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Oxfordshire News - YoungDementia UK · PDF file · 2016-06-16new name 'The Supper...

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Oxfordshire News Issue 2/2016 EDUCATED! YDUK has been collaborating with Stockport-based EDUCATE - the Early Dementia Users Cooperative Aiming to Educate. They participated in our Tea & Talk event last July and we strengthened our links in March with Celebrate & Educate, an evening of theatre, poetry and talks, followed by an all-day workshop. We plan to visit EDUCATE in Stockport on 28 June for a networking event with groups from the area during the day followed by an evening celebration at the Stockport Plaza. March’s celebration - which also featured a short play by the HALO theatre group - attracted huge praise from those who attended, ‘An amazing evening,’ ‘A wonderful, well organised and stimulating evening – so positive! Superb performances, poetry and memories,’ ‘An inspirational event’. *Stop Press* July 21, 10.30am–12.30pm Sara Wilcox from Pathways through Dementia will be coming to meet members of YDUK to learn about the specific issues facing younger people with dementia in relation to finances and legal issues. If you are interested and able to join us in Oxford, please contact Anna Eden on 01865 794311.
Transcript

Oxfordshire News Issue 2/2016

EDUCATED! YDUK has been collaborating

with Stockport-based EDUCATE

- the Early Dementia Users

Cooperative Aiming to

Educate. They participated in

our Tea & Talk event last July

and we strengthened our links

in March with Celebrate &

Educate, an evening of

theatre, poetry and talks,

followed by an all-day

workshop. We plan to visit

EDUCATE in Stockport on 28

June for a networking event

with groups from the area

during the day followed by an

evening celebration at the

Stockport Plaza.

March’s celebration - which

also featured a short play by

the HALO theatre group -

attracted huge praise from

those who attended,

‘An amazing evening,’

‘A wonderful, well organised

and stimulating evening – so

positive! Superb performances,

poetry and memories,’

‘An inspirational event’.

*Stop Press* July 21, 10.30am–12.30pm

Sara Wilcox from Pathways

through Dementia will be

coming to meet members of

YDUK to learn about the

specific issues facing younger

people with dementia in

relation to finances and legal

issues. If you are interested and

able to join us in Oxford,

please contact Anna Eden

on 01865 794311.

2

Out & About

Tom J and Simon H headed to

Henley River & Rowing Museum

where the photo suggests that

Tom worked harder than Simon!

Tom D went with Chris to see

‘Thriller’ in Aylesbury, which he

really enjoyed - he talked

about it and sang all the

way home.

Paul dislikes crowds and busy

places so usually spends his

support sessions with Simon W

walking the dog. However,

recently they went to Oxford to

buy a birthday present for

Paul’s wife. He enjoyed the trip

and now wants to visit some

other places.

Deborah accompanies Lesley

to a singing group each week

as she loves music, and has

also helped Lesley link in with

Daybreak, a dementia

day club.

Tell us what you’ve been up to

and send in your photos!

What do you do during

your support sessions? A special feature of YDUK’s

individual support sessions is

their variety. They revolve

around your particular interests

and needs, whether that might

be sewing, singing, swimming

or shopping, gardening, golf or

even going to the dentist!

Here’s what some YDUK

members and support workers

have been up to ...

Liz‘s dementia means she can

no longer read so support

worker Liz G introduced her to

audio books and they regularly

visit the library during their

support sessions.

Paula supported Barbara to go

swimming and her confidence

has grown hugely. Recently

Paula took round some knitting

as she knew Barbara used to

knit. They are now considering

if Barbara might join a local

knitting group.

3

Getting together

Roger’s Ramblings Walk & Talks get you out

into the countryside in good

company, with

people you can talk

to because they’re

in a similar situation

to you. We stroll

no more than

three miles.

Our next walk will

be on Wednesday

8 June, beside the

River Thames, on Port

Meadow in Oxford.

On 10 August we’ll be north of

Oxford and there will be two

more walks on 14 September

and 12 October - routes yet to

be decided. Please do join us!

Roger Stammers

Volunteer

The Supper Club They say, ‘Variety is the spice

of life’! So far this year we've

enjoyed a funky jazz night,

we've had Elvis in the

building and celebrated

Easter with lots of chocolate!

We've also toasted some

wonderful fundraising

achievements.

April saw the launch of our

new name 'The Supper Club.'

We think it better reflects what

the evening is all about - good

food, music and great

company - it was never just a

Café! We marked the night

with balloons, Bucks Fizz, a

celebratory buffet and a

special cake kindly made for

us by Mary Clarke. A great

time was had by all!

We've lots more variety and

fun planned for the months

ahead so look out for details in

our monthly event emails or on

our Facebook page. Do join us

- we would love to have your

company at The Supper Club! Sue Smith Socials Coordinator

Save the Date... Friday 8 July, 12.00-3.00pm.

Annual Founders Garden Party Invitations and details will be

sent soon, but be sure to put

the date in your diary now!

4

On the spot

Simon Hutchens -

support worker

since Feb 2016 -

AKA ‘The New Boy’!

I originally trained

as an actor but

moved on to work with people

with learning disabilities for

many years, both within

education and in the

wider community.

Friends describe me as a

‘people person’ and several of

you have already shown me

around your towns, told me

fascinating stories and put up

with me taking photographs at

the drop of a hat.

As you can see I love getting

out and about with those I

support and recording our visits

on film. Tim and I especially

enjoyed this MG exhibit!

Thank you for making me feel

so welcome.

Beyond the Balcony On 8 May we returned to the

Ashmolean Museum for the

launch of our ‘Beyond the

Balcony’ digital art work.

Family and friends joined us to

celebrate our creative work.

The project gave members a

chance to learn skills and

engage with others in

something new, week by week

creating beautiful artwork,

often incorporating pictures

and places with special

personal meanings. As

confidence grew, the group

gelled, shared ideas, formed

friendships, rekindled their love

of art, and had, ‘Lots of fun.’

Anna McNally liked it! Turtle Song’s live performance

‘Music, As You Like It’ crowned

a nine-week singing and song

writing project for people with

dementia. It was inspired by

Shakespeare’s ‘Seven Stages

of Life’ speech. Each song

depicted a distinct stage in life

in the participants’ own words,

accompanied by some superb

music students. The songs were

funny, reflective and uplifting

and the group’s energy was

amazing! The Turtle Song team

hope to be back in 2017.

13 5

Have we got news

for you?

Research request The Memory Research Group, based at the John Radcliffe Hospital

is part of Oxford University‘s Department of Clinical Neuroscience.

Current projects include working with people who experience

changes in their memory due to different types of dementia.

They need people to take part in this research who are between

30-70 years old, in good health, with no diagnosis of psychological

or neurological problems, and who are not taking medication

affecting cognition. For more information contact either

Dr Samrah Ahmed at [email protected] or

Sara Bartels at [email protected]

EFID Award benefits continue Following our 2012 award from the European Foundation Initiative

on Dementia (EFID), YDUK was invited to Bruges in May for a

conference with other awardees from 20 different locations. Our

Anna’s - McNally and Eden - had two wonderful days meeting

others, sharing ideas and learning so much. In 2015, EFID made

funding available for ‘Go and Visits’ – enabling groups to develop

joint projects across Europe. Whilst in Belgium, Anna and Anna

visited a day centre with a difference – a wonderful place with a

library, garden, café and meeting rooms and were entertained by

their choir. They also visited a care home which was very much part

of the local community with a large café where anyone could drop

in for a drink or a meal, and enjoyed cakes baked by the residents!

Community Transport Dial-a-Ride is a door-to-door service for those with impaired mobility

who cannot use, or do not have access to, public transport. Aspire

Oxford runs the ‘dial-a-ride’ service in Oxford City on Monday to

Friday, 9.00am-5.00pm. Call 0845 3101111 for info or to register.

Unforgettable

We’ve recently become charity

partners of Unforgettable, a new

social enterprise company which

supplies dementia-related products that may be of interest to some

readers. You can see their range at www.unforgettable.org

6

Fundraising

Can you help? The Muddy Waters

Festival is a Family

Fun Day being held at

The Plough in Wolvercote on

Sunday 24 July. This year they

have chosen to support YDUK.

We’re planning to run a

number of stalls and need your

help to make the day a real

fundraising success. We need

Bottles for our boozy tombola

Cakes and bags of sweets

Items for our prize hampers

(smellies, chocolates or those

unwanted Xmas presents!)

Help to advertise the event

Volunteers on the day.

And of course, lots of people to

come along too! Please drop

off prizes at the Supper Club.

Summertown Cake Sale.

We’ll be back in Summertown

again with a cake stall at the

United Reform Church on

Banbury Road on Saturday

16 July. We’re looking for

people to bake cakes and

also to sell them on the day.

If you can help at the cake

sale or at the Muddy Waters

Festival please contact our

Community Fundraising

Manager Helen.

[email protected] 07479 940847

Companies supporting YDUK

We’re delighted to have been

chosen by two companies to

be their charity of the year.

The Good Care Group, who

provide live-in care services,

will be hosting fundraising

activities across the country,

whilst Kidlington and North

West Oxford Co-op will be

supporting us through their

local stores and services.

This is a fantastic way to

support YDUK – if your

workplace has a Charity of

the Year scheme, please do

nominate us.

A huge THANK YOU

Many congratulations and

thanks to Charlie Platts, both

for completing the London

Marathon and for raising over

£1,200 for us; and to Eynsham

Rotary Club who raised £750 at

their film night! A very big

thank you from all at YDUK.

7

Join our YDUK Skydive team 3rd Sept, Hinton Airfield, Brackley

Hands up ...

if you want to feel like this!

www.youngdementiauk/skydive

Hurry! Only a few places left.

Registration closes 4th June

And finally ...

YoungDementia UK PO Box 315 Witney OX28 1ZN

01993 776295 www.youngdementiauk.org [email protected]

YoungDementia UK Company No 4142850 Charity No 1085595

Frontotemporal Dementia Support Group (FTDSG) 2016

Annual Seminar There wasn’t a spare seat at the FTDSG Annual Seminar in London, and

when asked to raise hands as to why we had come it was clear that many

more people were there for personal reasons than professional. Sessions

included some absorbing talks about current UCL research, including

behavioural and neuropsychiatric changes in FTD, and emotion

recognition. There was something for everyone, but most memorable for

me was Professor Eneida Mioshi’s talk about stages in FTD, including

management tips taken from many family members. Professor Nick Fox

also did a fantastic question and answer session. The presentations will be

uploaded to the FTDSG website soon www.raredementiasupport.org

Anna McNally

Young Onset Dementia Adviser

National Young Onset Dementia Conference 2016 The second national Young Onset Dementia Conference hosted by YUDK

and Hawker Events will be held on Tuesday 27 September at the

Birmingham Botanical Gardens. A number of discounted places will be

available for those with dementia. Further details to follow.

Contact us There are lots of ways to contact us—via email, Facebook, Twitter, or of

course by phone or post. To email any member of the YDUK team, please

use the format [email protected]

Some useful contacts are

Support Service Manager

Anna Eden

01865 794311

Communications

Kate Fallows

07748 304207

Community Fundraising Manager

Helen Lerwill

07479 940847

Support Coordinator

Mandy Blair

07958 721324

Young Onset Dementia Advisers

Emeline Keown

07909 060430

Anna McNally

07852 703271


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