assistance to faculty, staff, students on CE
research projects
# of consultations6 and 12 month
surveys(Self reported status of project; funding, IRB
approvals)
Trainings
Build the capacity of faculty, staff, students, and community to collaborate on
research
# of attendeesSurveys
(Self reported knowledge; use of info on projects)
Advisory Councils
Promote community &
researcher collaborations
# council driven projectsSurveys
(Membership satisfaction surveys)
Community Engagement Consulting ServiceImpact
# of consultations: Served 800 individual research teams over 6 years
# consultations conducted 2012-2013: 25# 6-12 month follow up surveys: 10
Follow up Survey Findings All respondents were very satisfied with consultationMost common reasons for consultation were:• Feedback on grant prior to submission; • Feedback on project after funding• Identifying community partners80% reported applying feedback to project; Respondent comments; • “Included feedback in grant and got funding”• “Changed interview questions so they were easier to
understand”• “Revamped advisory board; developed bylaws;
recruited members”• “ Invited senior center directors to serve as community
partners.”
Community Engagement Consulting ServiceList of Consultations 9/2013-2/2014
Project, Investigator Service, Impact
1. Neighborhood Influences on Healthy Eating Shari Waldenstein, PhD, University of Maryland
Survey DesignIRB Approved
2. Patients Views of Patient Centered Research
Nancy Kass, ScD, JHU School of Public Health
Survey DesignIRB Approved
3. Hypertension: Comparative Effectiveness Study
Steven Schulman, MD, JHU, School of Medicine
Grant PrepGrant Submitted
4. Older Adults Driving StudyVanya Jones, PhD, JHU School of Public Health
Co-InvestigatorReferral
5. Treatment Preferences of Patients with Diabetes
John Bridges, PhD, JHU School of Public Health
Grant PrepGrant Funded
Community Engagement Program Trainings Event Goal Impact
Nuts & Bolts of Community Based
Participatory Research
Introduce CBPR principles and methods; build knowledge of CBPR
150 attendeesMain Survey Findings- Day of event: 95%
reported increased knowledge of CBPR
- 6 month follow up survey: 70% used knowledge on a CBPR project
Understanding & Evaluating Research: Community
Advisory Board (CAB)Workshop
Introduce research methods and ethics to individuals serving on community advisory boards
35 attendees; affiliated with 10 boardsMain Survey Findings- Day of event: 75%
reported increased research knowledge
- 3 month follow up: 60% used knowledge as part of CAB work
Community Engagement Program TrainingAttendee Affiliations
External Audience
•Alliance of Community Teachers•American Public University•Baltimore City Health Department•Baltimore City Schools•Black Nurses Association•Community Health Initiative•Health Leads•Howard University
•International Rescue Committee•Liberty University•Loyola University•Men and Family Health Center•Morgan State University•University of Maryland•Safe and Sound•Y of Central Maryland
Internal Audience
Johns Hopkins Centers & Institutes•Alzheimer’s Research Center •Center to Eliminate Cardiovascular Disparities•Center to Reduce Cancer Disparities•Center for Urban Environmental Health • Urban Health Institute •Student Resource Center
Johns Hopkins Schools •Business•Education•Engineering •Medicine•Nursing•Public Health
Community Research Advisory Council at East Baltimore
Year
Timeline
2009
Formed as part of the Community Engagement Program Initial focus on ethics & safety
Designated advisor to the IRB on exception to informed consent studies and projects impacting community
Reviewed 5 exception to informed consent studies
2010
Mission revised by members to reflect commitment to increasing community trust and involvement in research
Bylaws developed: term limits, roles, decision making process
2011
Committees formed to guide: Board Development, Community Education, and Research Reviews
2013
Committee Chairs Elected
Community Research Advisory Council at East Baltimore
Committee Accomplishments Board Development
Maintain active, engaged, & diverse membership.
Major Accomplishments •Recruited new members•Organized new member orientations &trainings•Developed &administered member satisfaction survey•Recommended strategies to enhance member satisfaction •Helped develop bylaws that guide how C-RAC business
Research Review Provide community input on research projects and policies.
AccomplishmentsIn 2012-2013, conducted 5 research reviews. - Hepatitis C Study- Family Health History Study - Treatment Preferences of Patients with Diabetes- Use of Community Engagement to Improve Health- Use of Patient Health Info to Recruit Study Participants- Conducted survey to measure impact of research reviews
Community Research Advisory Council at East Baltimore
Committee Accomplishments
Community EducationProvide information about health issues facing the local community and Hopkins research related to those health issues
Major Accomplishments • Partnered with 4 churches to develop & conduct
survey to identify research priorities of congregation & community members.
• Clergy & health ministry leaders led data collection • Survey completed by 847 people. • Johns Hopkins researchers presented on the top health
priorities High Blood Pressure, Heart disease, Diabetes, and Asthma.
Faith and Community-Based Partners• Memorial Baptist Church• New Shiloh Baptist Church of Turner Station• St. Martin Church of Christ• Zion Baptist Church• Druid Heights Neighborhood Association
Community Research Advisory Council at East Baltimore
Founding PartnersCommunity
•AARP•Alzheimer’s Association•Baltimore City Schools•Baltimore City Health Department•Civic Works •Environmental Justice Partnership
•Family and Children Services•Light Health Foundation•Mental Health Association•University of Maryland School of Medicine •Sojourner Douglas College•The Door Urban Leadership Foundation
Johns Hopkins
Johns Hopkins University School of Medicine - Center to Eliminate Cardiovascular Health Disparities
- Office of Diversity and Cultural Competence Johns Hopkins University School of Nursing
Johns Hopkins University School of Public Health- Berman Institute of Bioethics
- Center for Urban Environmental Health - Department of Health, Behavior, and Society
Community Research Advisory Council at Bayview
Year
Timeline
2011
Formed to create a forum for community members, faculty, and staff to discuss Bayview Research
At inaugural meeting participated in focus group to identify community perceptions of Bayview research- Noted that local residents willing to
participate - Did not understand why research was
conducted- How to access research opportunities or
findings
After meeting, Council decided to focus on educating local residents and patients about the research process
2013
Formed committees: Board Development, Community Education, and Research Review
2014
Planned Activities: Revise Mission, Recruit New Members, Identify research projects for Council to work on
Community Research Advisory Council at Bayview
Major Accomplishments
2012• Developed clinical research booklet • Distributed at 20 community event• Posted on Bayview Website• Plan to modify for East Baltimore campus
2013• Helped revise Trials at Bayview Website• Advised to use less words; more photos• Organize studies by health condition• Feedback was incorporated site
http://www.hopkinsmedicine.org/johns_hopkins_bayview/research_clinical_trials/clinical_trials/
Community Research Advisory Council at BayviewFounding Partners
Community •Angelesea to Kane Streets •Baltimore Public Defenders Office•Baltimore Guide Newspaper•Baltimore Medical Systems
•Bayview Business Association•Dundalk Renaissance Corporation•Healthy Community Partners•Zion Baptist Church
Johns Hopkins Bayview
Institutional Review Board Office of Community and Government Relations
Community Health Library Pastoral Care
Public Affairs and Communication President’s Office
Community Engagement Program
For more information contact
Crystal Evans, MS Program Manager
[email protected] or 410-550-2281