Oxfordshire News Issue 2/2016
EDUCATED! YDUK has been collaborating
with Stockport-based EDUCATE
- the Early Dementia Users
Cooperative Aiming to
Educate. They participated in
our Tea & Talk event last July
and we strengthened our links
in March with Celebrate &
Educate, an evening of
theatre, poetry and talks,
followed by an all-day
workshop. We plan to visit
EDUCATE in Stockport on 28
June for a networking event
with groups from the area
during the day followed by an
evening celebration at the
Stockport Plaza.
March’s celebration - which
also featured a short play by
the HALO theatre group -
attracted huge praise from
those who attended,
‘An amazing evening,’
‘A wonderful, well organised
and stimulating evening – so
positive! Superb performances,
poetry and memories,’
‘An inspirational event’.
*Stop Press* July 21, 10.30am–12.30pm
Sara Wilcox from Pathways
through Dementia will be
coming to meet members of
YDUK to learn about the
specific issues facing younger
people with dementia in
relation to finances and legal
issues. If you are interested and
able to join us in Oxford,
please contact Anna Eden
on 01865 794311.
2
Out & About
Tom J and Simon H headed to
Henley River & Rowing Museum
where the photo suggests that
Tom worked harder than Simon!
Tom D went with Chris to see
‘Thriller’ in Aylesbury, which he
really enjoyed - he talked
about it and sang all the
way home.
Paul dislikes crowds and busy
places so usually spends his
support sessions with Simon W
walking the dog. However,
recently they went to Oxford to
buy a birthday present for
Paul’s wife. He enjoyed the trip
and now wants to visit some
other places.
Deborah accompanies Lesley
to a singing group each week
as she loves music, and has
also helped Lesley link in with
Daybreak, a dementia
day club.
Tell us what you’ve been up to
and send in your photos!
What do you do during
your support sessions? A special feature of YDUK’s
individual support sessions is
their variety. They revolve
around your particular interests
and needs, whether that might
be sewing, singing, swimming
or shopping, gardening, golf or
even going to the dentist!
Here’s what some YDUK
members and support workers
have been up to ...
Liz‘s dementia means she can
no longer read so support
worker Liz G introduced her to
audio books and they regularly
visit the library during their
support sessions.
Paula supported Barbara to go
swimming and her confidence
has grown hugely. Recently
Paula took round some knitting
as she knew Barbara used to
knit. They are now considering
if Barbara might join a local
knitting group.
3
Getting together
Roger’s Ramblings Walk & Talks get you out
into the countryside in good
company, with
people you can talk
to because they’re
in a similar situation
to you. We stroll
no more than
three miles.
Our next walk will
be on Wednesday
8 June, beside the
River Thames, on Port
Meadow in Oxford.
On 10 August we’ll be north of
Oxford and there will be two
more walks on 14 September
and 12 October - routes yet to
be decided. Please do join us!
Roger Stammers
Volunteer
The Supper Club They say, ‘Variety is the spice
of life’! So far this year we've
enjoyed a funky jazz night,
we've had Elvis in the
building and celebrated
Easter with lots of chocolate!
We've also toasted some
wonderful fundraising
achievements.
April saw the launch of our
new name 'The Supper Club.'
We think it better reflects what
the evening is all about - good
food, music and great
company - it was never just a
Café! We marked the night
with balloons, Bucks Fizz, a
celebratory buffet and a
special cake kindly made for
us by Mary Clarke. A great
time was had by all!
We've lots more variety and
fun planned for the months
ahead so look out for details in
our monthly event emails or on
our Facebook page. Do join us
- we would love to have your
company at The Supper Club! Sue Smith Socials Coordinator
Save the Date... Friday 8 July, 12.00-3.00pm.
Annual Founders Garden Party Invitations and details will be
sent soon, but be sure to put
the date in your diary now!
4
On the spot
Simon Hutchens -
support worker
since Feb 2016 -
AKA ‘The New Boy’!
I originally trained
as an actor but
moved on to work with people
with learning disabilities for
many years, both within
education and in the
wider community.
Friends describe me as a
‘people person’ and several of
you have already shown me
around your towns, told me
fascinating stories and put up
with me taking photographs at
the drop of a hat.
As you can see I love getting
out and about with those I
support and recording our visits
on film. Tim and I especially
enjoyed this MG exhibit!
Thank you for making me feel
so welcome.
Beyond the Balcony On 8 May we returned to the
Ashmolean Museum for the
launch of our ‘Beyond the
Balcony’ digital art work.
Family and friends joined us to
celebrate our creative work.
The project gave members a
chance to learn skills and
engage with others in
something new, week by week
creating beautiful artwork,
often incorporating pictures
and places with special
personal meanings. As
confidence grew, the group
gelled, shared ideas, formed
friendships, rekindled their love
of art, and had, ‘Lots of fun.’
Anna McNally liked it! Turtle Song’s live performance
‘Music, As You Like It’ crowned
a nine-week singing and song
writing project for people with
dementia. It was inspired by
Shakespeare’s ‘Seven Stages
of Life’ speech. Each song
depicted a distinct stage in life
in the participants’ own words,
accompanied by some superb
music students. The songs were
funny, reflective and uplifting
and the group’s energy was
amazing! The Turtle Song team
hope to be back in 2017.
13 5
Have we got news
for you?
Research request The Memory Research Group, based at the John Radcliffe Hospital
is part of Oxford University‘s Department of Clinical Neuroscience.
Current projects include working with people who experience
changes in their memory due to different types of dementia.
They need people to take part in this research who are between
30-70 years old, in good health, with no diagnosis of psychological
or neurological problems, and who are not taking medication
affecting cognition. For more information contact either
Dr Samrah Ahmed at [email protected] or
Sara Bartels at [email protected]
EFID Award benefits continue Following our 2012 award from the European Foundation Initiative
on Dementia (EFID), YDUK was invited to Bruges in May for a
conference with other awardees from 20 different locations. Our
Anna’s - McNally and Eden - had two wonderful days meeting
others, sharing ideas and learning so much. In 2015, EFID made
funding available for ‘Go and Visits’ – enabling groups to develop
joint projects across Europe. Whilst in Belgium, Anna and Anna
visited a day centre with a difference – a wonderful place with a
library, garden, café and meeting rooms and were entertained by
their choir. They also visited a care home which was very much part
of the local community with a large café where anyone could drop
in for a drink or a meal, and enjoyed cakes baked by the residents!
Community Transport Dial-a-Ride is a door-to-door service for those with impaired mobility
who cannot use, or do not have access to, public transport. Aspire
Oxford runs the ‘dial-a-ride’ service in Oxford City on Monday to
Friday, 9.00am-5.00pm. Call 0845 3101111 for info or to register.
Unforgettable
We’ve recently become charity
partners of Unforgettable, a new
social enterprise company which
supplies dementia-related products that may be of interest to some
readers. You can see their range at www.unforgettable.org
6
Fundraising
Can you help? The Muddy Waters
Festival is a Family
Fun Day being held at
The Plough in Wolvercote on
Sunday 24 July. This year they
have chosen to support YDUK.
We’re planning to run a
number of stalls and need your
help to make the day a real
fundraising success. We need
Bottles for our boozy tombola
Cakes and bags of sweets
Items for our prize hampers
(smellies, chocolates or those
unwanted Xmas presents!)
Help to advertise the event
Volunteers on the day.
And of course, lots of people to
come along too! Please drop
off prizes at the Supper Club.
Summertown Cake Sale.
We’ll be back in Summertown
again with a cake stall at the
United Reform Church on
Banbury Road on Saturday
16 July. We’re looking for
people to bake cakes and
also to sell them on the day.
If you can help at the cake
sale or at the Muddy Waters
Festival please contact our
Community Fundraising
Manager Helen.
[email protected] 07479 940847
Companies supporting YDUK
We’re delighted to have been
chosen by two companies to
be their charity of the year.
The Good Care Group, who
provide live-in care services,
will be hosting fundraising
activities across the country,
whilst Kidlington and North
West Oxford Co-op will be
supporting us through their
local stores and services.
This is a fantastic way to
support YDUK – if your
workplace has a Charity of
the Year scheme, please do
nominate us.
A huge THANK YOU
Many congratulations and
thanks to Charlie Platts, both
for completing the London
Marathon and for raising over
£1,200 for us; and to Eynsham
Rotary Club who raised £750 at
their film night! A very big
thank you from all at YDUK.
7
Join our YDUK Skydive team 3rd Sept, Hinton Airfield, Brackley
Hands up ...
if you want to feel like this!
www.youngdementiauk/skydive
Hurry! Only a few places left.
Registration closes 4th June
And finally ...
YoungDementia UK PO Box 315 Witney OX28 1ZN
01993 776295 www.youngdementiauk.org [email protected]
YoungDementia UK Company No 4142850 Charity No 1085595
Frontotemporal Dementia Support Group (FTDSG) 2016
Annual Seminar There wasn’t a spare seat at the FTDSG Annual Seminar in London, and
when asked to raise hands as to why we had come it was clear that many
more people were there for personal reasons than professional. Sessions
included some absorbing talks about current UCL research, including
behavioural and neuropsychiatric changes in FTD, and emotion
recognition. There was something for everyone, but most memorable for
me was Professor Eneida Mioshi’s talk about stages in FTD, including
management tips taken from many family members. Professor Nick Fox
also did a fantastic question and answer session. The presentations will be
uploaded to the FTDSG website soon www.raredementiasupport.org
Anna McNally
Young Onset Dementia Adviser
National Young Onset Dementia Conference 2016 The second national Young Onset Dementia Conference hosted by YUDK
and Hawker Events will be held on Tuesday 27 September at the
Birmingham Botanical Gardens. A number of discounted places will be
available for those with dementia. Further details to follow.
Contact us There are lots of ways to contact us—via email, Facebook, Twitter, or of
course by phone or post. To email any member of the YDUK team, please
use the format [email protected]
Some useful contacts are
Support Service Manager
Anna Eden
01865 794311
Communications
Kate Fallows
07748 304207
Community Fundraising Manager
Helen Lerwill
07479 940847
Support Coordinator
Mandy Blair
07958 721324
Young Onset Dementia Advisers
Emeline Keown
07909 060430
Anna McNally
07852 703271